Ive always had asthma and would easily become sick. Within the last 2 years I have had back to back pneumonia, bacterial infections, thick yellow mucus constantly even without infection, difficulty breathing but not the normal asthma it feels like im so gunky I cant pass air, and chronic constant cough alot worse in the morning and extremely productive. Ive had a few significant episodes of coughing up blood. I am constantly on antibiotics and such to cear up my lungs and no luck. I use 3 nebulized treatments twice daily along with vest airway clearance for 25 minutes twice a day, flutter throughout the day, inhalers regularly with 2 nose sprays and a ton of pills that are supposed to help but dont. I have gotten to where I have up to 6 bowel movements a day not exactly solid, kind of mucusy, pretty gross and eat constantly but am losing weight consistently. My doc started me on probiotics which lessen the bowel movements but then I become extremely bloated and have trouble eating. I am on 4 liters of oxygen all day and 3 liters at night. My FEV1 has ranged from 40-45%. Im constantly fatigued and weak, cant do normal activity which really sucks being a college student. Possibilities that have been suggesed are bronchiectasis, but that wasnt concluded after chest ct, pulmonary fibrosis diseases, and cystic fibrosis. Ive been fighting different specialists to figure this out and have had horrible experiences. Ive been told its very rare to diagnose CF this late (im 19) but i dont want to overlook anything. I see an interventional pulmo in a little over a month who specializes in related diseases and am hoping to figure something out. Should I push CF testing. Is this a probable concern? Any input or help is much appreciated. Im clueless. Thanks.
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replied January 20th, 2018
Thank you for asking at Ehealth forum!

I read your question and i understand your concern.
Yes,it is possible to have CF at 19 because 5% of CF are diagnosed after 18 years of age.
I would like to advise you to do sweat chloride test and nasal transepitheilal potential difference.
If both were raised then Cystic fibrosis is the definite diagnosis.
If both came negative then go for alpha 1 antitrypsin level.
I hope it helps. Stay in touch with your healthcare provider for further guidance as our answers are just for education and counselling purposes and cannot be an alternative to actual visit to a doctor.
Take care
Khan
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