My daughter will be 2 in May. She has severe scoliosis, eye problems, and for the past 11 months that I know of she has had knots on her lymph nodes. The first one that I found 11 months ago was the size of a pea and moved. Now it is about three times bigger and does not move and is tender to the touch. Now she has several of these several places. Behind her ears the sides of her neck the first was on the back of her head. They have given several antibiotics, but they don't get any smaller. I have had her to four doctors several times all blood work has come back ok except that her iron was low. I have asked for a referral. I am very concerned and am desparate to find someone that will take me serious. I went through the same thing when I knew she had scoliosis and they wouldn't listen. We are in great need of great doctors. It's nice to have a place to turn to where someone cares.

Thank You
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replied April 1st, 2008
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Your daughter must be a real trooper! This must be very hard for you to deal with, especially with no good doctors to turn to.

I did some research online for you, and I was wonder if she has just an overall infection, which is attacking her lymph nodes. I don't necessarily mean cancer or lymphoma, but I did find some similarities in your daughters case to Lymphadenitis and Lymphangitis. These conditions are from invasion by bacteria of the actual lymph nodes.

Here is an article (link ousdiseases/Lymphadenitis-and-lymphangitis .htm) which may help you diagnose your child with this sickness (or rule it out).


Lymphadenitis is an infection of the lymph nodes (also called lymph glands). It is a common complication of certain bacterial infections.
Alternative Names
Lymph node infection; Lymph gland infection; Localized lymphadenopathy

The lymph system is a network of organs, lymph nodes, lymph ducts, and lymph vessels (or channels) that produce and move a fluid called lymph from tissues to the bloodstream. For more information on this part of the body, see lymph system.

The lymph glands, or nodes, are small structures that filter the lymph fluid. There are many white blood cells in the lymph nodes to help fight infection.

Lymphadenitis occurs when the glands become overwhelmed by bacteria, virus, fungi, cancer cells, or inflamation. The swollen glands are usually found near the site of an underlying infection, tumor, or inflammation.

Lymphadenitis may occur after cellulitis or other bacterial infections, particularly those due to streptococcus or staphylococcus. Sometimes it's due to rare infections such as tuberculosis or cat scratch disease (Bartonella).

* Swollen, tender, or hard lymph nodes
* Red, tender skin over lymph node

Lymph nodes may feel soft and rubbery if an abscess has formed.
Exams and Tests

The doctor will perform a physical exam, which includes feeling your lymph nodes. The doctor may look for signs of injury around swollen lymph nodes.

A biopsy and culture of the affected area or node may reveal the cause of the inflammation. Blood cultures may reveal spread of infection to the bloodstream.

Lymphadenitis may spread within hours. Treatment should begin promptly.

Treatment may include:

* Antibiotics to treat any underlying infection
* Analgesics to control pain
* Anti-inflammatory medications to reduce inflammation and swelling
* Hot moist compresses to reduce inflammation and pain

Surgery may be needed to drain any abscess.
Outlook (Prognosis)

Prompt treatment with antibiotics may result in complete recovery, though it may take weeks, or even months, for swelling to disappear. The amount of time until recovery occurs will vary depending on the underlying cause.
Possible Complications

* Abscess formation
* Cellulitis
* Sepsis (generalized or bloodstream infection)
* Fistulas (seen with lymphadenitis due to tuberculosis)

When to Contact a Medical Professional

Call your health care provider or go to the emergency room if you have symptoms of lymphadenitis.

Good general health and hygiene are helpful in the prevention of any infection.
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replied April 2nd, 2008
thanks for the research. they have tried several different antibiotics several different times nothing has worked i have two older children they never had anything like this thanks again
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