Hi, I have been in the hospital for five days with my five month old son. A month ago he started having seizures and was put on phenobarb. It started at 20mg and went up to 50mg and that was still not helping his seizures after 4 weeks. WE have been in and out of the ER four times since then. He has now been put on topomax and phenobarb. He just had an MRI at the hospital and it came back normal. His EEG however shows abnormalities in both his right and left side. My son also has developmental delays. He is not smiling much yet or playing with toys. This has been so difficult. Does any one have similar stories? I love him so much and want so much for him. His diagnosis is infant epilepsy but the cause of siezures is unknown.
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replied February 3rd, 2008
epilespy
hi i dont know if you know but smells can trigger seizures, my hubby has epilespy and i can not use certain deodrants or air freshners or candles. especially the plug in kind. also perfumes. i also have a friend whos baby has just turned one he was also have seizures which tablets were not controling she took all air freshners out of the house and his seizures slowed down he didnt have one for about three months after having 10-15 a day.

its something the doctors and specialist dont tell you about and i dont know why!!

hope this helps. if you want to chat then you can send me a personnal message any time.

good luck
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replied February 15th, 2009
son with seizures
My son just turned 1 Friday but begin having seizures at age 6 months. He's had normal MRI, Normal EEG, And they don't know what's causing them
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replied November 26th, 2011
seizure disorder
hi my daughter is 3 months old. she started to have seizure when she was 2 months old. the result of mri is normal though they've seen suspicious sharp wave on the frontal region of her head on her eeg result.her doctor said the head circumference is small compare to the normal size of head circumference of other infants. her head circumference is 38 cm accrdg to her doctor. still the doctor can't tell us what must be the cause of her seizure.right now she is under observation for two months for her growth development but she's pretty and well baby. she always smile and wanted to play..
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