Four months ago I began to have a painful tightness to the left of my anus, and could be felt anywhere unilaterally between my sacrum and pelvic floor. After a month, I went to see a doctor who diagnosed me with levator ani syndrome. I've researched the symptoms of leavator ani spasms, and most of them seem to pertain to me. Although the is one issue I noticed that leads me to believe that I have a kind of nerve compression or damage.

When I bend over with an arched back (stretching my spine) and begin to bring my chin to my chest (stretching my spine even more) my pelvic pain is at its worse. My right side feels nothing like it should, and the left feels a tight pulling sort of pain. This seems SO WEIRD to me that this pain in my pelvis is caused by a movement in my head. Also, a strong cough or sneeze can be extremely painful for a moment. Basically, the more physical activity I do, the more it hurts. And running or jumping causes pain left of my tailbone. Ibuprofen helps tremendously with my symptoms, but I try to save that only for a few times a week for evenings where I'm not at home resting. The best way to reduce the pain is to lie down for at least an hour. It's been 4 months since this issue began, and I'm confused about why it hasn't improved.

So, could this be some sort of pudendal nerve entrapment? But, I do have any of the incontinence or tingling symptoms of PNE. Or is it still my levator ani muscle spasming? Maybe my levator ani spasms and is pulling on my pudendal nerve not allowing it to move when I stretch my spinal cord, so it's an issue of levator ani syndrome that isn't usually stated. (just a personal theory) I seem to fall between the two conditions, and I would like to have an idea of which it is so I can see the right specialty of doctor for it.

If anyone has either of the two conditions and can share their symptoms that would be excellent! This thing has become a big pain in the butt, literally.
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First Helper steves908
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replied March 4th, 2011
levator ani
hi, I just found your post...I started having the EXACT same symptoms around the same time as you...and am now in my 5th or 6th month of this nightmare. It started with several problems all at once...an immune response to my husband's proteins, then an infection ,and finally, I strained one night just trying to get rid of what I thought at the time was a urinary tract infection. Now I have a full blown dull aching pain in my coccyx, and all the muscles around the bottom. I can't arch my lower back or push without causing a relapse that lasts for weeks. An MRI showed nothing. Now, I'm wondering if it was my bike seat last summer, or maybe, is it a virus? I don't even know what doctor would understand this.
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replied March 30th, 2011
Leavator Ani Syndrome is a pain in my butt!
About one month ago I began feeling "uncomfortable" sitting on hard chairs and it has progressed to something nearly unmanageable without Advil.
My midwife recommended that I go see our chiropractor which seemed to help completely - I didn't go for about a week and the symptoms came back with a vengeance.
The pain I feel happens right after I have a BM. I can identify, by the pain itself, when there is actually waste descending into the colon area. If I take an Advil about 30-45 minutes before I go to the bathroom, it doesn't hurt as bad. Laying on my stomach only helps once Advil has been taken. Walking is the only thing that can even touch the pain, but sometimes the pain itself takes so much out of me that I can't walk! In my case, the pain came on SO suddenly I can't believe there is "nothing wrong". Leavator Ani Syndrome is about the best [symptomatic] explanation of what I feel. I just wonder if it hurts as bad for everyone else as it does for me. I'm talking debilitating! And since the chiropractor worked, it makes me think it's something skeletal or muscular (unless there was a secondary problem that was taken care of with those visits). All I know is that I can't spend the rest of my life dealing with this pain - and Botox, the neurotoxin, is NOT an option.
I have an appointment with a rectal specialist to rule out a fissure, which I've heard can cause the same type of daunting pain. But the Dr. can't see me for another week, therefore I'm going to try sitz baths. If these sitz baths work - then by trial and error I'll be able to figure it's a fissure, right?!?!?
Anyone else out there figure out how to get rid of the pain from Leavator Ani Syndrome?
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replied August 16th, 2011
I have tried Electrogalvanic Stimulation,a lot of medication,and I have seen two physical therapists.The last physical therapist I seen,said I have Pudendal Nerve Entrapment(PNE)Just google "Pudendal Nerve Entrapment"for infomation.I have had Levator Spasms for 19 years.I have heard that Botox injections help some people, and it make some feel worse. I haven't tried botox yet, i'm afraid it might make me feel worse.
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replied September 25th, 2012
Levator ani
I am almost certain that I have this issue and I have found that one thing really helps - organic aloe Vera gel all around the area and also internally. I use this frequently throughout the day and within a couple of days I am back to normal.

I hope that helps you Smile
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replied September 26th, 2012
Wow, thanks, - I was just browsing and read this. I will try the aloe vera gel.
Unfortunately I am either doing house calls, driving 100+ miles a day, the rest of the time I'm on the computer. Even when I lay on the couch and work on the laptop, the pain becomes almost unbearable.
I have been to colo rectal specialists, they have banded hemms. but no relief, in fact it became worse. I've been have electric therapy for hemms, shelled out a lot of money to no avail. I finally started to ck and see if anyone else has the problem, just in case it was just me! I am also going to try chiropractic.
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replied January 11th, 2013
To all.....I am experiencing this again for the third time. It takes time but it does go away. Or at least for me it did. I sat in warm baths many nights 10-15 minutes took muscle relaxers and valume. My rectal dr did suggest an internal finger massage. Since I dont know what I am doing that only helped the pain for a short bit. This may sound goofy but I am looking into buying a thin phalic vibrater one that may even heat up a bit. For us straight guys it sounds like the last thing we want to do but to me it makes perefect sense. This is a muscle and it spasms. It needs massage and warmth. Take this for what its worth.....I am going to try.
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replied January 17th, 2013
questions
I think I have this condition too. Do you feel pain right before the urge to defecation? it can feel numb or lika an short explosion from the coccyc area down rectum and vagina. I also have trouble emptying the rectum do u have that too? i girls who suffer from this, do u experience more pain when u have menstrual bleeding?
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replied April 7th, 2013
whew!!! just breath it through
There is no pain like this pain. My father had it before me. We never knew what it was except that it scared my mom terribly and I would just know dad got real sick during the night. He would wake up with it. Then at 33 I had my first episode. Relax. The pain will eventually go away. Sure you can't believe that when you start out cursing, go to praying and then to begging, but it will stop. If it doesnt you won't be able to live like that. People pass out from it. I know. That is a blessing. The longest it has ever lasted is about thirty minutes. Usually 10 to 15 minutes is the average. Thirty minutes is rare but when you are hurting that much thirty minutes equals a lifetime. People don't always pass out from major car accidents but they do pass out with this. Your blood pressure drops, you sweat, you can hear your heart beat in your ears, you are pale and dry heave. When it is like this all you can do is lay down and writhe around on the floor. It is impossible to walk to the tub and run warm water, get undressed and sit down in the tub...give me a break...if you can do that it isnt hurting that badly...believe me it can get so bad you can only writhe around on the floor begging for it to stop. My doctor asked if I had to pull over if it happened when I was driving. "Oh my God! I hadnt even thought of that!!!!" Well of course I would have to pull over or I will have a wreck. The episodes are infrequent. 6-10 a year on average. Diet doesnt make a differrence, stool hardness or softness doest make a difference. Stress increases the frequency and duration of the episodes. Just know they wont last. It usually woke my dad up from sleep. It tends to happen to me during intercourse or following a BM. You think the pain is about as bad as it can get and then you find out that NO, it can get a whole lot worse and a lot more intense. You want to die but you arent gonna die unless you are driving and pass out... If this is your diagnosis just try and relax and know it won't last. They say medical marijuana can help by ingesting a small amount before bed each night. Of course the federal government says otherwise. My doctor told me to try my inhaler when an attack happens. I keep my inhaler by the toilet now. Good luck.
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replied June 17th, 2013
LAS or not....please help!!
Is there any relief? My wife has some the symptoms of LAS. Mainly the pain, but it has been consistent for over two months. She also has the burning sensation and it feels like she is sitting on a golf ball. She doesn't have spasms, ibs, and its on the right side instead of the left. The PT that she is seeng now doesn't believe that it is LAS, but doesn't have and idea otherwise.
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replied June 19th, 2013
levator ani syndrome
always interested in helpful information
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replied October 13th, 2013
Hope for LAS Pain
Have had LAS for several yrs. Since having to take calcium channel blockers as well as pain meds, it has gotten worse and almost constant. The only thing that seems to help is Valium rectal suppositories (5 mg) 3/day as needed. These are specially compounded by a compounding pharmacy. My ins. does not cover this, but it is well worth the money. One very important thing to remember is to avoid constipation by using stool softeners and laxatives regularly. Ibuprofen also helps. Hope this lessens someone's pain...
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replied October 28th, 2013
I've been suffering from LAS or postnatal pelvic trauma for nearly 3 years . I had a horrible 16 hour labour (through my Bottom) back to back they call it , I was then rushed for a c- section where I felt them cut me open ,they couldn't inject me with anything until the baby came out as they couldn't give the baby a reversal .
The next morning they asked me if I needed counseling I said no I'm fine the baby if fine and left it at that.....if I only new what was to come !
I have been in sooooooo much pain where hot baths , neurofen , heat bags do nothing and this pain can go on for 2-3 days I live on laxatives and live day to day ,I have had every test possible and specialists can't help me .I spasm all day after passing a stool and it can go into days after .
I did some research after being let down knowing there was no one to help me I found a physiotherapist who deals with this trauma and omg! Have I learnt so much about what's going on with me.
Well .... Reaseachers still havent found out if it's the brain or the nerves from your pelvis the resepters up your back that send all the messages to your brain not giving the right information to your brain , in my case every time I go to the toilet my body thinks I'm going through labour and I spasm with horrible pain for hours !!!!!!!
It all makes sense and once you connect what trauma you have been through in your life you can start healing , Your going through exactly what people go through when losing a limb there brain tells them there arm or leg is hurting but it's not there!!!! It's crazy I know but once you start identifying the cause , you train your brain again how to go to the toilet you start to get less and less pain , I have no sensation of when I need to go , I can empty my bowels fully and push all day long feeling the sensation to go and the strain and pain that goes with it , I'm up there with one of her worse cases but I take two steps faward and 1 back I will get there she's amazing !!! I wanted to write this tonight as I'm living with this pain and can see so many people out there feeling hopeless , it's very common when you speak to someone who specialises only with people who suffer from this pain , it hasn't been diagnosed or named correctly so people just feel helpless',
I've been seeing one for 3 months now a working on changing my mind set and exercising my LAM in the 3 months of seeing her I've had 1 of those months of no pain at all !!!
Good luck !!
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replied April 3rd, 2014
doctor's seem to think that maybe I am suffering from something like phantom pains myself with this. It has single handedly derailed my entire life and it never stops hurting. I see all these other people who talk about it happening just a few days a year and I would kill for that. I stay with a chronic dull throb that cascades into Horiifying spasmodic torture. How does everyone here feel about opiates and Levator syndrome because personally it's the only thing that helps me and it's getting harder and harder to get them with doctors because this is such an unusual condition. I have to take Oxycodone 15 mg IR just to get anything going functionally.
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replied November 14th, 2013
surefire death
i hadan attack of that,all i did was sit there scream,groan so bad my son ran into his room & close the door.when it is happening i dont dare stand for fear all of my insides will come out.so terrible to think this is just a muscle spasm,and ill just have to put up with it
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replied March 6th, 2014
Pain in coccyx
Hmmmm I had a full hysterectomy a year ago for endometriosis. A month after surgery, I started hurting at my tailbone and to the left and right of my tailbone. They admitted me to the hospital and did a cat scan to rule out a tear from the surgery. It was fine! The doctor said it was trauma to the tailbone area from being on the operating table for so long. He sent me to physical therapy. I have been going to physical therapy for a year with some relief. It is complicated because they put me on cymbalta at the same time to help with the pain. But, 8 months later when I came off the cymbalta I'm back with pain. An MRI later, showed that I had a very slight minimal bulge at the L4-L5 and between L5 and S1. I met with the back specialist and he said he thought my pain had nothing to do with that. He said to continue PT and do core strengthening excercises. Meanwhile, my OBGYN thinks my problems may be due to estrogen and a weak pelvic floor. My PT thinks its a ligament by my coccyx and is doing therapy to relax this ligament. I do feel relief but I still feel crampy and burning around my coccyx. Is that what you all feel? Crampy? Burning? It's driving me crazy! I feel like no one will listen to me and help me! I don't have time for this! I know you all understand. I have a four year old and 10 year old and work full time! My fear is that they did something to me during the hysterectomy. I don't really know what to do! Any advise out there!
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replied April 4th, 2014
doctor's seem to think that maybe I am suffering from something like phantom pains myself with this. It has single handedly derailed my entire life and it never stops hurting. I see all these other people who talk about it happening just a few days a year and I would kill for that. I stay with a chronic dull throb that cascades into Horiifying spasmodic torture. How does everyone here feel about opiates and Levator syndrome because personally it's the only thing that helps me and it's getting harder and harder to get them with doctors because this is such an unusual condition. I have to take Oxycodone 15 mg IR just to get anything going functionally.
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replied November 14th, 2014
I think that I have been suffering from what ever this is infrequently for years..but now that pain in the rear is pretty constant. I did have a colonoscopy and had some hemorrhoids banded but now three months later, the pain is still here. Before I was diagnosed with LAS, yesterday, I had been given some pain pills from the doctor..now that there is a diagnosis, I fear that I will never get anything for pain. I was told to massage the area..without instructions on what I am to massage and I was told to add heat to the area.. Really? obviously, the doctor has never suffered from this pain or he would be thinking of something other than over the counter remedies. I actually just wanted to cry. The pain I feel is actually more right sided but when it is at it's worst, I feel it in the whole area. I would like to find a specialist that deals with this but I fear I will not find one. The Colo-rectal physician was less that comforting.
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replied May 15th, 2014
I had a hemerroidectomy 5 months ago, and I have been suffering from a CONSTANT dull pain in my bottom ever since. After much research (and much despair) I started being seen by a specialized PT in the pelvic region. It is getting better, slow but steady. She said I will get back to be perfectly fine in 2/3 months of therapy.
Even though I am still not well (only been in PT for 1 month) my advice to everyone (if doctors can't find anything) is not get do crazy stuff like more surgeries and stuff. It is very likely a muscular problem.. tension in the region basically. Find a pelvic region PT and undergo PT treatment... hopefully you will feel much better.
I am being seen at the Sullivan physical therapy clinic in Austin, Texas. For the record, I have no affiliation whatsoever with them.

Hang on everyone, be strong!
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replied October 9th, 2014
I have been suffering LAS for about a decade now, with maybe 8-10 episodes a year. While they aren't frequent, they are horrifyingly painful, and the intensity and duration is increasing. The last untreated episode lasted over two hours. I have been using Valium (diazapam) dissolved under the tongue but the efficacy has been steadily decreasing and I'm at the point that I'm taking 10 mg. This is disturbing as I cannot function with that much muscle relaxant in me. I concur that a bad case is absolute hell, on par with getting an arm ripped off.
But there is good news! I have realized that the episodes have stopped for almost a year since I've taken a hiatus from the serious bicycling I have enjoyed nearly my whole life. Whether it's related to PNE or not I can't say, but the frequency of attacks appears to be directly related to the miles I put on my bike. I hope this helps someone else in a similar situation. Good luck, all!
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replied November 5th, 2014
SO I had an infection in my colon about 7 months ago caused sever pain and rectal bleeding ended up in hospital for 4 days. I also suffer from pelvic floor dysfunction off and on for 20 yrs almost. In last week I have started having ungodly pain in my left butt cheeck and sometime tailbone area. Feeling like i need to poo all the time ( the pressure is just always there) Went to er thinking I had another infection but all tests showed everything fine. So from what I have been reading It seems that maybe my pelvic floor dysfunction is now causing these new symptoms. I go to see my pelvic floor doc in 2 days. I have recovered many time from vaginal pain from this with pt and am hoping the same can happen for this pain. I just am so scared I am going to hear we have no idea what is wrong with you! Have heard it before so many times with the pelvic floor issues until I found my current doc. only thing that helps is Motrin 800mg. I have to find relief because this is ruining my life!
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replied February 8th, 2016
Oh my goodness, I am so thankful I found this site!
I was just diagnosed with LS (lavedron syndrome)
I hate this!!!!
I have been in pain since thanksgiving day
All my holidays were spent in bed and thinking it was just in my head.
I would pray and say to myself, "it's not there, there's no pain"
But then a huge stabbing like would get me right at the rectum and after numerous visits to ER, GI visits I was finally diagnosed and now I start therapy tomorrow.
I got a heated blanket and sleep with it I between my legs.
I weaned myself off of Percocet so that I don't get addicted to Percocet.
I deal with the pain, but I will say. I switch my diet completely.
I have lots of greens all day.
I got fiber chewables, fiber bars any thing green or fiber I take!
All I can say is
This has been the worst episode for me and cannot wait to start a new year, pain free!
Anyone have any ideas of how I can ease the rectum pain whether it's food, relaxing techniques etc etc?
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replied February 24th, 2016
I am in lots of pain too, having had this for 6 months now. has therapy been working? what do they do in the therapy? I'm thinking of asking my doctor for something like that because they just give me pain meds and thats it. I can't do anything. What did you change with your diet and has it helped? Are you able to still do normal stuff day to day with therapy or any tips? Just looking for help and you and haventgottimeforthepain are the only recent posters. I feel like my whole world is falling apart.
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replied February 21st, 2016
I'm a 36 year old male, I've had this now for almost a year, most research points me in the direction of stress/anxiety management in order to keep the muscles loose. I have tried conventional doctors, chiropractors and yoga but of course nothing has worked. Now I have started acupuncture and next week I start a meditation class.. I have a history of anxiety which is quite common with people suffering with any of the pelvic pain syndromes. If you didn't have anxiety before the symptoms started, you sure will have it when these symptoms fail to go away.
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replied February 24th, 2016
i am very stress from this pain and am curious how you get through your daily life. any tips or suggestions?? How have you handled this for a year?? sorry for the questions, just looking for anyone to help me!!!
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replied February 24th, 2016
I have been diagnosed with Levator syndrome too and I have been in such pain for the last six months. the doctor couldn't figure out what was wrong for the longest time. I don't know how to get through this!! They have given me pain meds but that is it. any tips or suggestions on what to do?? I think I am going to have to quit my job soon too because I am constantly in pain and i start to cry at my desk. does anyone have any tips on what to do??!?? Please help me im desperate.
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replied November 5th, 2016
It DID improve eventually - I was good for about 8 years.
I had this for 3 yrs non-stop. No cause was ever found and there was no "onset" moment. I did have 3 bulging discs in lumbar spine and PNE was also suspected. Initiation was around same time as taking some spinning classes, but that could be a coincidence. (incidentally I was VERY healthy before it happened - cardio, yoga, pilates etc). Massage helped a !**@! did not. Much muscle relaxers, opiates etc. NO comfortable position (sitting, walking, laying down - all bad). In my case it started as back spasms and then also moved down to the coccyx area. I was essentially disabled for 3 years (just lying in bed most of the time, sometimes crying). And then after 2 years it started improving a bit and by 4 years I was "normal" and exercising again. I was fine for a number of years with no problems at all. Currently experiencing a flare-up (1 week). Hopefully I don't have years or a lifetime of disability ahead of me.
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