Hi my name is Andressa and I’m new to the forum.
I just wanted to say that I myself don’t have tmj, but I’m writing regarding my mom, who has had severe tmj for about 4 years now. My mom first started having really severe headaches 4 years ago, which no doctor could really explain why. They performed several cat scans and MRIs, to rule out any possibility of problems with her brain, and found nothing. One doctor then suggested that she had sinus problems and that was what was causing her headaches. She then got referred to a million doctors, who decided she should have sinus surgery. But before the surgery she just happened to visit a dentist, and explained the surgery she was about to go through. He then said that her symptoms sounded like she could have tmj. My mom then decided not to do the surgery and pursue help for her tmj. During that year my mom only had severe headaches about 2 or 3 times a week, not constant, and very little jaw pain. After researching a few doctors in the bay area, we found one that claimed that he had the “cure” to tmj. We then went to go see him and start treatment. He told my mom that her right disc was displaced and gave my mom, two splints a hard night time one and a bottom splint to wear during the day 24/7, which cost $6,000. She wore the splints for about 6 months, with no improvement, she actually got worse. She can no longer touch her front teeth together and her bite seems much worse. We then decided to end treatment with this so-called “tmj specialist,” who told my mom that he was the only one who could “save her from her misery” and that if she stopped his treatment, she was hopeless and might as well kill herself. I don’t even have words to explain that horrible doctor! My mom then tried having acupuncture and chiropractic work done, but none helped. In the past year her headaches have become even more severe, and daily. Her jaw (right side) now hurts all the time and the pain travels down to her neck and shoulders. She can no longer eat any type of hard food and has a lot of pain even talking. We have also tried physical therapy at Kaiser, but they only gave her some simple exercises to do, which didn’t help. Her general doctor prescribed her ibuprofen, but that didn’t even touch the pain. She is now taking 60mg of an anti-depressant, amitriptyline (Elavil), which helps some. It gives her 1 or 2 days during the week with low pain levels. So, as of now we don’t know where to go next. I’ve spent countless hours researching this on the web, and I don’t know what we should do next. I’ve found several doctors around the bay area that claim to treat tmj, but I’ve lost all trust in doctors/dentists, who are money hungry and could care less. So I really don’t know where to turn next. If anyone has any advice as to what we should do, or knows any good docs in the bay area, we are willing to try anything! I just can’t bear to watch my mom in so much pain, and depressed all the time, she seems to believe that no one will be able to help her, since her last doc brainwashed her into believing she is hopeless. Any help or advice would be greatly appreciated!
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replied October 15th, 2007
a Little Suggestion...
i'm new to this forum also, but i have been told i should go to a neuromuscual dentist
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replied October 16th, 2007
Extremely eHealthy
yes an neuromuscular dentist is the route that everyone should try. I have had great success with it. have your mom use heat and ice on the joint. then pm me your zip code and i will find a doctor for you that will take good care of you. I know doctors all over the usa and australia and canada and i can find them anywhere that i dont have doctors for.

any doctor that tells you you may as well kill yourself needs a swift kick in th pants. she isnt hopless. I was hopeless and found hope. if i can survive this so can she. pm me or email me at any time. ill share my story with you. if you need anything you know where to find me.
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replied October 16th, 2007
Experienced User
Oooooooooooo
Hi, i'm cindy, I feel so bad for your Mom, what a wonderful daughter you are tho.!!! Its great she has you to help her, because she needs it. people with tmj need someone to step in and help them like that. Anyway, i feel the same exact way you do about some of these doctors. They charge an arm and a leg and offer not much help. Hang in there, you will find a special type of doctor that WILL care eventually. everyone usually finds ONE. They are out there. Just be patient, it will take some experimenting to get her comfortable, and some time. Boards like this have alot of support, info, and everyone has different experiences. Good luck!!!!! love cindy
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replied October 16th, 2007
Extremely eHealthy
yeah ive also found that some of these doctors are jerks and full of them selves. and they dont listen. but there is a way around that.
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