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want to get off Keppra & Epilum

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Had first grand mal seizure when I was 5,am now 48. Started on Dilantan and remained on that most of childhood. Remained seizure free late teens and 20s. When I was 30, we wanted to have kids so I was taken off meds. I had twin girls who are now 18 and remained seizure free till about 10 years ago when my father passed away from pancreatic cancer within 3 months of diagnosis. I had a couple of grand mal seizures which I knew were triggered by lack of sleep and stress. Was on Tegretol which gave me horrific migraines,changed to Epilum put on 10kg. The last 3 yrs I have been on Keppra 500mg (3 times a day) and then 6 mths ago added Epilum (200gm) 1 tblt at night to help sleep as having halucinations but have since noticed I have daytime auras and hear voices which I have never had b4. I used to run marathons and be so positive but since been on Keppra have become so negative and down and have no energy at all. I know Keppra has these effects. I want to get off Keppra & Epilum. Any ideas?


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replied October 9th, 2015
Epilepsy Answer A54227
Welcome to e health forum.

Since there are certain triggers that can induce seizures in your case, to avoid serious complications, accidental death, etc it would always be recommended that such patients be under anti-epileptic coverage for long durations, and in some specific cases for life long.

In addition, most medications (specially antiepileptics) that act on the nervous system will have various side effects, and based on your needs the medication can be decided. Newer medications have been developed which have better patient tolerance and lower side effects, but they can be expensive.

Consult with your treating neurologist and seek a proper opinion. If your doctor finds that your risk of having recurrent seizures is low, then he can decide to change or stop your medications.

But never take such decisions on your own, as it would be detrimental to your health.

I Hope this clears your doubts.


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