Not sure what is going on. My wife has suffered from seizures for a few years now but they never said exactly what kind (they last about 1 minute and sometimes she convulses, or she goes ridged, and sometimes she is still aware while they are happening and forgets what happened when she comes out).

The past month she has had pain in her right ear with the feeling like a pulling sensation with it. Also she had pain from EVERYTHING being too loud. We took her to an urgent care where they said she had a retracted ear drum and put her on antibiotics. It didn't get better so they sent her to an ENT.

The ENT said it wasn't retracted and that everything looked fine and her hearing was perfect (even though the test hurt her ears and almost sent her into a seizure). He did say she needed to see a dentist though because he thought she may have TMJ.

Anyway, today she was in pain again like that so bad I thought we needed to take her to the hospital. Then she suddenly passed out. I shook her and she woke up having forgotten the entire morning and the pain was gone.

I didn't know where to post this and hope this is the place. Does anyone know what could be going on and how to deal with it?
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replied April 14th, 2014
I have Epilepsy and I also have TMJ.
I haven't experienced anything like this, and that may be because my seizures happen in my sleep.
However that being said I have woken up in the middle of the night with excruciating pain in my ear and believe me when I say excruciating.
I don't see why it would cause her pain to hear though but maybe it is just worse than mine.
I'd suggest her going to see a Neurologist and a TMJ Specialist, start there and if still no answers then see if they can refer you to a different kind of specialist.

I will say this though. I have had epilepsy for 8 almost 9 years and every time I have a seizure I end up typing in everything and researching to see if I can find anything new.
Did you know that 70% of epilepsy is unknown why.
Epilepsy is very misunderstood.
(I say this as my hands keep twitching on me, had a seizure 2 weeks ago and they are still doing it, most people don't know that you get after effects like that, last time it lasted over a month).

Good luck to your wife, she isn't alone.
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replied August 2nd, 2014
I never realized that there may be a connection between TMJ and seizures. I have had TMJ for years, and also suffer from neurological disorders. Very curious to see if there are some connections.
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