ive had tmj for a number of years it turned me into a acoholic and a pot head it got beter by a splint but i had braces cause i had crokked teeth it brought all the pain back oneday i streced it and it felt like something broke in too my jaw just feels like it hangs i get severe migranes and severe eye pain ive lost my vision twice i see black spots on auras and i get real bad pressure behind my eyes the dentist refused to return my phone calls the slime ball hes left me in a whole of a mess i cant talk for long my nerves have gone im serverly depressed from all thhe dringking an smoking i dont get on with my family like a uesd too i also get widespread body pain i cant belive this is happining to me i dont thinkk it will ever get better the joints r ruined i asked the doctors to give me something for my nervves and something to help me sleep and some lyrica he wouldnt give me anything i feel like im the problem child of the family proberly end up homelesss soon i scared about my eyesight it feels like i cant cry anymore run out of tears see no nhope in sight if it doesnt get better soon then im endibng it all i just lie in bed all die hoping to day dread waking up in the morning its a differnt day same stuff ive hardly got any close friend im angry at god angry vvwith those doctors and dentists i havent got a girlfriend ive lost everything ive ever had and it wasnt much i became paranoind of the canibis and think the world is a cruel no one cares your all on your own im not looking foward to the future at all im not strong enoghth i thought as long as i never have surery ill be fine but thing have really taken a turn for the weorse
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First Helper sparky77p
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replied July 11th, 2012
Experienced User
Hi Sparky77p,

I'm so sorry to hear all you've been through. I really mean that. I've been to the depths of despair myself with TMJD pain and I know from personal experience how it can steal your life away and leave you debilitated.

I wish regular dentists were not allowed to treat TMJD. I've spent a lot of time on these sites and I can't even count the amount of times I've heard a similar story to yours. People's TMJD worsens not only from mis-treatment from regular dentists but also from TMJD specialists who just aren't up to snuff. There needs to be some regulation and official best practices in this field and there aren't.

I really wish you were able to find a highly competent modern neuromuscular dentist who could assess your situation. It's a tricky road to recovery from TMJD but I believe (and know from personal experience) that it's possible.

I went to the wrong dentists who I paid a lot of money to make things worse as well. Finally I got to the right person and now I'm nearly symptom free for the first time in years. What finally helped me was a functional splint, followed by functional orthodontics. I'm now in my second month of braces. I'm guess that your splint helped your issues before and it could help them again. You just need a highly trained dentist who specializes in TMJD/functional orthodontics to finish your treatment. Functional orthodontics should move your jaw permanently into the healthy position that was created in the splint.
I'm guessing you had regular braces put on to straighten your teeth rather than functional braces to sort out your jaw issues by making the splint position permanent. Braces to straighten teeth (rather than functional orthodontics) often cause problems for people with TMJ issues.

If you tell me which area you live in (and how far you are able to drive from there to see someone good), I can find a name for you. There is a neuromuscular dentist I know that is plugged into the community and she was the one to give me the name of the dentist who finally helped me.

Keep up hope. If a splint helped you once before, there's a good chance it can help you once again. You just need to make that position permanent or things tend to go backwards.

Hang in there. I'm pulling for you.

Bijou
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replied July 14th, 2012
Sparky I've just been going through what you have and i KNOW how desperate it makes one feel and how easily it can make one turn to drink. Try to stay positive because you can be helped. Alcohol can worsen the problem, so try to stay clean. Stop using the splint that caused the problem, and try and find the one which helped you in the first place. Please don't give up on yourself! Try and get help from a TMJ specialist or any good doctor you know of. If you don't know of a good doctor, ask a friend or someone you know. Best wishes
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replied July 22nd, 2012
I am so sorry that its affected you so badly. I have had minor symptoms for a while without realizing it was tmj but it just got way worse and I was recently diagnosed. It makes it almost impossible for me to sleep because the pain is so intense when I lay down or lay any where but flat on my back. the ice hurts because it's too much pressure and the heating pad makes my hearing even worse. I am really freaking out because nothing is helping and I don't want it to escalate. I know that its really hard to deal with and I've only just begun to experience more serious side effects. I for one am not well suited to handle pain and I can tell my family thinks it's not as bad as it seems so you are not alone and its hard but you can do it. if your dentist is ignoring you find a new dentist and it is painful but try to stop taking drugs and alcohol for the pain and I believe doctors will take you more seriously and you can get more better help. just keep pushing through and you'll be okay
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replied July 29th, 2012
Experienced User
Sparky,
I understand your pain to the fullest extent. TMJD hit me a year ago on my bday and since then has robbed me of everything i held dear and precious. I spent 3000 on a sham dentist in Memphis (Dr. Barron) If you live in Memphis, DO NOT GET TREATMENT THUR THIS DENTIST. I ended up worse. I wanted death and did attempt suicide. I was unsuccessful and ended up being institutionalized in a mental health facility. It was a living nightmare. I finally found help with a combo of treatments...physical therapy, upper cervical care and a nueromuscualr dentist. I went all the way to Michigan for my dentist. He is got me wearing a splint and then I have to go for functional ortho. I am still not 100% symptom free. I am about 80% better though after a month and a half of new this new treatment. I am still depressed as I have so many pieces in my life to pick up. I was abused as a child so have no family as I left home at a very early age..so I am extremely lonely. the few ppl I had in my life when this all began are all gone except for one and without them, i would be dead.
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replied August 10th, 2012
Experienced User
sparky, have you ever thought about rallying all your friends and family to raise money for treatment or taking out a loan, or something of this nature? this is your life, you have to fight for it. If you have too, stand on the corner with a sign asking for help..dont give up. get treatment.
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