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Frequent Unexplained High Fevers In Toddle (Page 1)

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my 2 year old son keeps getting fevers of 105 and above. They have run test after test, from blood cultures to immune test. He has seen and immunologist, and infectious disease specialist. They keep saying that is just how his body works. That is very hard for me to accept. He never has any other symptoms with the fevers. This has me very worried especially when they are so high and can last for 2-3 days. I have to alternate motrin and tylenol, cause the motrin alone won't keep it down, How worried should I be and what other causes good it be.
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First Helper raquel147
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replied April 24th, 2008
Community Volunteer
Did you ever find out anything more conclusive in this case? I am very interested to know what the actual cause was if you found it.
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replied October 2nd, 2011
Unexplained high fever
My 3 yr old daughter has the same issue. Just found out she is highly allergic to cats and dust mites and it triggers asthma. I was convinced this had something to do with it but they swear a fever doesn't accompany allergic asthma symptoms. Lymph nodes in her neck are like marbles. Let me know if you find anything out.
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replied May 7th, 2013
Dear Parents with babies/toddlers that have recurring high fevers: See a specialist called Rheumatologist. My son was diagnosed with Juvenile Arthritis. He had recurring high fevers for days, weeks, and into a month. A little tiny rash was present everytime when he got the fever, then when the fever went down: The rash disappeared too. Autoimmune diseases causes reacurring fever.
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replied April 26th, 2008
unexplained fevers
So far he has been diagnosed with "Periodic Fever Syndrome" There are several kinds of this. He has to have DNA testing to find out which one. If he has one called Mediteranian Fever then he will have to take medication to protect his kindneys, but the think he has one that goes by PFAPA (long name) and he will grow out of it.
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replied May 19th, 2008
unexplained fevers
Kaseyd, thank you for your post. I've been searching high and low for information on frequent fevers in toddlers. My 19 month old daughter has frequent high fevers that at times spike up over 106 degrees. Every time we take her to doctor they tell us it's just viral. The times it has spiked over 106, we've gone to the ER and the basic tests they do always come back normal. My husband and I have an appointment with the pediatrician tomorrow to discuss bringing our daughter to a specialist.
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replied July 4th, 2008
Wow, this is just like my son. Since birth he has had fever and had ended up hospitalised due to it. He was over 40.6 and they found high imflamation markers in his blood but no infection. He continues to get these fevers and they have tested him for nearly everything. I get fed up with the Virus brush off that we often get.

would be interested in what information you get.
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replied October 24th, 2011
i am extreamly interested also, my son is 22 months old and he use to get cronic ear infections and always had fevers. he hasnt goten one in a while but about every two or three weeks he will get another fever of 103, i never let it get above that i will give him motrin or tylonl right away befor it gets a chance to get higher. he never has a runny nose or cough or any ting, just the fever. and i am tierd of hearing that its just a virus.what elses should i do?
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replied September 23rd, 2012
OMG I could almost mirror your post, down to the 2-3 week apart fevers!! It is miserable for my son and us!! I thought I was the only one that's child had this problem, at least it feels like it!
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replied December 31st, 2012
I am going through the same thing with my 2 year old son. we are set to see a specialist in a few weeks. He has had high fevers that spike to 105 for 5 days now. Even alternating motrin and tylenol every 3 hours, he still has fevers. This is the 5th month in a row this has happened. I am at my wits and and we are all miserable. Wish I could make him feel better and stop going through this!
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replied May 26th, 2013
I have been in all of your shoes and found myself doing the same thing all of you are doing back in 2008. we also thought it had to be PFAPA. I hope this is not what your son has but I think it's important for you to check out my son's story. He went 10 months undiagnosed and we saw every specialist. Many prayers.
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replied July 18th, 2013
we all come here looking for hopes, at least hoping to find the root cause of the problem. it seems you have found it. could you please share your son's story. much appreciated!
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replied October 28th, 2015
I know this is old, but my daughter is very sick every 2 weeks with fever greater than 105.5 and I am, too, being told it is probably PFAPA. I want to know if it's not, what else could it be? Can you please tell me what your son's diagnosis turned out to be? Thank you!
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replied October 29th, 2015
Just started reading this hoping for an explanation. My son turned 1 in sept, and has had 4 high fevers since beginning of august, with 2-3 weeks of healthiness in between each. No known cause, tested blood, urine, etc...was told possibly periodic high fever..??? We alternate Tylenol and ibuprofen right away because the fevers spike so fast he convulsed and has had seizures. Any possible answers would be MUCH appreciated!
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replied February 3rd, 2013
My 5 year old son is getting fever every 2 weeks and I am very nervous cause we ha e gone to many doctors and still can not find the cause of these fevers it's been a year already did they tell you what was cause???? Help
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replied December 20th, 2013
We get the same thing. Has anyone else had their child get a febrile seizure?
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replied January 30th, 2014
My son had 2 febrile seizures when he was about 32 months. The ER doctors as well as his pediatrician felt they were related to the highness and the quickness of the spike in the fever. They also felt that he would out grow this and I am hoping that he has.

Now he is 6.5 and he has been having these unexplained monthly fevers of 103+ that last anywhere from 5-7 days. Unfortunately we have had these fevers for almost 2 years now. After about 6 months we saw an ENT and he was diagnosed with tonsillitis and it was suggested that we have his tonsils and adenoids removed, so it was scheduled for Feb of 2013. He still is having these monthly fevers and we still have no answers. He has been seen by a pediatric infectious disease doctor and had 4 weeks of weekly blood tests (not fun) which did not lead us in any direction.

We just had his blood drawn again yesterday and I think the fever is about to come on- he is showing the typical symptoms- (loss of appetite, being cold and wanting many blankets, glassy eyes, bags under his eyes) I am now waiting for the leg pain and the fever spike. I have asked about FMF (Frequent Mediterranean Fever syndrome), and an allergy (to food or environmental), but was told this was unlikely. Finally I asked what they think it can be and they mentioned Cyclic Neutropenia but they are not sure. Each time we have seen his doctor the Strep and Urine tests both come back negative.

any suggestions?
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replied February 11th, 2014
How ironic! My 2 year old is going through the EXACT same thing... He's going through the blood being drawn every week now and we've been presented with the exact same conditions, all of which they don't think he has.
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replied August 6th, 2008
our son who is 8 months old keeps having these bounds of fever, like once every month and the doctors weren't able to figure out what have been wrong with him. Is it possible that this is due to some of illnesses. There were no other symptoms; the fevers just came without any warnings.
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replied August 10th, 2008
unexplained fevers
Thanks for your post. Seems we are not alone in this heart wrenching fever mystery. Our 19 months old son has been in the trenches with these fevers and we get the same feed back by our Doctors. We hope he does grow out of it soon, and we wish the same for your little ones. Keep you posted if we find anything new to share. Thanks
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replied August 31st, 2008
unexplained fevers
My son I 'm realizing has the same exact thing you are all talking about. Series of fevers we are now on our third in the last month in a half that gets up to 105. Wonder where this comes from ?
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replied August 31st, 2008
unexplained fevers
Hello everyone,
posted here a couple of weeks ago and wanted to share new information with you all. My son(20months) is still having these frequent fevers and we are in the middle of one now. our last episode 2 1/2 weeks ago, ended with yet another trip to the doctors. On this trip we learned about a clinic in Bethesda, Md with NIH(National Institute of Health). This Clinic is under Pediatric Rheumatology which includes Periodic Fever Syndrome. Our doctor is finishing up blood work to rule out a few things, and we are waiting on a test kit from the center. This is all new to us and we are still looking into it. here is the web site if you are interested...
niams.nih.gov

look under pediatric rheumatology
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replied September 18th, 2012
Solution suggested for ongoing high fevers
thanks for that. Also there is a website that I found really helpful to a remedy. Worth taking a look.
http://www.childrenshospital.org/views/jun e08/surgery_found_to_cure_mysterious_unexp lained_fevers
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replied September 9th, 2008
Advanced Support Team
My daughter finally outgrew this at 4 yrs of age!! She had the same thing except her doctor just kept saying she had an overactive immune system and that everytime her body thought it was going to get sick she'd spike a fever. I couldn't even allow her around people with the common cold because it would reak havoc on her system.
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replied September 20th, 2008
has anyone gotten feedback from the test kit ? What does it entail?
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replied October 5th, 2008
My daughter has the same thing!
So glad to hear that there are others out there. We've had five episodes since April of fevers that start at 103.7 and above, and we have to do the tylenol/motrin thing and sometimes have to add lukewarm baths to get fever down. When the 105 fever was there for 5 days, we went to the ER, where we found out the same old thing...VIRUS. So, at this point I"m tracking the fevers and will give the doc an update at her 2 year visit in Dec. I've googled it, and would prefer not to think of all the what-ifs!
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replied October 14th, 2008
Steriods
Hello my son 15 1/2 months had a visit w/ an immunologist last week he actually had a fever on his appt. They gave 3 ml of Prednisolone and it was gone within hours and did not come back . Usually he would have the fever for another four-five days. I don't believe in this type of drug but it worked and its a clue that he may have one of the Periodic Fever Syndromes.

Did any of your children have slight rashes on their faces . He does and he also has now a rash raise and red dry spot on his shoulder.
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replied November 12th, 2011
This sounds just like my son. This is the first post that I have found that included the rash. Does your son's rash come after he has had the fever for a few days? I am inverested in the Periodic Fever Syndrome..Do you have any information as far as how to get a diagnoses. I have had throat cultures, urine tests, kidney ultrasounds, and blood tests. I am totally at a loss and the "VIRAL" answer just doesn't cut it for me. My son has had these fever every month from the time he was 7 months old and he will be 2 in January.
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replied December 18th, 2011
Fever with rash
My daughter, 2 1/2 has this same problem and she usually gets a small dotted rash around her mouth before the fever. I never put the 2 together, but I'm going to track it now. Anymore info would be great!
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replied April 4th, 2012
lots of fevers
My son was like this they thought is was herpes. But the test always came back negative. He would also get the high fevers after the rash then pneumonia. He is now six and we haven't had problems since he was four. Now my daughter who os almost two gets lots of frequent fevers much higher than my son ever got and more often. She has been doing this since January where ever week to every other week she has a fever. In fact on time the did say she had flu. Last week she vomited with it and this week she has pain all over. She also has a few spots/ rash around her mouth but before I thought it was from pacifier. Now she is off it and still getting it. I am starting to track more . Probably will call Dr.
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replied September 18th, 2012
Did you only use the predisolone that 1 time for his fever that the immunologist gave your sn in 2008? I read it can increase the frequency of the fevers? Did you find this to be the case?
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replied December 23rd, 2008
frequent viral -bacterial alternating fevers
Hi, My son is 20 months old and has had fevers on and off since july. We are now on the eleventh fever. The fevers usually start out to be viral and suddenly seem to turn bacterial after five days and the temp suddenly spikes. I have had to have him hospitalised once. He is usually put on antibiotics but after about 10 days after the last dose, he again develops a fever. I am at my wits end. We have done innumerable bllod works and urine cultures. I would be grateful for any insights.
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replied September 18th, 2012
My sons the same. Doctors have been no help in finding out if there are underlying reasons despite me raising my concerns that its not normal him have frequent recurring bouts of high fevers, starting out viral sometimes ending bacterial and on 2 occasions we have ended up in hospital with asthma attacks, because 2 and 3 weeks prior to hospital he has been sick. I believe its because his body is just so run down.
Please let me now how your investigation has resulted and who I should see or ask my doctor to refer me to see. See my reply to someone else post below.

My son is 3 and a half years old and has been getting high fever after high fever. At first I didn't really think anything of it...after all kids get sick, their immune system hasn't fully developed, they don't really understand the germ concept etc and I just chalked it up to that. However it became obviously apparent to me probably around June that something more must be going on. You just know that frequent recurring bouts of high fever are not normal. Looking back its been for at least 6 months that this has been happening and so now I have started to take note of when and how long the episodes last for and what diagnosis has been given. Often its just viral other times its viral to begin, and at first are often no other symptoms apart from his consistent complaint of sore tummy. (not the kind that makes them not want to eat) but for me on occasion 2 & 3 consecutive weeks of sickness (high fever accompanied by other sypmtoms) have resulted in 2 admissions with asthma, as he is asthmatic. Not satisfied with the doctors explanation of its viral or kids often get fevers I decided to google my complaint and was ecstatic to find a forum where so many others are faced with a similar situation. Its been so helpful. From one of the comments I was able to find some information that may be of interest to those who have exhausted all testing possible and still no closer to an answer. Did you get any further with your 'unexplained fevers'? Found an interesting article of a doctor whose daughter also had this and of a suggested solution which has had high success. Have a read by going to this website.
http://www.childrenshospital.org/views/jun e08/surgery_found_to_cure_mysterious_unexp lained_fevers.html
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replied December 23rd, 2008
High fevers all the time
Hello, Maybe someone here could help me. My daughter 2 years old always has a fever of 103 or higher. She has these fevers for soemtimes 3-4 days a week about every other week. Drs today ran some tests but i am extremly worried. She has had phenmonia four times since May. I rotate the medicine, give the baths. She hardly ever eats. Is there anything I can do? I am so worried I allready have lost a child I don't want to loose another. I am glad to know that I am not the other mother with this problem. Do these kids grow out of this? Anything will help thanks.
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replied December 27th, 2008
Unexplained Fevers
My little boy start with Unexplained Fevers since he has 8 months old. Now he is 3yrs and still has this rare fevers. Since the beginning he has an average of one fever every month or two. If somebody know something let me know.
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replied December 27th, 2008
sick with fever worry
my son now 2y 3 mths, was very sick with recurring fevers. Started with just vomiting at about 4 mths then fevers started a few weeks later. Dr's couldn't find why, kept saying to see what happened. Eventually found sores in his throat etc, treated him for bacterial infection, wow, fever gone after a week. 2 weeks later it was back again, this time he had a red ear so more antibiotics, wow, again fever gone after a week but back again 1 week later. this went on and on, there always seemed to be some infection somewhere, till he was 9 months old and it got so bad that we couldn't bring his temp down with 2 x meds and tepid bathing. He had convulsions and we rushed him to the ER. Turned out he had a urinary tract infection (UTI)which is not as common in boys as it is in girls and all the other infections where secondary to the UTI. The infection was so bad that the tester stick at the ER showed positive for all but 2 of the tests and yet this child never cried when he did a wee (no pain indicator), his urine did not smell strong or different (no smell indicator), and the colour of his urine did not appear cloudy, or of unusual colour. By the time he was treated (5 days in hospital on drips) his immune system was so run down that he had constant infections and we had to keep him isolated (at home) for 2 months so that he could build up his immune system again. Keeping him locked up at home for that time was hard on us all but it was worth it, we also gave him pro-biotics and iron supplements during this period. Except for grommets for glue ear he is now a very happy, boisterous terrible two year old. I hope you all find your answers as I know how hard it is but my experience has taught me 2 things, one is to always get a 2nd, 3rd or even a 4th opinion if your baby is just not right and the 2nd is to give your baby a chance to rebuild their immune system after they have been ill, especially when they are young. I don't mean the common cold stuff but if they get these constant fevers etc, give the isolation thing at home a go. Lots of water, love and rest. It is frustrating and can make finances a bit tough but it did work for us.
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replied January 16th, 2009
The never ending fevers
I have twin boys who get a fever that spike to around 104. They get these fevers every 3-5 weeks with no other symptoms, I spent the last year documenting this for my doctor but he says they are just fine. It is very unnerving. My one son had a febrile seizure a year ago because his temp spiked really high very rapidly. We are going to do another round of blood tests the next time they have the fevers and if they come back normal the doctor says we need to just let it go, that they are fine. I am worried about all the tylenol and motrin they are taking on a monthly basis. I am relieved however that there are other families out there going thru the same thing we are. Does anyone know when they typically grow out of these episodes??
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replied September 18th, 2012
I'm so shocked the doctor told you to let it go. Did your son come right? Did you get a satisfactory diagnosis?
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replied January 30th, 2009
recurrent fevers and convulsions
I think we are all in the same boat...

My 2 yr old son has been admitted to hospital 12 times in the last 15 months with high fevers and usually related febrile convulsions.

On four occassions doctors diagnosed tonsillitis, three "upper respiratory tract infections", one pneumonia and ther rest have either been due to "viral" or "ear" infections.

Just out of hospital from our last admittance the temperature spiked for 5 days and only the strong IV antibiotics bought it down.

All blood tests come back normal and also throat swabs, urine tests etc.

We are awaiting a referral to a immunologist and I have worked out that these episodes occur anytime between 2.5 - 12.5 weeks apart (average is 39 days).

We are also on the shortlist for him to have grommets in the hope that this can reduce the episodes linked to ear infections.

Whilst we are in hospital the nurses are amazed how quickly his temperature can rise and how little effect paracetamol and nurofen help to keep it down.

I have spent over a month of the past year in hospital looking after my son and it seems that our social life is disappearing as it comes on so quickly and suddenly that we have to cancel everything to dash to A&E....

I'd love to know if steroids can help him, what dose and what type and how often?
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replied January 30th, 2009
fevers and steroids?
I wouldn't touch steroids unless they are absolutely necessary. My first son had steroids at age 5 and his personality changed dramatically during that period - very depressed and morose which is very hard to deal with in a child. If the immunologist sees no alternative then go ahead but have you tried what we did with our 2nd boy (see rpkent(above in december)) and keep your child home for an extended period. I mean seriously keep them at home - no shops, no parks, no visiting friends or family. It is really hard and 2 months seems like a year but it made a huge difference for us and getting grommets was the final icing on the cake, we actually paid for private surgery to get the grommets done quick and it was worth every cent. He has been well and happy and finally has caught up on the developmental stages that he had missed eg, speech development, weight gain etc.
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