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9 yr old has Neurocysticercosis with single lesion

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my daughter 9 years old is diagnosed by MRI with Neurocysticercosis with single lesion in Aug. 15. she was given Albendazole omnacortil 40 mg and levipil 1500 mg per dayf or 28 days . the symptoms she had was headache, discoluration of left palm. she had finished the course and stopped. the next day after 24 hours, she had a severe fits and admitted in hospital. they have given the same medications for another one month and added frissium 10 mg twice a day and gardinal 150 mg per day. even then the fits comes slightly mouth twitching 5 to 6 times a day. but no headache, left palm blue colouration etc., hence to arrest the fits we have gone to a world famous Neurological centre in India. where they have changed the medicines to dexamethasone 24 mg per day, levipil 2000 mg per day, frissium 20 mg per day, gardinal 120 mg per day, eptoin 200 mg per day and tegretol CR 400 mg per day. after starting this fits has been arrested. But she is having severe heavy headed ness and severe headache and she became very very sensitive to sounds and shivering even if she hears a minimal sound of the fan running, closing the door gently at that time of head ache only. we are very much confused why this is happening? when taking lesser dose no headaches and no problem of sensitivity to sound. whether we can take it that the problem is healing or the medcine is not suitable or overdose. how should we take this. kindly reply to us to have a moral support. we are in a very stressful condition.


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replied October 30th, 2015
Epilepsy Answer A54610
Thank you for asking at Ehealth forum!

I read your question and i understand your concern. neurocysticercosis is a challenging illness and a serious one too. It needs a combined therapy with anthelmintics, anti epileptics and anti inflammatories for management. Some times these alone are not enough as CNS changes like increase pressure as hydrocephalus etc happens and that then needs shunting for relief. Talk to a neurosurgeon and let them decide what is best for the patient. Brain pressure monitoring is mandatory and regular follow up neurological examinations should be continued too.

I hope it helps. Stay in touch with your healthcare provider for further guidance as our answers are just for education and counselling purposes and cannot be an alternative to actual visit to a doctor.
Take care
Khan


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