Hi all!

I was diagnosed with *benign* ms a few months ago, and I wonder how many of you have the same diagnosis. My symptoms ... Brain fog, numbness and vertigo. I had two (2) mris (with and without contrast) of my head/neck that were all clear. Hence, the *benign* diagnosis. Have any of you had any experience with this diagnosis?
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First Helper holmar
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replied August 12th, 2004
Extremely eHealthy
I am wondering on what basis they diagnosed you with ms? Your symptoms are fairly non-specific neurological symptoms associated with a range of conditions; you don't describe having many of the standard ms sensory/movement symptoms; and you don't have any lesions on an mri. It certainly does sound pretty "benign"!
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replied January 31st, 2005
More Info...
Don't know much about it myself yet but here's a link to a study of ms with details of the classification of 'benign'

http://www.Nationalmssociety.Org/research- 2004sept28.Asp

hope it helps

ste
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replied January 10th, 2006
Benign Ms
I have been diagnosed with benign ms. I did some reading on it from the mayo clinic. It described my life with ms for the last 20 years. My last brain scan showed no lesions. Anyone else out there with b.M.S.?
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replied January 13th, 2006
Benign Ms
Approximately 10-15% of those with ms have the benign form. This form of ms has rare, very mild attacks separated by long periods with no symptoms, does not worsen with time, and produces no permanent disability. As the defining characteristic of benign ms is the long term absence of symptoms, it can only be diagnosed after ten or more years.

The phrase “benign ms” is sometimes used inaccurately to describe a period of mild symptoms following diagnosis and subsequent disease activity may show that this period of no symptoms was instead a time of remission, and that the person actually has relapsing/remitting ms.

Benign ms tends to be associated with less severe symptoms at onset.
About 1.1 million people worldwide have multiple sclerosis, and the incidence appears to be increasing. Onset of symptoms typically occurs between the ages of 15 and 40 years, with a peak incidence in people in their 20s and 30s. Women are affected twice as often as men. Multiple sclerosis occurs worldwide but is most common in caucasian people of northern european origin. It is extremely rare among asians and africans.

Source: http://www.Remedyfind.Com/hc-ms-benign.Asp

additional resources:
http://www.Mstrust.Org.Uk/information/a2z/ types.Jsp
http://www.Mult-sclerosis.Org/news/nov2001 /medlinepredictingabenigncourseforms.Html
http://www.Guide4living.Com/multiple-scler osis/what-ms.Htm


all the best,

kathy browning
free autoimmune teleseminar every wednesday evening
http://www.Healthydivas.Com
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replied September 23rd, 2011
I have just been diagnosed with benign ms and I had 3 brain lesions on MRI and ol bands on lumbar puncture. I have had 2 known flakes in 7 years. So it seems that the benign diagnosis seems a bit "woolly" to say the least. And I am more confused than ever now !
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replied March 18th, 2008
benign ms
My doctor believes I do have benign ms. I am thirty five. My ms we believe first began when I was twenty one. I was pregnant. My legs twitched so much during the pregnancy that they became permanantly tight for about a year. Finally it went away. I believed this was related to pregnancy and was so young I did not say anything. Then when I was thirty I began getting electric shocks down my body when I looked down and was unable to move my left arm. That was when I was diagnosed with lesions in my brain spinal cord. I began taking one of the abc drugs. I am thirty five now and other than some tiredness and fatigue, numbness, tingling and twitching once in a while which go away shortly, I have nothing and my MRI is unchanged, was told lesions have gotten smaller, one not even visible anymore. All total it has been about 14 yrs. I am healthy. I consider myself VERY lucky (knock on wood). My doctor seems amazed. I am amazed. I don't know what I do. I do smoke (bad), but I have always eaten very healthy and been active. I have eaten mostly fruits, vegetables and meat all my life because that is what I like to eat and am thin with athletic build. I do believe my meds have helped because once I stopped taking them and in about six months had the worse numbness I had had since age thirty, but went away a couple months after starting my meds again and not change on MRI. Some muscle atrophy because of injecting and I have been injecting the same med for five years, but worth it. Beginning to wonder where else to shoot myself though, it leaves big dents. I will take that, much better than the alternative. SO...I believe there is hope, but I know that the course is often out of our hands. I have just been lucky so far.
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replied September 26th, 2012
Sounds like my story exactly...WOW.I hope I have benign MS.
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replied November 30th, 2009
Hi! I am very new to this as I was just diagnosed with benign MS two weeks ago. I have been reading your posts and I am super confused about the diagnosis. I have had between 4 and 5 attacks with in the last three years...vertigo, numbness in feet and legs, optical scintillations, a numb band in my abdomen. This last attack was great, as I started to lose some control of my bowel. I had MRI, but it was clear. I have one measly band in CSF. I thought that benign had to be with no symptoms for ten years??? My neuro doesn't know what to do with me...any thoughts??
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replied December 2nd, 2009
My initial diagnosis with a stroke specialist was benign m.S.; however i have brain lesions, hyper-reflexia, cognitive loss, dizziness, and had episode of optic neuritis...all symptoms are mild. With this DX you can convert to full M.S., but it is not likely.

My own neurologist gave me a dx of mini-strokes.

terrics
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replied December 2nd, 2009
to Kbecka,

Did you have an MRI of your thoracic spine? One measly band is probably significant as there should be none! I would get a second opinion.

terric
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replied December 2nd, 2009
Hi! Yeah I had a thoracic done and it was clear...my neuro said that you have to have 2 bands for a positive result. went to a different neuro for second opinion and he told me to get on some anxiety meds. I was crushed. My symptoms are certainly not anxiety related. i also failed the in house neuro exam. which my first neuro was concerned about. Have been symptom free for 31/2 weeks and just relapsed again. I don't know what to do!
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replied December 3rd, 2009
If you have M.S. it will eventually rear it's ugly head and your neurologist will see it. Drs are strange. They seem to think anti-anxiety meds cure everything.

terrics
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replied February 12th, 2010
hi i have benign ms. i've had 1 episode in 2004 and since then nothing.My last mri showed that everything is pretty normal.Now what i'm worried about is that i have stopped my drugs Anyone out there done that?
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replied February 12th, 2010
To abraam,

What meds were you put on?

When my regular neurologist saw the benign MS dx she just didn't want to know about it. She was upset because she would have to put me on one of the ABC drugs. I would not have taken any anyway. She put me on plavix for mini-strokes and I had bleeding so I refuse to take that also. Personally I don't think she knows what to make of me. I had some seizure activity and she didn't want to treat it. I'm very non-compliant anyway. i have had three follow up MRIs and the number of lesions?? stay the same. Let me know what happens when you come of the meds.

terrics
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replied February 13th, 2010
You need a doctor that you feel comfortable with and trust. My son was diagnosed with MS at 17 and is now 27. He had a lousy doctor, but insurance dictated who he saw. Consequently, he didnt see a doctor or take meds from 19 until 26 and he paid for it. He now has permanent damage and walking difficulties. I had optic neuritis in 2006 with a huge blind spot in one eye and a headache for weeks. My MRI show 3 lesions but the lumbar puncture was clear. I have an annual exam and MRI. I have occasional blurry and/or double vision and vertigo. Some other very mild symptoms, but without a positive on the spinal fluid they will not say it's MS. MS is genetic...did you know that? My Neuro has said I am high risk and he would classify me as Benign MS and just wants to continue annual check ups. I love my Dr. and got my son to see him last year...yeaaaa and he likes this Dr. and is now on rebif and maintaining. My son will never get back what he lost during the 8 years without meds....he can no longer work in construction. He is on medical assistance and food stamps to survive. He cant get cash assistance, even though he can't work...because he owns a 96 buick..a car! Thats why! How dumb is that? He has obtained grants and scholarships and is back in school for a non-physical career. It sucks...but he is showing that he is in control of what course his life takes for now...not the MS. I really thinks it's all because we found a GREAT Doctor who specializes in MS. The best advice is find the right doctor for YOU!

As a side note-my son has been turned down for SSI..as most people with MS are if you dont hire an attorney to fight for you. He is fighting it but it takes a long time and the attorney gets a good chunk if you ever get approved.
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replied March 18th, 2010
Hi again,

I have had 2 more mild relapses...one started yesterday. I don't bother calling the neurologist because she has her mind made up. She puts words in my mouth. I feel I should go back to the stroke specialist. All my doctor does is more tests...I told her a few years ago that the first episode I had, occurred in my 20s. she then said it lasted about ten days...SHE made that up. Have have no idea why she would say that. I don't remember how long it lasted.

Maybe i'm having a stroke today...LOL H/A, nausea dizziness and confusion..Actually it could be a mini stroke.

Oh well, The only worry i have is when I sub as a school nurse. i'm afraid the confusion will impair my judgement if something serious happens..allergic reaction diabetic problem Truly this is my worst fear. The second fear is that I will stay like this or get worse.

terrics
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replied September 27th, 2011
Benign MS
So does the bands really mean anything. I had 16 and three lesion on my MRI. The MS doctor I saw today said I have benign MS. I have pain in my neck I have had a headache since Feb.2 seeing a neurologist for that. so frustrated.
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replied October 12th, 2011
Benign MS?
From what I've read here, I very well could've been diagnosed with benign MS. For years my MRI's showed nothing. The lesions were further down my spine than the standard 'looking for MS' MRI goes. This was in the early 90's & 'types' were very rarely mentioned. Over the years I never had flare ups ... which, according to what I've read here, very well could've been viewed by some neurologists, as benign MS. I have PPMS. 20 years later, my MRI's show that my spine is one big mess of lesions ... impossible to 'count'. I no longer can stand up, or walk. There are no meds for PPMS, so they would've done 'nothing' for me anyway. I'd certainly recommend for anyone who's given the diagnoses of benign MS, to get a 2nd opinion as soon as possible.
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replied February 12th, 2012
Benign MS
I was dx. with Benign MS in 2001; they say since the MRIs are normal but the Evoked Potential Tests were abnormal this past Nov. 23, 2011. They found I have abnormalities in both my legs. The last MRI I had was on February 8, 2010 cervical spine with and without contrast; and lumbar spine with and without contrast on April 15, 2010. I think I had a brain MRI sometime either in 2010 or 2009; I also have bladder incontinence and every 6 to 7 months I have Botox injections into my bladder and zphincter muscle; I also have dizziness, nausea, nystmagus, and weakness of my legs greater right leg than left. Very bad fatigue. I take Provigil 300mg, Baclofen 10mg 4 times a day, Neurontin 100mg 5 times a day, Diazapem 2.5 mg 3 times a day; Vitamin D 2000 units once a day; Benefiber twice a day, Multivitamin twice a day. I have constant burning in my back, it used to be intermittently but not any more; my feet feel like they are asleep constantly, it used to be intermittently too. I have cognitive issues as well. My Neurologist doesn't want to put me on Copaxone because I don't meet the criteria. Apparetnly, even though I have all the symptoms, plus the bladder incontinence, nystagmus, and an abnormal Evoked Potential Test, it's not enough. Any thoughts on that matter.
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replied February 12th, 2012
Multiple Sclerosis is a metabolic muscle disease that will respond to nutrition. Any metabolic disease will, as they are issues that evolve as compared to one that is contagious. When you give your body what it needs to perform, MS as well as most other muscle disease will bounce right back within a few weeks.
As yours was diagnosed as ‘benign’, I would assume that it is in the beginning stages and not yet beyond repair. ‘Brain fog’, and ‘numbness’ can result from a break down in the myelin sheath that surrounds the nerve cells, and this is easily remedied by adding Lecithin to the your diet. Lecithin is a naturally occurring nutrient found in grains, but it is processed out of our food because it spoils too quickly. Taking supplements will have a few beneficial aspects, especially improving muscle control and coordination.
MS can also leave calcium deposit on the brain and spinal cord. This is improved by adding certain nutrients that aid in the absorption of calcium to the bone, so it will not be left to roam the body and deposit somewhere else. MS is a serious ailment, and too much to discuss in a forum. If you would like to know more, get this book from Amazon that will help you to reverse these signs and symptoms before they get too advanced. Best of luck, I wish you well
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replied October 12th, 2012
multiple scloresis
I was diagnosis with MS last year, I was having seizures and after many test they told me I had MS. I have had symptoms, such as numbness in right foot, fatigue in the afternoon...some memory lost. I'm so confused if I have MS or these are symptoms for the many seizures that I have had. They have done several CT scans MRI also they say I have lesions. They tested me again several months ago and the lesions are the same , dose this mean I do not have MS and the lesions are caused by the seizures. You can read the symptoms of MS and feel you have them all. My seizure doctor dosent think I have MS, but the MS specialist feacyels I do....I'm very confussed...
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