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Merkel Cell Carcinoma Treatment

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My Mother was diagnosed in August 2007 with Merkel Cell Carcinoma. She has had three treatments of chemo and six weeks of radiation therapy which left her with severe radiation burns. Apart from the 'recommended treatment' in Australia, my Mother is fit and well even though the cancer has spread to her chest and spine.
She refused further chemo which we fully supported. My sister and myself have researched for many hours on the net and haven't found any medical evidence on any benefit of chemotherapy, to the contrary this cancer thrives on the imune system being compromised. In hindsight my Mother would have been better off not having chemo.

If someone has any knowledge of this terrible cancer or advice to give please leave a message for me.
Regards Summerlee
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First Helper georgeMCCSurvivor
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replied January 12th, 2008
Extremely eHealthy
I'm sorry to hear about your mom. I agree that chemo is terrible and I personally would agree with if and only I know for sure there is chance I survive the cancer. If it really going to help just to make my life more miserable and maybe extend just a few more days of my life I rather have a quicker death at my home without chemo struggles. I would just look around for ways of having a death as painless as possible. Your mom is in my prayers.
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replied January 24th, 2008
to nightangel173
Thank you very much for your reply. You have written exactly what my Mother has said to me. I didn't want to hear her asking me about making her death as painless as possible but I know you are both right. We do not let our animals suffer so why do we let our loved ones!
regards
Summerlee
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replied March 28th, 2008
I have survived merkel cell cancer on my left arm for almost three years now. I founded a group of some 200 plus MCC survivors worldwide. Along with the experience that each survivor has provided there are files and help sections about MCC at the group we page. Please take a moment to stop by.

George
Group admin & MCC Survivor
Google Groups - Merkel Cell Cancer Group

http://groups.google.com/group/merkelcell? hl=en&lnk=sg
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Users who thank georgeMCCSurvivor for this post: Tigger2v 

replied June 9th, 2008
I have recently lost a loved one in march 2008. We did chemo & ended up in ICU for pneumonia. He was there for 1 month. After he was able to do radiation but needed to quickly fly to Germany for other treatment. The point is each treatment after the hospital prolonged his short time he had left. It was painful to see him in that much pain but it gave him time to spend a little more time with his children and get right with the lord. He was diagnosed in Nov. 2007 and left us on Easter 2008. Everyone with this disease is in my prayers.
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replied December 4th, 2009
Merkel Cell Carcinoma (MCC)
Hi my name is Donna living in NSW Sydney Australia, today my Brother of 41yrs has been told he has Merkel Cell Carcinoma MCC, i have now been on the internet for 5 hours looking for people in Australia with this Form of Skin Cancer but so far have had no luck.
My Brothers MCC is in the neck, lymph glands, slyvia glands and CT scan shows it to be Metastatic. We are all very worried by what we are reading.
He is seeing a Surgical team at Westmead Hospital and has surgery on Wednesday on his Neck and Lymph Glands we are all very concerned of the outcome of this?
Are there any other people out there of this age with MCC?
Any what has been your treatment so far and your quality of life?
Donna
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replied October 10th, 2011
merkel cell cancer
My father is 67 years old and was diagnosed this year with merkel cell cancer, he found a small lump like a peanut in the side of his jaw and after tests said it was in his lymph nodes ( April ) which was removed and then he did about 6weeks radiation. He went back 2weeks ago ( sept ) to the specialist who seemed to think he is ok.... but my parents dont ask enough questions and the survival rate that i have done so much research on is not good. My father doesnt feel well and obviously thinks the worst. He just doesnt feel right in his body and I think the radiation has made his arthritis worse. I too would like to find any people that have had this disease to see what the reality might be, how to cope, what and what not to do... any information is welcome.
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replied March 4th, 2010
my father is also having treatment at westmead for MCC and has been since 2001, my thoughts are with you
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replied January 31st, 2012
Hi. Just been reading about mcc. I found mine on my chest in aug 2011. Left it for three weeks then got it cut out. We all thought it was a syst Done five weeks or radiation in bris. The doctors were just great n nurses were fabalous.

I've had 64 bcc n scc cut out. 2 melonams. And one merkel
Mmmm. 12 were last year.


Love to talk to people who have this or know of someone. It's hard trying to get info off computer

John
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replied July 25th, 2013
I have been successfully killing individual Merkel cancers all over my body with Cansema and a method I devised for two years. Following the Gerson Therapy as well. Doctors don't think it has gone anywhere except the merkel cells under the skin. No chemo or radiation for me! I got it from chronic toxic exposure to strong Arsenic in water supply in Fallon, Nevada. (google it) Made worse by constant sunburn for decades no doubt. Don't know if I'll die from it yet...duh...but have lived longer than most already! 7.13
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replied February 8th, 2014
HI AMOONEYE, MY DAD HAS JUST GIVEN ME NEWS OF HIS MCC & IS SEEING SURGON THIS MONDAY FOR TREATMENT, I WANT TO KNOW ALL OUR OPTIONS, I AM NOT ONE FOR CHEMO OR RADIATION EITHER IF WE CAN AVOID IT WHY WOULDNT YOU? ( WILL HAVE TO DO SOME BIG TALKING TO DAD , BUT NETHER THE LESS WISH ME LUCK PLEASE , PLEASE CAN YOU PLEASE GIVE ME MORE DETAILS OF YOUR CANSEMA METHOD IS & YOUR UPDATES OF ANYTHING ELSE YOU HAVE COME ACROSS ASAP, THANK YOU MILLIONS IN ADVANCE (I LOVE THIS MAN)
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