Medical Questions > Mens Health > Prostate Forum

Chronic Epididymitis (Page 12)


February 9th, 2011
Been a while since my last post and I see that some of you are recovering which is great news. I have gone up and down in my recovery, and it didnt help that I had three inguinal hernia's which I thought were my problem, only to have them operated on and 4 months later still experiencing the same symptoms, let me tell you what a kick in the nuts that is. Actually led me to be even more depressed and makes me feel a whole lot worse.

Anyway, I have been reading a lot of different threads here on what works for some and not for others, but I think we are all getting somewhere with this being a musculoskeletal related condition. This is a painful condition with a lot of different symptoms such as yours in addition to many others. A lof of doctors dont know how to treat this condition because urologically or medically they cant find anything wrong with you. I have epididymal cysts on both testicles, a hydrocele on the left as well as a small varicocele (which came as a result of the hernia surgery), even some small calcification in the epididymis. Every urologist I have been to says that these things are not causing my pain, but no one can tell me what is. I questioned the fungal route and I got an answer that unless I have been very sick, been hospitalized in a nursing home etc.. that there is no way that this is fungal, even if i had sex with someone who had a yeast infection, it does not transfer that way. So what is it then???

This is because it is due to muscle contraction, tension and spasms inside your pelvis. The spasms can come from a lot of different reasons whether Stress,prolonged sitting, bad posture or even a rough night of passionite sex where you inadvertently strain a muscle, which leads to other muscles over compensating and a whole host of other problems.

I am currently seeing a pelvic floor physical therapist along with a chiropractor in hopes of getting this taken care of. The problem is is that it's not an overnight fix, even when the therapist does a myofascial release of the tissue or muscle that is in spasm, it takes months of repetitive stretching and massaging for the muscle to remember the relaxed state it used to be in. The fix for this is not quick or easy and there is nothing that makes it go away in a few days like a pill or supplements. This takes dedication and hard work with stretching and deep tissue massage performed by a therapist, but eventually it is something you will have to complete on your own. The hardest thing for me is coping witn the fact that this is not quick and it may even get worse before it gets better because your muscles and nerves are not used to the contracting and stretching and can become irritated. Some may even want to see a psychologist to help with the emotional side of things, I know this can get really depressing.

Also Do a search for a book called a Headache in the Pelvis, it explains everything in great detail. I hope this helps.

Good luck to all of you in the hopes of kicking this condition
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replied February 15th, 2011
Experienced User
Just wanted to give you an update my pain and discomfort had gone done a lot for the last 3 to 4 months but in these last few days it started to come back. During the holidays I was eating pretty much normal but now I have to back to eating very healthy. I have been stretching everyday and taking my natural supplements. Any other things that have worked for you guys? During these few months I did have sex and I think it helped because the tubes were releasing the sperm normal. We as men need to be able to release it's part of our body like brushing out teeth. Those tubes need to be used unless there's some clogging in there. Do you guys agree?
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replied February 16th, 2011
Getting There, Slowly...
Update. This all started with a dull pain in the stomach, and a heavy, painful testicle. After 30+ days of antibiotics for bacterial epididymitis with basically no improvement, I found myself in the emergency room a few nights ago with the feeling of burning and pain basically throughout my entire torso - but mostly in my lower back and abdomen. Was running a slight fever and generally becoming more mentally confused and depressed. Felt like whatever illness I had was now running all throughout my body and brain.

Right testicle was still sagging several inches lower than normal and unable to voluntarily lift it with abdomen contraction, used to work just fine before all this. Scrotum still overall swollen on right side, but the epididymus pain changed. I wasn't getting the awful ache when walking and sitting. Instead, it had become more of a random sharp spike of pain in the perineum and penis. Felt like I needed to have a bowel movement at times.

Had complete blood and urine workup. Urine was clean of any bacteria (same as a month ago) or sign of infection. White blood count was clean, 8.5 out of 10, maybe a bit elevated than normal but well within range. Certainly not a sign of infection. Had some mild RBC anemia, which is pretty typical for me. Nothing noteworthy blood-wise.

Had a CT scan of the entire abdomen and pelvis. Report reads as finding a cluster of enlarged mesentery lymph nodes. Had a prostate and testicle exam. Showed a good amount of fluid built up in the bottom of the scrotum on the right side, sore epid. Prostate exam revealed nothing. After 9 hours in the hospital they basically sent me home with no answers.

I immediately made an appt with my GP, who is also a gastro specialist, highly renowned in NYC. First I wanted to know; if I had a bacterial infection then why did my white blood cell count never go up? This might be helpful info for others: He was quite adement that epid rarely causes an elevated white count, even when it's bacterial. He was also insistant on a prostate exam. I explained I just had one in the hospital the night before and another just two weeks ago (by one of the best urologists in Manhattan) with no results. He insisted. Well, I don't know what he did differently than everyone else but it sent a shot of pain through me like nothing I've ever felt! He immediately said "that's it. you have prostatitis. it's quite obvious." He said my prostate was the larger than a man his age's should be, and he's in his 60's and I'm just 32.

He wrote me a script for 15 days of Bactrim as I'm allergic to Levaquin etc. So, on one hand I'm relieved to at least have an answer as to what's going on. On the other hand, I only have more questions now.

Why prostatitis to begin with?

Can you have bacterial prostatitis with completely normal blood and urine counts? And if not, then I really need to figure out why my body isn't producing a boost of responding white blood cells immediately!!! That's scary, don't even want to go there right now.

Or if it's not bacterial, do I REALLY need to be on another two weeks of high power antibiotics? This can't be good for me. I already got a yeast infection on my penis last week from it. I eat organic greek yogurt every day in between antibiotic doses and I skipped it one day and blammo, red burning penis. I got rid of it quickly, but it shows just how close to the edge this much medication can put your gut.

If it's not bacterial, can it even be connected to the epididymitis that I struggled with for so long? Could it have just been down to drainage from the enlarged prostate? I've read that even non-bacterial prostatitis still contains a bunch of bacteria. True?

Can prostatitis have anything to do with those enlarged lymph nodes in my lower right gut? They are basically directly above the vas deferens and testicle a few inches up. Drainage? Doctor wants to do a colonoscopy once the prostate heals. I think he's suspecting Chron's or the like in the gut.

Talking with my wife tonight and remembering that when this all started months ago I said "I bet this has something to do with my prostate" and how for years I've been saying that I've always had a feeling I'd have a prostate issue. I'm going to begin looking into pelvic floor therapy, I think I remember seeing a recommendation for someone here in NYC that was good but can't seem to find it in this thread. Anyone have that info?

Thanks to all again for sharing. Best wishes to all in your guts, butts and nuts. Smile
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replied February 16th, 2011
magic7508 wrote:
Just wanted to give you an update my pain and discomfort had gone done a lot for the last 3 to 4 months but in these last few days it started to come back. During the holidays I was eating pretty much normal but now I have to back to eating very healthy. I have been stretching everyday and taking my natural supplements. Any other things that have worked for you guys? During these few months I did have sex and I think it helped because the tubes were releasing the sperm normal. We as men need to be able to release it's part of our body like brushing out teeth. Those tubes need to be used unless there's some clogging in there. Do you guys agree?


Not sure what your underlying cause is, but it sounds similar to mine (prostate). Was feeling great for a few days straight, and then ate some Indian food and was back to being in pain. The next time I felt great was brought to an end by Super Bowl Sunday (beer, hot wings, general unhealthiness). What supplements are you taking?
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replied February 17th, 2011
Magic and ouch ouch I am reading both your posts and I can't really give a diagnosis as for one I am not a doctor and two I question some of the things I am told as well, but unless the doctor find your prostate inflamed and swollen each time they perform a digital rectal exam, this has nothing to do with the prostate. It has to do with the muscles around the prostate and in the pelvic floor.

OuchOuch if you have an enlarged or swollen prostate you should maybe take a course of alpha blockers or some medication to shrink the prostate. Try the antibiotics for three weeks, but if they dont help, get off them as soon as possible, you are only doing more damage to system.

As far as eating goes, I dont really notice anything that affects me more than others, even hot wings, but its possible that can affect some people differently than others. In my opinion drinking beer and eating hot wings will make you feel shitty the next day regardless of what your condition is, lol.

it's important to remember that with this condition you will have days where you dont feel so bad and some that you will feel terrible. For instance I felt pretty good yesterday but today not so great. Its something that will probably happen for quite some time and until your central nervous system actually relaxes it is always going to affect you. Thats why it is important to try to calm down and take time to relax, read the book a headache in the pelvis, it explains everything in great detail.
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replied February 17th, 2011
damaja23 wrote:
Magic and ouch ouch I am reading both your posts and I can't really give a diagnosis as for one I am not a doctor and two I question some of the things I am told as well, but unless the doctor find your prostate inflamed and swollen each time they perform a digital rectal exam, this has nothing to do with the prostate. It has to do with the muscles around the prostate and in the pelvic floor.

OuchOuch if you have an enlarged or swollen prostate you should maybe take a course of alpha blockers or some medication to shrink the prostate. Try the antibiotics for three weeks, but if they dont help, get off them as soon as possible, you are only doing more damage to system.

As far as eating goes, I dont really notice anything that affects me more than others, even hot wings, but its possible that can affect some people differently than others. In my opinion drinking beer and eating hot wings will make you feel shitty the next day regardless of what your condition is, lol.

it's important to remember that with this condition you will have days where you dont feel so bad and some that you will feel terrible. For instance I felt pretty good yesterday but today not so great. Its something that will probably happen for quite some time and until your central nervous system actually relaxes it is always going to affect you. Thats why it is important to try to calm down and take time to relax, read the book a headache in the pelvis, it explains everything in great detail.


Thanks for sharing. I've been on antibiotics going on over 30 days at this point. My epididymitis is long gone. All I feel at this point are prostate symptoms. After just 2 doses of Bactrim I developed a rash on my face that burned like a sunburn. I don't think my body can take much more antibiotic. Ha, and I called in to the doctor to let him know about my reaction and he told me to switch to Macrobid! No way in hell I'm taking that stuff.

Clean urine and clean blood since day 1 are telling me there never was any infection. The more I think about this, the more it seems like some kind of tension issue. It all started in the months right before my wedding, which was a pretty stressful time. Then it went away. And recently returned while we're in the middle of another stressful period of having a difficult time getting pregnant, as well as a bunch of financial headaches.

I might be stressing my prostate into infection and passing it to the epididymis, or maybe the other way around. At any rate, I need to get off these antibiotics soon.

I did come across one extremely interesting article on Brucellosis, which pretty much outlines my symptoms and medical results to a tee. I know it's probably one of the least likely causes but maybe worth bringing up to my doctor as a last ditch effort. http://cid.oxfordjournals.org/content/5/5/ 821.full.pdf

Just ordered Headache in the Pelvis too. Another link full of info I found quite interesting and particularly relevant to my case. I have chronic tonsillitis, they should have come out 10 years ago, and lifelong sinus problems with TMJ. This article has some really helpful stuff in it for me: http://www.acu-cell.com/dis-pro.html
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replied February 22nd, 2011
Ouch Ouch it seems like you have a lot going on there, not sure what your actual diagnosis may be. How long has this been going on for you. I am on about 8 months now, but I had left sided tension for about 7 months before that so in actuallity, havent felt 100% in about a year or so.

Anyway I noticed in an earlier post that you live in NYC, I myself live on Long Island. I was just recently referred to a specialist in this field at the Arthur D M Smith Institute for Urology in New Hyde Park. The Doctor I was referred to is Dr. Robert Muldwin, apparently he specializes in chronic pelvic pain syndromes and hopefully should be able to help out or at least put me on the right track to recovery. Im not sure if you need a referral or not but it's worth looking into. Only drawback is this guy is in high demand, the earliest I can get an appointment is April 21st. My Uro used to be a colleague of his so he is going to try to get me in sooner, keeping my fingers crossed.

Definitely look into different stretches and massages for the muscles in the pelvic floor though, they seem to be helping me a bit, although im not close to being my former self, I feel as if it will slowly get there. A headach in the pelvis is very informative and actually shows you which muscles refer pain to different parts of the body and also gives you several stretching exercies to practice. Let me know how it works out for you. Also try to look up psoas stretches on google the iliopsoas is a major cause of testicular pain.
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replied February 22nd, 2011
Thanks mason74 for patiently reading my questions.

I actually feel the pain originating on top of my testicle (backside) and the base of my penis (backside), the place where penis and testicle joins. I'm thinking can this me more related to some injury causing the inflammation rather than infection due to excessive running and cycling?

Can injuries also cause inguinal adenopathy and hydrocoele? I can feel the pain like pulsing pain in my left palm and left side of genitals.

Can epididymitis cause pain in left hand as well? I'm having lot of pain and numbness. The pain in my genitals and left hand is constant for months and mild.

This is really weird. Sometimes I see my testicle pain shifts to right side, at this time there is no pain on my left side. I'm really clue less on what is going on?

I'm suffering with this pain for several months now, and it has become chronic.

As I told earlier, all my repeated STD tests were negative and well within the limits.

My doppler scan report impression reads "mild epididymitis?" with a question mark and "mild unilateral left inguinal adenopathy and mild bilateral hydrocoele".

So the doctor was telling me he is treating assuming it is epididymitis. I don't have any visible swelling seen from outside. They look pretty normal.
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replied February 22nd, 2011
Sorry, I told I have radiating pain earlier, it is more disconnected.. The pain is actually in left foot, left knee, left genitals (left testicle, left side penis and left groin), and left hand. They don't seem to be contiguous.
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replied February 22nd, 2011
PeteCurtis wrote:
Sorry, I told I have radiating pain earlier, it is more disconnected.. The pain is actually in left foot, left knee, left genitals (left testicle, left side penis and left groin), and left hand. They don't seem to be contiguous.


I'm not a doctor by any means, but I can relate to this. I have varying amounts of pain and ailments up and down the right side of my body from head to toe, epididymitis included. Know what else I have on the right side? A herniated/degenerating disc in my lower back, the same lumbar that houses the nerves that run to the pelvic muscles.

Every inch of your body is connected to a system of nerves that all begin and end in your spine. Do you have any back issues? Because they can cause issues to pop up anywhere on your body.

Also, pain generally does tend to radiate elsewhere, especially when there is any kind of inflammation. Nerves again. When my epididymitis was at its worst I was having pain from my back down to my knee.

If you are having distinct pain in the penis then I would consider having your prostate looked at as well. Maybe this article has some useful info: http://www.prostatitis.org/muscle.html

Good luck!
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replied February 22nd, 2011
damaja23 wrote:
Ouch Ouch it seems like you have a lot going on there, not sure what your actual diagnosis may be. How long has this been going on for you. I am on about 8 months now, but I had left sided tension for about 7 months before that so in actuallity, havent felt 100% in about a year or so.

Anyway I noticed in an earlier post that you live in NYC, I myself live on Long Island. I was just recently referred to a specialist in this field at the Arthur D M Smith Institute for Urology in New Hyde Park. The Doctor I was referred to is Dr. Robert Muldwin, apparently he specializes in chronic pelvic pain syndromes and hopefully should be able to help out or at least put me on the right track to recovery. Im not sure if you need a referral or not but it's worth looking into. Only drawback is this guy is in high demand, the earliest I can get an appointment is April 21st. My Uro used to be a colleague of his so he is going to try to get me in sooner, keeping my fingers crossed.

Definitely look into different stretches and massages for the muscles in the pelvic floor though, they seem to be helping me a bit, although im not close to being my former self, I feel as if it will slowly get there. A headach in the pelvis is very informative and actually shows you which muscles refer pain to different parts of the body and also gives you several stretching exercies to practice. Let me know how it works out for you. Also try to look up psoas stretches on google the iliopsoas is a major cause of testicular pain.


Hey I grew up on Long Island myself! Will look into those docs you mentioned.

Well, I had a followup with the urologist yesterday. Got the old finger exam once again and confirmed that my prostate is indeed sore. He compared it to the ultrasound from my first visit a few weeks ago and said it did not appear enlarged at all, which I suppose is a good thing. The exam definitely hurt like hell though.

He did let me know that prostatitis and/or epididymitis can indeed be present with absolutely normal blood and urine tests, that was good to know. And he didn't dismiss the notion of either being due to a chronic pelvic tension disorder.

He decided that a month of antibiotics was enough for one person to endure, and even though my prostate is still hurting, told me to stop taking the meds. Very happy about that. I feel like my body is getting thrashed by them. He recommended baths and motrin for pain and see if my body can just get rid of it on its own. He was also adement that Doxycycline isn't a great choice for treating the prostate, and since I'm allergic to the ones that are good, it's a waste of time.

Lastly, and pretty interesting, even though he thought my prostate/epi issues could be tension related - he recommended not pursuing physical therapy treatment just yet. He explained that doing so is just another way of me "giving in" to being sick, and I'll just fall onto that as a crutch and cause it to linger even longer. Instead, he recommended "pretend you don't have anything wrong with you at all and go about your life" for a while and see if it goes away on its own. If not, go ahead and pursue the muscle therapy.

He's probably got a point. Having any kind of ongoing pain or problem in the genitals can really be traumatic on your mind and spirit. It's debilitating and definitely causes depression and anxiety. Being debilitated leads to living a "sick" life. I spent the last two months on the couch in sweatpants getting worse and worse. I haven't shaved or gotten a haircut, I look like Tom Hanks in Castaway right now. I spent weeks just Googling symptoms and researching myself into a panic, and making myself sicker.

When you get a pain in the nuts your natural and justified response is to worry. Just don't go overboard, and don't assume that EVERYTHING is related. You could have a pain in the testicle and then a few days later get a headache with a lump in your throat. After an hour of internet research you're dying of cancer, when in reality you probably just caught a little cold.
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replied February 22nd, 2011
ouchcouch,

Yes, I have pain around the base of my penis which is dull and constant most of the time. It worsens after I masturbate. Since there is "mild" hydrocele is present my urologist is thinking it could be some type of infection or injury, rather than Prostatis or CPPS.

I did take MRI, which revealed L5-S1 disc bulge. Some orthopedics say the pain can't be due to this, and some others say it is possible.

The pain actually worsens when I'm tensed. Obviously I'm more tensed after seeing my scrotal scan. I'm still clueless why I have mild hydrocele, whether it is an infection or injury.

I've used hands to scratch during some itching long before these pains started. May be I twisted my spermatic cords or injured it is causing these pains?

I was in Alabama 8 months back, and I've seen ticks in my floor carpet. Can tick bites cause any infection/disease which is causing this pain?

Also I did notice my ejaculation was reduced around 3 years back. Since I didn't have any pain during that time, I din't give importance to it.
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replied February 22nd, 2011
ouchcouch,

Same like you, sitting on couch for more than 6 months now, doing google search to see anyone has good remedy for what I'm undergoing. Not shaved, no haircut, extremely depressed and my inability to do normal things make me think I'm "handicapped" now.
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replied February 23rd, 2011
PeteCurtis wrote:
ouchcouch,

Same like you, sitting on couch for more than 6 months now, doing google search to see anyone has good remedy for what I'm undergoing. Not shaved, no haircut, extremely depressed and my inability to do normal things make me think I'm "handicapped" now.


That's a shame, I can sympathize. Over the past week I just realized "Wow, laying around is just as bad for me as any infection!" and I've started just going about my business again. I feel a lot better for it. Just sitting too long at all can cause all sorts of muscles to weaken and spasm, new symptoms to pop up, new things to think about.

I will say this about Googling; I found it far more useful for finding alternative information to mainstream medicine than for any actual medical advice. Googling anything medical is a deep, dark path that I hope I can avoid going down again. It causes the mind to tune out the immediate (and important) world you live in, and to obsess and race in the extreme.

That, alone, can cause physical pain and illness. I was so panicked 2 weeks ago that my gums were bleeding for two days straight! I went to the dentist this past weekend and got a 5 star checkup! My mouth is in absolute perfect health. I stressed myself literally to the point of shedding blood, for no good reason. Because I Googled until I convinced myself that I had leukemia or some other horrible condition. It's maddening.

Here's what is working for me, after 6 weeks of antibiotics didn't:

- I am training myself to be aware of what my muscles are doing down there. Not in an obsessive way, but in a just being aware way. When I notice that I'm clenching, I stop what I'm doing, take a deep breath, relax and just bear down. Ha, one of these days I might crap my pants but it helps.

- Not clenching the pelvic floor muscles during sex! This is major for me. I used to have a knot in my perineum after orgasm that would last for an hour. This could be the single thing that might be the answer for me if there is one.

- Do not move your bowels close to sexual activity. Same muscle reasons.

- Hygiene! This could have been what got me in this mess in the first place. I work from home, and spend a whole lot of time on the couch, in sweats, working on a laptop. Honestly, there were a lot of times I skipped showering for a day, even two or three maybe, especially if the wife was out of town and I was on a work bender. Sitting around in your dirty shorts puts your urethra in the area of a lot more E. Coli than it probably should be near.

- Meditating. I'm actually doing this lying down, because sitting at all seems to cause me to clench still. I just grabbed a bunch of guided meditation podcasts off iTunes and am enjoying them.

- Relax in the bathroom. This is a tough one for me. I am a hardcore clincher, during both #1 and #2. Training myself to relax and not cut it off in the middle is going to be important.

- Don't think about it. Think about anything else, anything. Believe it or not, I found going for a nice long walk works wonders. I just needed to start thinking about the walk, the sights and sounds, and not how much it hurt when my right nut hit my leg with every other step. I think it's important to keep the muscles in the legs/groin/back strong and operational, especially if this is a muscle disorder.

I can't speak for anyone else's condition, and I'm obviously not an expert. But simply moving on with my life has probably brought the most dramatic improvement of anything thus far. Get that hair cut, shower up, get dressed and just try to get the blood moving and the mind thinking healthier thoughts. It certainly can't hurt.

How's your prostate btw?
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replied February 23rd, 2011
PeteCurtis wrote:
ouchcouch,

Yes, I have pain around the base of my penis which is dull and constant most of the time. It worsens after I masturbate. Since there is "mild" hydrocele is present my urologist is thinking it could be some type of infection or injury, rather than Prostatis or CPPS.

I did take MRI, which revealed L5-S1 disc bulge. Some orthopedics say the pain can't be due to this, and some others say it is possible.

The pain actually worsens when I'm tensed. Obviously I'm more tensed after seeing my scrotal scan. I'm still clueless why I have mild hydrocele, whether it is an infection or injury.

I've used hands to scratch during some itching long before these pains started. May be I twisted my spermatic cords or injured it is causing these pains?

I was in Alabama 8 months back, and I've seen ticks in my floor carpet. Can tick bites cause any infection/disease which is causing this pain?

Also I did notice my ejaculation was reduced around 3 years back. Since I didn't have any pain during that time, I din't give importance to it.


I am no doctor by any means, but in my own experience, pain near the base of the penis came along only when my condition switched from epididymitis to prostatitis. With the epi' I only had testicle pain, and it was a very distinct, almost sickening, sharp pain in the rear of the testicle. There was some radiation of pain into the leg but that was mainly caused by me walking funny for so long.

When the problem left my testes and moved to the prostate the first thing I felt was pain in the penis. When you have a prostate exam and the doctor presses on it, if you've got a prostate problem, it will send a shot of pain right up the base of your penis. This doesn't happen with epididymitis. Also, the pain after masturbating jives with the prostate thing for me as well. During sexual activity the prostate is doing a lot of work. Your pelvic muscles are also doing a lot of work. Pain afterward could be a sign that something is tender or enlarged in there. Prostate inflammation can happen overnight, and go away just as fast.

I'd recommend getting trying to get a prostate exam when you are feeling your worst. If that means having to "make it happen" in the doctors office bathroom or something then so be it. It's worth exploring I think. Could be as simple as something you are eating causing the whole thing. I'm off caffeine, coffee, tea, sodas, booze and spicy foods now and feeling SO much better for it. All of those are rough on both the prostate and the urinary tract. Eating food that keeps you regular is also good. Avoiding constipation and pushing is important.

I don't know much about hydrocele. I did have a fair amount of fluid around my testicle (I had orchitis along with the epididmytis) but it has all nearly gone away with the epididmytis. My right testicle is still hanging rather lower than it should, but it's getting better. The extra weight put so much strain on the cremaster muscle on that side that it literally stopped working. I'm contracting my stomach a bunch throughout the day to try and build it back up.

I think if you had any kind of torsion you would be well aware of it, as the pain is supposedly excruciating. You'd also likely have one testicle sucked way up higher than normal. It would also begin to atrophy rather quickly (as in hours or days). You'd more than likely be feeling and seeing all this by now.

The pain being worse when you're tense is typical of any kind of pain or sickness. But it's definitely part of what I am going through. I became a bundle of nerves and I'm convinced I gave myself prostatitis because of it.

Ticks don't live in carpet. They need a host that has warm living blood in it. They don't tend to leave high grass or densely wooded brush, and if they do it's usually on the back of an animal, and when they are attached to something they hang on for life. Are you sure you weren't seeing fleas? I grew up in a tick-infested area in the northeast and the only living ticks I've ever seen indoors were either attached to people or dogs. Of all the family and friends I've known who have had Lyme disease, none had any kind of testicular problems from it. It tends to make you rather sick, and causes all sorts of central nervous system issues. Your face looks like it's sliding off on one side. Eventually it tends to settle in your joints and causes arthritis. You'd probably know if you had Lyme by now.

My ejaculation was reduced only when the prostatitis kicked in. When it was epididymitis my loads were of normal volume, although I avoided sexual activity just because it was so uncomfortable. Most of the semen is created in the prostate. When that flared up it was greatly decreased. To the point where I was getting nervous. Like just dribbles. I was also instructed by the doctor at that point to ejaculate as much as I possibly could to keep the prostate clear.

Hope some of that is useful. Again, just talking from my own recent experience. I have no real knowledge. : )
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replied February 23rd, 2011
ouchcouch,

I was not a hypochondriac until this pain became chronic. In the earlier days I used to ignore these symptoms. Perhaps they returned strongly now. I used to get mild pain in my left side of penis 3 years back and I started noticing less ejaculation. I din't know they are the symptoms before it really manifested and came back strongly giving pain in my left testicle in the last several months.

Yes I'm aware ticks don't live in carpets. I live adjacent to dense trees, perhaps keeping the windows and patio door open during last summer invited some insects. May be I misunderstood them as ticks. All my neighbors have dogs as well.

The pain in my left hand is equally severe along with my pain in left testicle and left penis. I have numbness as well. I was tested for arthritis which came back again as negative. However I see a relation between these 2 pain in genitals and left, as they both started at the same time.

The best way I will try to keep the pain minimal is by drinking plenty of water. After passing urine, I feel some relief.

By the way, I'm able to roll the ball when it hangs. I don't see tenderness there. Since epididymis is attached on top of the testicle, won't it give pain or tenderness on rolling the testicle? I'm seeing the pain just little above that, is that something I twisted my spermatic cord causing injury or any infection there?

Several rectal examinations was done to see whether I have Prostatitis. I had pain only during one rectal examination, which caused lot of pain in abdomen. The scanning din't show any swelling in Prostate.
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replied February 24th, 2011
PeteCurtis,

I hear ya. Sorry if you thought I was dismissing your symptoms in any way, totally not my intention! This whole ordeal turned me into a hypochondriac as well.

I suppose with a herniated disc that pain could be happening all over your body. That said, I've never heard of any standard illness that would cause testicular and hand pain together. They could be totally unrelated, or just related to nerve pressure. The strangest radiating pain I experienced was if I touch the tail of my epididymus I was get a shot of pain in my jaw on the same side, near the chin. I could do it every time without fail. The pain also was felt in my stomach, thigh, butt. Nothing in the hands though. Here's a thought; Could it have anything to do with the fact that you're on the computer all day long? Is that your mousing hand, or have something to do with your posture? Does that arm rest on the edge of a desk or table? Any other kind of repetitive stress? You could be tweaking some nerves in another way. That's happened to me a ton of times, and I'm always stumped until I realize it and then it's obvious and easily dealt with. Just a thought.

It's interesting that you feel pain in the gut, and also when holding urine. That sounds like a UTI. My infection spread pretty much around my entire urinary tract. Went from the epidiymus, into the spermatic cord, into the prostate, bladder, etc. Getting at those places with antibiotics can be tough. For me, the Doxycycline was enough to keep the epididymitis and UTI at bay, but not enough to infiltrate the prostate. Unfortunately, all the meds I've tried for that I seem to be allergic to.

The epididymus attaches at the top, and then wraps around the entire back and cups the bottom. When there is an infection in it, typically the pain would be felt when touching the back and/or bottom of the testicle, as well as the top. Anything above that is the spermatic cord, which leads to the prostate and the rest of the urinary tract. When I had epi I could bare to even hold my testicle in my hand. If you had any kind of torsion then you'd know it by now. I suppose one could mildly injure the spermatic cord but I don't know anything about that. The infection can certainly travel up and down and into any area in the genital/urinary system. That's what mine did, and is still doing.

Do you ever run a fever, even a mild one? Blood and urine tests are normal? Do your testicles look and feel completely normal? Do you feel physically sick otherwise? Headache, nausea, chills? Just thinking back to some of the stuff I experienced.

Hope you can get to the bottom of this. Stay positive!
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replied February 24th, 2011
ouchcouch,

The epididymis is attached on top of the testicle, aim I right? When the temperature is high, and when my testicles hang loose, I'm able to roll my testicles, and there is no tenderness. This is making me think why it is not hurting while touching?

I feel the pain more upwards and perineum. When touch behind the base of my penis or the perineum, I can see some pulsing on nerves which is causing the pain. I can feel the same pulsing pain in my left hand. The pain I have in my left in fact started on the same day along with my genital pain.

I'm not stressing my hand much. I don't think using laptop is causing the problem. This is not carpel tunnel, the reason being I'm getting the pain between the last 2 fingers in the left hand which is a "pulsing" pain and numbness. I saw an orthopedic as well, and my arthritis test also came back negative.

I don't have any burning or smell while urination, and I never had the history of UTI or STDs. I never had any discharges as well. Several repeated blood, urine tests, urine and semen culture always came back negative or normal. My frequency of urination is also normal.

By god's grace, I never had fever, nausea, etc for almost a year.

My testicles also look very normal from outside. No change in color or size. No lumps or lesions.

I really don't understand what this could be.
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replied February 25th, 2011
PeteCurtis,

I don't know buddy. If you can roll your testicles around in your hands then I'd think that you don't have epididymitis. I think most people here would agree that handling your balls with epi is a very painful task.

Perineum pain and pain near the base of the penis are common in prostatitis. I've got both right now. Prostatitis just means inflammation of the prostate. It could last a month straight, or for 5 minutes. I had 4 rectal exams within a month before anyone caught mine. The one that actually diagnosed it was literally a day after one that found nothing at all! What I'm saying is that it can flare up spontaneously and go away just as fast. Have you tried to completely cut out coffee, tea, alcohol, spicy food, etc? It might be worth a shot for a week and see how it feels, even if just to eliminate it from the list.

Vitamin C, Calcium + Vit D, Selenium, Folic Acid, Vitamin A, and Vitamin B1 are good for reducing inflammation, while Zinc and potassium promotes inflammation. After a month I realized that I was taking tons of Zinc, because that's what I always take when I'm sick. Now I take a multivitamin, a Selenium and a Vitamin D every day. I cut out the extra Zinc and it made a huge difference. I get loads of calcium all day long via milk and yogurt but you can chew on Tums or Rolaids for a good calcium boost too. Jacking up my calcium intake helps me a lot. *Be sure to differentiate between the prostatitis info and the BPH info. Again, I think it's worth a shot for you to eat and drink as though you have prostatitis for a week or so and see if it makes a difference. It can't hurt.

I would start thinking about the groin and the hand separately for now. It's easy to think everything is related, especially when you are desperate for answers. I know I've had pain and numbness in the hands, wrists, etc and I've tried to associate it with various ailments of all kinds, but every time I let a doctor look into it with fresh eyes, it turns out to be from my computer use or some other physical cause. Leaning any part of your wrist or hand on the edge of anything for extended periods of time will mess up your nerves. No doubt about that.

When I wound up in the hospital two weeks ago I was in tremendous pain in the balls, stomach, diarrhea, fever, red throat. I had a lump in my salivary gland and have been extremely thirsty for two weeks now. I went in thinking something really bad and systemic was going on. They even found a cluster of enlarged lymph nodes in my intestine in the CT scan. In my state of mind, I assumed it was all related and I was about to discover I had cancer or something!

But the reality of it was that I had epididymitis, which turned into prostatitis. Unrelated to that, I caught a stomach flu from my wife. I went into the hospital, got a lot of fluids and the next day all of the stomach and body pain was gone. Today I see an ENT specialist to see what's up with my salivary gland. I'm guessing it will be down to a sinus infection of some kind.

Point is, when I was in the thick of feeling like hell and being scared and confused I was convinced that all of this stuff was related. And it just plain isn't. That doesn't mean yours isn't, but I'm continually finding that the answer is very likely the most obvious (and least exotic) one.
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replied March 5th, 2011
I recieved a private message today whihc reminded me of the forum.

I am repeating a previous post that may be of help to current suffers

I have been cured now for a long time, so here is the post

In trying to avoid the Epididymectomy and being made sterile, which had been recommended by a consultant at the Hospital, I managed to cure my Epididymitis through looking at any alternative solutions and this site.

The change in terms of level of pain started to take place with the first week of taking actions 1-6. It was only after starting action 7 that I became fully cured.

The main things that I did over a two month period were the list below. The key changes being caused by the probiotics, fully raising the legs at night or when in pain and the zinc.

1) Increased water intake

2) Removed caffeine and alcohol – I now drink de caffeinated coffee and normal tea in small quantities

3) Reduced yeast intake

4) Slept with a bed rest that raised my pelvic area and legs and allowed the testicles to drain to the kidneys. At the end of the bed rest I had pillows supporting the end of my legs to keep the whle lower body raised– This was the most significant action that produced the best results in terms of pain relief. It means sleeping on your back and sounds slightly bizzare but it works.

5) Took probiotics for 1 month to help rebalance the anti-biotics that I had taken as an initial attempt to cure my Epididymitis

6) Took a month’s course of Selenium to improve the immune system

7) Took 25mg Zinc at the end of the first month which in terms of timing seems to be have the final necessary ingredient to cure rather than calm the problem.

Other helpful pain reliefs included

1) Ice pack applied directly to the area

2) Ibruproen gel applied directly to the area

I found that found out that any sexual activity made the Epididymitis return a couple of days later and was therefore best avoided.

Hope that helps you all and I wish you all the best with curing this painful disease.

Please let me know if this works for you.

Al
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