Medical Questions > Conditions and Diseases > Mononucleosis Forum

dizziness and fatigue after mono (Page 2)


October 24th, 2009
Had EBV for almost 6 months now
I've had EBV for almost 6 months now - and experienced many things people mentioned here, especially dizziness (not vertigo, just feeling that I'm about to fall) and weakness/fatigue. This discussion is very helpful to me. I hope those who asked questions 6+ months ago can return and tell us what happen to them...
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replied October 28th, 2009
Mono just diagnosed
Wow - I can't believe all the similar stories I am hearing - I have been searching for the answer since late MAY!! - I was just diagnosed Friday with mono from EBV - said IGG titers were very high - anyone know what exactly that means? (I am thinking body is in fight mode with the virus). Have tingling and occasional numbness , twitching which put me on a wild goose chase for the last 4 months. Very frustrating that my primary care physician didn't find this - went to a cardiologist and then was referred to a neurologist who diagnosed me after an EMG and MRI which came back clear.
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replied October 29th, 2009
Dizziness caused by Mono or Meniere's Disease?
Had an EMG test at the Neurologist today to identify the cause of dizziness. His theory is I may have the Meniere's Disease. He gave me a weak (10%) antidepressant to drain the fluid in my inner ears. Now I'm not sure if the dizziness is caused by the EBV (which my primary care physician told me 'the value is high' without any other explanation) or it's Meniere's Disease. ??!!
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replied November 4th, 2009
I, too, am a 30-yr-old female triathlete going into month 5 with mono. I think I feel worse now than I did when the infection was "active." I feel like this nightmare will never end. Along with all the other symptoms that seem to never go away, I also have a lot of joint pain. I haven't been to the gym in over a month and continue to battle day in and day out with the fatigue, that comes and goes in an instant and without warning. It is comforting to know that I'm not alone.
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replied November 6th, 2009
Good News Update - I just hit the 6 month mark with CMV mono and have gone a week now with no bad days and feeling better than I have since getting mono last May. I finally went to a Naturopathic Dr about a month ago and got hooked up with supplements and dietary changes. Thyroid and adrenal function were also low, so getting that fixed helps too. I wish I would have done this months ago. Don't just wait it out like your normal Dr advises - see a Naturopath. Looking forward to starting some light exercising soon and living my life again. It is definitely a rollercoaster ride as many of you have noted.
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replied November 17th, 2009
Mono at 42 and ongoing dizziness and low BP
Hi all. Sorry to hear about each of your stories re mono. I was officially diagnosed with mono in July 2009. I had not been feeling well (dizziness/vertigo, headaches, malaise) since Nov 2008. The symptoms increased in severity in March thru to June 2009. Doctor sent me for CT Scan and MRI which were clear and prescribed anti-depressants. (Right!) Anyway, it was my Naturopathic Dr. and my massage therapist that figured out my glands were swollen. I took that info along with spikes in fever and extreme sweating to my Dr and was finally sent for blood work which came back positive for Mono. I was off work for almost eight weeks and am still on modified hours. Symptoms are still present and low blood pressure (which I never had before) intensify them. Anyway experience low blood pressure with mono? I am experiencing a lot of the symptoms of previous posters and am glad to hear I am not going crazy! (Although I feel bad for everyone and hope you all get better!) I am female and 42 and hoping to get back to my energetic self very soon! And yes, I think Naturopathic Dr are very helpful!
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replied December 6th, 2009
Let's see, I'm 35 male w/ 2 kids, got diagnosed around July 4th (via monospot). I had an extremely stressful run at work prior to that, and was putting in 70 hour weeks w/ heavy anxiety. I think that was the trigger. At about week 5, i started to feel better, then went outside and did a major landscaping project to solve a drainage issue, and had a serious relapse. By relapse, I mean no sore throat fever, just headache, exhaustion, and the woozy feeling everyone is saying. In addition, I had nighttime anxiety, making it difficult to rest.

Thus started a cycle of exhaustion during the day, keeping me from concentrating and getting work done, followed by nighttime anxiety/sleeplessness, where I had unreasonable fears about all the things i needed to do. I had bloodwork, echocardiogram, full ultrasound of my organs, and all is normal outside of the mono. These good results, and a single tylenol PM at night, was enough to get me some sleep, an I was able to very slowly improve.

I've now relocated, and I took on new work assignment that is a promotion, and also more in line w/ work i enjoy doing. (I managed to keep good standing at work, but barely) I'm now in month 6, and I'm still unable to exercise or drink any alcohol (not even 1 beer) without being "hung over" for the next 2 days...it seems that very high doses of a full B complex and occasional coconut oil have helped. Eating crappy food (greasy, sugary), or drinking a singe beer creates major setbacks. Also, if I go out and run a bunch of errands, or go outside in the humidity for too long, it also wipes me out.

I'm not the same at work, but slowly getting better.

Clearly, the medical community is clueless on EBV. No one even discusses these non-acute symptoms, but reading this website clearly indicates there are fatigue/dizziness/anxiety symptoms that extend for 4-6 months for people in our age group. Also, no warning about how incompatible even 1 drink can be during the post-acute phase. It also seems clear that more people in my age group are getting this than in the past.

The CDC, or at least some infectious disease specialists need to do a simple internet search, and start forming some new hypotheses on EBV in adults...it seems to be increasing, and impacting us 30-40-somethings more. People in our age group usually have more people depending on us to be at our best. I can only muster energy for work, to support the fam, so I leave all housework and parenting to my wife. In short, i think this is a bigger public health issue than is recognized, and deserves at least some updated research. Or, at least primary care physicians need to have increased awareness.

I have 2 weeks of staycation coming up over the holidays. Can anyone recommend a mono-detox, or any sort of regimen to try to defeat this thing during my time off? Also, when is it safe to try another beer?
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replied December 10th, 2009
Shortness of breath, EBV, i feel your pain
WOW... I am very relieved - excited - amazed to have found this site and to have read these storied that explain to the T what I have been feeling and thinking the past two months. My symptoms started on 10/10/09. I remember very vividly, it was a Monday. I was extremely tired and fatigued all day but there was no good reason for it. Its now 12/04/09 and I still feel the same. My doctor, the third one, officially diagnosed me with EBV via a blood test. I feel like my symptoms come in stages. I will feel overly fatigued one week, needing 12-16 hours of sleep a day. Then the next week I can function on 9-10 hours of sleep, however I have this weird dizzy/"brain fog" feeling throughout the day. Then the third week I have intense headaches along with the weird constant "brain fog". Then almost by repeat scheduling, my symptoms sort of repeat. Its very weird. I am in the beginning of my third month. I am younger then a lot of the posts above, 27. I find it interesting that like a lot of the other posts I am very physically fit, I work out (WORKED OUT:( ) 4 to 5 times a week. I guess I have a long ride ahead of me. I had a Cat scan scheduled for next week that I think I will put off for now. I also get spells of shortness of breath and weird sharp pains in my chest when I breath heavy. I also seem to get dizzy and light headed when I am engaged in intense Business discussions and karaoke! On another note, Mono supposedly makes one tired all the time, but for me I still have a problem going to sleep at night, as I always have. Man this sucks, hope you all and myself, gets better very soon. Good luck
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replied December 21st, 2009
Experienced User
Anyone here have problems with lossing appetite, if so, how soon before it comes back. I've had mono for almost 2 months, and this last week I've barely been able to eat anything.
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replied January 10th, 2010
Recurring Mono dizzy spells
I know where you are coming from. I have never had the flu and maybe have had one or two colds in my life. My second year of law school, I went to the emergency room because I had fainted. My blood test came back positive for mono. It was the worst six months of my life. It took all my energy to make it to class. I was sleeping about fourteen hours a day (I used to sleep about four hours a day). The only symptoms I had was the chronic sleepiness and the dizzy spells, but it was enough. I came close to dropping out of school.

I was fully recovered at six months, that was three years ago. Every once in while, when I let my self get too run down or stressed, it flares up. First I get sleepy, the first symptom, then I get dizzy. If I'm careful and gets lots of sleep as soon as I start to feel it, it's almost like I can head it off before there is a problem. If I am not careful, the dizzy spells start. Then I really have to take it easy- lots of sitting, no drinking, and no caffeine until I feel better. It blows.

Look at it like a condition. It just has to be handled. It took me a while to stop freaking out about it, but there are worse problems to have. If it helps, I have mono movies and tv series I like to watch to get me through. I try and pace myself, wait for the weekend and then crash with my movies in bed for a few days. By Sunday night, I am back to myself again. I never get colds or the flu so I consider my mono days my sick days.
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replied January 28th, 2010
Mono Recovery- Coconut Oil
To all of you suffering from terrible symptoms of Mono I want to let you in on something that has been a miracle worker for me. I have been fighting all of these symptoms of fatigue, malaise, sore throat, strained eyes, dizziness, and the works for about 4 months. I discovered the idea of coconut oil capsules from another forum and I decided to try it out and see for myself. It has helped tremendously to fight fatigue and improve energy and well-being. It has allowed me to return to working out and living an active/busy lifestyle without feeling like I was going to collapse everyday. Coconut oil can also be taken by tablespoons or used to cook with. I find it easiest to get in form of capsules. It can be found at GNC or online. Virgin Coconut Oil Capsules work wonders to fight all types of viral/fungal/bacterial infections and diseases. I recommend taking at least 4 1000mg capsules in the morning and another 4 again at night. You can take even more if needed, it is all natural and can only help. It is used to heal numerous conditions and you can do a search to find it's numerous benefits. It isn't too expensive which is nice. Anyways, I hope this helps! Try it out, it's great!
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replied January 30th, 2010
Mono how long does it keep you down?
I am 40 years old and just been diagnosed with Mono. I thought it was strep throat, which I have never had, and they treated me for strep. After a week of antibiotics I wasn't feeling much better. My lymph nodes were so swollen and I was treated with steroids which helped alot. When my Dr realized the steroids were helping he had blood test ordered for Mono and it came back positive. I had that pressure feeling in my chest last week and only a few dizzy spells. I am into my 3rd week and woke up this morning with swollen lymph nodes again. I am very tired all the time but I am a single mother of 3 children and can't stay down for long. I have had headaches as well which are pretty bad and I rarely get headaches. I felt ok last week but now I am beginning to wonder how long this will go on. It's quite scary!
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replied February 12th, 2010
9 month update - I've posted several entries on this thread logging my experience so others might know what to expect. I'm a 45 year old male and I came down with CMV mono about 9 months ago. I'm now to the point where I exercise about 20 mins a day and can get through my work days ok, although I still usually have low energy feelings once or twice in the course of each day. I still have to pay attention to my exertion levels because I'll pay for it if I overdo it (which I seem to do once or twice a week - there's just stuff you have to do sometimes!). The difference now is that my body is able to rebound after a little rest, unlike a few months ago. I'm working with my Naturopath and taking natural thyroid, DHEA, d-Ribose, L-Acetyl Carnetine and vitamins, and 5-htp at bedtime. If you are still suffering months after mono, I highly recommend working with a Naturopath and also check out Dr. Jacob Teitelbaum's site and his book "From Fatigued to Fantastic". Lots of good info and recommendations there. I have found that the d-Ribose especially helps with maintaining your energy. Looking forward to continuing progress and a good summer.
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replied March 14th, 2010
This makes me feel better . . . I think I had mono for months (I'm 31), and during that time I was dizzy ALL the time. Since then, I feel horrible by Thurs/Fri, but I can't really get out of doing too much work. I do think it's starting to get better, but someone should really study this. I mean, if dizziness is a common symptom of mono in adults, why does everyone look at me like I'm a crazy person when that was my main symptom?? However (I'm a scientist - of reptiles, unfortunately), and I think it's helping my research. So many diseases of my little tortoises appear to be chronic - but they can clear symptoms for just years at a time! So that's good news . . . I just wonder how common temporary imbalances, neurological things, etc. are in chronic diseases of animals. I'm glad I found this site, it is scary, but I think we'll all get better in time . . . although "slow and steady" really sucks sometimes. Wink
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replied March 27th, 2010
I'm so glad I found this site. I'm 36 and started this crazy mono trip last August. I feel like I've lost months, just when I start to feel like myself again it knocks me back down. I'm a mother of three and work full time, like a lot of others here I also usd to have a very active lifestyle. Now my life is like treading water, doing the least amount possible to keep afloat. It's truely frusterating trying to explain to people what is wrong... to see it all here makes me feel better, like I'm not crazy.
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replied April 30th, 2010
Mono/GF
Hi, I was diagnosed with mono mid 2009. Knocked me out for a couple of months and did not feal as though things were right until around Christmas. Started getting back to exercising including spinning classes once a week and regular golf. Have had a few spells of tiredness but have really come off the rails this week due to a fairly active, but not I thought excessive weekend of activity last week. Now feel totally shattered, aching muscles and headache. Difficult to concentrate and find I am waking up in the middle of the night. Have cancelled physical activity but would love to know how I can put this behuind me as it is a complete pain. I am 52 - an oldie for mono - but this makes me feal about 80. Any advice would be much appreciated,

Peter
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replied June 28th, 2010
cont. mono symptoms
I got diagnosed with mono last Aug, (08/09). I am a 39 yr old registered nurse that almost a year later I am having difficulty. The dizzy/nausea spells still hit at which time usually have sweating involved. I am a mother of 2 active boys and work nights so this has been very difficult for me to recover from. Glad to know that I am not the only one out there suffering with the same symptoms. Helps with the sanity to know your not the only one out there.
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replied July 3rd, 2010
Dizziness after mono
Add me to the list. I was out of work with Mono for four months in late 2008 but went back to work in January 09 feeling better. I worked very hard all year, then in January 2010 I began to feel lethargic and dizzy, or fogged in all the time. It is always with me even now 6 months later. I have been to neurologists and ear specialists and they have no idea. I wondered if it is related to Mono but that question was met with a blank stare. I have renewed hope now after reading these posts that my symptoms are mono-related and might therefor clear up. I am going to try the coconut oil. Thanks everyone.
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replied July 11th, 2010
I also have had these same symptoms all of you are saying you have. i first had a panic attack about 6 years ago and ever after the panic attack i had been dizzy for about a year straight which is how long it took to slowly go away.then 2 years later same thing happened but only last about 4 months. then 1 year later again im back to it again.. been dizzy for about 2 weeks now, started with a panic attack feeling then dizzy and way tired. i can sleep 10-12 hours at night and still feel like i hardly slept. my wife is having a hard time with me becuase of all this also, mood swings, short temper, feeling drained and never feel like doing anything but sitting here at home. im 24, have been having this since i was 17-18. first my doc said i had vertigo, and did every test in the book to make sure i wasn't dieing or anything, ct scan, blood tests, mri's, ekg, thi-riod, everything and it all was fine. but thats when he found i had mono/epstien. wierd i always thought you got mono for like a month and it was gone for life. i geuss i was wrong. anyone find any vitamins or anything that help any?
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replied July 11th, 2010
Vitamins
Lysine is an Amino Acid you can buy over the counter which your body needs to fight off Mono. It is not a magic bullet but it helps. Also there is an all natural product called "Regulat" from Germany . That helped tremendously boosting my immune system. I am in my 7 month of dizziness after having mono symptoms for 4 months. Mental game is the toughest. You do not have to defeat mono only physically but mentally.
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