Hello Everyone,
I've been recently diagnosed with TMJD after a long and agonizing year of suffering. Neurologists, Ear Specialists, ERs, ENT specialists i've been too and they had no idea about what condition/disease i had until i started to get limited jaw opening and at that stage my disease became prevalent to myself and everyone else. Life is precious, and you only get one shot at it, its just sad to see everything end so suddenly and devastatingly.
Symptoms I suffer through, even to this day:
- Migraines with Aura (1hour to 2 weeks of severe, excruciating pain, and 60 minutes of tunnel vision and dizziness)
- Vertigo (Dizziness) (can last up to 4 weeks non-stop)
- Tinnitus (Chirping, Hissing, Ringing, Buzzing, and roaring) I even get
pulsatile tinnitus (i usually get 2-4 at the same time)
- Ear Pain without infection
- Neck Pain (to the point i can't even turn sideways to look left or right, or bend over to pick something up, lieing down only worsens it.)
- Shakiness (tremble for 1hour, usually associated with severe vertigo)
- Floaters in the field of vision as well as patterns that animate (distracting me from everything i look at, this usually goes away without 2weeks, then happens again on a bad night)
- Eye Pain, (burning sensations)
- Itchy Ears
- Hyperacusis (Sensitivity to Sound) Extremely sensitive, to the point i couldn't even run a tap or open a door.
- Permanent Blurred Vision (now i need glasses)
- Fluctuating Hearing Loss (I go temporarily deaf for couple of seconds, then hearing restores with a high pitched tinnitus sound, 10x louder than my ordinary tinnitus) this can happen 20+ times back to back.
- Hallucinations (I will hear random beeping, sometimes music and other high frequency based sounds will loop for 1-2 minutes constantly)
- Anxiety and High Blood Pressure
- Sore and Exhausted Jaw with Limited opening
- Bad Neck Posture
- (There's more)
In 5 days i go receive treatment for my problem (an orthodic to help the my jaw relieve pitched nerves) It is said after viewing my x-rays that 80% reduction can be expected, but i have to visit a chiropractor for spinal correctons and possibly get braces for further treatment. What should i realistically expect from treatment?? he said its not guaranteed that anything could resolve or reduce, just likely too.
About Myself: I'm a male, i'm 19 years (and was healthy growing up, not a single health related issue). Sports and weight-lifting are my life, the spirit of competition defines who i am as a person, and TMJD is disabling me from doing the things i find enjoyment in the most. I'm confined to a bed and a computer based on the belief that any "activity" could aggravate my situation and make it worse. When i lay down, all i hear is Hissing snakes, Chirping birds, Ringing, Buzzing and Cricket noises. The sensitivity to sound is restricting me from outdoors, or going near anything that exerts even the quiestest of sounds. Television's static is amplified so loud i can hear it 30 ft away, as a normal person couldn't hear it at all. Some sounds are replaced by cricket noises (as if those frequencies we're somehow damaged)
TMJD has destroyed my life -- living each day is an unbearable nightmare and suicide becomes a friendly voice of reason. I just wonder if anyone can tell me how successful their treatments we're, my problem is mainly muscular, he can't find anything wrong with the bone structure or disks. Has anyone ever been relieved of just the ear symptoms??
-- I don't know how much longer i can live with this disabling disease.
I look forward to any replies and i am anticipating your input.