Medical Questions > Conditions and Diseases > Orthopedics Forum

Slipped Capital Femoral Epiphysis In 33 Yr Old (Page 2)


May 18th, 2004
k_l_carten wrote:
hi jason,

sorry it took so long to reply. Went to doctor thursday and he ordered a bone scan. I will see him in about 3 weeks. Right now he thinks he can take the bone spurs off of the hip with out dislocating the hip. He isnt keen on the major surgery, thank god Laughing . All depends on the bone scan, he said he will be really interested to see where the hot spots are. So right now he thinks we can leave the hip in its position.

I wanted to ask you, with your hip pinned does your leg tilt outwards? Everything that I read never said if that is corrected with the pin. Also, I used to lift weights alot before my accident, can you do squats ?

When they pinned your hip, does it fuse to the joint and that is why you dont have mobility in your legs? I am being nosy, but was really wondering about that .


Take care
kim

hey kim,

no, the pins don't cause the hip to fuse, they pins just prevent the epiphysis from slipping any further, and they induce the epiphysis to "close" or fuse sooner that it would if it had never been pinned. The thing that causes my lack of mobility and motion in my hips is the actual deformity of my femoral head. Since the femoral head is not perfectly round or oval like it should be, it doesn't move within the socket as well as it should. That's where the majority of my problems come from, the actual deformity. Also, I still have the pins in my hips. Between the time that the pins were put in and the time that they were going to remove them, 3 out of 4 pins broke off inside the hip. So, the doctor removed the one pin that was still intact, and he remove like two other pieces. The rest of the pieces are still in the hips. I can't feel them or anything, but they are there. That's another thing that will make me having an osteotomy more difficult. Before doing the osteotomy, the doctor will first have to remove the pins, and that takes a while.
Take care,
jason
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replied May 18th, 2004
Hi jason

the femur osteotomy scares me too. Just the thought of it is pretty scary and all the stuff that can go wrong. My moblilty is much better than yours, I really feel for you. I know its got to be very aggervating to say the least. How is your moblity with your leg going the opposite way? Thats more my problem. I cant believe you are able to be as active as you are!!!

To be honest, I didnt know I was walking funny, until the p.T got on to me about my leg tilting outward. I just dont remember walking any other way!! I was really hoping that my flat feet where a result, no such luck, lol....Guess it was gentics after all, lol....

So, the only way you will be able to gain mobility would be a osteotomy, that really sucks. Its a tough decision to make, but the risks are so high. I wouldnt want to be in your shoes, to try and make a decision about it. Most of it is the mobility issue, and not pain, right? I would hold off, if I were you, if its not a pain factor. Esp. If your doc thinks to wait. I know that dont help with your mobility. I think from where I am at with my hip, it has limited my life to the point, that I will do it, if I have too. I think that the doctors take that in consideration, the quality of life your living. For me, its not that well, because I have problems with some of the basics, like doing heavy housework and grocery shopping. Also I think that they try to do everything they can with conservative methods, but this has been my experience. Kristan could probably tell you more, cus she had it done already. Smile and what her doctors thought to improve her quality of life with having the operation. But, I know that dont help you with your mobility. Life is hard sometimes!!!!!

Just remember to not get down about it, I know its hard not to get depressed, especially with all of us so young. My mom is in her mid 50s and we have the same aches and pains. I know how you feel about being old, cause I feel the same way. I see my friend doing things with their kids, and frankly, I get jealous. I know its petty, but I wish I could do the things they take for granted. When I found out about having to have surgery, I was really feeling sorry for myself. Human nature, I guess...Lol....But my hubby put it perspective for me.

1) you cant change it and there is nothing you can do about
2) its not fatal, so you wont die in the next few weeks because of it
3) well this one was kind of personal, lol

but it really helped me, kind of see what it really was for me. I dont know if I am even saying this right...Dont let it get you down and if it does, just let it all out on the board... :p we can support each other, and thats the best part of meeting kristian and you. I have met two really great people that are going thru the same thing as I am. So, when you get down, we help ya back up. :p ok, now I got sappy, lol, time to sign off on that note, lol

take care

kim
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replied May 19th, 2004
Hey kim and jason
im happy to answer any questions from you guys keep them coming! I wish I had found people when I was going through all this. I met a girl in the hospital this last time who has similar problem and it was the first time I ever met anyone that could really understand. Its so nice to have that support we email like everyday and on thursday when I go tomy doctor which is close to where she lives I am going over for a bar-b-q which will be so nice. Everyone else will be annoyed by us im sure! We just sit there and go oh I know and this oh I know. Haha.
Anyways here we go. My left leg since this last surgery also points out all the time I thought it was from the brace at first but now im not sure, but oh well if it has helped the pain thats all I care about. Im alittle worried though cause my foot is always freezing and when im standing its purple I hope when I start walking it will be ok.
The osteotomy for me did give me much more mobility but to tell you the truth I could live with the mobility part just take away the pain! I know what you mean about doctors not wanting to do an osteotomy. Apparently my doctor is the only one who does it anywhere near here. Which yes made me nervous but I think try it I can't live in this pain any longer. See I graduated in 2000 wasnted able to go to school much at all and since then haven't been able to have much of a life at all no work nothing. So ofcouse I am more than eagar to start a life and workout go on vacation anything!!! So obviously depression does come in to play its hard sometimes you know there are plenty of people out there that are much worse than you but some days you have to have a pity party you know. Watching your friend etc doing anything they want! I said to my mom acouple weeks ago, she was just standing in the kitchen and it dawned on me wow you are feeling absolutly nothing standing there, I can't even imagine that wow how great would that be.
I also try to tell everyone not to take advantage of anything expecially your legs. Live life to the fullest if you are unhappy about something you can change change it! Why be unhappy. Go for a walk everyday etc etc. Sorry this stuff really gets me going!
Ok so my knee achually has never bugged thank god I have enough. Kim my lower back hurts all the time, but since my surgery there is alot of pain like at the bottom of my spine (the butt basically) im thinking that is from the way I have to sit at 70 %? Hopefully when I sit proper it will be better. I don't think my groin has every really bugged me either. My pain is always in the hip area.
Jason my leg was shorter before this operation I think they told be that they achually got more legnth from the osteotomy. After surgery I was sitting the next day remember that was really painful but im stubborn and make myself to it grit the teeth. Im sure I was on crutches either that day or the next. You see the younger you are the faster you recover too. A 50 year old getting the operation probably wouldn't be as quick but I was only 18.
Kim I had a bone scan I think when I was like 9 I remember it was no big deal just takes awhile you have to be still for along time, which ofcourse bothers thehip. Good luck tomorrow with that I hope it can give you more answers. Knowing that the new hip is in the future does suck to constantly have that hanging over your head but my philosophy is do whatever you can to get me out of pain. I just keep thinking technology has to come up with something soon!
Ok I think I got everything if not ask again!!
Take care both of you hope you have a great day
kristen
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replied May 20th, 2004
Hi all,

did my bone scan today, now just have to wait till the 1st to find out the results. Good luck with your doctors appointment kristian, hope its all good news!! I went to the chiro today and asked about si joint and the hip. He told me that once the hip is better the si joints should not bother me any more. Kristian, ask your doc and see what he says.

Just a really quick update, its late here and tired. Off to bed for me, have a few questions, too tired to think.

Talk to you guys later
kim
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replied May 27th, 2004
Hi kim and jason
well I went to my doctor on thursday he said I finally got to take of the brace!! Which has been soooo nice! And then he told me to start weight bearing, swimming and biking, which I am so excited to do all! So he said to take 2-3 weeks to get off the crutches, but I am impatient and had a wedding to go to on saturday so basically I am just using 1 crutch. Bad I know but I couldn't wait! Its not feeling too bad , by the end of the day I am at the point where I can't do anymore but hopefully everyday will get better. I went swimming the other day and it felt nice to move around freely! Going to try biking abit tonight.
Kim how was the bone scan?? Not as bad as you thought?? I hope the results show what you want it too, aand I hope you don't have to get the osteotomy either. But you got to do what you got to do for a life. I would rather have 20 good years while im young than having them when im 60! I don't think the doctors really realize that. I know they are just trying to save your hip but its important that you have a good life while you can.
Anyways I am going to see him again in september and hopefully all will be alot better by then!
Jason I hope you are doing well, excersise for the both of us!! I can't wait to beable to do everything you do!!
Have great days you both
kristen
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replied May 28th, 2004
Hey kristen,

great to hear that you are recovering nicely. I am really glad for you. I hope that you can start doing alot of the active things that you haven't been able to do yet. I know that cycling and swimming are some of the best exercises for a person. They are no impact and really give your body a good workout. Keep me updated as to how you are coming along. I actually went running again today and ran for 1 1/2 miles. It actually felt pretty good and I wanted to run more, but I figured I shouldn't push myself too much. I still have that annoying snapping/clicking sensation going on in my hip, although it didn't bother me at all when I was running earlier. As usual I have good days and I have bad days. On my good days I feel like I can do anything. On my bad days I feel much older than I am....Anyways, it was great to hear from you. Has the doctor ever mentioned if he ever thinks you will need a hip replacement sometime in the future? As for me, no doctor has ever speculated about that for my hip. But, I know that with our condition that it makes a hip replacement more likely. Well, keep getting better and look forward to reading your response...
Take care,
jason
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replied May 28th, 2004
Hey jason,
thank you for your reply, its nice to share these experiences with other people. So to answer you question yes I will need a hip replacement my doctor did this surgery to try to buy me 10 years that was 3 years ago and hopefully this is the last surgery for a long time! Im not sure if he is expecting 7 years or 10 from now. But we can always hope that he will be retired by the time I need one, it could be 30 40 years from now. Wishful thinking but got to have hope.
It must have felt so good going for that run!! Just starting to walk is wonderful! Today I biked for 10 mins it didn't feel too bad. The problem im having is using all the muscles I haven't my whole body aches. Hoping to either go for a message or at least a hot tub soon! My back is horrible too. Do you have any back problems?? I think it must be from the leg difference but not too sure. Oh well hope everyday gets better!!!

Anyways hope you have a good day and a great weekend.
Hope your doing well kim
kristen
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replied June 1st, 2004
Hey kristen,

actually I have been having problems with my back ever since about january of this year. I was involved in a car accident in january and the lawyer that I have sent me to a chiropractor. I went through about two months of treatment with the chiropractor and about a month of treatment with the acupuncturist. My back never bothered me at all prior to the accident. I'm not sure if my back problems are a delayed response to the accident, a result of all the chiropractic adjustments, or just pain originating from my hip. Actually I think it's from the chiropractor and all the adjustments. If I had to do it over again I never would have gone to this guy. I think all the work he did on my back actually made my hips feel worse. Oh well, such is life!!! Getting back to your hips, hopefully you will get many good years of service from your hip before you need a hip replacement. Although, when you do get a replacement, i'm sure you will be pleasantly surprised at the ease of the operation, and at the short recovery time. Is your cartilage wearing thin in your hip or is it just the pain that would necessitate you needing a hip replacement? You are awfully young to have problems with the actual joint space. Anyways, hope to hear from you soon and hope you had a good weekend....Take care.....And hello to kim also....
Jason
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replied June 1st, 2004
Hey jason,
your message came at a perfect time you have no idea! I have been trying to think of ways to help my back and acouple people have mentioned going to a chiropracter. My mom and I were just talking about it this morning and she was saying shes scared that it will make my hip worse. I have been scared of that too, and since your message I think I will find a different method, thanx! I am so scared of trying all the different things people suggest, herbal things and stuff. Maybe something would work but maybe it would make it worse. Expecially because it is bones, like I really do have something, that can only be fixed with surgery and doctors. I have wondered maybe about accupunture for my back not sure though, have you ever heard anything about that?
Kim are you alright? Haven't heard from you for awhile I hope you are doing ok. If your not and need to vent and scream ill listen.
Hope to hear from you both soon!
Jason thanx again
kristen
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replied June 2nd, 2004
Hi jason and kristin,

so glad to hear everything went well with your doctors appointment!! I am so happy for you.

I went to my doctors appointment today for the results on the bone scan. Good news and bad. Good news is he thinks he can get the bone spur with out dislocating the hip, but said he would know until he did the surgery. He said he did not want to do the other surgery at this point. Wanted to see if removing the spur would give me some relief. Thats the good news Laughing

bad news, was that I have arthritis in both hips, it really showed up on the bone scan. My right hip is much worse then my left hip, and the doc cant believe that I am not in any pain in that hip. Go figure, lol...

The doctors office is suppose to call to set up the surgery tomorrow. He is going on vacation for two weeks so I figure it will be the end of the month or early next. He said that it will be in patient, there went my hope for a in and out surgery, lol. I be stuck in the hospital for at least two days, which really bites....

Kristin, you should check out the chrio, most, if they are good. Will take x-rays of your back and hips, if there isnt anything they can do they will tell you. I go every two weeks and he works with my ortho, so it works very well for me. Also, for me, I am more comfy with my chrio, and he takes alot of time and answers a ton of questions, esp. The ones I forgot to ask the ortho. But I might just have a really good one, so I could be biased. :p

jason, hope you are doing well, and has your chrio helped you? Or did the acuputirst help you more. Hope you are doing well!!

I been very lazy, and buzy this past holiday, hope you guys enjoyed your long weekend!!

Hope to hear from you guys soon
kim
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replied June 2nd, 2004
Hi jason,

reread your post about the chrio, and I am so sorry that it made it worse on you. Did he take x-rays? Did he say anything about your hips? You really have to becareful with some of them. The chrio I go to is a family friend and I have gone to him on and off for years and he really helped me. He has always been up front about what he can and cant do. He has helped me with finding the best orthopedic and physical therapy in my area. He was the one that pushed for water therapy instead of regular physical therapy. His wife went to the ortho that I am going too. He worked with my family doctor to refer me to him. So, I am really lucky I have all my doctors on the same page, and they work together.

Like I said, I am pretty lucky, and perhaps a bit biased :d


hope you are doing well, and congrats on the running !!!

Take care,
kim
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replied July 12th, 2004
Scfe & More
Kim, kristen, jason:

you all present some of the issues that my son, travis, age 13, is going through. Thanks so much for sharing your experiences.

Travis had both hips pinned and now is awaiting growth plate closure for his osteotomy, due to about a 90 degree external rotation on each side. He's unable to walk well (or much) or participate in any sports, including swimming, bike riding, etc. We are looking forward to the mobility that the osteotomy will provide - I do see the comments about pain, etc. Is that just during a recovery period or a permanent sort of thing. He is starting to get some purple lines or spots on the bottom of his calf; I also see comments from one of you on something that sounds similar on the foot - is this somehow caused by the scfe? What does the doctor say about what this means?

I would like to put travis in contact with some of you; he is getting very frustrated and would like to have someone else to talk to that has "been there, done that".

Thanks!
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replied July 12th, 2004
To: lwhiting,,

glad to read your post and i'm glad that you have found some help on this site in regards to questions you might have. When you say your son has 90 degrees external rotation, do you meen his legs are stuck pointing outwards in a 90 degree angle? I'd also be curious to know if your son has any internal rotation at all - the ability to rotate the leg inward?

I too had both hips pinned at age 13. My left hip was really a mild slip; my right hip was moderate to severe. I wish that I had had the osteotomy done on my right hip when I was your sons age, I think it would have alleviated alot of the problems that i'm having with it now. Your son is lucky that he is getting everything over and done with now while he is really young. What does your son's doctor say about your son's hips and what the osteotomy will accomplish. There are differen't types of osteotomies that are done on the hips and I would be curious to know your son's prognosis. I would be more than happy to help you out with any information or guidance that you might need. Personally I have only had the surgery to put the pins in and to remove them; I have never had anything else done. However, I consider myself a minor authority on the subject considering all the research that i've done on this topic........Talk to you later,

jason,

cerritos, calif
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replied July 13th, 2004
Reply to Jason, Scfe
Jason -

thanks for the response. I think I actually read something you had posted on another site and tried to contact you via email....You do seem very insightful where scfe is concerned. Guess we all are getting there -
may as well buck up and learn all we can if we have to live it, huh?

Travis can turn his feet to the front if prompted, but it's more or less a manual process and is very uncomfortable for him. The osteotomy that the doctor mentioned was a derotational flexion osteotomy, I believe. I actually have to take him in today because he has those purple spots on the left leg, which they are concerned about being circulatory. They will do an ultrasound.
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replied July 13th, 2004
Reply to Jason - Scfe
Jason -

as far as prognosis, the doctor hasn't said much at all. In fact, it's been like pulling teeth; before the hips were pinned, I asked and was told that he should be fine and back to playing football by next season. Immediately following surgery, I was told no contact sports again ever, but that after recovery, he'd be back to normal - just would have to be careful. Now, we see this external rotation that does not allow him to function "normally" at all - as we prepare for an osteotomy. I'm seeking a second opinion - his ped ortho is a great doc and I have faith in him. However, if we're going for an osteotomy, I want the best - I want to know who has done more, had the best success rate, etc.

Again, I cannot tell you how thankful I am that there are others out there that have gone through some of this. Although, I am truly sorry that any of you should have to.

Lisa
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replied July 15th, 2004
Hi lisa
I am so sorry to hear that you son has to go thru this all. We have all been there but wouldn't wish it apon anyone. My road has been very long and is still going but if I could help your son in anyway I will. Even if he just needs to let of some steam tell him ill listen. Its a very lonely time and it help so much to know that other people are going thru this it does make it easier.
So I had my left hip pinned at age 12 and have had 4 other surgeries since then, I am now 21. I had the osteotomy done in 2001 and it has helped my mobility alot. Unfortunatly the pain is still present for me. But everyone is different and I think it is very wise of you to look for the best doctor, it is a very big surgery and few doctor achually feel comfortable doing it so find out how many they have done etc. Anyways I just wanted to write to let your son know if there is anything I can do I will. If you or your son has question feel free to ask I will answer them asap.
Good luck and take care kristen
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replied July 16th, 2004
Slipped Capital Femoral Epiphysis
Greetings ladies and gentleman,
wow that was formal wasn't it !!! How are you guys doing. I have yet to meet anyone else with this condition, but unfortunately I have it as well. I was diagnosed with it at 28 years of age after having leg soreness mostly on the side of my leg for 3 years.

I have a mild case of slipped capital with slight degeneration of both hips. Fortuanately I can walk with not limp. The Dr. Said that there is no surgery for me and that I should avoid doing pounding excersizes and stick to bike swimming and maybe elipticle machine.

I am lucky that I rarely feel the arthritis, but I do feel a strong tightness in my hip mucles and my glutes and down the side of my legs. Do you all have soreness over there? Does anyone know of any good ideas to decrease soreness? Any idea why there is soreness there?

Well unfortunately you are not alone and there are others of us out there im sure even though we are few and far between. Please reply,

ben
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replied July 28th, 2004
hoping4nomorepain wrote:
hey kim and jason
im happy to answer any questions from you guys keep them coming! I wish I had found people when I was going through all this. I met a girl in the hospital this last time who has similar problem and it was the first time I ever met anyone that could really understand. Its so nice to have that support we email like everyday and on thursday when I go tomy doctor which is close to where she lives I am going over for a bar-b-q which will be so nice. Everyone else will be annoyed by us im sure! We just sit there and go oh I know and this oh I know. Haha.

Anyways here we go. My left leg since this last surgery also points out all the time I thought it was from the brace at first but now im not sure, but oh well if it has helped the pain thats all I care about. Im alittle worried though cause my foot is always freezing and when im standing its purple I hope when I start walking it will be ok.
The osteotomy for me did give me much more mobility but to tell you the truth I could live with the mobility part just take away the pain! I know what you mean about doctors not wanting to do an osteotomy. Apparently my doctor is the only one who does it anywhere near here. Which yes made me nervous but I think try it I can't live in this pain any longer. See I graduated in 2000 wasnted able to go to school much at all and since then haven't been able to have much of a life at all no work nothing. So ofcouse I am more than eagar to start a life and workout go on vacation anything!!! So obviously depression does come in to play its hard sometimes you know there are plenty of people out there that are much worse than you but some days you have to have a pity party you know. Watching your friend etc doing anything they want! I said to my mom acouple weeks ago, she was just standing in the kitchen and it dawned on me wow you are feeling absolutly nothing standing there, I can't even imagine that wow how great would that be.

I also try to tell everyone not to take advantage of anything expecially your legs. Live life to the fullest if you are unhappy about something you can change change it! Why be unhappy. Go for a walk everyday etc etc. Sorry this stuff really gets me going!

Ok so my knee achually has never bugged thank god I have enough. Kim my lower back hurts all the time, but since my surgery there is alot of pain like at the bottom of my spine (the butt basically) im thinking that is from the way I have to sit at 70 %? Hopefully when I sit proper it will be better. I don't think my groin has every really bugged me either. My pain is always in the hip area.

Jason my leg was shorter before this operation I think they told be that they achually got more legnth from the osteotomy. After surgery I was sitting the next day remember that was really painful but im stubborn and make myself to it grit the teeth. Im sure I was on crutches either that day or the next. You see the younger you are the faster you recover too. A 50 year old getting the operation probably wouldn't be as quick but I was only 18.
Kim I had a bone scan I think when I was like 9 I remember it was no big deal just takes awhile you have to be still for along time, which ofcourse bothers thehip. Good luck tomorrow with that I hope it can give you more answers. Knowing that the new hip is in the future does suck to constantly have that hanging over your head but my philosophy is do whatever you can to get me out of pain. I just keep thinking technology has to come up with something soon!

Ok I think I got everything if not ask again!!

Take care both of you hope you have a great day
kristen

hey kristen,

how are things coming along? You must be almost all healed up by now. I hope everything is going good for you. I have been meaning to ask you more about your osteotomy that you had years back. After the osteotomy, what did your femoral head look like? Did it make it more round? Also, what did your doctor say about the risks of avascular necrosis(loss of circulation to the femur head). That really scares me. I know that anytime that the femoral head is messed with, avascular necrosis is a risk. Also, how soon after the surgery were you able to really get around on your own - even with crutches? I can only imagine the level of pain that you must have been in for the first few days following the surgery. I am a very independent kind of guy, and I don't relish the thought of being totally incapacitated for any long period of time. It's hard for me to stay still or to stay home even if i'm sick with the flu, much less recuperating from a big operation like that. You are one brave girl to have gone through all that you have gone through and to still be upbeat about things.
The other procedure that you had, the trochanteric advancement and contouring, I have never heard of. But the word "contouring" makes me think that there has got to be a way for the doctors to slightly reshape the femoral head without doing an osteotomy. I know with bone spurs they can remove them or grind them down without any cutting down below on the femur. You would think that with a deformed femur, if they could just slightly reshape the femoral head or grind away a few spots in order to make it more round, that that would be helpful and less invasive than the osteotomy...But i'm no doctor and i'm sure you know a heck of alot more about all this than me......But I hope to hear from you....Take care!!

Jason
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replied June 10th, 2012
THP total hip replacement after slipped epiphysis
I would like to know how any of you who posted info in 2004 about your slipped epiphysis are doing now. June 2012. I have lived with a severe slippage since 1980, 32 years. My goal was to make 40 before getting it replaced. I was actually doing very well with a chiropractor about 6 times per year, walking 2 miles about 4 days a week, and heel lifts in my right shoe as well as building up a few of my boot heels. However, I fell backward about 6 months ago and now my mobility and pain level are worse. I can't walk the 2 miles,....thank God for shopping carts, and I find myself illegally parking in handicap spots occasionally. I'm gaining weight, which is the worst thing I can do and feeling pretty depressed about it all. I am convinced that if I do surgery I want THP and no less. I'm so done with this pain and straining to put my sock on! I just want to shave the outside of my right leg!!!!! I've at least got the knee and ankle pain under control, but I think I'm done. I used to be able to hide my limp mostly, but now everyone notices and it is so hard to do stairs.
Have any of you had hip replacements?
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