Medical Questions > Conditions and Diseases > Headache and Migraines Forum

Transformed Migraines Not Responding to Treatment?

I get transformed migraines; mild, moderate, acute... With a variety of symptoms. Nausea, numbness in face, hands, arm, tingling in face and hands, aura, hearing loss or buzzing, a lot of light sensativity... And so forth. Some are more common than others and certainly they don't all accompany each migraine. I get roughly about a week to a week and half of migraines a month. I am on topamax 100mg, inderal 160mg, zopaclone 7.5 mg (for migraines due to lack of sleep), and a water pill for 7 days out of the month. Imitrex shots are my abortive.

I have now had 15 days straight of migraines which in-itself is not entirely uncommon. But they were very acute, very much motion induced pain to the extreme and did not respond to my imitrex at all. I was unable to see my doctor and a substitute doctor gave me codeine which was utterly useless in this state and not sure why he thought a pain killer would be any use at all. I went to the er and they gave me toradol, which was very slow to work, did not entirely do the trick, and the migraine came back full strength again. What concerns me is the added symptom of muscle twitches that began to occur and occured for the duration, mostly in the neck and my arm, which was unpleasant since I was trying to keep my head as still as possible and it kept twitching. My second inevitable er visit was somewhat more successful, not sure what they gave me but they at least hydrated me and gave me some sort of abortive, I believe an ergotamine... Made me ill to the stomach, but killed the migraine for a day and half. Still came back strong in the evening after. But since then it has been mostly mild to moderate.

I am wondering why these would have been so severe in nature and why my abortive, which was entirely effective would not work at all on them. I have had abortives quit on me before, but not that rapidly and imitrex was working quite effectively before these monster attacks hit me. I thought it was possible the twitching was due to dehydration until it came back with the migraines immediately, so now I am not sure what that is about. I have a doctors appointment coming up obviously, since this caught me quite unprepared and I would rather it not happen again. I have no secondary medications to handle that kind of pain if mine suddenly fail on me. But I was wondering if it would be a good idea if I asked her to send me back to the neurologist? Or is this not unusual?
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replied September 2nd, 2006
Migraines
You need a neurologist! Is a regular md treating you?!? Please tell me they're internal medicine. You need a very good neurologist and one who specializes in severe migraines! As soon as my regular md thought I had migraines he sent me to a neuro. It's insane today how doctors try to treat patients that should be treated by specialists. Have you tried anything besides topamax?? I couldn't even take topamax. Your migraines sound similar to mine, but mine were rarely every day. They would last for apr. 8 hours on the dot.
Their are lots of med's you could try as a preventative. I feel soo sorry for you. I don't know how you can keep your cool. I'd be a mess if I were you. Do you have a job? Can you function? I know I couldn't when mine were at the worse. Mine are very under control right now but I have flare up's every once ina while.
Look for a good neurologist in your area.
Have you had a rescent mri or cat scan???

Good luck
krystle
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replied September 2nd, 2006
I am treated by a regular md. I only saw the neurologist once and he put me on the topamax. But I have been on many different preventatives with topamax or by themselves and it does not seem to make much of a difference, although without topamax I get more frequent migraines and geater visual auras.

I do have a job, 31 hours a week, but I have been either leaving early or calling in sick. I have been on medical leave for my migraines before and I really don't want to go there again. That, however, was due to daily migraines, my abortive quiting and no affective preventatives. Not this aggressive whatever it is migraine.

My last cat scan was at least two years ago and I never had an mri. The cat scan was right before I went to see the neurologist. I hope I can convince my doctor to send me back to the neurologist because I think he would be more helpful and there is a migraine specialist three hours away from here... But these are all based on doctors referal, so I have to convince her first. Can there be any doubt though? If next month is like this I am not sure what I will do. I am not even sure why it was so bad in the first place. Usually you are right, these types of migraines don't usually last more than 8-10 hours, not weeks.
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replied September 6th, 2006
Went to the doctor and she said I had had a status migraine. And the only thing I could have done was go the the er to get the dhe iv. Which she said is what I have to do if it happens again. And I am not sure why it would have happened in the first place. With all my treatment, one would expect improvement not a state where I am status magraine, which had I not gone to the er could have been dangerous. At least that second er visit where I was hydrated and get the dhe worked. I am only getting my usuall moderate to actute migraines now; responsive to treatment... Still a very long migraine cycle when you include the satus migraine into it. She upped the dose of one of my meds. Still I can't imagine next month will be like this. Status migraines are rare. And although it scares me a bit I got to that point at all, I don't think I will again anytime soon.
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