Medical Questions > Conditions and Diseases > Meningitis Forum

Fustrated - suspected viral meningitis !?

July last year I was rushed to hospital with suspected viral meningitis, I had all the usual symptoms- headache, nausea, temperature and I remained in hospital for a couple of weeks however my recolections are few due to being so unwell. I was discharged from hospital three weeks later even though I still felt so ill.

The exact diagnosis of what I had was not confirmed because the lumbar puncture that they performed was 'unconclusive' and was later found to be lost. A repeat lumbar puncture performed some months later was clear.

Since being discharged then I have had this constant pressure in my head, which eventually becomes painfull and my vision has become disjointed often taking a while to focus. I often feel dizzy and in a world of my own. When the symtoms become more severe I tend to become very anxious and panicstricken.

I have seen a few neurologists and had every test under the sun, CT,MRI, Blood etc. I have been prescribed amytriptaline which helps to calm me down when the symtoms become more severe but I do not feel that it is doing anything to combat the underlying cause of the pressure. The neurologist is now treating me as a migraine sufferer, but after being out of hospital for over a year I do not feel any better.

Do these symptoms seem to consistent with migraine or post viral meningitis- if so can anyone suggest any ways to help
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replied November 7th, 2007
Same Thing
Hello, I have been suffering from almost the same symptoms, same tests, although my spinal tap is set for tomorrow. My symptoms started at the end of September with Flu-like symptoms. From then on I have constant pressure(as though someone is squeezing the left side and top of my head) Often my left ear feels full and my left cheek and jaw go numb. I felt as though I were "falling" all of the time. My Neuro put me on Meclozine for vertigo. It does help, however I still feel like crap. I am normally non stop with a ton of energy and it is not there. I try, I have a 4 year old son and a full time job, it is very frustrating. My doctor seems to think it is definately something viral that takes forever to get out of my system. I am going to get that spinal tomorrow and they are sending it to California to test it for Lymes although it did not show up in my lab work. I just want an answer!
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replied November 7th, 2007
Sorry to hear about your symptoms and can only sympathize with what you are going through.

On a positive note I have, touch wood, being feeling a little better and the specialists, after a bit of prompting, have maybe found what caused the suffering.

It does look like I had viral meningitis and the side effects of the virus appear to have affected my balance. Apparently there are two parts of hearing, firstly the hearing bit and secondly the balance side. Your symptoms appear similar to mine and may be also to do with hearing or balance. Ask you GP/ specialist to see an ENT specialist and get them to do a hearing and balance test. It was only down to me perservering that they sent me to the ENT specialist and surprisingly the first thing he said to me was that he should get far more referral for post menengitis patients then he does.

Good luck
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replied November 7th, 2007
Reply to Stevesm
I do have an appt for my balance test on the 16th. (my neuro ordered it) the ENT believe it or not, did not pick up on it. So far I am just going through a bunch of testing. Fortunately the MRI, CAT scan and blood work are all ok. I am really banking on the spinal tap to pin point exactly what type of virus I have. Unfortunately, if it is a virus, time is the only cure. How long did it take for you to start feeling well again? Did they give you a special diet or meds? Take care, thanks...
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replied November 8th, 2007
Its now been a year and a half since I was in hospital. I am now (just this last couple of weeks) begining to feel more like myself.

Its difficult to know what has made me feel better, the medication (amytriptline 35mg) or the timeous factor. Or maybe myself just trying to do the simple things I did before, like go out on a Friday night for a few drinks with my mates.

All you can do is be patient and its probably the most difficult thing in the world especially when you dont really know whats wrong with you. The more you stress and strain about what is wrong with you the longer it will take to get out of your system.
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replied January 9th, 2008
I was very surprised to read about the symptoms described in this thread, as they sound remarkably similar to what I have been experiencing for the past six months. I originally went to urgent care in July 2007 with awful flu-like symptoms: headache, nausea, slight fever, trembling, etc. I was diagnosed with a sinus infection and prescribed antibiotics. I felt fine for nearly two weeks before the symptoms returned. Over the next several months the symptoms came and went, and I saw numerous doctors. All my tests (blood work, MRI's, CAT scans) came back fine. I've had numerous theories as to what's wrong with me (fungal infection, depression, meningitis, etc), but no doctor could diagnose me with confidence.

I think I've been slowly improving, but I still find myself experiencing slight headaches, nausea, dizziness, fatigue, a sense of being "distant" from the world, and gloomy thoughts. When I asked my neuroligist again yesterday if he had any theories, he suggested it could be viral meningitis, but doubted it. After reading some of these forums, however, I am becoming more confident that this is what I had. The personal description of symptoms are much more revealing than what you find in books or diagnostic sites, which usually seem to describe viral meningitis as a one to two week ordeal.

I hope both of you are doing better.

-M
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replied January 9th, 2008
Smile
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replied January 9th, 2008
Diagnosis
I am sorry that you are feeling like this! I finally went to see an otognorologist(better than an ent) He did the Epley Manuever on me and diagnosed me with Benign peroxymal postional vertigo. I am currently on Meclozine, but over all I still feel the same. I may have to go to a vestibular specialist. You may want to check out a web site called "The dizzy lounge" Hang in there! Dawn
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replied January 10th, 2008
Thanks for the additional info. Best of luck to you.

--M
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replied February 10th, 2008
Sick With Black Mold Toxicity!!!
I also have had very similar experiences to what people are experiencing here. Headache, vision problems, neck stiffness, chest pain like I had a broken rib, etc. The doctors ran 4 blood work ups, a urine analysis, cat scan of my head and an MRI of my head. The only thing they found was a sinus infection. I am fairly certain that what I have been experiencing is Black Mold Toxicity (sick building syndrome). It produces all the symptoms of meningitis but tests come back normal. I will know for sure by the end of this week. I hope this helps!!!
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replied February 10th, 2008
Wow
What tests do they give you for mold? Wow! I work for a place that was rebuilt twice in the last 8 years because of 2 nor-easters that left the town in 6+feet of water! I wonder if that had anything to do with my symptoms! I would really be interested to hear what happens with you,please let me know! Thanks,Dawn
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replied February 11th, 2008
Very interesting
I have also suspected mold as the cause of my problems. Shortly after my symptoms began, I realized that there were patches of mold in my carpet, and my condition was very similar to accounts I read online of mold-related illness. Despite the strong circumstantial evidence, however, I have found no proof that this is related. I had some of the mold analyzed, only to learn that it is relatively harmless (cladosporium cladosporioides). After some persistence, I also got my doctor to run a black mold blood test, which came back negative. It was also questionable whether I felt better when away from my apartment.

I still think mold is a definite possibility, but it's hard to know for sure. Unfortunately the topic is quite controversial, and many doctors refuse to recognize mold as a valid concern.
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replied July 25th, 2009
I was misdiagnosed on June 14 during an ER trip after suffering what I thought was an anuresym, I had a 103 degree temp, horrible body aches and hallucinations. They sent me home with a shot for pain and cough med's with codine. A week later I am still in horrible pain, went to my md and she diagnosed the VM said rest, fluid, rest, fluid. It has been six weeks, I am working from home part time on FML. This has been the worse illness I have ever experienced and feel like I may NEVER be healthy again. After reading all the posts, I am now terrified my quality of life is forever changed.
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replied August 18th, 2009
Hey moochiebeth, just saw your post. Hope you're doing better. All I can tell you is to hang in there. When I was sick, I definitely felt as though I would never feel better again. After weeks and months of feeling unwell, it's hard to imagine an end to the suffering. Fortunately, after 6-9 months I did slowly improve and eventually returned to a state of perfect health. But no matter how long it takes, just remember that there are others out there facing the same difficulties, and you are not alone. Keep us posted.

--M
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replied August 19th, 2009
viral meningitis
Hi Ovni,

Thanks so much for the words of encouragement. I think I just turned the corner in the last few days and except for the fatigue, feel almost normal. But of course that is not working a full time job, I am still working from home and can lay down when I feel like it. Hopefully in 6/9 months I too will be 100%. It was just so much better to learn others had felt that bad and survived!
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replied January 29th, 2010
Wow, this has all been extremely helpful to me. I was hospitlized for 7 days with viral meningitis and on antibiotice and antivirals for another 2 weeks (just finished yesterday). I have been having dizziness and a really full feeling in my head and pressure like a spinal contraction sometimes when I stand up. I'm really hoping this doesn't last too long as I really want to get back to being able to riding my bike, hiking, etc (and work).
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replied January 30th, 2010
Hi All, Quick update. It is now January 30, 2010 and I am FINALLY feeling normal. Not back to the gym, but doing yoga. Only symptoms left is occasional numbness/tingling in the arms. I can actually feel my neck/back now and it is great to have my body back from the aliens! Best of luck to everyone who suffers with this illness. Going to Hawaii in April and hope to be able to bike, hike and enjoy the trip. I just want to thank everyone again for making me realize, I WOULD eventually get better.
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replied December 3rd, 2011
Concerning mold effects and vertigo, headaches please read Mold Warriors & Surviving Mold by Ritchie Shoemaker, Neurotox website & Endangered by Kay Kilburn. Also please visit global indoor healt network. Many patients who are susceptible (approximately 25%) to mold and live or work in moldy buildings become ill with these effects. Traditional Medicine would rather spend money on repeat MRI's, Cat Scans etc than recognize the health effects of mold exposure. The finding of only Cladosporium in one location does not mean that other organisms such as Chaetomium or Stachybotyrous do not exist or that Streptomyces can not be found in moist environments.
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replied December 3rd, 2011
Neurological Effects of Mold Exposure
Concerning mold effects and vertigo, headaches please read Mold Warriors & Surviving Mold by Ritchie Shoemaker, Neurotox website & Endangered Brains by Kay Kilburn. Also please visit global indoor health network. Many patients who are susceptible (approximately 25%) to mold and live or work in moldy buildings become ill with these effects. Traditional Medicine would rather spend money on repeat MRI's, Cat Scans etc than recognize the health effects of mold exposure. The finding of only Cladosporium in one location does not mean that other organisms such as Chaetomium or Stachybotyrous do not exist or that Streptomyces can not be found in moist environments. Cladosporium is one of the most immunogenic species of mold. The small particles of hyphal fragments and spores enter our brains through the olifactory ducts whether they are toxic or not to cause damage.
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