Can anyone that is dealing with this disease help me.

I just found out this year (2003) that I have it and a bone disease
so any input would be greatly welcome.


Brenda kossaeth
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replied December 17th, 2003
Extremely eHealthy
The besat advice I can give is for you to

1) check it out on the net - use a search engine

2) do not believe everything a dr diagnoses you with

3) do not believe everything a dr says is the best way to cure/help it

before doing 1) my daughter (15) went through hell (over a misdiagnosis of another disease) because of 2) & 3). So do your own homework.
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