I'm scared I have ALS....Symptoms stated 7 years ago headaches, fatigue, and vision changes. In February
Let me be more specific:
Symptoms that began 2011:
1. Bad headaches sometimes 4 to 7 times a week.
2. Lump feeling in throat would last a couple of weeks then go away for a month or two.
3. Vision problems at times blurry.
4. Extreme fatigue.
Year 2013:
Bone, joint, muscle aches.come and go but especially in mornings.
Lower back pain.comes and goes
Lower legs calf area on both legs would feel numb at times come and go.
Bad tennis elbow diagnosed that lasted for 6 months that went away.
Year 2015
Muscle twitches or spasm that come and go especially in upper legs, and on biceps on both arms predominately on right and at times wake me from sleep. But stop if I push on change limb elevation. Come and go.
Arms fall asleep as if I lose circulation when sleeping. Atleast 3 to 4 times a week.
Nausea especially in mornings but will come and go.
Most symptoms come and go but most of time together with other symptoms.
February 2017:
lump feeling in throat back never gone away getting worse more intense bothers me alot constantly drinking or clearing throat to try and help this.
Extremely dry throat and mouth, with itchy scratchy throat.
Light electronic shock like sensations that are in hand and legs happened several times.
Weird chest pains feel like sharp pains, sometimes accompanied by difficulty breathing.
I've been to 3 neurologist, 2 rheumatologist, 1 nephrologist.
Had 3 MRI'S first in 2013, 2015, and 2016 with and without contrast, EMG done by Baylor college of medicine 2015 and one by VA in April 2016 both good, had tons of Labs. Dexterity good, strength good, tongue function normal, can still walk on tip toes or heels. Normal routine just lasted 8 hours coaching a track meet in houston heat. Nothing diagnosed pissed cause they say ANXIETY but nobody in family has ever had anxiety. But first they chrcked me for HIV, then cancer, now they are not sure. So lost having bad thoughts please people respond.
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replied September 7th, 2017
Thank you for asking at Ehealth forum!

I read your question and i understand your concern. MRI scans and electromyography are very specific tests for ALS so you should not be worried about this motor neurone disease . Other neurological disorders also ruled out like multiple sclerosis or any other demyelinating disorder as MRI would have picked them . So I would recommend to stop worrying and trust your doctor and considera it anxiety and try to consult a good psychotherapist and let them help you cover it up. Its not necessary for it to have in family. You can be a single patient of anxiety in your family with no familial history. Stress is not familial, it is acquired. slSo don't worry and hope for the best . Kepp balance diet, keep lifestyle modified, exercise regularly and make sure that nothing bothers you. Stay away from Internet for self diagnosing and self Treatment and always have trust in your doctor

I hope it helps. Stay in touch with your healthcare provider for further guidance as our answers are just for education and counselling purposes and cannot be an alternative to actual visit to a doctor.
Take care
Khan
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