Hi, . I have both fibro and lupus (diagnosed one yr ago). When I thought I was having flareups from lupus, my rheum told me yesterday that I would have to have medicine to get out of it so it is the fibro acting up. Any one help me distinguish? Symptoms are stiffness, aching, sharp pains through legs arms, extreme fatigue, weak, withdrawn from all, headaches, swollen/sore throat. I guess those are about the main ones. Thanks for any help or suggestions.
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replied September 21st, 2003
Active User, very eHealthy
Lupus Vs. Fibro
Well, here are a few things off the top of my head...

Lupus pain is typically in the joints. Fibro pain is typically more generalized and centralized in the muscles.

There are tests that can tell the difference. There are certain blood tests, if you are diagnosed with lupus, that are soley active with lupus. I do not know of any blood tests for fibro. If any one can correct me or further my knowledge, I would love to learn.

Also, if you are taking immunosuppressants for the lupus, you may very well simply be suffering from an infection (viral and/or bacterial).

I suggest running this all by your doctor asap. If you are going into a flare, you want to stop it as soon as you can. If you are sick with something else, letting it go could cause the lupus to flare.

I would go see your rheumatologist or gp.

My thoughts! Wishing you the best,
ladybrannon Smile
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replied September 22nd, 2003
Flare Ups???
Hi, I see you are most interested in these subjects, I do take generic plaquinel. Is that an immunosuppressant? The blood tests was ana positive, low red blood count, . What I was wondering the most at this time is what the rheum told me, "you have to have medicine to get out of a lupus flare up". I do get the joint stiffness too. Like today, my ankles, one elbow and sometimes my hips ache. Thanks for your response. Looking forward to your next one>
lynn : )
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replied September 23rd, 2003
Active User, very eHealthy
Hi There!
Plaquenil (hydroxychloroquine) is actually an anti-malarial. It works very well on the joint pain and rashes in those with mild to moderate lupus.
I know they use plaquenil to keep flares away. If you go into a flare, they may need to give you something else. Steroids, such as prednisone, are a a common option. Once you are in a flare, your body is already overreacting.

Have you asked your doctor about non-generic plaquenil? I know my doctor would not allow me to take generic. My former doctor (who I still use sometimes) told me that they had noticed non-generic being more effective than generic.

I'm sorry you are feeling bad...And goodness knows that if you are put on steroids, the side effects are not fun.

Wishing you the best,
ladybrannon
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replied September 25th, 2003
Flare Ups
Hi, thank you again so much for your quick replies. From what i've been reading, no, I do not want to take the steroids. From what you say and what my doctor said, it probably is the fibro then. I will ask about the generic verses the "real". I don't know if my insurance will pay. I am on medicaid. Reading about you and others in this forum, I have been so far fortunate in comparison. I do wish all of you well. And I did read that they are trying to find a cure w/i 10 years. Sounds like a long time, but i've been ill for that long now, first w/ chronic fatigue synd. Then fibro, then most recent lupus. What next??? : )
lynn
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replied October 14th, 2003
Lupus And Thyroid Problems??
Hi, my name is kathy. I have only been able to have a few of the blood tests to check for lupus. I have had a positive ana twice and my mom also has lupus, confirmed. I am running a low grade fever lately and have also just recently been put on synthroid due to my tsh level being high, 56.6 is it common to have a thyroid problem with lupus?? I am also noticing a "knot" on my neck, like what I assume may be a goiter. My voice is always hoarse and raspy and I have no energy at all. I work full time and have two children at home, with one in color guard and keeps me running all the time. There are days when I feel like I could lay down and never get up. Any ideas?? I might mention that I have no medical insurance of any kind. That is why I was unable to complete the testing for lupus. I have been told I either have scleroderma or lupus. Thanks for any help!!
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replied October 14th, 2003
Lupus And Thyroids
Hi kathy, first the insurance, for this is extremely important. You should be watched and checked periodically. I don't know what your income is and household size, but you might want to see if you r eligible for any state assistance. Like here in ny we have what you call family health plus that is for "the working class" of who employers offer no ins. Or you can't afford to buy any. Premiums are on a sliding scale. Call your local social services dept. And see if they can guide you. Dont' take no for an answer. Alot of times it's who you get to talk to. If one doesn't know, ask if there is someone there that would. Tell them about your health condition. As you see from this forum there is medicine to take to help w/ symptoms and for prevention. I read in arthritis.Org about supplements. Fish oil, etc. Lupus.Org is another good site. So is webmd.Com. I'm not familiar w/ tsh levels and thyroids/lupus. Check the web sites. Please let me know about the insurance. If I think of anything else in the mean time I will let you know. It sounds like you have alot to handle and not feeling well on top of it.. My daughter was 2 when I first got sick.(she's 13 tomorrow!) my other daughter was 14. It had it's pro and cons of the ages. I ended up fighting for social security disability. There was no way of me working. Looking back, you wonder how you do it. But, you do. I pray alot for strength.
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replied May 26th, 2013
Lupus and other autoimmune diseases
I am new to this forum...and have numerous autoimmune diseases. In the last three years, I was diagnosed with Hashimoto's Disease, psoriatic arthritis, narcolepsy and for the last 7 months, I've had my neuro, nephrologist and rheumatologist taking all kinds of tests to see if I have lupus. The rheumy is the only one that has said it wasn't, but now he's not sure since he sent my blood for some special place that checks these five markers. He told me it's always came back indisputable. Well, it came back and he called me in the office and I was told that he's given this test numerous times and this is the first time it's come back inconclusive. The nephrologist also said his last test now shows that it's still inconclusive, but it's leaning more towards trying medication, and if I feel better, I have lupus. If not, keep on looking. When I told him that my neuro thinks that the double vision that I acquired close to three months ago is trochlear nerve palsy, he was even more convinced I have lupus, saying that the palsy I have would be caused by lupus since it's a vasculitis disorder. So, as of this week, I have to wait until my specialists decide what to do, as far as medication. For the record, I've also had epilepsy for 42 years, have chronic fatigue syndrome and fibromylagia. I take too many meds. And to think, before Hashimoto's, the only medication I took was for epilepsy...and that was only three years ago this month. Oh..and I have to go for a stress test b/c I have been getting lightheaded and short of breath and blowing it off as just getting older. And yes, I do have neck and shoulder pain, but also have bad spine and back pain, which doctors are now attributing to my palsy. I am still working in a very busy office, but my neuro said enough is enough. I still asked him to let me wait until I turn 60 in July or at least find out if it makes a difference with my social security. He agreed ONLY if the stress test comes back ok. I have to admit that if my kids don't wake me up, I will sleep the whole weekend away. Sad...I hate this!

Thanks to anyone who took the time to read all of that, but it's good to know that there are others who are in the same position. No one in my family has all of these health problems and I swear, they think I'm just complaining when I've never complained before. This is a great outlet.
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