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Please Help-double Vision, Inability to Walk, Slurred Speech

10 weeks ago my Mother was sent to the hospital b/c she was unable to walk, had double vision & slurred speach. She is 62 years old. Her symptoms lasted for about 4 hours daily during the same time period--in the morning from about 10 to 2. Afterwards she was fine, just exhausted. The first several days the symptoms seemed to get worse. By the 3rd day she was convulsing if upright. We started to turn down the lights and stay really quite during those times. She stopped convulsing and seemed to improve somewhat. She stayed in the hospital for 5 days and left after having one good day b/c she was simply tired of being in the hospital. She was tested for many things (supposedly the "million dollar workup") and had mris, ct scans, blood work, eegs. Everything came up negative. The neurologist said he ruled out ms and myastania gravis (which were concerns). He concluded that it was a neurological virus. Once home I took her her opthamologist during an episode. He said he could see the delayed reaction time of her eyes and could not explain it. He did say it was neurological in origin. We then got a second neurological opinion. I did not go to that appt but my sister said that the dr said it could be caused by stress. At home she took it really easy, stopped going into work early but continued to work the next week once her vision got better. She did say that she was really tired in the morning and that if she had symptoms that it was still during that same time period. Yesterday she was taken by ambulance to the hospital and she was exactly like she was 10 weeks ago. She couldn't support herself with her legs (although she can lift them if she's lying down), she had double vision, slurred speech and was "out of it". The ER doc said all tests came back negative but did order a spinal tap (which hadn't previously been done) for an MS panel. By 2pm she seemed fine (as usual) The ER doctor tried to send her home but we insisted that she stay and be observed in the morning for possible reoccurrance. Also, that would allow us to see the Neurologist on staff at that hospital and get another opinion.

history: My mother was diagnosed with epilepsy about 20 years ago due to descriptions of seizure like activity. She said she had "black out periods", which would last quite a while. She said she would "wake up someplace and not know how she got there". It is my understanding that the epilepsy was never substantiated with an EEG. She has, however, been on medication for the last 20 years. My mother told me she was told that she was having petit mal seizures. She also has been the sole caretaker of my grandmother who had alzheimers for many years. My grandma passed away this last December. She also works about 60 or more hours a week. She is a funeral director. She is an extremely kind soul and hard worker.

The neurologist who was following her for many years (not the one who previously diagnosed her) passed away suddenly. I don't think my mother had an eeg with that doctor. My mother is very defensive about her "epilepsy" as I believe she was happy to have a diagnosis, which is completely understandable.

SO, here we are now. She is so pathetic I can hardly stand her episodes. We love her so much and don't know how to help. We will try doctor #4 hopefully today. I was told by a work fried of hers yesterday that she appeared exactly as his son did right before he died. His son was a Chemist (I believe) at Bayer who could not find an answer to his health issues. They assumed it was a reaction to chemical exposure. It took the Medical Examiner 8 months post death to give the cause as "non-specific epilepsy".

All that being said, her episodes do seem like long seizures but her EEGs have been normal. She is currently taking Lamictal (300mg in the am and 200 mg in pm)& Carbitrol (300mg in am and pm)

I was also told by a friend that she was diagnosed with an anurism finally after being told by many doctors that they couldn't find anything. She searched for the finest neurological hospital and ended up in New York. They finally diagnosed her with an anurism. They said it was small in size and bleeding slightly and that it didn't bleed all the time which explained that her symptoms were reoccuring.

HELP please.
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replied June 9th, 2007
Extremely eHealthy
I'm sorry that your family has had to go through this. It must be so overwhelming to have no one be able to give you any answers.

Your family has done everything correctly. It looks as though she has seen who she should and has been through alot of testing. You mentioned an mri, but do you know if the performed and mra? This would help in diagnosing or ruling out an anurism. (which you mentioned) You may want to suggest seeing a cardiologist or even an endocrinologist.

I hope you find the answers that you are looking for soon. Please keep us posted.
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replied June 9th, 2007
Supporter
Hi
8 years ago I was rushed to the hospital for "blacking out". I had a leaker (cerebral aneurysm). For weeks and even maybe months before, I was sluggish and tired, had dizzy spells, although I don't recall any double vision. Had MRI and CAT scan done and the aneurysm was found. It was bleeding into my brain and a caniotomy was performed. I have a clip in my head holding it. The MRA Mc4ever02 suggested is crucial for determinging this! 8 years ago, no one thought of this and thank GOD the MRI or CAT scan caught it. I too would suggest looking into a heart specailist. You mom sounds as though she is having mini strokes. If this were neurologically related, why has someone not pin pointed a specific area or factor? Please keep us posted and will say a special prayer for your Mother! Smile
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replied December 16th, 2009
Try Cranial Sacral or Bio Cranial therapy...should have a therapist for this in your area.
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replied March 25th, 2010
ANY NEW INFORMATION???
My mother is having these symptoms almost exactlty. Blurred vision, not able to walk, disorientation and numbness in her arms sometimes. She has been to the hospital 3 times in the last 3 days... i am not going to go into all the details but I will say that her symptoms are EXACTLY what is descibed above, right down to the time of day they happen. I see that you posted this in 2007 - PLEASE - if you have any information that may help me, please write me me. I am scared to death.
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replied August 15th, 2010
If anyone reads this post and they have a loved one who is experiencing similar symptoms as explained above then you should test for Guillian Barre Syndrome. This syndrome has many variants and the one my dad has is Miller Fisher. This caused double vision, slurred speech, inability to walk, breathing issues as the days progressed before they diagnosed his condition. They found out that he had this syndrome after they tested his spinal fluid. Further tests revealed that he had the Miller Fisher Variant of Guillian Barre Syndrome. He is currently being treated for this syndrome and we are waiting to see how he is going to react to the treatments.
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replied April 11th, 2011
something you might want to check out -- it may or may not help--post-strange problem dealing with sleep disorders--seizures--black outs--epilepsy--?
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replied August 1st, 2014
check out cataplexy. leep disorder
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