Medical Questions > Mens Health > Prostate Forum

Chronic Epididymitis (Page 7)


July 6th, 2010
Magic7508, I'm not sure why you're having such discomfort with drinking the apple cider vinegar. I got use to it within days and drink it everyday with no problems. Lots of people drink apple cider vinegar regularly for health reasons (including some celebrities). Some of the other things I tried where Bromelain (pineapple stem extract)pills but they didn't do anything. I tried saw palmetto for awhile but it didn't help either. Icing or heating never helped. Anti-inflammatory drugs never helped either.

I don't know why but after trying all those things, the only time I got better was when I started eating like a caveman (paleo diet) and drinking apple cider vinegar 2-3 times a day. The paleo diet is basically a raw-food diet with no starches, sugars or grains and is extremely healthy (it will probably cure your diabetes in 30 days too if you have that also). I'm not sure what aspects of that diet helped me but the cumulative effect of the diet with the apple cider is what worked for me. I didn't take any supplements or prescriptions or herbs or anything other than what I mentioned.

It's up to you if you want to make yourself drink the apple cider consistently or tighten up your diet even more, it might not even work for your body type, I'm just not sure. But I personally followed the paleo diet 100% and drank lots of apple cider for 30 days and found full relief. Hopefully you will have luck with some of the things I've recommend or you can incorporate them with other peoples suggestions and find out the combination of things that makes you better.
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replied July 9th, 2010
Refer to link in post
Unfortunately Urologists are pretty bad when assessing these issues. I had epididymitis for several months and was given antibiotics (2-3 different kinds) without the urologist really trying to evaluate my condition. I am going to post a link which may help you. You may have epididymitis which may be caused by a particular fungus. So throwing yeast, carbs and antbiotics could actually make you WORSE. I think this is what I had and after 4 weeks of relief I am doing much better. Just remember YOU have to be your own advocate for this which really sucks. Refer to my post (mason74) as well as the others below mine. Hope this helps for I REALLY know how you feel. The pain can almost ruin someone's life - but cheer up, you may have another option to gon on which means hope!

-Mason
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replied July 15th, 2010
Hi

I had this 6 years ago and was cured with anti biotics after two weeks.

Since then I would get an occasional pain which was cured by Ibuprofen.

That was until 4 months ago when the pain returended and I could not get rid of it. The doctor gave me a 4 week course before trying another 2 week course of a diff anti biotic.

Next step was an ultrasound as I said to my doctor good and bad news - good news nothing to report - bad news we don't know what is causing it

She then sent me to an urologist who has recommended an epididymectomy (where they remove the epididymitis on the side it hurts)

Since that bomb shell I have been looking for cures.

Certainly raising the pelvic area helps - put 2 pillows under your bottom and relax. I am also trying this at night. First night brilliant - little pain second not so good - will update next week. I am using memory foam pillows and lay on my front.

I am wondering about applying ibuprofen gel to the area to assist with reducing the swelling - anybody tried this?

This forum has a lot of ideas and I am happy to join and share my experiences.

This must be able to be beaten.
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replied July 15th, 2010
angelal9,

For me, even though the urologist told me it was an infection, it ultimately not being one. I've recovered after six months of hell by seeing a physical therapist, but more importantly, a counselor. I suffer from moderate bouts of general anxiety, and I truly believe this caused me to involuntarily clinch my pelvic muscles.

Once I began seeing the counselor and getting a lot of stuff that was bothering me off of my chest, I started noticing the pain going away. Now that I know that was the cause, when I do notice the pain, I don't stress out about it because I know it will eventually go away.

During those six months, that was essentially the source of my anxiety. Will it go away, ever? Now that I know, yes indeed it will, and has, my anxiety toward this condition is a complete 180 from where I was.

Now, this is of course if you don't have an infection. However, I've read in many books that more times than not, there is no infection, but the urologists will tell you that there must be because they don't know anything about dealing with stressed and tightened pelvic muscles.
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replied July 15th, 2010
This is Mason again, I thought I had provided the link in my earlier post. I guess not so sorry about that. Hopefully this may be some use to anyone who is suffering from prostatitis and/or epididymitis.
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replied July 16th, 2010
D Streak and Mason

Thank you for your replies.

It appears both of you have completed pelvic exercises could you please describe the exercise you completed so I can follow them. I think it will certainly help.

Just had third night on two pillows and still improving, but as we know this may be temporary.

Woke up last night but 1/2 a zimovane solved that. I always have a few around for middle of night waking.

I have also withdrawn from caffeine, alcohol, sexual activity.

Current pain level down to 2-3 with lower burning sensation. This compares to a pain level of 7-8 on Tuesday when I started to try and resolve this.

If I can get to a point of controlling this I will avoid the operation which I really do not fancy.

Thanks for your advice.

Angelal
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replied July 16th, 2010
Just a quick update as I saw the GP today.

She was comfortable about me avoiding / postponing the op until I had tried alternatives.

Agreed with the sleeping regime recommended a sleeping with a bed wedge where by your torso and legs are elevated so that you incur drainage back to the kidneys. They range in price up to £60. I will let you know how I get on with it but have been encouraged with the pillows.

Best wishes

Angelal
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replied July 16th, 2010
Exercises I used
OK, so I try to post a link to another forum and the moderators aren't allowing me to post the link. So I will just copy / paste my post from the other forum so others can see in a following post. However I will go a little indepth into some of the exercises I performed (see below) which will be mentioned in the next post.

- Sit ups with legs resting on a chair (15 of them) - 2x a day
- individual leg stretches with one leg stretched while the other folded in (hold for 15 secs - 2x a day)
- lay on back tuck knees into chest with arms wrapped around legs (hold 15 secs - 2x a day)
- Hamstring Stretchâspam�Lie on your back with legs bent. Hold one thigh behind knee. Slowly straighten knee until a stretch is felt in back of thigh. Hold 20 seconds. Relax. Repeat 3 times on each side.
- Piriformis Stretchâspam�Lie on back with both knees bent. Cross one leg on top of the other. Pull opposite knee to chest until a stretch is felt in the buttock/hip area. Hold 20 seconds. Relax. Repeat 2 times each side - hold for 15 secs each.

I really hope this can help people. I know how bad Prostatitis / Epididymitis can be and I wouldn't wish this condition on anyone. Good luck!
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replied July 16th, 2010
The post below is from the other forum I mentioned (above). Also this post is a little old, I am about 5 weeks out now after doing what I mentioned below and I am still not incurring any symptoms. Also, you can google "Problems with Prostatitis and Epididymitis" to find it which has some other good potential medical/alternative solutions.

Keep your chin up guys. I had this same issue (epididymitis and prostatis) for about 6 months. My urologist tried to put me on every antibiotic out there. You pretty much have to be your own champion for such a condition. It can be very disheartening at times I know. Don't rely on just one urologist if your not getting the results you want. I eventually got fed up with mine and started trying the self-med route. Anyway, I did a couple of things to help kick my problem and so far so good after about 3 weeks...

- Take selenium once a day to improve the immune system
- After reading that this condition can also be caused by fungus as well (rare), I was able to buy some anti-fungal pills and I took them twice a day. I would definitely try and get a prescription if you think this may be a fungal infection.
- Lower lumbar / pelvic exercises. I do them for about 20 minutes (twice a day if possible) and this has REALLY helped me.
- Be positive. Knowing that you are doing something about it and keeping a positive attitude and NOT stressing I am sure only helps.
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replied July 16th, 2010
Angela -

See my post on page 6 i believe where I discuss the excercises I used.

Secondly, DO NOT HAVE SURGERY!!!! Through all of my research I've done, this is the one thing that is said over and over. Most likely there is a reason for your pain, and it's not where the pain is coming from. There are other places in your pelvis that is causing the paint to imminate from a particular area. So, if you remove where the pain is imminating from, the pain will simply show up elsewhere.

I've read that surgery rarely resolves anything and only complicates the problem. Please don't go through with it. I know it's hard, but I lived with it for 6 months and I finally found a way to recover. You can too. You don't want to ruin the rest of your life because of this.
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replied July 18th, 2010
DStreak and Masaon

Once again thank you for the responses, the exercises between you seem to be similar in nature and I will create a regime from them.

I am still quite amazed what has happened since sleeping in a raised position, simply with pillows. To early to be conclusive but definitely progressing well. Ordered a Harley bed wedge £32 which appears to have a low slope. Certainly going to continue with this until disappeared completely. The pillow work but the wedge I hope will be a bit more consistent, we shall see.

I am wondering if the pelvic floor muscle has weakened over the years and have started doing those exercises.

I feel the pain that remains is coming from below the Epididymitis.

One things I have not mentioned is the fact I have come off all pain killers.

Can't believe the change in a week. Long may it last.

Once again thanks

Angelal
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replied July 18th, 2010
Experienced User
DStreak and Mason

So the pelvic floor exercises and using the pillows to sleep have worked on you guys. Is there anything else you are taking or doing like meditation, taking supplements and if so which ones. My pain feels like a squeezing pain in my epididymus glands/tubes with a discomfort on the right side of the scrotum coming from the glands inside. do guys feel it this way or how are your symptoms exactly? have you guys or anybody else tried apple cider vinegar or any other supplements. A lof of people think there's some sort of inflammation in the glands there so reducing that with something and doing the pelvic floor exercises will help a lot. Any other suggestions anyone? thanks
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replied July 18th, 2010
magic 7508

I am doing nothing apart from lifting my body so that my pelvic area is above my heart and so that my glands / tubes can reverse any fluids back towards the kidneys. Initially found it helped during the day, so gave it a go all night and it has really helped. In less the a week the pain has almost disappeared.

Best of luck give it a go and see if it helps. Please let me know if it does.

I am going to try the exercises above and have started pelvics.

Angelal9
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replied July 19th, 2010
Magic,

My symptoms were like I had a dull to sometimes sharp pain at the back of my testicle. My abdomen was always sore and I always seemed to pass soft stools - too soft to be exact. I also had a pain / dull ache in my inner thigh which most of the time would go away. Actually sometimes it felt like I had something foreign in my inner thigh - like it shouldn't be there. However this got better quickly when I started doing my stretches. The pain in my testicle was a slow process with every couple of days things getting a little bit better.

To recap the meds: At first I was taking Probiotics (Dr Ohira's 12 Plus) (twice a day), Selenium (once a day), anti-fungal pill (in case it was fungus) and a multi-vitamin. I took the probiotics because of the fact that after taking antibiotics for 3 months straight (for probably no reason), I am pretty sure all of the good bacteria that I had in my body was destroyed. So it is imperative you build back your good bacteria / immune system. I took the antifungal pill for about 2 days (two times a day). After about a month, I stopped taking the probiotics and selenium and now I am just taking a multivitamin. So this coupled with the stretches as I mentioned above is what aided me big time.

I also had a checkup with my primary yesterday and I told him everything I went through and he said that sometimes your body just may experience an imflammation as it just has to run its course. As a result, doing such exercises increases the bloodflow to the imflammed areas which probably helps. I am not sold on this idea completely and I don't really know what to think except that I was able to do the things I did to get over this problem. It could have been fungus related, a pelvis issue (headache), a random inflammation or any combo. Good luck and just keep your chin up. Remember, at least YOU are trying to do something and not standing by idle wishing the best!

**Note: I had an ultrasound test, CIT and many physical examinations performed which came back pointing to epididmydis and most likely prostatis.**
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replied July 19th, 2010
Mason

Interesting, I started pro-biotics and pumpkin oil today, the latter on the recommendation of the health store manager. Same reason as you to remove the effects of the anti biotics. Will look into Selenium.

My symptoms mirror pretty much yours. In addition I get an inflamed tube after sexual activity. So I am going to abstain for a while and see if I can clear everything.

I have a consultant appointment in August and am hoping to tell him that his operation is not necessary.

Angelal
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replied July 19th, 2010
Experienced User
Mason,DSteak and angelal9 do you guys get a squeezing pain in your epididymus/vas deferens tubes and tenderness in the scrotum coming from the glands inside? The squeezing pain fail like if I'm getting squeezed or pitched. could that be circulation problems, inflammation any ideas? what do you guys think
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replied July 19th, 2010
Magic

The squeezing pain is the inflammation in the epididymus and yes I also get tenderness in the scrotum.

Nothing to do with circulatory problems more likely to be sperm. My pain today - I would put at 5-6 totally down to activity last night. The previous two/three days down at level 2.

My aim now is to get back to level 2 and destroy this illness - totally positive it can be done with the exercises and sleeping regime.

Hope that helps

Angelal

What level is your pain and what are you doing about it?
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replied July 19th, 2010
Experienced User
Angelal9 and the rest of the guys outhere are you guys very sexually active? In my case, I have not really been active in the last 5 months. In you guys's cases does it help when you have intercourse or not? I've heard some many different theories from yes to no. Some men say that yes because it cleans the tubes and your body needs it like brushing your teeth, they need to be cleaned. Others say no because it gives more problems what's your opinion and what do you think?
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replied July 19th, 2010
I am sexually active (after taking a month off). I noticed that everytime my wife and I had sex (or I strained myself working outside in the yard) I felt like I regressed with this issue. I am not saying the same would happen for you, but I definitely felt worse like a day after having sexual activity. I also remember thinking I was fine after a week and I decided to clean my vinyl siding of my house with a scrub brush for 4 hours - big mistake! Smile
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replied July 20th, 2010
Same with me - sexual activity one or two days later real pain. Going to abstain for a month to see if it makes any difference.

Did the month off help you Mason?

Angelal
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