Medical Questions > Conditions and Diseases > Mononucleosis Forum

dizziness and fatigue after mono (Page 3)


August 12th, 2010
Anyone my age with mono???
Okay, I may have missed a message or two but I do believe I'm the oldest mono sufferer to reply to the many enlightening and helpful stories. I am 58! Don't know whether to be appalled or proud to have a younger person's disease. Can't believe how the mono takes over your life. Of course I was diagnosed with a double ear infection first and put on antibiotics. Thanks for the crisis of itching from that. Now it's mostly extreme fatigue, shortness of breath, difficulty eating and swallowing. Hard to concentrate. I HATE feeling so stupid.
Hang in there one and all. I've only been down for a few weeks. Can't imagine it's going to be easy for someone my age if all you youngins are suffering so.
Wishing y'all better days ahead. Sanelycrazymom
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replied August 12th, 2010
Okay, I may have missed a message or two but I do believe I'm the oldest mono sufferer to reply to the many enlightening and helpful stories. I am 58! Don't know whether to be appalled or proud to have a younger person's disease. Can't believe how the mono takes over your life. Of course I was diagnosed with a double ear infection first and put on antibiotics. Thanks for the crisis of itching from that. Now it's mostly extreme fatigue, shortness of breath, difficulty eating and swallowing. Hard to concentrate. I HATE feeling so stupid.
Hang in there one and all. I've only been down for a few weeks. Can't imagine it's going to be easy for someone my age if all you youngins are suffering so.
Wishing y'all better days ahead. Sanelycrazymom
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replied August 19th, 2010
11 months with Mono= No fun
Hi everyone, this site has been wonderful. I got diagnosed with Mono in Sept. 2009 and continue to struggle with dizziness and fatigue. The doctor says my dizziness is from anxiety which might be true because I havent felt like myself for so long. I was non stop and super active before I got sick but after 11 months I can finally get throught the work day and exercise light a couple of evenings a week. I am an elementary P.E. teacher so not having energy really sucks. I would advise anyone to try and get out as much as possible, even if it is just for a few hours on a sat. night with friends. I pray we all get better as soon as possible.
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replied August 22nd, 2010
I am 43 and was just diagnosed with mono. I've been feeling very run down and tired for a couple of months before the diagnosis. Silly me, and I thought it was because of perimenopause. Even the slightest bit of exertion causes me to sweat profusely. I'm a nurse and have had to wear my hair up at work and take a change of scrubs because I sweat so much during the day. My doctor said it was ok for me to go back to work as long as I don't have a fever. I work really busy 12 hour shifts and was surprised that she said I could go back a week after my diagnosis. Seems like fighting an uphill battle if rest is needed to help recover. I didn't have any of the other symptoms like fever or swollen lymph glands, just the extreme fatigue. I was having some routine bloodwork done and my white count came back elevated which is what led them to run the monospot on me.
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replied November 4th, 2010
Mono
Hey Duncan 117...
I understand the mental thing it's hard to think straight! Did you have pain in the back of your head? I also feel pain in my back like my spine...when ever I try to do accounting I get dizzy and can't keep things straight! Did you have these issues? It is really quit worrisome!
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replied November 6th, 2010
MONO and ADRENAL FATIGUE
This is astounding. I was diagnosed with mono in 2006 and I have never fully recovered. It's horrible. Having a child and going back to school full time has taken a toll on me and I am OK about 1/8 of an entire month. It cycles this way day after day, week after week, month after month. I'm tired of living this way and have been to MANY MANY medical doctors who have NOT helped me figure out how to treat my problems. I take good care of myself - eat organic and balanced. I'm now going to a naturopathic and have made steps in the right direction. I won't give you answers but you should try all of your options. Don't give up hope!! DON'T!!!
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replied November 19th, 2010
probable mono-headaches/dizziness/fatigue/fever/pain etc
Just read all the stories guys-nearing 2 weeks of symptoms and round 3 of blood tests,awaiting the diagnosis officially after the weekend.Both my sons have had mono,but what i have had in the last 10 days sucks to put it mildly!Upon hearing this could take 6 mths -9 mths to resolve/recover makes me feel anxious and concerned.Sounds like its going to be a battle all over again,i ruptured my hamstrings in february,prolapsed a lumber disc in june and now facing probable mono...aaaaahhhhhhhhh plz fingers crossed i get over this speedily- my doctor today joked that i dont do anything by halves...my wish is that i stay calm,sane and focused on getting better...all the best to us all,thanks for all the information guys....xxx love bliss
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replied February 2nd, 2011
Mono with a headache for over 3 weeks
I am 45 and was told that I have mono. At first my doctor thought I had the flu and was in the final stages of it. They gave me 2 different antibotics and a steroid pack. Nothing help, a doctor in my home town ran some test and came back with the positive mono. It is Feb 2011 and I have not felt good since December of 10. I have experienced severe headaches and throwing up. The headache will ease off and them come back on strong. I have now had an ongoing headache for 3 weeks. Anybody else experienced the headache for an extended period of time and any suggestions.
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replied February 2nd, 2011
Mono with a headache for over 3 weeks
I am 45 and was told that I have mono. At first my doctor thought I had the flu and was in the final stages of it. They gave me 2 different antibotics and a steroid pack. Nothing help, a doctor in my home town ran some test and came back with the positive mono. It is Feb 2011 and I have not felt good since December of 10. I have experienced severe headaches and throwing up. The headache will ease off and them come back on strong. I have now had an ongoing headache for 3 weeks. Anybody else experienced the headache for an extended period of time and any suggestions.
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replied February 2nd, 2011
Yes. I had a headache for 2 weeks, accompanied by fever. I was nauseas, but did not vomit. I has ever single possible mono symptom at some point. When the headache and fever went away, they sore throat and phlem started. I had my first symptom of dizziness sometime around Dec 20th. Then was nauseas and tired on Dec 29th. I got my first fever and headache, body ache, rapid heart beat you name it on Jan 5th. It was all downhill from there and right now its Feb second and I can honestly say the past three days have been the best I have felt in a while. Still not 100%, more like 75% but im getting there. I am 26 years old. The best remedies are drinking A LOT of pure water and staying in bed when you are not at work. On my days off like today, I would only get out of bed to use the bathroom and eat. I spent 20 plus hours a day just laying in bed. It works....
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replied February 2nd, 2011
I am 43 with mono..i want to strangle my dr and am going to a new one. Her first diagnosis of an overly active mom of 3 who was stressed beyond belief(because I am currently on a fixed income due to my back and was scared that I could not provide christmas so I nearly broke my broke back trying to make christmas happen) was that it was my nerves and I just needed to force myself out of bed. Oh and I had two surgeries back to back in December.

First it was boom the day after christmas I was in bed for two weeks straight sleeping. Then a week later I was in urgent care still barely enough energy to stand then a week later still in another dr office struggling to get through each day just staying awake. The body aches and nausea overwhelmed me. I had night sweats and swollen glands. Prior to this I had lost all excess weight, was very active even for someone with a back problem, and on antidepressents (that do not have sleepiness as a side effect) from being overly upset for a long time after a family member died this summer so don't let any dr tell you that you just need to get out of bed or that it is in your head or that it is your nerves. That is all in their head because there is no medical reason for many of the symptoms described in this forum so therefore they do not exist.

However it is very real and varies in severity between people. However being over 40 and this being a reactivation I did not know what to expect and sure did not expect this to last more than a month tops. So it was never in my head to still be sick and unable to have the strength to get through each day now almost 38 days later. I have read that antivirals can be effective in severe cases but wonder if anyone in the 30+ group has had any success? I am taking 20+ supplements including vit B D and tons of energy supplements. My thyriod is hyperactive but my thyroid hormones are normal. I am deficient in Vit B, D, and my protiens are mildly low. My mono "count" was over 2000 in the middle of the third week. My mono count in my 20s was 125 and when checked then was told that I must have had mono which I did not ever remember having but I was told at the time that it in no way could be affecting my energy level in my 20s. This reactivation has been completely mind boggling. Oh and I never had a fever or sore throat, but did have headaches, lethargy, malaise, complete muscle weakness to the point I thought my muscles might be eating themselves due to lack of movement. I never once could even formulate a concrete thought and still have "fog" that I completely understand. ~missing being an active mom of 3, cubscout leader, and hoping for much more!

Oh and is it really true that you are not contagious if it is a reinfection aka reactivation?
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replied February 13th, 2011
Mono for 14 months and counting....
I am a 34year old female and I have had a strange course of Mono that has left me with more questions than answers.

It all started in Dec of 09 after a trip to Cozumel. I had a terrible dizzy spell at work and had to go home. Since then, I have seen an ENT, GP, cardiologist, internal med, infectious disesase, neurologist, and a rheumatologist.

I have had ear fullness and popping just in the left ear, blurriness in my left eye, fatigue, swollen lymph nodes in the neck, and fatigue for 14 months.

My MRI's have been normal. My blood work showed a positive ANA, which prompted the rheumatology appt.

I had been doing better since Dec of 2010, but recently caught a nasty cold and am feeling like i am back to square 1 with fatigue, dizziness, etc. My husband is frustrated with the the doctor bills, fatigue, etc....

Not sure what to do...how long will this last?
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replied March 18th, 2011
Pilotswife,

Wow! My 14 year old daughter's symptoms are exactly the same, and her story is the same so far. She's only had it for 9 months. Her ANA was slightly positive, so they are sending her to a rheumatologist. I think it's just the MONO confusing her body. I read that MONO can mimmick auto-immune responses, and make the ANA and anti-bodies positive, when they really truly aren't, if the MONO weren't messing with the body. What did your rheumatologist say??? I sure hope you come back to this post and are able to respond. Thanks, Horseygirls
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replied July 28th, 2011
I have a story similar to many of you here! About a month and a half ago I started feeling tired and depressed all the time. I went to the doctor and turns out I had mono! Two weeks ago I had a huge swollen lymph node on my neck and my left tonsil was swollen with white puss-like stuff on it. I never really had a fever though. My doctor put me on an ssri anti-depressant and my chiropractor loaded me up on a multi-vitamin and vitamin c. Well since then i've loaded up on those vitamin c pills (anywhere from 2000mg-5000mg) a day depending on how I feel and its drastically boosted my immune system! The lymph node on my neck has gone down from looking like a golf ball sized tumor to barely visible, and my tonsils are not swollen at all.

All I want to say is hang in there! There was a 2 week period in time where I felt like I was dying, having shortness of breath.. etc. I had to have ambien to even be able to fall asleep and even then I was only getting 4-5 hours of "sleep". You will get better though! It just takes time. To all of you that feel hopeless hang in there, I felt the same way. All you can do is rest (even if it just means laying around all day like me) and load up on vitamin c!

Its now been 2 weeks since I had the initial symptoms of mono. I no longer have the pain from the swelling, but I still have headaches and fatigue/weakness pretty regulary. I hear this takes time to go away though so i'm hopeful that eventually I will recover 100%.

P.S. I'm still on Ambien by the way, it seems to be the only thing that gets me some decent sleep. I think im now an insomniac. In about a week, after my vacation, i'm going to switch from ambien to an over the counter sleeping-aid. I dont want to get addicted to ambien! if im not already..
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replied August 2nd, 2011
Thomas, I was 55 when diagnosed (66 now) and have been having symptoms off and on ever since. My symptoms are weakness, tiredness, dizziness and fatigue. When they come on I must lay down even if its for days at a time. I'm 66 now and worry how I will feel when I get in my 70's or 80's, I feel like death sometimes. In this sense I believe it does get worse with age. I think our immune systems just get weak. I've never had the sore throat or gland swell.
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replied August 19th, 2011
Wow. We all have the same issues. I was ill in 1991 with something no one could figure out. I finally had the doc test for ebv. That was it. It took a while but I finally beat it or so I thought. About 8 months ago I started having vertigo, weird vision issues, headaches and a little more tired then normal. I have always been into heavy exercise. Bodybuilding for years. Since easter I have now lost 18 pounds. Two weeks ago almost went to the er. Odd symptoms, dizzy, headache, weird vision issues, urination problems, nerve surges thru the body, neck pains, brain fog, and others. Started large amounts of vit c, d, b, fish oil. Drinking lots of water. Blood tests fine, but life has slowed to a crawl. Any amount of stress is hard to handle. It sucks but I am starting to feel better. Last time I did try caprylic acid and that helped a lot. Going to start pure coconut milk tomorrow. Hang in there all you are not alone. God bless. Anyone have weird acid reflux or just tightening of the upper abdomen that restricts breathing? Oh and Organic apple cider vinegar seems to be helping 1 tsp in 6 oz water 3 times day.
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replied January 5th, 2012
I am 39 and have been dealing with mono for going on 10 months (although also had a 2 month bout the year before). I am responding because I have also had chest pressure and what feels like shallow breathing. I cannot handle any substantial exertion (physical or mental) without feeling weak and fatigued. I am doctoring again heart and lungs looks normal but I have high blood pressure for the first time in my life. Does anyone else have high blood pressure?
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replied August 23rd, 2011
Hello Trader324. I finally found something that has been helping me a lot. Its called Sulbutiamine, 200mg. It seems to give me much more energy and helps me rest at night also. You might give it a try.
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replied December 1st, 2011
Hello I'm here just to try to be my own therapist and read other experiences with this horrible virus to prove to myself I'm not the only one being broken down not only physically but also mentally. I have currently missed 4 weeks of work and looks like maybe the rest of this week minimum.
My symptoms are headache(4 weeks), malaise, neck pain from base of skull to deep between shoulder blades, brain fog, stomach churning, noticeable and very audible rumbling (feels like nervous stomach like I'm still hungry even after eating), chronic fatigue, sporadic diarrhea, rapid heart rate, shortness of breath, dry cough, swollen lymph nodes in neck, dry mouth, itchy gritty feeling in eyes, woke up with eye leaking on pillow, depression and anxiety after 3rd week probably from wondering if I'll ever get better to worrying about missing work, muscle twitches and itchy skin. Symptoms I have so far avoided are the sore throat and high fever although I did probably have a low grade fever the first 2 weeks because I had the chills. also did not lose appetite.
For me this virus is like the movie groundhog day with everyday being the same as the last with seemingly no improvement in symptoms although diarrhea has subsided and as of today(4 weeks in) headache is starting to ease up but not totally gone.
Have been taking 500 mg of vitamin C several times a day for the last week along with vitamin B12. Also did a saline nasal flush and hydrogen peroxide in the ears starting today. Maybe too little too late but am doing everything possible to fight this virus. Will also be sending wife to get coconut oil first thing tomorrow morning. Also have been resting all day everyday since this hit. Which makes it hard on my wife. They say misery loves company and it did make me feel a little better reading and sharing my Mono nightmare with everyone. Will update in a week or 2.
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replied February 26th, 2012
To all, I am a 20 year old male. I was diagnosed with mono June 2011. I originally had a bad first two weeks and then lingering tiredness, pain around area of spleen, but seemed to recover well. Later in the fall, I started having abdominal pain/groin pain and thought a may have a hernia but had all the tests and the docs found nothing wrong. After that pain lasting off and on for months, I thought I had finally gotten through it. About three weeks ago I started having chest pain and shortness of breath. This progressed to what I thought was a cold as I developed nasal congestion and runny nose like crazy. The cold symptoms seem to be clearing up but the chest pain/shortness of breath is still there. I recently had an EKG, blood tests, and a chest xray, all turned out normal. I was put on an antibiotic just in case I had a respiratory infection. Nothing has helped. Anyone out there know if this could all still be related to the EBV mono that I had last summer?
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replied February 29th, 2012
I have been dealing with Mono since September 2011. It's almost my 6 month mark and I'm starting to have good weeks here and there then will have a horrible day or days of brain fog and dizziness and have to leave work after 4 hours or so. My sinuses are also worse then they ever been and I constantly feel like i have a cold. For those of you who posted a while ago i'm hoping there is light at the end of the tunnel and things do get better? Keep me posted.
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replied March 5th, 2012
Wow! I am so glad that I stumbled upon this site and read all the posts. I thought for awhile that I was losing my mind. I was diagnosed with acute mono via Epstein-Barr test by a rheumatologist just this past Friday. I did not have the classic symptoms of mono and was really questioning his diagnosis until I came across this site and read that many adults do not have the classic symptoms of mono. I am 48 y/o and started having symptoms right before the Christmas holidays. My muscles started aching real bad, especially in my upper arms and neck area, my back got very itchy, got super tired, and my face got super dry overnight (normally I have very oily skin) and felt like it burned. I somehow managed to get thru the holidays feeling awful and did continue to work. About a month ago I started getting this rash around my ankles that did not itch or burn and the skin felt smooth. I went to my family physician who did a punch biopsy on it which came back positive for vasculitis. She put me on a 15-day course of Prednisone and within two days I felt like a million bucks and not a single joint or muscle hurt. She also ordered some blood work including an ANA which came back slightly elevated. She suspected I might have lupus and sent me to a rheumatologist who ordered more specific tests on me including an Epstein-Barr virus test. Diagnosis was acute mono. You can imagine the look on my face when I heard I had mono. So now I have spent the last three days doing internet research on mono at my age and am so grateful that I stumbled upon this site and got lots of good info. I believe the Prednisone is what really helped me the most as far as the severe muscle pains go, but I still feel pretty tired and have no energy most of the time which I am hoping will improve with time.
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