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Tourette's Syndrome and herniated vertebrae

Hi everyone

I'm not all that good with "intros" but I'll do my best to explain what is going on with me.

I have Tourette's Syndrome with head/neck jerking, noises, cursing, etc. I've had this condition since I was a small child and it has only gotten worse as I have gotten older (I'm 45 now - and male).

I was also in an automobile accident 3 years ago in which my head slammed very hard into the windshield. This, in addition to my head/neck jerks lead me to have an MRI (in fact I've had several). The findings were that I had compressed, "leaking" and herniated vertebrae.

My symptoms throughout all of the head/neck jerking have only gotten worse as well. From time to time I will jerk my head with such force that I can feel an electric "jolt" go down my spine and my head will feel really foggy/dazed for days afterwards along with tons of anxiety (I suffer from anxiety/panic attacks too).

About a week ago, I had several such head/neck jerks throughout the day as well as this tic I have where I "scissor" my lower jaw back and forth with quite a bit of force while making noises and cursing. As a result of all this, I'm guessing a nerve (or nerves) got pinched somewhere and for several days I experienced tremors and muscle twitches in my lower jaw and lip. (very scary!). Also, ever since that day, my brain/mind feels spacey, dazed, soupy, foggy, syrupy, zombie-ish, lots of anxiety, nervousness, fatigue, some light-headedness, insomnia/early wakening, etc. Finally, it felt for at least 3-4 days like I was breathing underwater and at one point I had a hot, shooting sensation travel down the back of my left leg.

I'm just wondering if anyone here can relate to any of this or if anyone here has every experienced any of these same (or similar) symptom as a result of cervical nerve impingement, etc. I really could use a friend right now because this is scaring me and I need some reassurance.

A few details about me...

I have a history of anxiety, panic attacks, OCD, depression (but I don't currently feel depressed), Tourettes (with head/neck jerking) and lots of allergies. I'm also a reformed alcoholic. I am 45/male non-drinker/non-smoker but did used to drink/smoke.

I have been taking Ativan for many years for the anxiety/panic attacks.

I guess that's about it for now.

Thanks so much, Steve
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replied October 5th, 2008
Extremely eHealthy
Sounds like your best bet is to start with your doctors that treat you for Tourettes and then go from there.
You may or may not need to see a spine surgeon for evaluation.

It wouldn't hurt to have a spinal MRI though and see if anything is going on.

Good luck and let us know what the doctors say.

Fran
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replied June 26th, 2009
GOD I FEEL FOR YOU, I HAVE AN 8 YR OLD SON WITH TOURETTES, NOT AS BAD BUT HAD MANY TIC AND OTHER STRANGED THINGS. I PUT HIM ON A REGIMINE OF DIGESTIVE ENZYMES, PROBIOTICS, COMPLETE ANTIOXIDANTS( NAC, ALPHA LOPOIC ETC.., MERCURY CITRATE, AND SUPPLEMENTS AND VITS (NO COPPER, IRON ()HIS BLOOD COUNT WAS LOW)_ HIS LIVER ENZYMES WERE LOW) ... WHAT A DIFFERENCE AFTER 1 MONTH. NOT SURE IF THIS WOULD WORK FOR YOU BUT MAYBE WORTH A TRY IF NOT ALREADY DONE SO. GOOD LUCK AND PRAYES TO YOU.
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replied November 19th, 2009
I don't know if you are still around, but I am literally going through the same thing right now, except my car accident was about 8 years ago, I'm 23 years old male, and these symptoms have similiarly been creeping up on me in the same regions and same mannerisms
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replied January 31st, 2010
dandymandan - I posted this a long time ago and by sheer coincidence, happened to stumble on it again just now while doing a Google search. My Tourettes is worse than ever and even Clondine did not help. I have taken Klonopin in the past and it has helped so I'm going to be asking my doc for some the next time I see him. God Bless.
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replied January 31st, 2010
Extremely eHealthy
jumpingjax

do you know that electronic stimulators have been found to help tourettes.
also keep an eye on stem cell research as it is moving quickly and may provide a solution for you.

pete
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replied September 21st, 2010
Tourettes
I recently just found out last year i have tourettes syndrome. Since an early age i can remember me making strange noises eg Sqeeking and also making strange movements eg swinging my arm while making a noise. Over the years it got better throughout my teens. Until around the age of 16 i started to get a twitch. I am not 22 and still have this terrible twitch. it is uncontrolable when i am around people and it is when im around people i do it most as i know i need to try not to which makes it worse. i am good at hiding this and everyone just thinks i have a 'tired' twitch.

The past year i have started having vocals. It was actually when the vocals started i actually went to seek medical advice from a neurologist and that was when i was properly diagnosed. I find my vocals mostly happen when again i know there is people who can hear me. The past month i have been stretching my neck constantly which has been putting strain down my neck and back. I have also been chipping my teeth. i constantly grind them and i have a lot of chipped ones now as well as bad constant toothache.

Despite all of this i am very much the socialite. I have lots of friends who would describe me as the crazy one and the one who has most fun as i dont let it get in the way.

Unfortunatly the past 2 weeks i have been having occuring panic attacks. This is my first experience with them. Eg i was on the subway yestarday with a friend for the first time and i freaked out in front of everyone and had to run off it. Later i was at a concert and freaked out again when queuing for a drink!!! Then again today i freaked out in the taxi. I really hope this passes as i now am starting to get scared about going places. Has anyone had these experiences??

Charlotte
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replied November 18th, 2012
I am a 23 year old female, and was diagnosed with TS when I was 14. I also have issues with depression (though not as much anymore) panic attacks, social anxiety, and OCD. I have many vocal tics (no actual words, just barks, chirps, whistles, grunts, etc.) But the worst of it is the motor tics, I do a lot of neck, shoulder, back jerking. I am in constant pain and have found little relief in physical therapy and visits to the chiropractor. I also do a weird stomach rolling that can make me nauseous, which can make it hard to eat until I am full. I sometimes jerk my jaw so hard (It's like I momentarily dislocate it, though it probably just feels like it) I have trouble chewing for days.
My first full-blown panic attack happened just a few years ago and a block party. It was so severe that as I was trying to make my way to a bar with a bathroom, my vision clouded over like the static of a bad tv channel, there was ringing so loud in my ears I was practically deaf to the world, and my whole body had the sensation of tingling that occurs when your leg falls asleep. I ran into a table and knocked over two chairs, and ran into many people. They all probably just thought I was drunk. I had to go into the men's bathroom because my feinting couldn't wait in line for the girls. I spent about 15 min splashing water on my face and arms until I could go out into the world again. Since then panic attacks have become almost frequent, making me fearful of going out in public.
I also suffer from IBS, don't know if there is any relation to the TS, but it is all a rather awful circle, one disorder feeding off the other. Stress makes for worse tics, worse tics make for nausea and pain, which worsens the IBS. Which in turn makes me more anxious/stressed, and the circle continues. I've been prescribed Geodon, Risperdal, Chlonodine, Effexor, and many other I cannot remember the name of, and either they didn't help at all, or the side effects out-weighed any benefit. I feel for everyone else dealing with similar issues, stay strong!
-Jennifer
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