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Hi all, I'm new here. I live in the UK.

I have a boney growth on my skull - right hand side, top of head, almost down to my temple (which my hair mainly covers). It is just mm's away from touching my brain internally, & is rather big.

They have confirmed it is bone, & I have no other cancer elsewhere (some good news). They say it's likely to be benign.

I have a great Uncle who might have had something similar, which was removed 40+ years ago (but sadly this cannot be confirmed & no further detail can be found out as he now has Alzheimer's). I first noticed a (smaller) lump on my skull whilst in my late teens (I'm 34 now) - the Doctor said that he thought it was just the shape of my skull; Hence why it's been left (I've since changed my Doctor many times).

I'm off to see a neuro surgeon on the 12th Sept. On this basis, I'd like to hear from anybody who has already been through this process? Or any Doctors who specialise in this field? I want to go into the appointment fore armed with some relevant knowledge, research etc. - as I can't seem to find much online (but I guess you've got to know what you're looking for). I also want to compile a list of questions & discussion points.

The last Neurologist I saw (who found the lump on my mri recently) said the Neuro Surgeon might just leave it for a set period of time to ascertain the growth rate & speed etc. (possibly a year, as there are no other points of historical reference to refer to - i.e: no earlier mri scans etc.) as biopsy & removal will be fairly dangerous. Whilst I'm not a Doctor, I believe a year is a very long time to leave something like this (even if it is slow growing & has been there for a while). Plus I'm not keen on the wait & see mentality - as the lump might soon be pressing on my brain. My husband & I want to push for three monthly or six monthly check ups (at the most) to start with. Is this reasonable? (Particularly given it's size & the nearness of growth to the brain). I wonder what other people have been offered here? I also wonder how it will be removed? (Given that it is made from bone).

To add to the pot, I've had M.E (CFS/CFIDS) for 11 years, & I've been wheelchair bound & unable to work for the last four & a half years. I'm also being investigated for a heart condition (my g.p suspects angina) - I am waiting for a stress heart mri scan in October. Thus I have a lot of symptoms too.

If you can help in anyway (i.e: fill my knowledge gaps etc.); Then please do reply.

Thank you so much for reading this & taking the time to reply - much appreciated.

Best wishes, Dee
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replied December 17th, 2018
Thank you for asking at Ehealth forum!

I read your question and i understand your concern. The bone tumors are mostly benign. if it bothers and is painful then you can get it excised other wise letit be there and observe.

I hope it helps. Stay in touch with your healthcare provider for further guidance as our answers are just for education and counselling purposes and cannot be an alternative to actual visit to a doctor.
Take care
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