Hi all. I am about to schedule my joint replacement surgery and have read a lot of horror stories. I'm just wondering if anyone out there has had it and had success or people that chose not to have it and are doing better or worse?

Background. I've had symptoms of Condylar Resorption for 6 years. Well technically I have not had ANY condyles for the last 2 years. I'm not in extreme pain. I have maybe 4 or 5 days a month where I can't function well from headaches, jaw, tooth, basically all over pain from the neck up. The rest of the time its livable but constant. I've been in two different jaw splints but since the last one broke two years ago, I have not wanted to invest in more as they are quite spendy. My pain is not extremely bad but if you press anywhere on my face it does hurt. Only my back teeth touch, my chin has receded, I can't breathe through my nose and I can fit my tongue through my front teeth. I'm concerned about my teeth not touching because my dentist said it would cause problems down the road if they continued to not touch. I'm also wondering if my top and bottom jaw just banging together is going to cause problems too. I have small children and having a major surgery that could make me permanently worse is not something I want to do to them. I am also getting this surgery done by Dr. Larry Wolford if that has anything to do with it. The first "TMJ Specialist" I saw thought his splints would miracle cure it. The last two I have seen have both said my only option to fix my bite and joints is surgery but I have not talked to one since the splint broke 2 years ago.
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First Helper Hettie1863
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replied March 20th, 2014
I think at this point surgery is a personal choice, one I am trying to make now myself. If the joints are gone, you are not going to regain function. I am hoping that with the artificial joints, I will be able to eat and laugh again, even if it doesn't help the pain. What my Specialist did say was "Go with the best". Good luck and I hear you about the recovery and all that.
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replied March 22nd, 2014
Hello. I just had a bilateral TMJ replacement on 2/4/14. My implants are from TMJ concepts. On 9/13/13 I was to had undergone a bilateral fat grafting procedure but unfortunately when they were working on the right side, I started to hemorrhage from my maxillary artery and lost approximately 2400cc of blood. I had to be rushed to interventional raddiology for an embolization procedure and spent the next four days intubated and in the intensive care unit. Needless to say I ended up only having a gap arthroplasty, a condylectomy and an extra oral vertical ramus osteotomy performed on the left side due to the severe hemorrhaging. They were unable to operate on my right side at all. Let me preface by saying I underwent a bilateral disectomy approximately 13 years ago. I am doing fairly well with my new implants. I just got my IMF screws removed after being banded shut for approximately 6 weeks and am just now getting to use my new jaws. This is definitely not a surgery to be entered into lightly and it is life changing. I wish you all the luck in the world and if you have any questions I would be happy to try to answer them for you.
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replied March 19th, 2015
Hello, We have been told that my son needs this done. He is 16 and his bite is open about 16 mm in the front. His condylars are very spindle like. We are a little overwhelmed about all of this. Who was your surgeon and where did you have this done at? What would your advice be?
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replied March 23rd, 2014
How did this happen to you? I am starting my journey w TMJ. I've had it for years but just started to be treated one year ago. I have displaced discs bilaterally that do recapture. I'm trying to not let this get any worse bc I have 3 small children to care for. Goi g to the Piper Clinic in a month bc I've lost hope w my local guy. Thoughts on how to prevent anymore damage? I also have sleep apnea but fear wearing that sleep apnea appliance will damage my joint further.
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replied March 19th, 2015
My son needs his joints replaced. What did you think of the piper clinic and where is it at? Thank you so much.
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