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Would rather die than live with TMJ. (Page 4)


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August 1st, 2013
TMJ caused me to have Dysfunction of the Eustachian tube (ETD).

try this, put your fingers in your ears, and move your jaw up and down, now you can feel how TMJ can cause ETD

See a chiropractor, you may have TMJ/TJMD (same thing) I had it for 2 years, along with nasal/ear/Eustachian tube dysfuntion. I tried lots of different therapies and then saw a chiropractor who cured me completely! I never thought it would be possible after 2 years but it was and it has changed my life.

Seriously, I suffered for 2 years and was contemplating suicide most days, please please please, see a chiropractor, get them to adjust your jaw, and if it works for you spread the word by any means possible!

Anna
xxx
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replied April 27th, 2014
TMD
Im from the netherlands and been having quickly advancing TMD/TMJ for about 2 years now, currently i cant take it anymore and am screaming at the heavens inside my head to either swiftly kill me or cure me cause i just cant take it anymore, reading you people about the desperation to be feeling relatively normal again is something i intensely recognice.. my doctor says he cant do anything for me, my jaw specialist doctor from the hospital only offers me 'fysiotherapy' and antidepressants.. but what the [email protected]($& does that do for me.. nothing.. Im trying to not use my jaw for anything past months, ive been heating up a rag and holding it against my jaw.. but the pressure is all around my skull now.. as we speak.. i just want to take a !#$(& knife and stab myself with it right into my skull right now its that bad. Ive been in the hospital for tests at the very least 200 times now these past 2 years and some of the doctors dont even want to see me anymore thinking im crazy.. i had a bad case of a throat infection wich took 4, yes i kid you the fck not.. 4 YEARS to be noticed and treated after countless visits to my doctor.. maybe that caused my muscles to infect around my jaw? I dont know anymore.. I cant change doctors, theres no space.. and im poor so i cant afford specialists like orthodontry.. Oh and did i mention i have travelfear? I wish i just wouldnt wake up, i hate it when i wake up these days i just want to die in my sleep.
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replied June 16th, 2014
I'm from the UK, been suffering from jaw pain for the past few months (feels like forever) Had recently been to dentists and had a few fillings done so thought it may have been dental related as pain was still there on my left side weeks after the fillings and thought something must have been wrong. Went to my GP/Doctor and he said it's most likely TMJ. Even tried another privatised Dentistry for a second opinion (one with a bit of TMJ knowledge) tmj was confirmed and all of my teeth were fine. Even the one molar tooth on my left side that throbs and cannot be touched at all. I cannot eat on my left side anymore as a result of this.

I'm not a big grinder of my teeth, but I think it was brought on by a bunch of things, poor posture (sitting slouched for long periods of time), possibly clenching my teeth too much, And also one other thing that nobody here has mentioned yet - Vitamin D deficiency.

I had a blood test last year some time in the winter that came back that I had a Vitamin D deficiency and would need an injection to bring the levels up. I at the time wasnt experiencing any of the TMJ symptoms was just a checkup for something else.

I'm now gonna look in to having another blood test purely to check my Vitamin D levels and if they're still low, will have the injection and see how that goes... Hopefully will be the thing that cures me, if that doesnt then I'm really not sure what will. (read somewhere that it cured someone's TMJ before, which gives me a little bit of hope..)
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replied October 24th, 2014
Believer!!! I'm saddened by your casting judgment. This young man was suffering, reached out, found an outlet to be honest and you beat him down? I hope you have found some light since your post.
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replied December 15th, 2014
WE NEED to stand up and fight there is a drug that melts all that pain away VALIUM but they give us flexeril the shove flexeril where the sun dont shine if I get to the bottom of the Dr list and no one gives me VALIUM. I will do what is nessary and all of you who suffer, grinding your teethe away, and getting arthritus. but someone scared of the dark gets valium DEMAND VALIUM IT WORKS
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replied June 13th, 2015
I have something similar to a TMJ disorder but doctor's have confirmed it's not TMJ. Does anyone have any suggestions?

Symptoms include:

- Ear Popping

- Sensitivity to loud noises

- Pain in face when talking, smiling or laughing for more than 5 - 10 minutes at a time, the worst is singing

- Pain in face when thinking hard or concentrating

- Pressure/congested feeling in face muscles, especially jaw, cheekbones, behind ears, temples

- Kinks in neck everyday

- Pain at base of skull

- Sore shoulders/upper back

- Headaches

- Fatigue (especially in the morning)

- Gagging attacks

- Tickle in my throat

- Numbness across one side of my face and head

- Stuffed nose when lying on one side

- Blurry vision (I had to stop wearing contacts and switch to glasses)

- Difficulty remembering things

*All of these symptoms are made worse after my face has been in the water (showers, swimming etc.)

Here's my blog: mystupidfaceproblem.wordpress.com

Thanks for your help,

- Luke
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replied October 12th, 2015
These all can be symptoms of TMJ. Read my most recent post. If you have any questions email me
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replied June 13th, 2015
Active User, very eHealthy
I had to read this when i saw the title, tho i do not really have tmj nor know much on this. There was just this lady i read about in another forum who survived cancer and still living with other (Rheumatoid arthritis or something i forgot?) but who tries to encourgae others thru the pain. She would sometimes write and tell of what she learned through the pain. It is NOT easy to live with pain even a toothache can keep u awake, o whatever ache or pain when we're worried... and the pain does not always go away, but i just know she lives one day at a time, relying on God's goodness to face each day.
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replied July 22nd, 2015
I am a severe tooth grinder but I have no symptoms other than I'm grinding my teeth to the nub and eventually I will kill them. Does anybody have any opinions about what will stop the grinding best. NTI?
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This post has been removed because it did not meet our Community Guidelines.

replied August 1st, 2015
Extremely eHealthy
look on line for TMJ massage that you can do yourself. Have you all talked with your dentist as their might be an adjustment exercise that you work for you.
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replied October 12th, 2015
I had TMJ for three years before I figured out that I had TMJ. The pain was so intense I was ready to drop out of college. Then I went to a dentist who told me I had TMJ. He referred me to Dr. Clifton Simmons in Nashville, TN. I was skeptical but when I walked into his office he had dentist of the year awards all over the walls. He educated me all about TMJ and disk displacement. He even wrote the brochure that the National TMJ Association uses. Long story short he knows his stuff and he made me a dental splint. If you research tmj splint you will find many negative reviews because not all TMJ doctors are that good and not all splints are made the same. Some doctors are just plain bad. Simmons is a very good doctor. I'm 6 months through treatment and about 60% better. You can get better.
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replied April 9th, 2016
TMJ/ETD
Very late reply, but here I am in 2016 in a similar situation. I am a 21 year old college student, business major. About a year ago, I was living on campus, going out all the time, getting girls, while getting good grades, just living the life. Everything was going great. But then, I bought a salvage-title car one year and everything went wrong from then on. It had a cabin pressure issue, which I did not catch onto for a while.

One day, my left ear went completely clogged. I had no idea it was the car, so I kept driving it more and more. My ears got worse every day at an exponential rate, and the doctors did not believe me about the car and thought I was crazy. I finally found out I have TMJ, and that's why I was extremely sensitive to the car's effects (something was definitely wrong with it though, it screwed up my friends' ears for a bit too). I figured that if I stop driving the car and wear my new night guard, the symptoms will go away. They didn't. They only got worse. My ears are full, popping/clicking every time I swallow, extreme sensitivity to all noises, and tinnitus 24/7.

I also have kyphoscoliosis, and I think I may have ruptured a disk lifting weights. I have really bad neck pain, and I suspect it is blocking blood flow to my ears making things worse. On top of that, I have allergies, post-nasal drip, and acid reflux which all contribute to eustachian tube dysfunction. I can't go out to bars anymore, I am afraid of any public settings where there could be loud noises, and I can't even drive a car without feeling like I am on a descending airplane. This has forced me into isolation from the outside world and severe depression. I can't do anything. Can't even handle movie theatre speakers with ear plugs in. I have been crying myself to sleep, and had suicidal thoughts.

No one understands me either, they all just say "learn to live with it." These people don't understand how horrifying it is to feel I'll need to "learn to live with it" for the rest of my life. I have tried sinus rinses, nasal and oral steroids, anti-inflammatory medications, muscle relaxers, an orthotic for the TMJ, heating pads, steam, everything. Nothing gives me the slightest bit of relief. I don't know what to do, I don't want to live like this for the rest of my life. There is eustachian balloon tuboplasty, but there is a risk of hitting an artery and having a stroke/dying. To top it off, my Dad died recently. It's been 6 months and I can't remember what it feels like to be healthy, did anyone ever have symptoms for this long that went away? I just can't live like this.
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replied June 10th, 2016
You poor dear... I want to help you. Dont give up champion. Go on lamotrogine 100mg+ It will reduce the pain 70% out of all the medications in the world. This specifically targets the nerve pain or other pains from tmj.

Dont eat foods like burgers that are high for your mouth you need to not open too wide. Just average for a sandwich.

Cons of communicating with tmj are talking too long. Talk slow. Talking fast makes much more pain. The inability to smile so much or move the tongue. Using the cheeks and facial muscles makes muscle pain for me. Massage the neck and fix the posture. Strengthen your glutes with leg presses and do stretches for your chest and abs. Do neck exercises boxers do lifting the head on a bed stomach flat and holding it 30 sec+ parallel to the floor for posture. having forward head makes tmj worse However most cases tmj is causing forward head. Do back rows and Dont lift the shoulders doing rows. Go light!

Dont eat nuts or chewy stuff. Use heat. Not ice. Dont massage the tmj. Or masseter muscle. You will inflame it.
I know i have much more pain sleeping on my back so i sleep on my side.
There are also stem cells done in 2013 that can regrow the tmj if you have tmj loss

Natureheals89 a very big tmj sufferer found a place where thry cured him. He says "I went to Michigan for my neuromuscular dentist. He is got me wearing a splint and then I have to go for functional orthodontics."He claims to be nearly 80% pain free.


Your goal is to get pain free from splints in 3 to 5 months and then start orthodontics to fix the bite. That is what I will be doing soon.

For me I have noticed my teeth need to be in line when they make me a splint. The contact needs to be good at the molars and side teeth. Bad contact makes tmj crunching. Im from Australia and have had it for 11 years. I noticed that the mouth piece shouldnt be too thick or too short. About 0.5-0.7cm space from the top to bottom teeth. Get an anterior repositionting splint. There are many forms of them. I am currently testing this one. Its designed for sleep apnea.

My tmj specialist is getting me a nasal valve surgery. He found out I have dust mite allergies and must get immunology injections and remove all sofas that breed dust mites. Get leather sofas. Dust mite covers. And use a cpap machine 50 dollars a week with a breathe easy strip. He is right. Mouth breathing due to inability to breathe through your nose or get oxygen causes grinding and clenching. Test it. Put your finger between your mouth and sniff. You will bite your finger hard if your nose collapses and sucks in or if you cant nose breathe. I wasted my time with 2 nose operations such as turbinate reduction and septoplasty. I need nasal valve surgery to breathe.

For me to be out of pain i needed my splint to be made so my teeth are biting in line and over each other so my upper and lower jaw are in line. The upper jaw is usually infront and the lower receeding. This jams the jaw as it moves back. Make sure your day and night splint moves your jaw away from being reeceding.. Also make sure your bite is good. An open bite can be bad for tmj. You want to contact on all your teeth so the force on the disc is reduced. What we have is joint tmj. Not muscle tmj which can be fixed by robert kersteins tscan etc. He cant fix joint derranged disc tmj.

Go to that guy in michigan. Dont blow all your money. Get the splints first. See if it helps. But go see a person who makes proper anterior repositioning splints. And make sure it is a splint you can breathe with. Not one where your tongue blocks your airway. Dont get cheap splints. Get them to make digital scans of your splints so you dont lose them. Mainly your eating one.

My eating one.
imgur.com/MCXarVi

My night splint

http://imgur.com/T8yf1uV

New 2016 stem cells injections get rid of joint pain. Was on sydney aus news

In australia - derek mahoney.

In america try the place natureheals89 mentioned or dr olmos!

Help will always be given at Hogwarts.

Love u /hug Smile
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replied June 17th, 2016
11yrtmjsufferer,

Thank you so much for your response.

Update: when the semester came to an end, I took three weeks off only doing things that I enjoy. My ears felt slightly better following three stress-free weeks, which showed me that stress is exacerbating the issue. But now that I started an internship (extremely stressful), my symptoms went back to being worse than ever.

I am experimenting with valium, a great ear specialist said it can help loosen up eustachian tubes that are inflamed due to TMJ. And I will look into everything you said, although my case is different. My jaw joints are underdeveloped, about "the size of an infant's" according to my TMJ specialist. She is working to push my discs back into place.

Do you know if this lamotrogine might help with the ear symptoms caused by TMJ as well? Or does it just help with joint pain?

Thanks again, it means a lot to know that there are people out there willing to help and experiencing similar troubles. I hope you feel well.
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replied July 8th, 2016
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replied July 8th, 2016
I have successfully cured my tmj for the most part so please read this closely. You might think tmj is rare but I see it all the time. However, you won't come accrossed a lot of success. I beleive that's because you really have to look hard to find a tmj specialist. That's your best bet!

It wasn't easy for me. Mine got bad mostly because I tried to fix it myself and I kept making it worse. As I moved the socket around the muscles would tighted but I could hardly feel it because the nerves where being blocked. Mine got so bad that my eyes got blurry, they went crossed super bad I looked like a different person. Some people would say I looked permafried some said I looked like buzz light year but all I cared about was how much it hurt and how uncomfortable it made me.

See a specialist as soon as you can so that you can put this burden on their lap. For me, it wasn't just the exercises and mouth peices that they gave me it was the knowledge of what was happening. I was making it worse and worse. When my facial misalignment was being corrected it felt basically like the exact opposite of what caused it. So simple right? Basically, you can make this tmj a lot better right now just by thinking back to the night when you popped your jaw and it made your eyes flash. Focus on what your face was feeling and to fix it you need those muscles to relax the opposite of how it felt when they got tight. The pain you feel is this muscles flexing. Just like if your back hurts your back muscles are flexing.

Meditating helps physically and mentally! It would be pretty dumb to commit suicide over something that can be fixed. A lot of people feel pain and have much worse issues then tmj you could live a perfectly normal life even without curing it. Smoothies aren't that bad.

To help your posture. The key is when you sit keep your knees below your hips so don't life your legs. It allows your upper back to flex and take pressure off your kneck and lower back. Best thing you can do for now is be your own supporter. Look yourself in the mirror and say even if everyone treats me like i am an alien I like you and Iv got your back for ever! Good luck buddy!
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replied August 25th, 2016
My names Ben mccarthy I'm 20 years old, developed this problem when I was 16-17 and I'm not at the stage of wanting to end my life because of the pain and the fact I can't enjoy anything. I've found one treatment in America which my parents are being nice enough to let me try and I'm getting a splint next month. If neither of there work or even help, in going to buy some heroin off this guy and have an overdose. I don't want to do this to my friends and family but unfortunately no one understands how bad it is, how it feels, and what it does to you mentally. I can't find any help in England with doctors or dentists for a full on cure so here goes nothing. It's a cruel world we live in.
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replied September 4th, 2016
Hello, my name is Carrie. I have been suffering from TMD for 5-years now. My symptoms are headaches at the sides of my head. Pain on top of my head. Pain in back of my head. Forward head posture. Upper and lower back pain. Vertigo dizziness. Face pain eye pain eye strain. Muscle spam in my jaw and neck. Twitching under my eyes. My ears always feels full and I can't "pop" them really. My left feels like I have a balloon in my ear and I can feel more pressure and pain. It sounds weird when I talk. Not normal sounding. Still looking for a good neuromuscular dentist I live in Minnesota. Get back 2 me anytime thanks.
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replied September 4th, 2016
I have been suffering from TMD For the past 5-years. I have forward head posture. Upper and lower back pain vertigo dizziness. Pain in my face. Eye pain eye strain. Twitching under my eye. My ears won't "pop" fully. My left feels like I have a balloon in there and it feels more pressurized and it sounds really weird when I talk it doesn't sound normal 2, me. Anyone, want 2, about this with me that would be great! I live in Minnesota and I am still searching for a good neuromuscular dentist.
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replied May 14th, 2019
If you’re there I would like to talk to u... I’m in the same exact position but in 2019. I looked up how to not want to commit suicide with tmj and this is what I found. I have come to the point where everywhere I’ve been has been a lost cause. They all tell me there’s not much they can do and I’ve had mine for about 10 years. I also smoked weed and found that it made things soooo much worse for me and this past year has been the worst of my life. I can’t even get myself out of bed anymore from the pain and symptoms and I also have accumulated anxiety and a loss of all of my friends from tmj who also believe im crazy now. I used to look very good younger and never had anxiety was very happy and social and even popular growing up. When my pain started to become debilitating I went crazy for a little bit not knowing what was happening to me. Now that I know that there’s probably no hope left for me a big thing I’ve been thinking about lately is just ending it already. If you’re still out there and see this reply please feel free to contact me I really need someone to talk to or relate with so I can at least not feel so isolated anymore.
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