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Cholinergic Urticaria And Pregnancy Labour Concern

Hello All

I've scoured the web and even talked to a dermatologist about this but nobody seems to be able to give me a definitive answer. As time is running out before the baby is due, I'd be grateful for any thoughts you might have, or shared experiences, which might reassure me or at least guide me as to what course of action to take.

I am 26 weeks pregnant with my first child. I have suffered from severe cholinergic urticaria for 14 years. I used to take antihistamines and then a combination of H1 and H2 inhibitors but over the years they stopped working so I now take no medication at all. I've managed to cope like this - by doing no exercise and taking things steady - for years. However, during pregnancy the urticaria has got worse (something to do with more blood or fluid in my system I guess) and I am particularly concerned about the labour. Now I know that I will developed urticaria during the labour as I start to get hotter and to exert myself. I can (probably) cope with this. But my question to you is what effect will a really severe attack, possibly lasting several hours, have on my baby? Will it deplete the baby of oxygen (if blood is rushing to my skin)? Am I at risk of going into anaphylactic shock? What medication, if any, could I take? Do I need to be in a hospital? Should I consider a c-section?

There must have been other women out there with CU who have given birth - if you're one of them, or if you have any thoughts on the above please please let me know.

With thanks

Billie
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replied May 1st, 2008
Hi all

Sorry to resurrect an old thread, but what Billie describes is exactly what I'm going through at the moment - had CU since I was 13, now 27 and pregnant. My obstetrician is doing research for me but at the moment is hesitant to ok me for a natural birth, especially since I went into anaphylactic shock when I was 14 from the CU.

Has anyone with CU been pregnant or given birth? and if so, what did you do? Billie if you're still around can I ask what you ended up doing?

Thanks in advance.
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replied May 10th, 2008
any news/update about the pregnancy? Just wondering.
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replied February 14th, 2009
pregnant with chronic urticaria
so sorry for what you are going through. i am 8 weeks with 4th baby and have chronic urticaria. like you i am dreading delivery and breastfeeding. i feel guilty taking the antihistamine but also can't live without it. doctors are of no help at all and can not find cause. like you i would love some genuine effective expert advice that can help in any way...
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replied March 1st, 2009
Same story
I have Cholinergic urticaria also and it has been hard to say the least. I am in my 15 week. i took a combo allegra and tagament and the combo worked very well for me but the allegra is a type C medication and the DR said it may not be safe! I have not taken it unless i break out bad. I am dreading labor and summer! so any word...
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replied March 1st, 2010
chronic urticaria and pregnancy
Hi Hania,

I have chronic urticaria and am trying to get pregnant. I have come off my pills (fexofendaine) and I'm finding it a struggle. I can see that you are still taking your medication whilst pregnant and have done so in previous pregnancies - have you experienced any issues from taking the medication whilst pregnant? I'm not sure how long I can go without medication!

I'm hoping to see a dermatologist soon so if I pick up any useful info I'll pass it on.
Thanks
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replied March 6th, 2010
hi im 17 years old and got diagnosed of cholinergic urticaria, my dream has always been to have kids, have a family of my own and honestly this just scares me all. I need to know if it's possible to give birth normally
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replied May 24th, 2010
Hi all,

I also am in the same boat as all of you however I have had to go a step further. All allergy meds have not worked for me. I had been taking prednisone for 1.5 years and the dose got so high I had to stop that as well. I was taking cyclosporine for about 8 months and that was working the best. My husband and I are now trying to have our 2nd child and have found the safest med plan is back tot he prednisone. I have meet with genetic specialist about all meds and the prednisone is the best with almost no side effects. I am having daily break outs but can manage. If any of you would like me to email you the stats on some of the meds that I talked with the geneic spealist with I would be happy to if it is the meds you are taking.
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replied April 11th, 2013
I developed cu during my last pregnancy and my doctor told me Benadryl was safe and that worked for me. My baby is now 9 months old and I just stopped breastfeeding almost a week ago and I am still having outbreaks. does anybody know if the hormone change during pregnancy and breastfeeding can cause cu? If so, since I have stopped breastfeeding and my hormones should return to what they were pre-pregnancy thus making the cu go away?? I hope
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replied April 24th, 2013
I am 30 years old 5'5", 138 pounds. I am an avid cross fitter and marathon runner. I have had CU since I was 27. During work outs, over heating, stress, and even hot showers I would rash out. Doctors could never tell me what caused it and only offered me medication to alleviate symptoms and while the Claritin can ease the severity of an outbreak from exercise it never prevents it. Three or four months ago I decided to try an elimination diet which eventually led me to a Paleo diet. Basically the cave man diet consists of meat, fish, poultry, fruits and vegetables. No grains, no dairy, and no legumes....if our ancestors couldn't hunt and gather it easily then you don't eat it. I have only had one out break in three months (which was a result, I believe, of giving in on a trip to New York and having pizza). I am now currently four weeks pregnant and am sticking to a paleo diet (very nutritious and I get all my calcium through vegetables and almond milk), I expect no more CU attacks
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replied July 2nd, 2014
in my pregnancy no eefect of allegra on Cholinergic Urticaria
I am also suffering same Cholinergic Urticaria when i was in 10th std.But before 1 year i started to take allegra,levosiz ans zempered tablets advised by me Dr. I started to take tablets in june 2013 to november 2013 then i stopped taking. after november i felt no need to take tablets because it is cured i felt. but now i ma pregnant with 29week in may 27 2014 it started again so i asked my gynacologist should i take this tablets so dr said," yes, you cake take allegra and levosiz so i am taking but no effect on my CU. They still appear when i go from hot to cold,get out or in from a/c or anytime when i sweat. so now what should i doplease suggest me...i am pregnant but no effect of tablets on CU...i am frustrated and my lips and tongue are swollen and itchy....it becomes so painful please....please giv me advice....i need it badly
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