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McArdle's Disease, problem with intolerance to heat

Does anyone else have a problem with intolerance to heat? I've been sweating terribly bad, even when just cooking food on my stove. The heat intolerance is very disturbing to me. When I come inside my house after bbqing, I have sweat running down my face and my hair is almost as wet as when I've just had a shower. I am not a large person, so it isn't from excess weight. I'm just wondering if anyone else if having this same issue or if it is associated with McArdle's at all.
I also find that my body goes into, what I call, "stretch mode". I will wake up in the morning, first having to stretch, before actually getting out of bed. Then throughout the day, getting up from a chair, the same thing happens. Automatically, my arms reach towards the ceiling before I can continue walking.
I will be reclined in my chair, not moving at all, when suddenly my foot goes into a massive spasm! The pain is horrible.
Anyone else have trouble falling asleep at night? It takes me 1-2 hours to fall asleep EVERY night. My arms n legs are getting weaker & more painful, which makes sleeping difficult. I am always sooooo tired. We all seem to experience things with different severity. I know some are in wheelchairs and others are still walking quite well. May they soon find something that will actually help us as there is no medication or anything. Low carb diet is helpful, provided you actually follow it routinely. Take care all.
Thx to anyone that shares their experiences.
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replied September 19th, 2017
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Thank you for asking at Ehealth forum!

I read your question and i understand your concern. Yes with metabolic disorder like mcardle syndrome, where your glycogen reserves are not been utilised, these symptoms are pretty much common. Heat intolerance however is less reported , but possible. As far as the cramps are concerned, yes they are very much involved and that is the reason we recommend our patients to stay less active at a time. There should be more rest gaps in your activity, and never over burden yourself. As those will worsen your cramps and the symptoms, you should eat more proteins and do not over stress your body and activity because that will trigger the cramps and lead to discomfort. And with so much metabolic derangements at hand , Insomnia and sleep deprivation is very common and should be treated with anxiolyticsand sleep helping pills. You may talk to a sleep disorder specialist and let them help as well.

I hope it helps. Stay in touch with your healthcare provider for further guidance as our answers are just for education and counselling purposes and cannot be an alternative to actual visit to a doctor.
Take care
Khan
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