Medical Questions > Mens Health > Prostate Forum

Chronic Epididymitis (Page 15)


January 26th, 2012
For everyone here going through problems you must put it in Gods hands. Dont get me wrong... go to the doctor, checked-out. Do everything in your power to address the issue, but put the remaining in Gods Hands. Pray to him addressing your issues. HE WILL HEAR YOU AND YOU MUST HAVE FAITH AND STAY POSITIVE. THIS BATTLE IS NOT YOURS - ITS THE LORDS
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replied February 1st, 2012
Try it out
I tried everything cipro, oxyfloxin, tetracycline, and so on an so on. Tetra work for me a little but but came back within a week or so. Im no doctor but I was desperate to get rid of it so I said the hell with the antibiotics that were messing up my immune system and started researching...i found a 1/2 a teaspoon of baking soda and 8 oz of water (mix) on some health forum so I tried it and it worked!!! Drink water right after like its going outa style to flush all the epididmites out lol (my slang) and pray pray pray to be healed. Oh ya keep your junk from swinging around all day, even if it means whitey tightys.no sex until balls are healed trust me. I dealt with it for 3 years. Just one persons advice tho , like I said im no doc! Baking Soda kills bacteria like its nobodys biz yo. Baking Soda will put dentists and docs outa work jk jk. Made me a believer tho. B careful with it tho and read up on it before you start using it for everything.
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replied February 11th, 2012
I am glad I have found this forum. I have been suffering with chronic epididymitis for the last 1 and a half years. I have alot of lower body pains. which started in the groin area and joints. which has now spread to my back . Fever and weakness extreme fatigue with other very fluctuating symptoms. including Scrotal pain and clear discharge . Finally Realizing that my epididymis is swollen on the right side has made me realize I have to diagnose myself and seek the best treatment for me. I was treated briefly for two weeks with antibiotics but cant remember the exact one. I have to literally beg for proper treatment, No Demand it! I have been tested for STD's and STI's more times than I can count on my hands. I have heard numerous doctor visits and they cant find anything wrong with my testicles? they even look and feel like they freaking have epiditymitis and I have been labeled as crazy and that I need mental help by the head doctors. Which has deterred me from seeking proper care. My mother had the same problem with doctors which in turn deterred me from going. It turned out she had a toxic level of ethylene glycol poisoning which she also had to diagnose herself. I started eating healthy about a year or so ago and it has made a big difference. I am lucky to have a wonderful daughter who is 15 months old and realize I have to take better care of my self and give up caffeine and seek better doctors. Thank you all and good luck to you all, as well as myself.
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replied February 20th, 2012
Hello to everyone who has posted so far or is reading this thread. My name is Jason and I am a 37 year old from England, I would like to share my 12 year history of epididymitis, apologies for the length of this post, you might want to grab a drink...

I first encountered it when I was 25, the onset of acute epididymitis was a throbbing pain like nothing before, I felt a hard swelling / inflammation on my right testicle upon examination. My doctor confirmed what it was and referred me to a urologist aswell as a course of antibiotics, Erythromycin was the one as the first two didn't agree with me. After about 4 to 6 weeks it had gone and the urologist said to me that no bacterial infection was present but did inform me that it would return periodically for the rest of my life - he wasn't joking !

Every 2 to 3 years it returned, not instantly but over a day or two the pain gradually built up then kicked in, again Erythromycin cleared it after 2 to 4 weeks.

However it returned in early 2009 but after a couple of days of Erythromycin it felt stronger this time, different. After 4 weeks my symptoms had not improved, my then doctor didn't believe me and so I began to visit doctors in hospital “walk in” centres (Here in England we are very lucky to have a free health service) and even A & E departments. I was prescribed doxycycline also, this is the preferred treatment here. 8 weeks gone no improvement and it had become chronic so I sent a letter to my doctor threatening to treat myself over the internet unless she referred me to a urologist, she did. Again there was no bacterial infection found, the urologist suggested I may have prostatitis also, he implied that the pain may also be psychological to an extent. He asked me to manage it for a few months and return if I was not happy. He also found a cyst, 0.7cm in diameter on the top of my right testicle.

By this time I had changed doctors, around eight months on I had already tried saw palmetto, serrapeptase (miracle enzyme treatment), curcumin98, acupuncture, spoken to an alternative therapist and treated it with ice, which gave a temporary relief of pain. I had read on this thread around that time someone suggesting lamisil, my doctor was sceptical but really wanted to help and obliged but it didn't help. My doctor then suggested it would then be a pain clinic where they inject around the nerves as this can help in cases of pain or before that a course of amitriptyline (anti depressant), evidence shows in small doses this can aid pain issues. At this stage the pain had began to decrease and I didn't want to rely on anti depressants so decided to give it some more time first.

Over the coming months it fortunately did improve and for the last 12 months at least the only pain, well more discomfort than pain is when I have intercourse / masterbate, a couple of days after there is some for anything from 1 to a few days, very rarely longer. However history shows that it is due to return at some point and what does concern me is that there is some kind of nerve damage down there and next time I might be in for some right painful moments.

From my experience intercourse / masterbation definitely inflames the issue, wearing tight underwear helped. I do not believe it was all psychological, however daily distractions do help and at times made me forget. So although it hasn't gone 100% it all but has and I feel very lucky to be at this stage now, my diet has improved though as I have also been diagnosed with hypertension so I do eat a lot of garlic, oily fish and drink cranberry juice.

It will return though, that is certain and if required then I know the options of the anti depressant and the pain clinic remain. I would like to wish all of you the best of luck in the treatment of this painful, sensitive and embarrassing issue. This thread is a great source of advice and comfort for us and I first visited it in late 2009 but forgot until recently so wanted to explain my story, I do apologise again for the long post.

Best Wishes, Jason.
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replied February 23rd, 2013
read my last post - DEMAND A SPERM CULTURE BE DONE!
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replied February 20th, 2012
I've wrestled with this for almost 10 years now, since I was 24. No STDs, and a few different antibiotic regiments never helped. Our best initial guess was that the initial attack developed from prolonged sitting in college and work (help desk tech back then). Ice packs and staying on my feet seem to help when it gets really bad. Docs say to wear briefs and take nsaids. I also have Celiac Disease so I eat relatively healthy, lots of veggies and a mostly paleo diet. I've been working a lot lately (sitting) both in the office and at home, even on weekends. This weekend was a killer - I worked through almost all of it. Here it is Monday and I can't sit down without getting angry. I have to work in the common area where the counter is higher - am blaming it on a back problem.

All other functions are normal. Refraining from sex isn't really an option. I'm 33 and married with a regular libido, and like any happily married couple our sex life is a big part of the feedback loop where we make each other feel good.

The problem comes and goes. The last 3 years it's just been a dull ache, with the exception of now. I read once that sometimes these things will just "burn out" but I'm so sick of this. Chiro didn't work and created some other problems that cleared up once I stopped going. NSAIDS wreck my gut. Ice packs are embarrassing. Docs say everything looks and feels normal. I might try Physical Therapy next but that sounds like more time away from work. Can't win I guess.
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replied February 26th, 2012
My experience
Wow I'm so glad I found this site, I was sitting here literally suicidal as I've had my testicular discomfort for 5 months now and the past 2 days especially have been unbearable, after reading the comments here I've got some new avenues to explore and maybe a bit of hope as my life at the moment is spending 24 hours a day trying the relieve the pain. My name is Ash aged 32 and I live in London, here's a quick outline of my history:

Late October (2011) woke with sharp pain in left testicle which worried me as I'd had no testicular pain at all in the 6-7 years since I had a bilateral testicular fix. I waited a week and saw my Dr who gave me a course of Doxycycline which didn't help and I felt worse at the end, he also ordered me an ultrasound. After weeks of mild discomfort suddenly one day (November) the pain moved to between the 2 testicles (like a squeeze) and it was horrifying and unbearable and I went to A & E (ER), Dr there shrugged it off as an infection and gave me a course of Metronidazole with Co-Amoxiclav and sent me home. These did nothing but cause side effects and I had my ultrasound 3 days later which initially showed nothing other than a varicocele on the right side, same day I saw an emergency Dr about the antibiotics and she told me to stop taking them because of the side effects and she said they weren't recommended ones anyway.

Disheatened and still in pain I saw a urologist privately, he had a quick look and said all seemed fine and said the pain was likely referred and that I should come back to him on the NHS as private would cost me thousands so he wrote a letter to my Dr, he also told me to relax as I was in a state when I saw him. Anyway I felt a bit better when I got called into the Dr's surgery, my ultrasound results suggested I had epididymo-orchitis and I thought at least we know what it is and I was given a course of Ciprofloxacin which again didn't help.

After a miserable Christmas I went again to the A & E who just sent me back to my GP, he did a urine test and because my urologist appt was a month away (2nd Feb) he gave me trimethoprim to keep things at bay (I never took it) and painkillers. Anyway I saw the urologist who said my urine test came back positive and I should try amoxicillin (eventhough I was allergic to it) and ordered me a flexible cystscopy to rule out and referred pain from bladder issues. I had that done a few days later (early Feb) and nearly died but it was clear, immediately after the test I started a weeks course of Amoxicillin and the pain went to it's worst and most consitent level as soon as I sated this course. I went back to the Dr in despair and he said maybe my allergy to penicillin had made things worse, he examined my testicles and noticed they were severely retracted and suspected I had cremasteric spasms, maybe these alone wouldn't cause pain but with a tender epididymis it could be a factor. Anyway I couldn't retract the testicles by hand so resorted to warm baths which brought them down and I did get a bit of relief but not total. Anyway yesterday the pain got bad again and I started the trimethoprim which after 3 doses seems to have made things worse, after reading these comments I'll stop and wait for my urine tests results to come back and show if I actually still have an infection.

On a side note I had a gastric pacemaker implanted in Sept 2009 (weak/lazy stomach muscles) and almost immediately I suffered abdominal muscle spasms which lasted many months (still get occasionally now) so makes me wonder if my pacemaker is causing some of these problems (I know it's been in for ages but I had the speed turned up before all this pain started). Anyway I used to get some relief out in the cold (not anymore!) and the paracetamol and tramadol do nothing for the pain nor do the expensive creams/bath oils I've bought online.

My next aim is to stop the antibiotics (until my latest urine results anyway) get my pacemaker speed turned down (tomorrow) and start doing some of the things listed in this thread. Any suggestions on where to start would be greatly appreciated, like many others I've become a virtual recluse (although even sitting at home is unbearable) taking baths all day and not shaving, my hair had also grown horrible and I forced myself to go and get it cut as it was curly and unruly and getting me down, I couldn't even sit properly in the hairdressers chair and nearly walked out a few times (can you imagine the panic and anxiety as a middle aged woman cuts your hair), how was I gonna explain I had to get up as my balls were killing me, luckily I survived but won't go through that again. Sorry for the long read but I wanted all my info in there and any advice on where to go next would be greatly appreciated. I can't offer much help to others but I found if you rub (with your right thumb) the meaty area where your thumb meets your index finger (left hand)you get almost immediate relief from the testicular discomfort although this is impratical and short lived, I'd like to know if this has worked for anyone else?
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replied February 23rd, 2013
read my last post - DEMAND A SPERM CULTURE BE DONE!
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replied February 28th, 2012
What to do if you have chronic epididymitis:

1. You need to change you diet to alkaline foods like barely, wheat; cottage cheese, fruits and veggies are good (Preferably Organic). Slow down on acidic fruits, but remember there is no need to eliminate them from the diet.
2. Then you need to lower you meat and sweets consumption they make issues for malnourishment in the body. Meat requires a lot of acid to break it down, which will aggravate the sensitive nerve. Sugar will distract cells and they will not take in the nutrition to heal your nerves and organs right.
3. You may not be sure but you are most likely deficient in natural vitamin E complex (all 8 forms) buy a supplement that contains all eight forms naturally (Preferably non GMO and pesticide free). 400IU or less per day but around this amount should work. No need to get any higher dosage. Stay away from synthetic vitamin E; it blocks a cells use of natural vitamin E, which is stronger. Natural vitamin E is labeled with d-"", whereas synthetic is labeled with dl-"". The quotation marks are where the type of vitamin E goes.

I have had chronic epididymitis for 3 years now, since my freshmen year in college. And it has been a pain walking to classes and even sitting down in a chair. I even wore constrictive underwear, which helps but is not enough. I read somewhere that if you have not had an STD epididymitis can occur from having a surgery or operation through the groin or having a bacterial infection. For me I knew I had an operation through the groin in the past for Super Tachycardia, which is an abnormal heartbeat. So that was probably the case for me. In helping me with my epididymitis the doctors were like cavemen. No pain medication or antibodies got rid of the situation! The only advice that was helpful from the doctor was wearing constrictive underwear. And the idea of becoming sterile on that testicle was beginning to rear its ugly head.

After realizing that my doctor couldn't help me, I decided to turn to my diet. I tried different foods to see what would help. Junk food made the matter worse and so did too much meat so I slowed down on those. Finally I tried a grain that I have never eaten before, weird enough because for some reason it has been eliminated from the average American diet. That grain was barely. I noticed that barely had the greatest affect on my epididymitis but after about 5-6 hours the situation would reoccur in weaker forms. I looked into it and found that barely is a grain that contains about all 8 forms of vitamin E. After noticing this info on barely, I began to look into the health benefits of using the complex forms of vitamin E. The benefits can be looked into on your free time but be careful some are trying to down vitamin E.
After doing the above 3 steps, my symptoms cleared up and I was better. After taking a supplement I was better in 2 days, which is crazy compared to 3 years. Get a supplement that is about 400IU with all 8 forms non-GMO and no pesticides if possible, it is worth it. Keep in mind I let a professional diagnose me with the situation first and looked into it. Good luck guys.

-An Epididymitis Veteran
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replied February 29th, 2012
After a restless night and another day unable to sit I ended up at urgent care since my docs were unavailable. They did a physical exam and took a urine sample, but ended up sending me to the hospital for an ultrasound. Both sides are inflamed now so I got the obligatory bottle of Cipro, a pain killer, and a note to follow up with a urologist if I'm not dramatically better in 5 days. Still waiting on a full urine analysis but none of the quick tests showed anything. Blood flow was fine too.

I've never had an STD, or surgery.
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replied March 7th, 2012
inflammation
It's interesting how common our experiences all seem to be. We have symptoms: blood in seamen and discomfort, we get prescribed a course of antibiotics that generally do little or nothing, and then we deal with a set of symptoms and come and go over time, with us trying everything from chinese herbs to voodoo.

It amazes me that no one seems to be seriously researching this, as many of us as there seem to be.

This is what I've learned. NSAIDs, taken regularly, particularly naproxin sodium, seem to give me the most relief. Alcohol and caffeine (and most especially stress) seem to exacerbate the situation. I've taken to taking anti-inflammatory herbs on a regular basis, which seem to help over time. The only herbal preparation I've found that's actually been clinically researched--and this for prostate, not epidiymitis-- is called Zyflamend, which is a bunch of anti inflammatory herbal preparations crammed into gelcaps. I've been taking it, but it's not particularly cheap, and its far too early to tell if it's working. I DO know that one good party with a bit of overindulgence can bring the symptoms back the next day.

I've become convinced because of all this that inflammation is the big culprit, and that if the tissues of the epydidimus become damaged, regardless if its an infection, physical trauma, or backpressure from a swollen prostate, it gets really easy to damage them again.

When looking at nsaids, I'd use aspirin sparingly. It does a number on the COX1 enzyme that lasts for days, but it may cause more microbleeding. Naproxin and most of the others work mostly on the COX2 enzyme (as do herbal antiinflammatories like rosemary oil, holy basil oil, and lots of the Chinese herbs). I take about 85mg of aspirin a day (the heart/baby aspirin level), along with a full adult dose of generic Naproxin Sodium.

Anybody else trying something like this?
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replied March 7th, 2012
Epididymitis: Wearing a cup daily for pain management
Hi I thought I'd chime in. I haven't read all of your post but I think I have some good advice. I'm 33. I'm currently dealing with pain from epididymitis in my left area of the scrotum and found a way to help aid this on a daily basis. I've had epididymitis for a few years now, the pain would come and go, and augment or diminish. I tried switching different types of underwear. Found boxer shorts to work well, but walking would irritate the scrotum by the rubbing of my legs and pants. I tried wearing a jock strap, but the tightness of the jock still would irritate it. So... My last attempt would be to try wearing a cup all day... It worked. I was amazed. The pain was nearly gone as the cup incases the scrotum from any movement and friction from the legs and garments.
I discussed wearing a cup with my urologist and primary care doctor and we all came to an agreement that this was a great way to manage my pain (they would even prescribe it for me).
I thought I'd share this all with you as some might be timid and too shy to try or discuss such a taboo male device such as a cup, but I think pain management is a more important subject. I highly recommend wearing a cup to keep the scrotum in place and away from movement and you will find that your pain will greatly diminish. Try it out and you'll be surprised.

Best of luck to you all.
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replied March 8th, 2012
I think one reason I've had as little pain as I have had is that I've always worn Bikini Breifs (Banana hammock as my wife terms them)..
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replied March 8th, 2012
I'm gonna try the advice on the cup Rickyninja thanks. I had thought about that as what seems to happen is that walking about gently chaffs and nudges the testicle about which brings on pain.

I saw my urologist again. I had been on 4 weeks of oflaxacin. I told him after two weeks the pain was worse with the testicle feeling heavy and a bit of inflammation of the epysisymis. Now after 4 weeks it is not too painful, but I limp slightly and I have to keep my activity low.

This has been going on for almost 6 months now.

My urologist says removing the left epydidymis would be the surgical choice, IF it does not settle down within some time period which we have not defined yet. He would want another ultrasound doing first though.

He game me 1 week more of some other antibiotic.

He reckons the removal of the epiydidymis is not a sure thing as I have slight pain in the right testicle too.

I'm seeing a rhumatolgist next week as I have had tendonitis problems for three years and this inflammation could be related as with reactive arthritis.

If I got back to the urologist (I'll give it weeks) I might mention nerve blocks etc.

I mentioned about jerking off and he said that in his opinion it doesn't matter. I haven't ejaculated for 5 weeks in the hope this will cure it.

This is my personal hell. I am off work and will probably lose my job if I cannot fix this soonish. The urologist mentioned testicle removal as a last resort. I will reach for a hand- gun before that I think. Sad
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replied March 8th, 2012
Hi Snoozle,
I'm sorry to hear about your condition. if you go for a cup, I recommend not using the supporter that the cup is supposed to go in, but instead the cup should be the only thing that touches your genitals and use a jock strap over the cup and underwear over the jock if you wish. Having the cup by itself allows you genitals to use all the space in the cup. Sadly, the cup supporter's fabric takes up some of the space and also squishes the scrotum (mine anyway). I'm trying different brands and McDavid sold at Sports Authority is very roomy. It may make a bulge in your pants but ill take comfort over embarrassment (consider what most baseball player go through on the field).
Please let me know how it works for you.
I think masturbating more often actually keeps the epididymis flowing, so don't stop. Ha!
Cheers!
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replied March 8th, 2012
I forgot to add: You're going to sweat -- use baby powder as needed!
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replied March 9th, 2012
Wearing a cup for chronic epididymitis.
Not sure if my post was accepted due to a pending review, so I will censor a few names
Hi Snoozle,
I'm sorry to hear about your condition. if you go for a cup, I recommend not using the supporter that the cup is supposed to go in, but instead the cup should be the only thing that touches your genitals and use a jock strap over the cup and underwear over the jock if you wish. Having the cup by itself allows you genitals to use all the space in the cup. Sadly, the cup supporter's fabric takes up some of the space and also squishes the scrotum (mine anyway). I'm trying different brands and McDavid sold at [a popular sporting goods store] is very roomy but try whatever one that you think fits you. It may make a bulge in your pants but ill take comfort over embarrassment (consider what most baseball player go through on the field).
Please let me know how it works for you.
I think masturbating more often actually keeps the epididymis flowing, so don't stop. Ha!
Cheers!
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replied March 11th, 2012
Hey Rickyninja are you cured now? What do you plan to do if not?
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replied March 19th, 2012
Hey-- I'm not totally cured but I really do believe that wearing the athletic cup has help a lot. I feel some pain when I take off the cup, but not as bad as I was before I started wearing it. Thanks to my urologist for the support (pun intended). I feel like its getting better as time goes on. So far I've stocked up on cups and supporters. Trying different ones. I don't think I'm supposed tell you the brand name that I found most roomy, but it rhymes with bacon and is a MLB licensed cup. I have an "Mongo" size NB (rhymes with muddy fuddy) on the way and I'll give that a try. Sleeping without a cup brought back the pain as I sleep in odd positions and squish my scrotum, so I started sleeping with a cup. Most would worry about the smell from wearing a cup all day everyday but as long as you use powder down there and wash the jock straps you'll be fine.
I haven't decided what the next step is if the epididymitis doesn't go away, but I'll just wear a cup for the rest of my life in case it may come back.
I really wish you the best. How are you and the boys now? Still cupping?
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replied March 10th, 2012
Well I am trying out a few boxes at the moment and my initial impression is positive. It holds my testicles but is not tight like tight underwear. When I walk about I don't feel my balls being jostled about which was a problem and this seemed to make them hurt. Also when I sit down I feel my balls cupped and not getting squished or trapped which seems again to be good.

I did ejaculate a couple of times and it was not very easy as I can't stop thinking about the agony my left testicle has been in, so it was psychological difficult to climax. Now a day later I do not feel in any more pain than I was in, but I will wait maybe a week before ejaculating again as no point in taking risks.

I am just in a persistent moderate pain ATM which is not bad enough to make it hard to think or sleep but means I have to take it easy when moving about, and I am 100% sure that sex is out of the question because of the major jostling my balls would experience.

So we will see how it goes. I am still kind of worried sick that the inflammation will never die down enough and I lose my testicle. This is an awful time in my life.

Seeing rhematologist in a week because I have had tendonitis badly the last couple of years so may have some auto-immune thing making my body inflame connective tissue for no good reason.

I'll give it a couple of week then go back to urologist.
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replied March 10th, 2012
Re: inflammation
Stevazeno wrote:

I've become convinced because of all this that inflammation is the big culprit, and that if the tissues of the epydidimus become damaged, regardless if its an infection, physical trauma, or backpressure from a swollen prostate, it gets really easy to damage them again.


Yeah this is what I reckon. I'm not a doctor and don't know the exact nature of the inflammatory process but it does lead to special cells being deployed and the fibrosis. The inflammation can weaken the area because of pressure cause by fluid build up etc and make it easier to damage again, and the fibrosis or scar tissue s weak and messy.

When I first saw my GP they said just rest as it is probably a pulled muscle. I so wish I had been diagnosed with epidymitis instead, but the inflammation was only minimal by the time I saw my GP. I first went to A&E you see and they said give it two days and see GP if not better. Then seemed ok, then flared up badly a month or so later and I was given 3 days of cipro, then after that it mostly went but was always hurting a bit, flared up again after I squished my ball a little slipping, then after a weekend of lifting boxes and driving 2 months ago has been hurting loads since. If I had know the area was still vulnerable I would have lived like a monk for 3 months and after it first started hurting and would have done zero physical activity.

I'm convinced now the whole process is partly self-perpetuating and ultimately I needed to have rested more at the start. I'm regretting this lots. I'm pretty sure it is no infection and that went very quickly if I did have one, now it is a kind of ongoing inflammation/trauma thing which feeds off itself.

I'd get the epiydidymis removed If I was fairly sure it would help. My Urologist is being cautious about this and to his credit not saying this is the way to go yet, but could be.
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replied March 12th, 2012
I know what you're going through, ever day is a living nightmare and you can't even function on a basic level. I just dream about going back 6 months in time when I never felt any pain in my balls whatsover compared to the daily ordeal now where I feel nothing but my balls. After a bad 4 day continuous episode I'm not too bad today (although that can change very quickly) so I wonder if my 4 week course of Doxycycline, Norfloxacin and Flamrase are starting to work (11 days in), maybe you want to try this combo? Nothing else really works, no painkillers except Tramadol sometimes and hot baths sometimes helped as did rubbing the meaty area on my left hand (with right hand finer and thumb) where the thumb meets the index finger. I haven't been able to wok in weeks and as I'm self employed I've had staff running the store but I can't even focus my mind on the business when life itself suddenly seems not worth living. When I went in to A & E 2 weeks ago 17 hours into a bad session of pain I just wanted the Dr to cut them off and he couldn't believe what I was saying, it's not even the level of pain it's just the fact it lasts so long and is seemingly constant, that's the part I find the hardest as you simply can't switch off and relax, sometimes it's there when I go to bed and first thing when I wake up and the resulting anxiety (understandable) only makes things worse.
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replied March 17th, 2012
God guys 36 year old epidimities pain now for 8 weeks two round of DOXY two round of azithromycin one round of norofloxal. Had a ultra sound on a day that I had very little pain results came back normal no signs of swelling. Two days later pain was back. The pain seems to come and go I can actually feel a size difference in the tail of the epididymitis it's only on my left testy. It's driving me nuts I feel like telling to doc to just cut the who dam testical out. It's changed my life went from being super active to coach potato. I don't have that option I am active duty army. Doc keeps going down the std road test results came back clean. I had a vassectomy 4 years ago. Banging head against wall went from active at least 5 times a week sex life with wife to no sex.
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replied March 20th, 2012
Try wearing a cup. A lot of it may be from leg friction and garment "strangulation". I didn't realize this until a year after. Read my other posts if you're interested in wearing a cup to manage the pain. I seemed to be the only advocate for cups at the moment but my doc has approved this method nonetheless. Best of luck.
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replied March 28th, 2012
Just got the hospital bill. $3k and the pain is still there a month later, after 10 days of Cipro and another 5 of Zithromax. I'm seeing a new urologist next week. Things seemed better after the Cipro until I woke up one morning with pain that radiated up towards my abdomen on both sides. It was a weekend so urgent care gave me the Z-pack. All my tests and sonogram are normal.

On the right side, the pain is at the head of the epididymis, and is mild like before, though a tad more pain lately. A 1.5-3 as opposed to the usual .5-1 I was used to ( on a 1-10 scale). Left side pain is at the tail of the epididymis, very swollen, and a .5-3 in pain. I've been taking warm baths in the evening to loosen things up and have the locations isolated - I can startle myself into jumping when I touch the spots.

When the flare ups aren't bad, like in the morning, sex feels as good as always and everything else seems normal. Pain is definitely worse at the end of the day - sitting accelerates the pain. Libido is unaffected (that's good and bad news - it's very confusing to both of us).

After 10 years I've tried it all, saw palmetto, pulsatilla, chiropractors, meditation, NSAIDs, abstinence, ice packs, curcumin/turmeric, etc. Nothing worked permanently, including a switch to really supportive briefs. I haven't tried PT but I stretch after workouts and have been recommended some stretches from my wife's PT. Honestly, the cup makes sense for a short term but that's not the answer I am looking for.

2 months ago I was ok with a little pain in my right testical and had lived with it for a long time. But now both, with wavering intensity?

Of the many hours I've been looking into this over the years (and especially the past 2 days) the only things I've seen work online, where the patient hasn't come back posting of recurring pain, are:

1.) appendix removal.
2.) prostate massage via urologist 2 times a week for a month combined with 30 days of antibiotics.
3.)a paid "epididymitis cure" site - this guy, who won't give up his secret unless we pay for it. As if the doctors bills aren't enough. Plus I can't find any validation that it works.

I've expanded my search to pain related to the vas deferens, epididymitis, and prostatitis because there seems to be lots of overlap in the chronic symptoms and they are all interconnected systems.
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replied April 5th, 2012
Glimmer of hope.

A visit with a new urologist yesterday morning had me again with my pants around my ankles getting poked & prodded. But this time he actually had something to offer:

After listening to my history and feeling around my scrotum he did a hernia check and said he didn't feel anything, then poked at my abdomen/pubic area for another few seconds. He then went back to do a hernia check and had me breathe in and bear down for a longer period of time than usual. He did this over and over again with different positions and digits, until he said "Aha!" By then I was out of breathe.

He said there is a small hernia or fat (most likely a small piece of fat) that is protruding and likely pressing on something that is giving me my pain, which he explained is "referred," and gravity is making it worse throughout the day. He could feel a small lump come out along the tubing after an extended period of bearing down, which is why it likely flew under the radar of my GP and previous docs.

I have a consultation with a hernia specialist late next week.
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replied April 8th, 2012
Hi

Anyone had any progress in curing chronic epididymitis?

Please share news!
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replied April 15th, 2012
I'm not in as much pain as I was but I am not pain free and still limp a bit. I have to be careful doing stuff and in what position I sleep, but the agonising 'hot pain' has died down now.

I had an ultrasound which revealed more cysts that last time. Three now, was just one, but all less than about 8mm.

I talked to the Urologist and agreed to wait a few more weeks to let things settle down. Could get the cysts removed but Urologists says this most likely will not help but is one option.

Some days I feel ok like I have some hope and this is just a bad phase I am in. Other times I almost wake up sweating and panic I am ruined for the rest of my life. I am definitely feeling more optimistic that just 4 to 6 weeks ago but still not great. I wonder if it has made me depressed a bit too as I am just not myself and thinking morbid thoughts and I hardly go out now. My mates went for a drink the other night, I couldn't face it, not in loads of pain but just could go out and have to laugh and joke.
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replied April 15th, 2012
I plan on doing a treatment called auto-hemotherapy.

Has anyone heard of this treatment? Some people curing diseases more complicated than ours.

I feel like crap with this problem. Even more unable to solve.

I just wanted to feel like before it came on me.
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replied April 21st, 2012
Epidydimitis Cure
For Epididymitis, i recommend the following two homeopathic medicines:

1) Ferrum phosphoricum 200 C
2) Pulsitilla 30 C

Take 4 pills of these 3 times a day for 15 days. That should help you guys.

Also, just make sure to AVOID these things:

1)Lifting heavy loads should be avoided.

2)Do not do heavy exercise or even minor ones. Let the pain and swelling heal first.

Generally asked question is "Can we Masturbate?"
The answer is Yes, you can, but as long as it doesn't hurt you. Also, just once a week.

Hope this helps.
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