Medical Questions > Mens Health > Prostate Forum

Chronic Epididymitis (Page 9)


August 14th, 2010
It is possible that masterbation can cause epididymitis symptoms but normally afterwards not during.

Alastair
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replied August 20th, 2010
I was recently diagnosed with prostatitis which initially started as epididymitis. Has anyone successfully been able to cure this with levaquin and flomax? This is currently what I have been prescribed after an initial dose of cipro two months ago that didnt work. Next was given Bactrim which I had an allergic reaction to, and then a zithromax shot due to the fact the ER doctors thought I had an STD. I have since received my test results back and all came back negative, thank goodness.

In addition to the levaquin and flomax I have been drinking the apple cider cocktail three times a day and a lot of green and saw palmetto tea. Stretching as well, not sure what is gonna kick this thing but something has got to help it.

I have also been reading a lot of good things about the supplement prostaq, anyone had any success with that?
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replied August 20th, 2010
Experienced User
wow you have taken a lot of things damaja23 like the rest of us. How did the Cipro work on you? My doctor just prescribed me the one. Like you all of my tests and ultrasounds have come back negative. I feel discomfort/pain and tenderness in epididymus glands(right side)and the scrotum. I'm also taking saw palmetto, antioxidents, hot and cold sitz stretching and different things. I have not taken the supplement prostaq? Has anyone taken this already? My doctor indicated that there could be some inflammation very deep inside that we cannot see, maybe scar tissue but who knows in reality only God knows.
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replied August 23rd, 2010
magic7508
The cipro was given to me when I first discovered this and within 2-3 days I was feeling back to normal, however that only lasted for about a week and a half, after that all my symptoms came back while I was still taking the cipro. After cipro I was given bactrim which again began to work but unfortunately I had an allergic reaction to it that forced me to stop taking it.

It's strange because the only discomfort that I felt originally was in my left testicle, now it's in the groin area as well as through my thighs the area between my scrotum and rectum. So to me it's almost as if the infection spread to the prostate which means that it got worse in my opinion. Leads me to believe that this may be fungal and not bacterial. In fact, right around the time I started experiencing this my girlfriend thinks she had a yeast infection.

I have an appointment with my primary in two weeks to see how the current meds are working. I will discuss with him wether to see another urologist or not and if we can maybe get a culture to see if there is bacteria or a fungus. What's been good so far is that my pain is not too bad most days, I feel as if the hot humid weather makes it worse. Some mornings I will walk my dog and the discomfort in my groin is really bad afterwards. I also find that if i smoke marijuana it sometimes make the discomfort worse. I think the good days are attributed to the antibiotics because they can act as a anti inflammatory which probably helps. Currently not taking any pain meds because im scared of drug interactions and dont like to take too much stuff.

Anyway hoping that the ACV cocktail works over the duration of time I am taking it, coupled with the stretching and meds. Also thinking of going to see a different Uro because the one I went to didnt even think to check my prostate when my primary did. I am also going to mention the prostaq to him. It seems to work for a lot of people. The main ingredient is quercetin which is a natural flavanoid that is an anti inflammatory. If there is no infection I really dont want to keep taking antibiotics and hurting my immune system further.
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replied August 23rd, 2010
damaja23

Please read my earlier posts but from my experience you need to

a) take bed rest with your pelvic area and legs raised. I suggest you sleep like this while sleeping on your back. I can't emphasis enough how much this helps me. I use a bed wedge to raise my pelvic area and then pillows beyond the to raise my legs.

b) take probitics to help counter any anti biotics you have been taken and hep the body build up

c) Try the exercises on the previous pages.

I have also put anti inflmatory gel (ibuprofen) directly onto the testicle which also seem to ease any pain.

I can only say my results improved from a pain level of 8/9 to one of 2/3 and nil on a number of days.

If you do trythe above and you get similar reslts please let me know.

Best of luck

Al
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replied August 23rd, 2010
Thanks Angelal9,
I have been sleeping with a pillow either underneath my buttox and legs or between my legs because I tend to sleep on my side.

Currently I am on antibiotics, can I take probiotics while on antibiotics? I have a follow up appointment with my dr. in two weeks to see how the levaquin and flomax treatment is coming along, im not sure if it's doing the job 100% but I have been feeling a little better. I'm not sure if I can attribute that to the meds or the apple cider vinegar cocktail. I also have been eating better, cut caffeine out of my diet completely and have been trying to introduce a lot of foods that are good for the prostate in general, like pumkin seeds and nuts and a lot of fresh fruit.

I am not 100% better by any means but it seems to be more manageable and without any pain killers or anti inflammatory's. I will try to focus more on how I position myself when I sleep and let you know how it is going.
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replied August 24th, 2010
dama23,

Like you I slept on my side, I thought I could not sleep on my back, but with the wedge no problem - look for a back wedge on an auction site and you will see what I use.

The point my doctor informed me is to drain anything bad back to the kidneys to deal with, hence why the raisd body position helps.

Yes you can use probiotics with anti biotics and some are designed specifically for that purpose - I used a product recommended by a health store in the UK - Optibak A Biotica. In addition I actualy had pumpkin oil 3 teaspoons a day.

We seem to be following a similar route with simialar success.

I am not fully cured but can now manage the situation and understand what works and what does not.

I am now focusing on reducing any inflamation and as I said have recently attempted anti inflamatory gel at night.

The power of sleep is amazing for healing the body.

Al
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replied August 24th, 2010
I am glad that a lot of us have found remedies to make this more manageable. I know it can be really debilitating at times and also makes you very depressed because you constantly think to yourself is this ever going to go away and will I ever be normal again. This gets especially worse when you have a few good days and then a day that you feel like you regress a little bit, but the only thing you can do is keep trying what works and eventually we can all beat this.

My sex life has diminished significantly because of this and I get worried sometimes that my girlfriend is going to leave me over it. Not that I think she would, we have lived together for several years and plan on getting married in the not too distant future, but sometimes you cant help those thoughts from coming into your head.

I have faith now that I am going to get my life and my sex life back, hopefully very soon.

Question for anyone on here, does anyone feel that it flares up after you drink alcohol? I dont think that seems to bother me so much, since i'm not a heavy drinker anyway. I have however stayed away from caffeine, not quite sure if its helping with everything else I am trying. What about Marijuana, does anyone feel that it flares up after you smoke? That sometimes does it fore me.
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replied August 27th, 2010
Angelal I took your advice and started taking a probiotic to start getting my immune system back up to par. I caught a cold and Im having a hard time shaking it. As far as the sleeping with my legs more elevated at night I dont seem to be seeing much of a difference, in fact the last two nights I slept like that I feel worse. Now I dont have a bed wedge like you but maybe I will pick one up, they have them at wal-mart pretty cheap.
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replied August 27th, 2010
I ended up at a spa in vegas one night, got a hot bath (not sure of the water was clean) and massage. Chic did the flip and asked for more, i refused and she opened her robe and rubbed oil on herself (vagina) and grabbed the tool. Told her I didn't go for that and I left in a hurry. 3-7 days later noticed tingle in end of penis, pain in groin area, testicles hot & hurt, shooting pains in lower intestinal tract, pain in both kidneys, burning sensation in rectum.

Got home and the treatments began.
6/14 - Dr.XX - Urine test (negative) - Doxycycline & Shot - Ineffective
6/24 - Dr YY - Urine test (negative) - Blood test (negative) - Ciprofloxacin & Shot- Ineffective
7/1 - Dr zz. - Urine test (neg.) - Blood test (normal)-Penis Swab(neg.) - Amoxicillin - Ineffective
7/12 - Dr zz Sr. - CT Scan, Blood work, Testicular scan - normal - Tetracycline - Ineffective
7/24 - Dr zz. - Suprax (cefixime) - Ineffective
8/12 - Emergency Room - Blood test, urine test, penis swab - Levaquin - reduced pain in testicles and lower abdomen to 2/3
9/27 - Dr ID . Scheduled to see and infectious disease doctor

All doctors first thought it was STD from her touching herself and then me. ALL tests have proven negative for std, no discharge only PAIN.

For all the shots and antibiotics i have taken, I should be clear of anything, but to no avail. I am hoping and praying the ID doctor can shed some light on the subject and get me back to normal.
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replied August 28th, 2010
Fungus?
BubbaGump we all feel your pain, It's very discomforting to think that all the doctors know how to do is throw antibiotics at you which never really fixes the problem. One thing I would look into is your prostate, make sure the doctor looks at that and verifies if it feels swollen or boggy, a sure sign of inflammation which then causes inflammation down to your genitals and pelvic region. You also may have a fungus which is a very good possiblility, throwing antibiotics at it wont help and will only make it worse. It's a tough sell trying to tell that to the doctors, but if the antibiotics arent working it is worth a shot. Prostatitis and genital pain can definitely come from a fungus.

That is the point whre I am at right now, been going through this for months and just about to finish another bout of antibiotcs which then I will try to treat this as a fungus.
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replied September 7th, 2010
Experienced User
Good morning everyone, have any of you found any additional remedies cures for this problem. I still have tenderness in the scrotum coming from the inside (the epididymus glands on the right side). I have been praying a lot, doing the stretching mentioned above, using a pillow to sleep, taking hot/cold sitz in the showeer, taking saw palmetto, Grapefruit seed extract, applying MSM cream in that area. The tenderness and pain still does not go away and it affects my life a lot. Have any of you found any additional thing/medicine/supplement that helps anything? Please let us know. I know that if we all work together we will find the cure and the solution for all us. If anyone can help us we will forever be thankful.
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replied September 7th, 2010
Magic,
Look into the supplement quercetin. It is a natural anti inflammatory with no side affects. it needs to be digested with either bromelain (which is another anti inflammatory but helps with digestion, usually found in pineapples) and or vitamin C. This actually was advised for me by my urologist. Also read some good things about pygeum so I am also taking a pygeum and saw palmetto complex. I dont think Saw Palmetto alone will do anything for this, it is very good for the prostate though in the long term.

I have tried several different things, stretching every morning and evening (especially after sitting all day at work and sitting in a car driving home) apple cider vinegar (2-3 tablespoons in either water or cranberry juice) 2-3 times daily, (decaf green tea instead of coffee) one or two times daily and just recently started with quercetin supplements. Also changed my diet significantly, all seem to be helping at least a little. Had an appointment with my doc this morning and my prostate is not as swollen and is only minimally inflamed as opposed to what it was several weeks ago.

I have to say that the intensity of the pain is down with occational flare ups, the times I find it flares up bad is when I smoke marijuana, just cant figure out why. If anything I thought it would help but it seems to make me tense up a bit and gives me more anxiety about it.
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replied September 7th, 2010
Experienced User
I think you should definitely stay away from the marihuana since it would definitely make things worse. One of my friends gave me some for me to apply in that area and it made it worse. So stay away from it that's my best advice. I also think this had to do with some sort of inflammation there in those glands that tests cannot detect or only God knows exactly what it is. Thanks for your help. If anyone else knows of something that can help us please let us know. Any suggestions or advice will be very much appreciated.
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replied September 9th, 2010
Experienced User
Can anyone help us please. I have been a lot of discomfort/pain and tenderness in my right epididymus gland and in my scrotum. The intesity varies but there are days that it is really difficult. I know we're trying different things. The last time I went to the Doctor they did another ultrasound (the four in 3 years) and everything looks okay. The Doctor put me on Cipro even though all the urine tests and blood tests came negative. He told me to try it. Like all of you I have taking antibiotics several times in the last 3 to 4 years. But the thing is if there's no infection what good is the antibiotic going to do and my worry to not take the antibiotic is that if I take it my immune system is going to suffer and also that antibiotics can develop fungus and the thing is that we don't really know if what we have there in that area is fungus so taking antibiotics I don't think is a good idea. So right now I don't know what to do? Should I take the antibiotic the Doctor told me to take it for two weeks? Can anynone advice me? Or if anyone is doing additional things that are working for you please let us know. Thank you.
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replied September 9th, 2010
Magic,
I would think that after three years, whatever infection you have is gone by now. Not sure why the doc is prescribing you more cipro, I would advise you to see a different doctor if thats what he keeps doing. Has he felt your prostate? Is it normal or boggy (spongy)? If thats the case then you need more antibiotics but if not I would get off them asap, you are only doing your body more harm than good.

Like I suggested try quercetin 1000mg a day. Try to get some form of quercetin with bromelain and also take a vitamin c pill, it helps digest the quercetin to make it more effective.

There is also the prdendal nerve factor to consider here. You may have some trauma to your prudendal nerve either by sitting for prolonged hours, bike riding etc... If it is the nerve then the doc needs to put you on something like Elavil (Amotryptiline) and you may need to have extensive physical therapy.

One other thing to consider is an inguial hernia, this is often mistaken for epididymitis as well due to the area that it is in sending pain signals down to your scrotum.

Im in the same boat as you although my pain is pretty minimal. Im exploring all these options with my different doctors currently.

Hope this gives you some other ideas to work off of rather than antibiotics, like I said they are killing your system and you need to get off of them and start taking probiotics immediately.
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replied September 13th, 2010
Experienced User
Hi Damaja23 and anyone who can help. If you read my previous posts. I mentioned that my Doctor prescribed me Cipro to take for two weeks even though he didn't see an infection all the tests came back negative. The last few weeks have been very difficult on me I have tried all the things that you guys have mentioned and the results have been minimal. As you know there's days that we feel better but overall I have been feeling pretty bad my discomfort in the epididymus gland (right side) and in the groin has been pretty bad. When I touched my scrotum is very sentive and it hurts have you guys have that sensation? The glands inside hurts which makes the skin very sentive to the touch it feels like a burning pain sensation inside at times. I have not taken any of the Cipro that my doctor prescribed me because he didn't found any infection in the tests that he did and also in the ultrasound but right now I just want to take something that is going to minimize my pain/discomfort. What do you guys think I should do? I have tried so many things during this 3 or 4 years. I pray and pray each day for us to get completely healed from all these symptoms so we can have a normal happy life. Please help me
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replied September 16th, 2010
Magic, I was in the same boat as you my friend...

I really think your problem is mental, because mine was as well. I think you are sooo stressed out about this that you constantly have it on your mind, and in turn the problem feeds itself.

For me, I clinch my pelvic muscles when I'm anxious or scared or whatever. I didn't realize I was doing it until I did some research about this problem. Consistent clinching of those muscles puts strain on your body and results in all sorts of different symptoms. In both of our cases, it resulted in pain to our testicles.

You know what helped me recover after doing tons of research, taking antibiotics, stretching, doing pelvic floor excersises and massages? Simply seeing a counselor.

I have an anxiety problem, and when I have something on my mind, the pain returns as my anxiety levels increase. Seeing a counselor let me get the pain off of my chest, along with other things that were bothering me in my life. I know you feel alone in your struggle because I did too. Being able to tell a counselor about what you have been going through can be a huge relief.

My friend, I was just like you from October to May, scared to death that my life would be ruined by this. Just know there is hope for you. So go see a decent counselor, that's what I'd recommend.

Also, try to fill your life with plenty of things that will take your mind off of the problem. Go out more often with friends, volunteer, go to church, go for a daily jog or walk. Anything you can do to divert your attention from your pain helps considerably.

I really hope this works for you as it did for me. Keep in touch.
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replied September 16th, 2010
Experienced User
Thanks DSteak for your advice I really needed someone to help me out today. I have my family and my friends that I tell about what I'm going through they always listen to me and give me advice. I think also seeing a decent counselor is going to help me too. Was your pain in epididymus glands very strong? What about the tenderness/pain in the scrotum? At times, if I touch that area it hurts and is very tender and sensitive the pain there feels like a like burning pain coming from the inside to the outside. The skin gets red at times when the symptoms are very strong. Were your symptoms similar?
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replied September 16th, 2010
Magic,

It sounds very similar to my symptoms, except I don't recall the skin ever appearing any more red when the symptoms were more severe.

For me, it was really hard to locate exactly where the pain was stemming from. For example, right now I feel pain in my inner thigh, but later it might be in my left testicle. It seems to move around. But ya, I had about three months of complete relief after seeing a counselor for a few months. The relief was almost immediate. But I'm getting married in less than two weeks so I've been on edge a bit which as brought the pain back. I'm confident once it's all over with my mind will be at ease and I'll be back to normal.

Anyway, do you feel yourself clinching the muscles around your anus? Ha, kind of a personal question but it's important. Sometimes when I'm sitting, I simply can't relax those muscles, and I'm confident that is where the problem started. Hopefully that's what you are doing as well so you then have an indication as to where the problem began.

So, along with the counselor, I also saw a pelvic floor specialist three times. She found some very sore spots under my thighs, right underneath by butt cheeks where the femur meets the pelvis. As soon as she pressed them I jolted. That's an indicator of a trigger point, and those need to be massaged. I invested in a Theracane, which was like 30 bucks on ebay, and helped me massage those areas that are hard to reach.

Those two things really helped, but I sincerely believe the counseling is priority number one. I know how you feel: this is the last thing you think about when you fall asleep, and the first thing you think about when you wake up. Even if you don't feel it, you still check to see if it's there, and you almost talk yourself into feeling the pain again.

Well, that cycle has to stop. It's amazing what getting things off of your chest can do for your mind. The key is to understand that your problem WILL go away, and don't feed the problem with catastrophic thoughts. Those have to stop.

So see a counselor, invest in a theracane, and just believe it's going to get better. Try to occupy your days with things to occupy your thoughts. Then over time, you will find yourself thinking about it and caring about it less and less, and the pain will begin to cease.

But then when the pain comes back, you have to understand that it is only temporary, and be sure to pay no attention to it. Because now you have proof that the problem isn't permanent. Understand what I'm saying?
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