Medical Questions > Conditions and Diseases > Kidney Conditions Forum

Chronic Kidney Stones... (Page 1)

I started passing kidney stones on December 31, 1999. Yep, new years eve. Since then I have passed several hundred stones(I have a real nice collection). I have had seven lithotripsies so far. Ive been through nine Urologists with all of them acting really interested and wanting to help me...... at first, then eventually letting me know in so many words thats theres nothing more they can do for me and telling me to find another doctor. Ive probably taken enough pain medication in the last eight years to supply everyone in the USA for a month....... at least. I usually have about a 2 to 6 hour window after I pass a stone before I start passing another one. The average time it takes me to pass a stone from the first sharp pain to the stone actually shooting out when I pee is between three and six weeks. Some stones have taken me up to 10 weeks to pass. Needless to say how hard it is for me to hold down a full-time job. My last job I had to apply for FMLA so I would not get fired from missing so many days of work. Ive been on disability since september 2006. I have not improved at all since being on disability so have decided to try a part time job. I have an appointment on the 27th of this month at the Vanderbilt Urology Center in Nashville, Tennessee. Needless to say that I'm in severe pain almost every minute of my crappy life and see no relief in the near future. I just had a falling out with my latest Urologist and am hoping that vanderbilt can help me. Ive been told by several doctors in the past that I will have this condition for the rest of my life. I have actually contemplated taking my own life on several occasions but do not want to end up in hell, if there is such a place. Sometimes I think I'm already there.
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First Helper banjo_booger
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Users who thank banjo_booger for this post: lightchaser  rosemstock 

replied December 31st, 2007
Like Circumstances
I have a niece who has passed kidney stones as you have for most of her life. I think she is 40 now so it has been a rather unpleasant life. She has of course become addicted to pain meds and now doctors will no longer prescribe them for her. She is pretty pitiful. I dont condone addiction, but in this circumstance, I can just about understand it. Just thought you might like to know that you are not in it alone. Good luck and God Bless you in your journey
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replied January 7th, 2008
Experienced User
My boyfriend, has the same issue. He passed his first kidney stone with no problem when he was 18, then about a year ago he had to get a cystoscopy to blast one out had a Ureter stint. Then a month ago he had one traveling on each side at the same time, and they did a litheotripsy. then its about a month later, and he has a 5mm stone that he just got blasted today. He also passes little ones all of the time. I wonder if there are any underlining conditions or diseases that is causing these stones. I feel so bad for him, he has also missed so much work. He's suppose to be seeing a Kidney specialist this month, so I'm hoping they come to a conclusion.
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replied January 8th, 2008
Extremely eHealthy
The first thing is to find out what type of stones you are making.
There is medication that can slow down the amount of stones a persons body makes. The other thing is changes in diet such as eliminating or decreasing your oxalate intake.
Oxalate is found in many foods and drinks such as coffee, teas, sodas, etc..
chocolate, sunflower seeds, fig newtons, the list goes on and on.

There are categories for low, medium and high oxalate foods, drinks even condiments and fruits.
Another big culprit is sodium.

Then on the other hand there are people like myself who have eliminated a lot of this stuff from my diet and still produce stones.
My son and husband also suffer from kidney stones.

Nephrologist (kidney doctors) are your best bet when dealing with so many stones, you still need the urologist to remove the kidney stones if you can not pass them but the kidney doctor can help with medications and dietary changes.
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replied July 6th, 2009
Chronic Kidney stone pain
Please write me as I am unlikely to find this forum again as I stay in me "batcave" most of the time. My likfe is ruled by kidney stone pain. I have passed more than 40, have had 12 surgeries for them, endured a nephrosomy for 4 months during one of my pregnancies, and have chronic pylonephritis. I had the unfortunate experience of living in Las Vegas for the past two years, and was unfairly marked as a "drug seeker." Not sure, but I think that youhave to actually take the narcotics to become addicted to them, and at the time, my nausea and vomitting from the pain prevented me from doing so. From the dehydration, being unable to take fluids and vomitting so much, I had an acute MI. I am 37, have 6 children, and went into full kidney failure, and congestive heart failure. Still the label remained, and we had to relocate our family to attain better medical care, but there are still no answers for my chronic kidney pain. THe renal and heart failure has reversed as the stones that were blocking passed on their own, I take flomax daily, but I am unable to do much other than lie around in a fetal position until the next stone passes. Please, if you are suffering like me, please e-mail me so that we can share resources, or create some! Thanks for listening.
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replied July 19th, 2009
Serenity, you have it down. Thank you for all your great info. I'm suffering bad now too. I had my first stone at 15, and now I am 36 and have chronic stones for about the past 2 years. I can now go sometimes 2-4 months before I get a stone on the move again, and I think Its because I got completely serious about my diet, which by the way, was not bad in the first place! And although I thought I drank enough water, I guess a gallon a day is not enough for me. It seems like all I do is drink fluid now. Water being number one, distilled right now, seems to be helping. Instaed of reading a paragraph, let me try and simplify what works for me, and what does not:
KEEP IN MIND NONE of these "goods" will have refined sugars, caffeine (sodas, tea or coffee, etc

GOOD! (in order of use and importance to me for last year)
-WATER ( i drink distilled now for over a year)
-Organic apple juice
-BRAGGS Apple cider vinegar "with the mother" (I hate this one, but I have to tell you, I can almost feel it waring these stones down, and you can fix it with water, and honey to make it more palatable)
-Pure cranberry (you can get use to the taste, I enjoy it now)
Notice all these are liquids! Liquids, liquids!

NO GOOD!
-Sugar of ANY KIND!
-Any dehydrating foods/liquids:
soda, coffee, tea, juices with added sugar
-Mineral rich foods:
-Kale
-Chard
-spinach
any hardy green
-Red meat for some reason bothers me almost immediately, too bad I love it so much, but Ive stopped
-sausages
-hams

My rule has been, if its dehydrating I skip it, or in a VERY small bite, and that's it.

I'm still getting them, but not as frequent. The last 2 have been the worst of all. (just 2 days ago) And I sympathize with Banjo Booger, when you say you are at your wits end, and just wanna jump! Although I'm probaby the most positive person people meet, this thing cuts me down so bad, when its over I lay there and think..."what! This is no way to live! When is the next one going to hit?" And all the suicidal thoughts. But I hang on too. There's got to be a way! I want my life back! I'm so happy to voice my frustrations here! I swear some people are thinking that I may have drug problem or something, and I'm such a purist that it make me so frustrated! But believe me, when the pain gets intolerable, and Im throwing up, and passing out, I will reach for a pain killer now. I'm over trying to "endure" it anymore. It's so ridiculous! So Booger! When you are feeling crappy, leave me a message!
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replied January 6th, 2011
I'm sorry to hear about everyone but glad to know I'm not alone!!! I had my first stone in 2003 and since then has become worse! I've passed hundreds!! I've tried the diets and supplements and NOTHING has worked for me. I too had FMLA at one job I had for years-they just find others ways to get rid of you for time missed! I miss a lot of time or even sometimes have to take pain and nausea meds at work which affects my work. I never been one to even think about disability and frowned on a lot of people for doing that ... There are many that should not have it!! However I have been thinking about trying to apply as it's getting worse. I could probably handle part time. It has become an almost every day at least every week thing!!! I'm glad I'm not alone!! I'm happy to say that so far in the 7 years my family doctor and urologist have been great!! I've had 4 lithotripsies and 3 manually removed in 7 years!!! Has anyone else got disabilty for chronic stones???
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replied February 25th, 2011
kidney stones but addicted to pain medication
Can anyone help us with this....my husband's son is 28 and has frequent kidney stones, cholitis, and chrone's disease. He obviously has serious pain issues. However, he has become addicted to Tramadol...taking 25 a day. We have tried to get him to admit his addiction for 2 years now. Last week he finally admitted to the problem. He entered a rehab facility, but by the next day was in the hospital for kidney stones and they gave him percocet. The rehab would not take him back until he is off the medication. We are in a catch 22 and don't know what to do. He can't keep a job, has stolen money from our bank accounts and from other people and has no insurance. He goes from hospital ER to hospital ER for medication or orders it online with no prescription. How can he get help to overcome this vicious cycle?
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replied April 5th, 2011
Dear lost111 and all those with similar issues,There is a big difference between addiction and dependence!!! people that take pain meds to get high are addicts, people that suffer from severe chronic pain become physically dependent on their pain meds.The latter are NOT addicts, they need pain medicine just like a diabetic needs insulin. Why should someone who needs pain meds on a constant basis have to deal with being labelled an "addict" and have their families, some uncaring docs and others, chastize them for having a disease that requires the taking of pain medication. Someone who is in that condition should seek the help of a pain management specialist, that is why they exist. I'm 51 yrs old and have been dealing with this since im 19.I went through being labelled an addict, god that sucked! i finally explained to my family that without pain meds i would have no quality of life and would not even want to live. I told my mom that i would throw myself off of a bridge if my pain meds are taken away. My family had gotten my shrink to go along with them to have me locked up in a detox center. Thank god for my father, who actually watched me suffer terribly while i lived with him for some months during a bad patch in my marriage.He stopped the whole process and went against everyone else in my family that wanted me to go to "rehab". For a while everyone was angry with him but they now all understand that i needed pain meds to maintain a decent existence. Its bad enough to have severe chronic pain, why should we have to deal with social stigmas on top of our diseases. With pain meds i lead a very productive life. Im a very successful salesman, i work 50plus hours a week, i have 2 children that have respect for me, one in college. my life is not a bowl of cherries, even with pain meds im still in pain most of the time but at least i have a productive life and no longer want to kill myself. my point is that there is nothing wrong with taking pain medication for chronic pain as long as it is handled properly. Find a good pain management doc in your area and let him know that you dont have insurance or a lot of money but you really need his help, he will likely find a way to help you. god help all of us who suffer with this horrible affliction!
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replied June 22nd, 2012
Yes
I agree with you completely, I am currently 24 and have been through 7 lythos due to chronic kidney stones, I was perscribed tramadol and it seems to help me just fine. Yet, still, with my age and it being pain medicine, it becomes difficult to get refills for me because they label me an addict, what they dont realize is that, for me, this helps me tremendously for my every day needs. Without it I cant imagine how many times I would have been in the ER. When it does not help is when I get a stone that will not pass and gets stuck. Then I need to go to the hospital, but other than that I have not been to the hospital. I was told by a nurse in the urologist officer, and my doctor that most people use advil to ease the pain. Weird that I haven't seen anyone on this site, or others that say that helps them with their pain. I also saw one person say that tramadol would not touch kidney stone pain, I disagree, I think it helps me tremendously. It helps my kidney not spasm to try to pass the stone before it enters into the ureter which causes pain, because the kidney squeezes the stone essentially, and well, you think about putting glass into you're palm and squeezing down on that. For most people without stones, including doctors, cannot understand the pain associated with this. I'd love to be clean off medicine period, but that just isn't going to happen, I'd love to find someone in the medical field who will not give me a hard time about perscribing me the medication. I have not yet seen a pain specialist, but after reading the above, I ll definitley research that and get in as soon as possible, I'd also like to find someone researching stones and stone prevention in my area of New York, I'd gladly lend my current woes to them and see if we can find a long term cure, obviously this is a serious epidemic, and one with no solution in sight right now. Please understand that without this medicine I'd be clogging up the emergency room when I can deal with my pain from home, and not have to take up a bed that someone who really needs it cannot have due to me.
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replied February 26th, 2011
Tramadol is a non-narcotic pain medication that contains 500mg hcl acetametaphin, there should be no addiction, and they will not touch kidneystone pain. His Urerologist should refer him to pain management doctor. Ive had these since age 11 im 33 1-5 every 2 weeks. I have any medicine they have in the ER, However it took me 5 years to prove myself to my pain management doctor. the fda is cracking down on them. In the last five years I passed every stone thanks to my pain meds, the best being a shot of 2-4mg of dilauded which i give myself. He should have never went to rehab for tramadol, its basicaly the same as toradol also non narcotic, I have this also injection only. I use it when im driving it only decreases the onset by 30-50% but im 100% while driving because its not a narcotic. Anyone on the east coast, My Dr. at Duke Hospital has specialized in stones for 30 years, his name is Glen Preminger. It takes a year to get in, but once your in your there until he helps you. Good luck to you and all the above. Also they dont accuse you of a drug seeker unless youve faked pain or other very good reasons.
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replied February 27th, 2011
Although Tramadol (Ultram) is not an narcotic per se, it binds to the opiate receptors. It's action is such that discontinuation of Tramadol will cause withdrawal symptoms. Tramadol withdrawal is sometimes more prolonged than with narcotics. Some doctors may know nothing about this because many doctors think because it is not classified as a narcotic it is "safe" and has no addiction and withdrawal potential. My husband's son said the doctor that first prescribed the Tramadol told him it was not addictive....do some research on testimonies and you will see that the withdrawl is worse than coming off opiates. I can't imagine what you have gone through with that many kidney stones since you were 11. I wish he had one doctor or pain management doctor he was working with. He will not commit to one doctor because they won't give him as much medicine as he wants to take. The problem is he is hooked on the medicine which is why we pushed the rehab program. He might not classify as a drug seeker because he has an actual illness, but maybe because he won't stay with one doctor for treatment but goes to different ERs in different states (5 in one month) for different prescriptions. He has a problem. Thanks for your thoughts and experience. He needs to decide to only take prescription strength Advil/Tylenol I guess for kidney pain if he ever wants to get better. He won't do that at this point yet.
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replied March 2nd, 2011
Kidney stones make life into a living hell
I never could imagine that so many people suffer from the same s*** that i do. I've had kidney disease since i was a child and also had kidney reflux. I was on antibiotics for the first 10 years of my life which took its toll on my immune system as you can imagine. Both my parents have had stones (only 1-2 times each) I got my first stone when i was 17.. I'm almost 21 now and have had them ever since. First it was once or twice a year now its every 2 months or so. I don't drink alcohol or soda or black tea or eat excessive spinach. I don't have insurance like most of you so i have to take routine trips to the ER with my blood pressure through the roof. Its always the same crap. EKG, urine tests, blood tests, CT scans, ultra sounds. They want to poke and prod at you and when you cry the want to give you TRAMADOL. If you ask for something else they act like you are some junkie trying to score. Oh yes, I'm here wasting my time uncomfortable miserable and in unbearable pain just so you can send me home with 15 percoccet 5mgs and a 10,000 bill. When i had insurance they would keep me overnight. Now I'm lucky if i get fluids Phenegran and a few pain pills before they push me out the door. I cant even get them to give me a freakin strainer so i can catch the stone to get it analyzed. I brought all my medical records with me last time i went to the ER the doctor said he didn't even want to look at them if they were not from today. Just like many of you i can't keep a normal job. I used to be able to take some pain pills and still get the job done but i feel that i can't anymore. I don't know which is worse the pain or the nausea that never goes away. Its very hard on the family too, I've been with my boyfriend for a couple of years now and I'm lucky that i have him to comfort me, hold my hair back when i get sick, stay up with me all night and all the trips to the hospital at odd hours that seem to last forever. And still going to work to pay for the bills any way he can. I finally got an appointment with a urologist But its for April 1st. I feel like i might go crazy in the mean time. I've passed 3 so far in this sitting.. i haven't been able to sleep and I'm so miserable I'm starting to lose hope. I fear that all they will do is give me pain meds constantly and then i will be an addict. Or worse that they might have to remove one of my kidneys that was damaged from the reflux. To all of you that have been living with stones for years, you truly are amazing Strong people. I'm trying not to give up hope and you shouldn't either. There are people that love you and suicide is not an option. Put that energy into finding ways to get better. And i know its not easy but try not to stay sedentary, walking helps if you can bear it. Also lemon juice lots of it, and there is a tea i have been trying Chanca Piedra or "stone breaker" I had also tried drinking the juice from one lemon with about 4oz of olive oil it was recommended by an acupuncturist for kidney stones and gal stones. I pray that you all find some relief. I have no nausea medication or pain meds. Playing the waiting game here. I hope it gets better soon and i wish you all the best - J.S.
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replied May 13th, 2011
I am 32 yrs old and have had chronic kidney stones since i was 15. Ive been taking narcotic pain medication since. Ive gone through 33 operations to have them removed.And several other operations to fix issues that the kidneys stones themselves caused. With Kidney stones come damage to the urinary tract,scar tissue,narrowing ,infections,high white cell count. It took years for me to find a wonderful pain specialist as well as a wonderful uroligist. My doctors worked with me to get disibility rather than welfare. I have a collage education , husband ,children and hobbies but when it comes to working,,i can be good for a few months but all the sudden,,im unable to work for weeks at a time. My doctors made it clear that with the chronic state of the stones,size and damage,,i dont just have stones,,i have kidney disease. Prior to finding the right kind of care,,my quality of life was'nt even worth living. I was never labled but i knew by the way nurses treated me that they thought it. I avoided the emergency room and suffered often in silence. One faithful night i got really sick,,my white cell count sky rocketed to 27,my fever was 103,,i was talking to ppl that were'nt there due to the intensity of the fever. Finally my husband called an ambulance. An infection set in after o passed a stone. I didnt go to the hospital when the pain set in and it almost killed me. I have never abused my meds,,i have never "doctor hopped",,im a human being who suffers from chronic pain brought on by mild kidney disease. Chronic renal colic.
I'm lucky to have access to great doctors at this stage of my life,but for years i struggled with income and suffered more than any person should have to. Understanding pain is only now becoming priorty for countries around the world. Lets hope ignorence on behalf of the medical staff become a thing of the past.
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replied November 18th, 2011
What have the doctors done to help your kidney stone pain?
What have the doctors done to help you?
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replied May 13th, 2011
I am 32 yrs old and have had chronic kidney stones since i was 15. Ive been taking narcotic pain medication since. Ive gone through 33 operations to have them removed.And several other operations to fix issues that the kidneys stones themselves caused. With Kidney stones come damage to the urinary tract,scar tissue,narrowing ,infections,high white cell count. It took years for me to find a wonderful pain specialist as well as a wonderful uroligist. My doctors worked with me to get disibility rather than welfare. I have a collage education , husband ,children and hobbies but when it comes to working,,i can be good for a few months but all the sudden,,im unable to work for weeks at a time. My doctors made it clear that with the chronic state of the stones,size and damage,,i dont just have stones,,i have kidney disease. Prior to finding the right kind of care,,my quality of life was'nt even worth living. I was never labled but i knew by the way nurses treated me that they thought it. I avoided the emergency room and suffered often in silence. One faithful night i got really sick,,my white cell count sky rocketed to 27,my fever was 103,,i was talking to ppl that were'nt there due to the intensity of the fever. Finally my husband called an ambulance. An infection set in after o passed a stone. I didnt go to the hospital when the pain set in and it almost killed me. I have never abused my meds,,i have never "doctor hopped",,im a human being who suffers from chronic pain brought on by mild kidney disease. Chronic renal colic.
I'm lucky to have access to great doctors at this stage of my life,but for years i struggled with income and suffered more than any person should have to. Understanding pain is only now becoming priorty for countries around the world. Lets hope ignorence on behalf of the medical staff become a thing of the past.
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replied March 28th, 2012
i have had stones since 2007 two surgeries a year now my kidneys r full of stones that r to small for surgery my urologist tell me to take 800 mg of ibphrofen which does not help he says it help inflamation but my family doc will give me stronger when i need it i have heard people say have surgery go back to work well i have and 6 mths later i have to take off for surgery and they let me go i dont know what to do i am tired of hurting tired of having no money how to u apply for disability will they laugh at me for stones no one understands the pain i go thru i learned to tolerate it but i am so tired of every one thinking i can just take med and get over it please help i dont know what else to do
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replied July 31st, 2012
I have been suffering from kidney stones since 2004. I don't know how many are in my kidneys, the docs haven't told me, they just tell me more are in there. I too have no insurance so ER is pretty much the only option i have. In July 2004 i had my first, they told me it was 2mm it was only an inch from my bladder, should pass in a couple of days, never passed, (used the strainer for a month), a couple months later had another bout, stone was an inch from my bladder, 3mm in size. Never caught it in my strainer, this kept going on and on each time stone was in the same place just getting bigger. I guess it wouldn't block my urine completely all the time because i was able to go, just felt like the bladder wasn't emptying all the way, til about every 2-4 months then i would have the bad back pain & go to ER. They would prescribe an antibiotic and either 15 Vicodin or Percocet and send me on my way. In 2008 i started getting pain in my genital area, kinda like a UTI. Went to ER, said i had a 7mm stone, ( no ut infection), prescribed same meds sent me away. Well when i ran out of meds, i just kept going back to the ER, after 4 or 5 visits the ER doc told me i was no longer welcome to come back to his hospital and if i returned he would send me away, (yes i know that is not legal, but little did he know my brother-in-law was the hospital director and that doc was gone in less than 3 months). I had this UTI feeling pain from the stone with periodic back pain from September 2008 til April 2010. I did not go back to the doc at all til April of 2010 and i went to another hospital. (Also each time i went to the ER the stone was in the same exact place, about 1 inch from my bladder.) This time, there was a urologist in the hospital, the CT scan showed i had a 9mm stone, 1 inch from my bladder and my left kidney was very enlarged. They had to do an emergency surgery to remove it or he said i could die. $10000.00 later i was waking up in the OR recovery. He did not give me my stone which i was kinda upset about since it had stuck with me for 6 years i felt i should have at least got to frame it. But he did tell me it was Mickey Mouse shaped. What had happened is the stones got stuck there an inch from my bladder and fused together. I did pretty good since then, no new stones til now. Been drinking my lemonade every day, all day only had a little pain for a day or two, hopefully the lemonade is kicking the stones butt!! I also take Uriflow pills periodically but mainly drink the lemonade. I really feel for you that have them all the time. Just keep drinking lemonade, 4 fl oz frozen concentrate and 1 quart water. Have your docs check your potassium levels, low potassium causes stones to form quickly. Also, high levels of sodium intake. Get a script for potassium citrate or just drink plenty of the lemonade, it also is full of the potassium citrate. Good luck.
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replied July 31st, 2012
I have been suffering from kidney stones since 2004. I don't know how many are in my kidneys, the docs haven't told me, they just tell me more are in there. I too have no insurance so ER is pretty much the only option i have. In July 2004 i had my first, they told me it was 2mm it was only an inch from my bladder, should pass in a couple of days, never passed, (used the strainer for a month), a couple months later had another bout, stone was an inch from my bladder, 3mm in size. Never caught it in my strainer, this kept going on and on each time stone was in the same place just getting bigger. I guess it wouldn't block my urine completely all the time because i was able to go, just felt like the bladder wasn't emptying all the way, til about every 2-4 months then i would have the bad back pain & go to ER. They would prescribe an antibiotic and either 15 Vicodin or Percocet and send me on my way. In 2008 i started getting pain in my genital area, kinda like a UTI. Went to ER, said i had a 7mm stone, ( no ut infection), prescribed same meds sent me away. Well when i ran out of meds, i just kept going back to the ER, after 4 or 5 visits the ER doc told me i was no longer welcome to come back to his hospital and if i returned he would send me away, (yes i know that is not legal, but little did he know my brother-in-law was the hospital director and that doc was gone in less than 3 months). I had this UTI feeling pain from the stone with periodic back pain from September 2008 til April 2010. I did not go back to the doc at all til April of 2010 and i went to another hospital. (Also each time i went to the ER the stone was in the same exact place, about 1 inch from my bladder.) This time, there was a urologist in the hospital, the CT scan showed i had a 9mm stone, 1 inch from my bladder and my left kidney was very enlarged. They had to do an emergency surgery to remove it or he said i could die. $10000.00 later i was waking up in the OR recovery. He did not give me my stone which i was kinda upset about since it had stuck with me for 6 years i felt i should have at least got to frame it. But he did tell me it was Mickey Mouse shaped. What had happened is the stones got stuck there an inch from my bladder and fused together. I did pretty good since then, no new stones til now. Been drinking my lemonade every day, all day only had a little pain for a day or two, hopefully the lemonade is kicking the stones butt!! I also take Uriflow pills periodically but mainly drink the lemonade. I really feel for you that have them all the time. Just keep drinking lemonade, 4 fl oz frozen concentrate and 1 quart water. Have your docs check your potassium levels, low potassium causes stones to form quickly. Also, high levels of sodium intake. Get a script for potassium citrate or just drink plenty of the lemonade, it also is full of the potassium citrate. Good luck.
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replied July 31st, 2012
I have been suffering from kidney stones since 2004. I don't know how many are in my kidneys, the docs haven't told me, they just tell me more are in there. I too have no insurance so ER is pretty much the only option i have. In July 2004 i had my first, they told me it was 2mm it was only an inch from my bladder, should pass in a couple of days, never passed, (used the strainer for a month), a couple months later had another bout, stone was an inch from my bladder, 3mm in size. Never caught it in my strainer, this kept going on and on each time stone was in the same place just getting bigger. I guess it wouldn't block my urine completely all the time because i was able to go, just felt like the bladder wasn't emptying all the way, til about every 2-4 months then i would have the bad back pain & go to ER. They would prescribe an antibiotic and either 15 Vicodin or Percocet and send me on my way. In 2008 i started getting pain in my genital area, kinda like a UTI. Went to ER, said i had a 7mm stone, ( no ut infection), prescribed same meds sent me away. Well when i ran out of meds, i just kept going back to the ER, after 4 or 5 visits the ER doc told me i was no longer welcome to come back to his hospital and if i returned he would send me away, (yes i know that is not legal, but little did he know my brother-in-law was the hospital director and that doc was gone in less than 3 months). I had this UTI feeling pain from the stone with periodic back pain from September 2008 til April 2010. I did not go back to the doc at all til April of 2010 and i went to another hospital. (Also each time i went to the ER the stone was in the same exact place, about 1 inch from my bladder.) This time, there was a urologist in the hospital, the CT scan showed i had a 9mm stone, 1 inch from my bladder and my left kidney was very enlarged. They had to do an emergency surgery to remove it or he said i could die. $10000.00 later i was waking up in the OR recovery. He did not give me my stone which i was kinda upset about since it had stuck with me for 6 years i felt i should have at least got to frame it. But he did tell me it was Mickey Mouse shaped. What had happened is the stones got stuck there an inch from my bladder and fused together. I did pretty good since then, no new stones til now. Been drinking my lemonade every day, all day only had a little pain for a day or two, hopefully the lemonade is kicking the stones butt!! I also take Uriflow pills periodically but mainly drink the lemonade. I really feel for you that have them all the time. Just keep drinking lemonade, 4 fl oz frozen concentrate and 1 quart water. Have your docs check your potassium levels, low potassium causes stones to form quickly. Also, high levels of sodium intake. Get a script for potassium citrate or just drink plenty of the lemonade, it also is full of the potassium citrate. Good luck.
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replied August 2nd, 2012
Reducing Kidney Stones
My kidney stones have been greatly reduced and I haven't needed anymore lithotripsy since taking Urocit 15 twice a day.
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replied August 8th, 2012
I can say I UNDERSTAND. I have been battleing stones continuously for the past 11 years. A year ago i lost my job because i was missing work so much. 2 years ago my urologist told me that i was now classified with chronic kidney disease due to thinning of my kidney walls. I live on restricted activities because he is afraid my kidneys will rupture. Im a wife, mom and used to be active. I own 2 horses, my real passion, but can nolonger ride. Im trying to gert on disability. I suffer from daily pain, exhaustion, anxiety and yes depression. If anything can go wrong with my body it does. Im anemic, have female issues. This year i spent 2 months with drainage tubes in my stomach as a result of complications of a hernia. I decided to go for a run one evening 3 weeks ago and fractured my foot cause my bones are so weak. I have thought a lot about ending it.over the years i went from being a doer to a burden on my family and friends. I feel worthless most of the time. Im scared of what the end will be like for me. Im soooo tired of pills, appointments, tests, hospital stays and multiple procedures every year. I dont feel like i have much of a life. I miss feeling human. And i get so tired of the suck it up attitude that my family tells me. Instead of support i get comments like get over it. In the past 11 years i have had 63 lithotripsies, 19 stone removals, drainage tubes through my back into my kidneys twice, dialysis once, numerous stents. I take 16 pills per day not including when i need pain meds, to try and control my kidney issues. I follow a very strict diet and live a boring life like the doctors demand, but i still suffer every day.
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