I had meningtis when I was a teenager. After getting out of the hospital I starting having severe migraines and spent the next 6 months visiting specialist to figure out what was wrong with me and how to control the migraines. Has anyone else ever had this or heard of it as a side effect. It's been 13 years since I had meningitis. I also ended up with a food allergy after having meningitis. The food allergy is actually the trigger for my migraines.
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First Helper giangreggorrio
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replied March 27th, 2009
Pain in my Head
I had meningtis (meningaccocal septacemia)about 6 years ago.I still have reaccuring pain in my head, in the same place a had the pain when i was so ill (its like a stabbing pain, just in one place. I am so forgetful all the time. Since my i llness i have now an under active thyroide, i dont know if this is connected! I have found this site really helpful, just reading other peoples experiences.
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replied April 1st, 2009
Life After Meningitis
3 years ago this month I was very ill with meningitis and I still suffer on occassions with great pain in my head, I am very forgetful and I am unable to concentrate for long periods. My family and I feel that I should be over this by now and it has got me down - since finding this site I now feel I have a better understanding of this illness and how it affects each individual differently and I know I have been lucklier than others which I am grateful for - I would like to know ways of helping myself to cope/deal with this better, and ways of knowing if/when I'm getting better are there any medical tests available for people like me
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replied April 3rd, 2009
Meningitis and Migraines w/aura
At age 3 I had meningococcal meningitis. The first migraine I can remember was at the age of 10. I am now 29 yrs old and still get them. Could this be from the meningitis I had as a child.
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replied July 31st, 2009
I went to Mayo clinic in Rochester MN to try to find answers concerning recurrent viral meningitis. I have had meningitis three confirmed times with hospital stays each time. Severe pain. Scans, MRI's, blood serum, angiograms all negative. With this I also have chronic migraines. Mayo clinic linked my meningitis to the migraines. It is rare, but there are confirmed cases. The key for me is to stop the migraines, and therefore stop the meningitis. I have exhausted Neuro's and internet searches. Best outlook for me is to keep my bag packed for the next hospital stay. There is no cure for this. There are no specialists.
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replied July 31st, 2012
migraine + meningitis
wow, this is the first time I know of anyone else having recurrent meningitis.I'm 57 and have had 6 cases (the first actually equine strain encephalitis) of confirmed viral meningitis. I started getting migraines 15 years ago. very rotten business and I feel for you. I did knock down the migraine frequency to once a month (or 3 in two months) and duration from several days to 2. Magnesium, 400 mg riboflavin, and progesterone cream, are minimum requirements now. And of course I really upped any supplyment that increases immunity (vit c, garlic,good vitamins, enough sleep, and good food)
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replied May 9th, 2011
I had tarted having migraines in my 30's and had meningitis at age 16 (bacterial) I think it is related. I never noticed being forgetful until I took Topamax..for prevention.
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replied September 28th, 2011
I take propanonol for migraine daily therapy and love it. I tried to take Topamax and it gave me a bad reaction. I have tried all the other meds too and I was really tired the next day. Ask your doc about propanonol. It does lower your blood pressure too so look at that as well. Good luck!
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replied June 25th, 2011
I had bacterial meningitous when i was 16 and now am in my 30;s. I had the extreme pain in the head and rash. At first the docters kept asking if i was sexual active and that maybe it was linxed to that. After a painful spinal tap it was confirmed bacterial meningitous. I was hospitalized for a week and then continued with home care for another week, i never had headaches before hand but i find since the meningitous i have severe migraines normally on my right side. The doctor says it has nothing to do with the meningitous but sometime I wonder if they are linked. I am now getting the migraines on the right, they go away and within days the migraine moves to the left side and eventually all over.
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replied September 29th, 2011
I had meningitis when i was 7, both viral and baterial, one after the other, it's 12 years later and i still get migraines and right temple pain now, the doctor said theyr not linked but i had severe migraines while i had it... just living with it since the drug they gave me made me fat and depressed :S
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replied October 3rd, 2011
I had viral meningitis when I was 12 and at the age of 16 I was diagnosed with chronic migraines. I was curious if they are in anyway related.
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replied October 25th, 2011
Migraines as a result of viral meningitis.
Hi fellow survivors,
I had viral meningitis in July 2010 and was in hospital for 10 days. Until recently I thought the only side effect was an my inability to recall common words, which only happens occasionally. BUT I was released from hospital yesterday after being admitted for 12 days with a chronic migraine. It was almost exactly the same symptoms as the meningitis. The neurologist that saw me said he believed that it was directly linked to the trauma to the brain last July. He put me on a low dose of endep every night which is meant to act as a preventative. wish me luck with that!!!!

Quick question: does anybody know of good websites about migraines and treatment etc, you google and come up with thousands so.

Hariel
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replied February 7th, 2012
chronic daily migraine after menningitis
Dear Hariel,
I am just now finding this site and your post. I had viral meningitis from the Flu in Feb.1997. On Sept 29,1999 I got the migraine from hell and have had maybe 20 migraine free days since. I had the "million dollar" work-up- all negative. My husband is a board certified family physician and a fellow with the AAFP. He was convinced that there is a connection, altho the neurologists don't think so. I've been to Thomas Jefferson Headache Clinic in Philadelphia where the hyerspecialist couldn't help. Everything works for a few weeks or months and then stops working. The triptans gave me stroke-like symptoms, so I can't take those. We did hear one Neurologist lecture on headache and stated a very definite connection between history of menningitis and chronic daily migraine, but offered no real helpful treatment.

I stay active and functional and happy despite the pain that would stop most people only because I have no choice, and I know I am blessed with a wonderful husband who would move heaven and earth to relieve it if he could and two great children( now adults ) who are the joy of my life. I love my God with all my heart and have a deep abiding faith and hope in Him.

I KNOW there is a connection between menningitis and daily migraine- I am proof. I also know that it is possible to deal with it- I am proof of that, too. I will pray for you and others who suffer as we do.

Melanie
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replied August 14th, 2012
Melanie,

Thank you for sharing your story.

In 1999 I also had viral meningitis and my first headache from "hell". From that day until now I've had only a handful of days each year where I've been migraine-free. I have an incredibly supportive husband and 3 wonderful children who keep me going everyday. I pray for the day that my head will no longer be in pain. But after years of seeing every doctor, specialist, and everything between I have accepted the fact that pain is a part of my daily life. I thought I was alone in this journey... I'm sorry you're going through this too but it's also nice to know someone understands my world.

Again... Thanks for sharing..,
Alisha
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replied January 7th, 2013
My wife has just finished her 2nd issue with meningitis and ever since her 1st one in 99, she has migraines daily. Most times they are controlled by Butterbur (natural stores carry this) and when it gets real bad, she uses Excedren Migraine. She is worried that her stomach is going to ulcer with constant doses, so we have looked for other options. The doctors thought at first that it was hormonal, so she underwent a partial. That didn't help! Then she went to a pain specialist, who referred her to a neurologist. A botox shot to the base of the skull took the pain away for about a week. We are lost and just need to find something for her. I didn't realize this was such a major problem. It makes staying employed a difficult task too when you can't be out in the light or can't stop vomitting.

I too am glad to see that this isn't an isolated incident. Please keep me updated as to any break throughs you have. Butterbur, Spark with O2 Gold and rehydrate also work if you have a friend that sells Advocare. We have been using it since 2008 and it helps, but they never really go away.

Good Luck!

Mike and Lillian
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replied February 24th, 2012
Link between Migraines and Meningitis
I just found this website and I too had both bacterial and viral meningitis. I spent 7 days in intensive care for the viral meningitis and almost died. I was 19 at the time and 26 when I had the bacterial meningitis. I have suffered from migraines from the time I was 26. It never even occurred to me there could be a link. Does anyone know if any studies are done to confirm the link? I have at the least 2 migraines a month if not more.
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replied September 16th, 2012
Experienced User
Hi all. I had aseptic meningitis where they could not find a cause. I too almost died & my life has never been the same. I just wanted to say that now after 11 years of searching for answers to all the crazy symptoms I've had, I finally had a doctor who by chance tested me for a specific co-infection to Lyme disease caused by a tick bite. The infection is called human monocytic ehrlichiosis or ehrlichia chaffeenosis and all the symptoms fit the intense meningitis I had. I had a severe migraine and spinal swelling every day for over a year and then it slowly tapered off after that over another year. If I didn't find a compassionate doctor to address the migraines, throwing up, nausea, and pain at the time...I wouldn't have wanted to live; it was that bad. I've had long lasting affects from the infection that the doctor said turned into Fibromyalgia, but really was from the Lyme disease. I am on a complicated protocol of antibiotics and supplements. I didn't get better because I wan't treated long enough with an antibiotics at the initial hospitalization. Many of my neurologic symptoms have disappeared with the right treatment although I still have symptoms I'm trying to manage.
I just thought I'd post my story in case anyone wants to consider the possibility that their meningitis may have been caused by Lyme or a co-infetion. Lyme is called the great imitator because it can mimic many other diseases. It can be misdiagnosed as MS, ALS, tumors etc. on MRIs. If you are interested in exploring more info on Lyme, you can private message me. 50% of patients do not remember a tick bite, nor a rash like myself. Getting the right tests done are really important as most of the tests doctor use today are not accurate enough, so getting treatment by a Lyme literate doctor is essential and testing from the right lab. It may be a long shot, but maybe it's a possibility to look into. Best wishes.
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