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Worried Sick About My 3yrs Old.. Any Advice Would Be Helpful

Hi!

My 3yrs old boy develloped weird symptoms about 1 year ago. It all happened over a weekend. He was starting to tilt his head and look downwards all the time. We brought him to emergency and doc said he was fine.

After a few visits and a lot of observation on our part. We realized that his left eye will go up and the right eye stays fixed when he looks up to the left. It is a form of strabismus called Brown syndrome. Kids are usually born with the however he wasn't.

The eye specialist said she will monitor situation. Fast forward a year and specialist says that he is tilting his head more. I don't think he is but she said she notices it more. He tilts his head to adjust the way he is seeing. Anyo, she thinks thought this warranted an mri.

What I am really worried about is that recently he complains about head, cheek and eye pain when he gets upset or cries. I wonder why it only happens when he starts to cry or get upset. I haven't even had the opportunity to tell the specialist about this yet. The mri was last weekend. ugghhh I am just worried sick. Besides that, he is a very healthy boy.

Will they call you quickly if there is anything wrong or showing on the mri results?

Something else that is completely strange is that I had trigeminal neuralgia. I had surgery for it but it is so weird to hear him say he has cheek pain. I know trigeminal neuralgia is not hereditary. Anyways thanks for listening and reading my post.

Joanne
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replied July 9th, 2007
Especially eHealthy
Oh my god... I swear I saw a program about this on discovery health or something like that. I'm sorry I'm not much help... But the boy's symptoms sound identical!
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replied July 16th, 2008
I know you posted like years ago but I just read his symptoms and then read Tylanas post and saw the saw show and was thinking the same thing. There was a show on some boy that had identicle symptoms and I cant remember what he had but if you have not found a diagnosis look for the transcript on the program from discovery health channel and you will know what we mean
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replied July 23rd, 2008
I dont know if you have found an answer but the show said the boy with the same symtoms had a problem with the tendens in his eye. he had to have sergury and he was fine. but I would also look in to problems with torticals in his neck.
Im sorry about my spelling good luck and I wish you the best.
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replied August 27th, 2008
I doubt she is still using this site, but if anyone else is wondering the boy on discovery health had fourth nerve palsy, you can tell if a kid has fourth cranial nerve palsy by putting a patch over their eye. If fourth nerve palsy is causing the head tilt, they will hold their head straight, as they will no longer be trying to compensate for their vision problem.
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