Medical Questions > Conditions and Diseases > Chronic Fatigue Syndrome Forum

Possibility of Chronic Fatigue Syndrome

Hi, can anybody please help with any of the following -

My husband started to feel unwell approximately 2 1/2 years ago, has gradually got worse and as yet we are no nearer to finding a diagnosis. He was diagnosed with Hairy Cell Leukaemia in 1993 and subsequently had chemotherapy (Interferon) for 13 months, then a break of 3 months and then 4 lots of Pentastatin at 2-weekly intervals. The Leukaemia returned in August 2003 and he had further chemotherapy (Chladrabine). The Leukaemia is now under control with yearly check-ups and he takes no medication for this. He is on Warfarin for life after 3 DVTs following ruptured Achilles Tendon. He was diagnosed with Reflux Oesophagus in September 2008 and takes Nexium for this.

2 1/2 years ago he started to feel that all his energy was deserting him and he frequently had to to to bed because he was completely exhausted. He also felt that his food intake was not converting to energy and was eating small amounts every 2 hours (and still does) in order to try and keep his energy levels up but l hour after eating he is back to feeling very weak again. He is 66 years of age and worked all his life as a market gardener selling his plants/flowers on a market stall. He was used to manual work for many years and found working long hours no problem.

Having seen 2 Endocrinologists and undergone numerous tests he has been diagnosed with Coeliac Disease. In spite of keeping strictly to the diet for the last eight months he feels no better and continues to get worse. We know it is unusual for someone on this diet not to feel better after a few weeks. The Coeliac Specialist we see said he thought there was more to this other than the Coeliac Disease.

He is fine when he is laid down and when he gets up in a morning. However, the minute he starts eating the glands in his neck ache to such an extent that he keeps a wet towel round his neck to try and help the problem. The muscles in his legs also continually ache. Once he has eaten food the aching glands in his neck and the aching muscles in his legs subside for a short time. He is continually tired out and very lethargic. He is not diabetic.

In the space of 2 1/2 years he has gone from being a keen cyclist doing 30 miles a day in the Dales to not now having the energy to fetch the morning newspapers a few minutes cycle ride away.

If any of you members have any ideas it would be much appreciated as we are now at our wits end. Many thanks for your consideration.

beryljones
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replied October 23rd, 2010
Experienced User
Hi Beryl,

Once upon a time I was a fit man, and when I say fit, I was fit until 2002, and this fit man was 65 years of age then. Now, 2010 at the age of 73 years, my health has deteriorated so much that most would put down to as OAS, Old Age Syndrome. That’s a cop out!

During that 8-year period, I began to look at things differently what was going on in our neighbourhood, because it just didn’t make any sense, and all blood tests and x-rays had shown that I was a bundle of health and joy, and that I needed medication therapy.

I know that that emotional problems, such as anxiety disorder, can weaken a person’s body, but I had no emotional problems. And it is interesting to note that the symptoms of anxiety disorder is much the same as most syndromes. I also realised that when the body is weak, then sickness or accidents have a greater and longer lasting effect on it. Certain illnesses are notoriously psychosomatic, and can cause asthma, allergies, arthritis, migraines and headaches. Therefore, any weak part of one’s body may regularly manifest pain, or other dysfunctions under stress, but what happens if the body is being stressed by environmental changes that have crept up onto the populations slowly over a long-term.

We all carry our stress either in our backs, or stomach, or heads, or other parts of our body. So if there are emotional problems, then there must be physical problems as well that can also do the same, and if physical, then what could the physical be doing to a person’s body?

In the mid-1960s I was suffering strange undiagnosable symptoms, such tiredness, fatigue, restlessness at night, and many other symptoms, like flu symptoms. I was in the Army then, and the Mos would give me a couple of aspros and a pat on the back and see you later smile. In 1980, I retired and my symptoms began to get worse, and I came across an article that was describing myalgic encephalomyelitis (ME) and the symptoms that I suffering from were the same, even thought I had many more symptoms.

The interesting point to note most of these syndromes are labelled as a “disease of the nervous system”, and it has become a statement of fact in the 21st Century for those syndromes, because the cause is not known, but they all point to the “nervous system”

Fatigues is a common symptom in many of the syndromes of today. A similar syndromes is Chronic Fatigue Syndrome (CFS), which is multi-systemic disease, but other syndromes such Sick Building Syndrome, Fibro Myalgia Syndrome, Irritable Bowel Syndrome, Burning Mouth Syndrome, asthma and heart complaints are noted that includes post-exertional malaise, unrefreshing sleep, widespread muscle and joint pain, chronic, often severe, mental and physical exhaustion; and other characteristic symptoms in a once upon a time previously healthy and active person.

These sufferers of these different syndromes, also have additional symptoms including muscle weakness, hypersenstivity, digestive problems (IBS), depression, poor immune response, cardiac, and respiratory problems.

I was suffering all of these symptoms back in the mid-1960s, and in those days, you were labelled as a hypochondriac if you continually went to the MOs with all these strange symptoms and were further labelled with a mental disorder, and of course good old PTSD.

Anyway, I found that in my neighbourhood there were six mobile phone towers, but I then began to notice that at the time that my health declined abruptly was when a Wi Fi transmitter was installed in our area and my health declined quickly. For the past three decades I have suffered with many undiagnosable illnesses and for no apparent a multitude of cysts appeared on all of my organs. Had a Whipple’s procedure for a tumour in my pancreas, and it was then that I began to see that electro magnetic radiation (EMR) could be the culprit. Then one day this Wi Fi transmitter accidentally turned “off” for three days, and all of a sudden my health came back, and I had a new lease of life for three days.

Therefore, if your husband has had extreme treatment, then his body has been knocked around, and yes I would say that he has either ME, CFS, SBS, FBS, because you likely have a house full of EMR and EMF. There are millions of people throughout the world suffering the same, and in Sweden it’s an accepted disability pension, but it’s now called electro magnetic hyposensitivity that others refer to as radio/microwave/wireless sickness.

All my research points to cell phones and towers, DECT cordless phones, Wi Fi hotspots, and wireless computer and home communications system. Sad as it is, we now live in the 21st Century and it’s going to get worse.

I suffer from stomach complaints and when the radiation gets bad, so does my stomach, my breathing, my heart loses a beat, my joints ache, I become exhausted very quickly and I can awake from what I would consider an 8 hour sleep and awake exhausted.

If you or anyone in your house has any form of wireless and cordless equipment I can assure you that if you remove them from you house, you will find that your husband’s health will improve. Do you sleep with a DECT phone near your bedside?

Here is another posting I made at:
http://ehealthforum.com/health/chronic-fat igue-or-myalgic-encephamyolitis-t247440.ht ml

Regards
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replied October 31st, 2010
The information was very detailed and helpful and thank you for the time taken to send it.
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replied December 16th, 2010
Yes, he may have chronic fatigue syndrome or fibromyalgia.

Blessings.

Tim
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