I''ve been reading a few threads it appears quite a few people have had meningitis come back 4+ times.... This is starting to scare me because I got a case of viral meningitis about 3 weeks ago... took me a week to recover and it was the most terrifying experience I have been through in my life. I would never want to go through this again but there seems to be so many posts about repeat cases. How many of you out there are getting more than 1 case of this and how many of you have only had it once without it ever coming back???
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First Helper salb
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replied May 19th, 2010
meningitis repeated
Scared, that is a fear of mine as well. Once is one too many times in my opinion. For what it's worth, I have been told it is incredibly rare to contract it again, and have read that many of the repeat cases have a spine or skull injury (i.e., a break/crack in a bone that protects the spinal column or brain). I do not have much confidence in what I've been told so far, and this question will be something I ask about when I meet with a specialist in June. With your question, I want to know if it is recommended we be vaccinated to prevent the possibility. I see it's been a month since your post, so I hope you're feeling better by now.
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replied May 17th, 2012
repeaters of menengitis
I have had it 6 times.. It started around the time I gave birth to my daughter...that was painful.
I got out of the hospital in December and got it again. I just was released from the hospital today. There is a name for repeat cases. They even have a help group for it. It's deadly, scary and painful. But I am used to it.
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replied July 14th, 2013
What kind of specialist did you see?
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replied July 4th, 2015
I am just recovering from my 5th case in 36 years. The doctors are never able to tell me much, but this time the doctor sent a sample of my spinal fluid to a lab and hopefully will get some answers. He did some research because he thought it was rare (odd) too. It is hell every time. My longest bout was 14 days, shortest was 8 days. I'm on my 10th day this time, but getting better. I was told the vaccination only works for Bacterial so if you hear differently, please share. I have had back and skull injuries...
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replied January 16th, 2012
repeated cases of menengitis
I have had menengitis 3 times in 25 years. Don't know why.
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replied September 15th, 2015
Me too...3 times in last 2 years!
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replied July 9th, 2012
I have had viral meningitis 8 times in the last 13 years and I'm in my 30s. It is incredibly frustrating. I'm worried someday I'll have noticeable brain damage. My infectious disease doctor gave me a daily antiviral med but it causes me to get a yeast infection therefore I don't take it. Really sucks.
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replied September 16th, 2012
Experienced User
Consider looking into Lyme disease. The intense meningitis I had and long term side effects ended up being caused by a co-infection to Lyme, Ehrlichia Chaffeenosis or Human monocytic ehrlichia from a tick bite. I did not remember a tick bite or a rash which is consistent with 50% of patients. Many of my neurologic symptoms have disappeared with long term antibiotics and supplements.
You have to go to a Lyme specialist for the right testing as most of the common tests the doctors order are not accurate enough. I continually test negative for Lyme disease but positive for the co-infection, (having a negative test result is common). You have to test with one of the three recommended labs that the specialists refer to. Lyme borrelia can cause similar symptoms and is caused by a bacterial spirochete.
If you continually get migraines, there are some medications that can help so keep asking and seeking a doctor who is compassionate.
My original doctor said that once you get meningitis, you are more susceptible to getting it again. I would keep looking for answers if you are getting it often like some of the replies above. Best wishes.
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replied October 17th, 2012
I have only had meningitis once and I hope it stays that way!
My sister and I got viral meningitis in our late 30s. it was fall of 2004. We had never gotten meningitis before and it is currently 8 yrs later and neither one of us have gotten it again. (hope it stays that way!) We both contracted it from my 4 mo old son, presumably from changing his diapers. He has never gotten it again either, although he is not mentally retarded, he did have a stutter for awhile and took him a much longer time to learn to read than most of his peers.
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replied March 25th, 2014
Just got out of hospital 3 weeksago after contracting aseptic ( viral) meningitis for 3 rd time in 18 mths, OMG do I feel sick, this time I spent 2 weeks in hospital had every test known to man to rule out other issues. I do have a brain shunt to drain excess cerebral spinal fluid, I had one case of bacterial meningitis complicationand infection of shunt surgery 2012 but this is getting ridiculous, Im starting to wonder if I have permant brain defects caused by the mengitis, I have daily headaches/migraines, balance issues, memory problems, speech/stutter problems ( mainly when over tired) vision issues, The list goes on and on I am 34 and overweight 107 kgs ( 220 pds?? ) Im at my wits end oh and I just had back surgery to repair spinal discs 5 days ago so in agony from that Sad Prior to my original brain and back injury I was a otherwise healthy fit working girl with great social life and generally loved life, now im single, on disability payments, fat, medically and mentally broken, and almost usuless mum to my 14 yro son , does anyone else feel this way, the long term implications of repetitive meningitis and the toll on ones life?? Surely there has to be a cure??
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replied October 18th, 2015
I have had it two times a few years apart. When I went to the ER the 2nd time I told them I feel just like I did when I had Meningitis....I was completely dismissed by almost every medical person I saw. They gave me all kinds of tests but not a spinal tap for 5 days whrn finslly they did...which then proved to them all, I did in fact have meningitis. But no clear reason why.. Always worried i will get it again.
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