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Pleurodynia Or Bornholmes Disease (Page 1)

I was first diagnosed with bornholmes disease when I was about 18. I am now 38 but no doctor since had heard of it. I attended a hospital casualty with severe chest pain (cramping and unable to get a breath). At the time I wasn't give any medication and told it would clear up. However I still get the odd attack now and again. Perhaps every couple of months..And it lasts for a few days and then goes away. Why does it re-occur?
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replied January 8th, 2004
Pleurodynia
I was just diagnosed with this a few days ago after two solid weeks of intense pain and several different doctors. I'm 43 and never had anything like it before, and was disappointed to hear from your story that it might recur. The doctor who diagnosed me said the old nickname for it was "devil's grip" and that accurately describes it. The only treatment is time, and pain relievers. My doc will rarely prescribe anything more than ibuprofen but gave me darvocet to handle this. There's a ton of info on the net about it, more easily found under pleurodynia than bornholme's. I don't remember seeing anything about it recurring as often as you get it. You have my sympathy!
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replied February 23rd, 2004
Pleurodynia
I have been told today that I have this.I had been to seven doctors and had several test and today after six months I have found out what is wrong with me.So far I have found more info on this site then any other I have not been looking long although it is a pain in the arse I am always holding my side I did have a lot of reflux problems in my life now they seem to be gone but this has developed wow.
Does darvocet take it away if so I will try it I have had it for six months
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replied February 24th, 2004
Your Diagnosis
Sorry to hear about it. That's a long time to have pleurodynia. I don't think I read anywhere that it takes that long to go away, although it can go away and recur. I too was walking around holding my side, and there were nights I couldn't lay down on either side, even though the pain was on my left. Darvocet definitely helped with the pain, although it made me too nauseaus to continue taking it. I finally got rid of it after about 6 weeks, and was using mainly ibuprofen to control it. Large doses. Feel free to contact me at shamrock823 at hotmail dot com if it's easier.
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replied December 2nd, 2005
G'day
Well, perhaps I can help a couple of you....

I've just this night been diagnosed with bornholmes, and luckily, my doctor picked it up straight away.....

For the last two days the pain has been getting worse till it became so bad I could barely move...

Anyway, i've been presribed codeine phospate (30mg) plus ibuprofen (400mg) 3x daily.

Now, less than 2 hours after my first set of tablets, the pain has eased considerably, to the point where it's now managable

hope this helps some of you....



Best of luck
scott
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replied February 24th, 2006
Hey, I work in a health care clinic and have been informed of an indian herb called 'andrographis'. Instead of masking the pain with painkillers, this is said to be a cure for bornholmes. We've had great success with a few of our clients who have come through with this same disease. Hopefully this helps you all.
Sakara
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replied April 2nd, 2006
Bornholmes, Costocondritis
Four months ago I was diagnosed with either costocondritis or bornholmes the doctors finally deciding on bornholmes. It was after having a cold/slight chest infection and then having constant pain in my chest (left hand side) for 5 weeks. I was admitted to the er as the pain became unbearable and under went tests, chest x-rays and ecg initially for a blood clot in the lung. I was simply given 'co-codomol' and told the disease would disappear of its own occurance. This week I have suffered a big attack. It affects my speech and co-ordination and I have large swelling in the upper part of my left chest. The pain killers I was prescribed dont touch the pain this time. So I am looking for an alternative!
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replied April 3rd, 2006
Hi, my grandmother was diagnosed with the same thing. And I thought I may be able to help some of you. For the past year she has been taking these products called tegreen and lifepack. Since she has been taking it she has been feeling a lot better. She has more energy, and her immune system seems to get stronger and she does not get as ill as she used to be.

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replied June 6th, 2006
Ive Just Got It Why?
Why have I got it I went to the doctors and he said it would be gon in a few days but people have mentioned that it has lasted longer than that and reoccured what shpuld I expect?
Please help
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replied July 28th, 2006
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replied September 25th, 2006
I Have It Aswell I Htink
Hey im a 16 male and I think I have this problem, I have had it since a very young age and I never went to a doctor about it, I get the pains on the left side and when I breathe, the pain gets worse, I have a feeling I should go to the doctor asap but I dont have anything symptoms that devils grip has like fever or sore throat as im writing im trying to not breathe and its pretty bad, when my parents got divorced the pain came the next day so it might be to do with stress but yea....Better go see a doctor...
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replied January 3rd, 2007
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replied June 10th, 2008
Bornholms Disease
Hi there, I was diagnosed with bornholms disease on the 23/05/08, I am 29 years old. The pain was first a sharp stabbing pain in my left side of my rib cage. The pain has eased off slightly but I am still suffering from it 3 weeks later. All the doctor gave me was anti-inflammatories. This disease is really making me miserable, tired, depressed and giving me constant headaches. Now I understand why it is call the devils grip. What should I do to get rid of it, is it caused by stress? Sad
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Users who thank nat001 for this post: scattycat 

replied September 25th, 2008
a big thankyou 4 info
nat001. i want to thankyou for setting me on the right path to investigate this painfull condition. i've only just heard of it through a friend who has just been diagnosed with it. if you ever hear of any new treatment please let me know. and vice versa for you. i hope you are feeling better and not in so much pain. take care and thankyou for sharing your difficult times. it takes a strong person to share this with others, so again THANKYOU.
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replied November 24th, 2008
Bornholmes Disease
Hi, it's such a relief knowing that there are other sufferers out there of this dreadful disease. I became ill in 2004 and after being referred to many a specialist, my GP eventually sent me to a neurologist, believing that it was a neurological disorder. After being admitted to hospital the neurologist had several test done on me, MR / CT Scan/ Lumber puncture and was totally baffled that the outcome of all these test were negative. He did not know what was causing my pain and as a result did not really know how to treat it. You can imaging my frustration, because 4 years down the line and I'm still in the "devils grip" I was back in hospital in March this year and still no joy as far as a diagnosis was concerned. I was then further tested for diabetes and TB - test negative. The pain is so excrutiating that I want to pass out and worst of all - it did start in my left side but has no also moved into my chest area. I had a severe attack about two weeks ago and thought I was having a heart attack, so I know what you're all going through - I'm in South Africa and although our medical professionals are very knowledgeable I really have come to the end of my tether, because this pain can hit you at the most unexpected times and doesn't make for very good driving at times - IS THER NO CURE FOR THIS VIRUS - NO MIRACLE PILL FOR THE SYMPTOMS - Please advise and good luck to all of you who are in my position - you're in my thoughts
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Users who thank LWD0908 for this post: pigsrule 

replied January 11th, 2009
Bornholmes Disease
This site has been the most helpful thing I have found on line! I went to doc's about 4 months ago and the doctor insisted that I had cracked a rib, the pain got so bad that i went back and sew a different doctor who said I had Bornholmes Disease. My pain started in my right side and seemed to spread all over when I am having an attack and I can hardly breath. it is now 4 months down the line and I am still in a lot of pain I would like to know if anyone has fully recovered from this as my employer is getting increasingly frustrated with me having time off for the same thing???
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replied February 9th, 2009
Bornholmes disease
I've been getting strikes like this my entire life, I never had the fever, etc but the pain in my left rip cage always appeared every few months or so. I actually never knew about it till the pain became so bad I ended up in the hospital which how I found out what it actually was. But I've never had it last for more than a few minutes. When I was younger I always thought it was like a bubble inside my lung, and I got rid of it by "popping" this bubble. Whenever I got the strike I'd just lay on my back and breathe heavily taking in the pain. If it didn't pop I'd switch over to my stomach and try it that way repeating the process till it "popped" and letting me continue on with my day. Since there is no known cure, this is the only remedy that has helped me out and let's me be able to work when I do get a strike.
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replied March 10th, 2009
Bornholmes disease
This has been such a breakthrough for me finding this site.I have been in hell for the last two years in and out of hospital every test possable but no answers I thought I was going mad.Every minute of every day I walk around in pain I have gone from a healthy young women(42) to an old woman mopping around.Now I know what it is I can get my head around it.I would love the person from S.Africa LWD0908 to contact me as I am also from S.Africa.I thought I was the only one going through this.
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replied April 8th, 2009
devils grip
hello,
Im a young female, healthy, slim and fit. I was diagnosed with this disease too, a few years ago at 21.
I do not have it as bad as some people, and can manage my pains. I also have a slight heart murmer. However I am engaged and settling down. My partner and I have plans to start a family in the future. I know being pregnant puts a strain on your heart, I was wondering is this dangerous?
Are there any woman out there who have been through this?
What causes it?
Both my partner and I have heart disease in our families, Will my kids get it?
Not many doctors know alot about this, and we were living in NZ when i was diagnosed, we now live in Australia so i can not see the doctor who diagnosed me.
Has anyone out there has similar circumstances and can help, or just has any info to share?
Thanks skippy.
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replied September 4th, 2012
Bornholm/costochondritis
hi, i have bornholm caught os. It is a viral infection so caught touching your nose with an infected hand (for example after touching a dirty object such as a taxi door!) or by someone coughing on you. The infectuous diseases dept or respiratory specialists can only monitor and prescribe whatever helps. Endep (10 mg) is used as a muscle relaxant and gets me to sleep. Can manage discomfort, which is much better after 1 year. According to my specialists, Bornholm falls under the coxsackie virus and once it is out of your body, it will not reoccur. They don't know why it stays within some people's body longer than in others... Hope that helps.
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replied May 6th, 2009
bornholms disease
Hello i have had bornholms disese for over 4 yrs now.it comes and goes but is always really bad when weather is damp and cold.i take oramorph for the extreme pain.also there is i think a bornholm suffers help site somewhere thanks richard
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