Hello everyone!

I am new at this but I am in desperate need of some help! I am currently 17 weeks pregnant and have been diagnosed with hydrops fetalis. They say that their is fluid present around the lungs, stomach, and kidneys. The heart also shows signs of low blood circulation on the left side. They told me they are 100 percent sure this baby will not make it past 21 weeks. I have read a few posts on this topic and people seem to reach 31 weeks....Were these symptoms found early in pregnancy or was this a suprise? I would like to know if anyone has gone through this.....and what the outcome was
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replied October 27th, 2008
Community Volunteer
I am so sorry to hear of your diagnosis. I have not experienced this so I'm sorry I can't share my personal outcome. Hopefully someone else will post who can share. I did find a good source of info on hydrops fetalis on the web. Maybe it will be helpful to you: hydrops fetalis

I wish you the best.
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replied July 28th, 2009
hey i just wrote my whole story on some 1 elses profile so go take a look and tell me what happened to your baby! thanks
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replied September 11th, 2009
I dont know if I can help out but my baby Gabriel has hydrop as i am writing this from the Hospital. There is hope for everyone, please contact CHOP (Childrens Hospital if Philadelphia) in Philadelphia PA, they place shunts in my baby boy while still in the womb and now he is on a ventolator. Doctors say it will take a while but he will be fine at the end. This is the best hospital in the country for children and i think the world as well. Please look up CHOP for Hydrops issues or any issues with your children, they do it all here miracles...
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replied January 11th, 2010
Angel
I had a baby girl who was born in on Sept 12, 1995 and died Sept 13, 1995. I was diagnosed with hydrops fetalis I was 28 weeks when they performed an emergency c-section to try and save her. She lived for 4 hours. It was the most painful thing I had ever experienced. I was 24 years old and had a 2 year old son at the time. I am now pregnant at the age of 38 and I am praying every day that this baby is healthy. You just need to keep your faith. My daughter is an angel in heaven. -Katie
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replied July 8th, 2010
I am 36 years old and 18 weeks pregnant with my first child, who has been diagnosed with hydrops fetalis. He has a strong heart and does not show signs of any chromosomal abnormalities, but my husband and I are still very frightened and worried for our son. I feel your pain.
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replied July 22nd, 2010
hydrops
I am sorry for your baby's health. At 17 weeks, for the doctor to diagnose this condition of hydrops is grave and discerning. I am a nicu nurse and I came home early tonight because i lost my patient due to hydrops. We could not ventilate him. Yes we intubated the baby and place him on a high frequency jet vent, but his lungs did not develop enough to ventilate him. He had bilateral chest tubes to help rid him of fluid in the pleural space but the lungs did not mature as it should have. We worked on him for 8 hours straight and finally the parents were encouraged to hold the baby until his demise. It is very hard for parents to let go of a dream of a precious baby but in this case, it was a early blessing. I have taken care of hydrops that sucessfully make it but always this condition has complications. My suggestion is to read as many articles as you can find. Keep faith and pray the outcome is not so grave as the situation i was just in. But let reality be the truth when the time comes and know what you will do if the situation worsens. When there is fluid surrounding the lungs, the brain, and kidneys or there is malfunction in the development of the baby in pregnancy, the health care workers can only work with what the baby is presented with at birth. Take care. I hope this helps. Knowledge is empowerment.
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replied September 10th, 2010
Hi. When I was 38 weeks pregnant with my first child, my doctor thought my belly was measuring a little large. She scheduled me to have a routine ultrasound. On July 5, 2006 I had my ultrasound and they told me that my son was going to die!!!! They told me to drive to a children's hospital an hour away to try and save the baby. However, they couldn't tell me what was wrong. All they could say was that his heart was not formed properly.
I raced to the children's hospital and was given another ultrasound. It was then that they discovered the problem. My son had "hydrops fetalis". He had a hole in his thoracic duct that was leaking lymphatic fluid all throught his chest and abdomen. There was so much fluid that it compressed his heart, collapsed his left lung, and squeezed his liver so much so that it looked like it was on the wrong side of his body. The OBGYN there told me that there was no hope for my son and my son would most certainly be born dead or die shortly after.
I started freaking out and was given a sedative. They prepped me for an emergency c-section. My son hung on until about 1 minute before he was born. His heart had stopped beating and he was born "dead". They performed CPR on him and were able to bring him back. He was not breathing on his own so he had to be on a respirator. I got a quick glimpse of him as they rushed him out of the OR room to a NICU room. He was motionless and his eyes were closed. He looked like he wasn't going to make it.
That night, while I was recovering, the amazing doctors inserted a chest tube on each side of my son's chest to drain the lymphatic fluid and fix his lung. He was on life support for one whole week and then opened his eyes. He had IVs and a feeding tube and oxygen and many other wires hooked up to him. He had to have a blood transfusion when he was a few days old. Since he was considered full term, all the fluid puffed him up to 8 pounds 15 ounces!!! He was the biggest baby in the NICU! LOL. After all the fluid drained (it took 3 weeks) he weighed a mere 5 pounds!
The doctor's estimated that my son would be in the hospital for at least 3 months but my son surprised them all by going home at 3 weeks old!!!
My son is now 4 years old and a happy little boy. He does have Epilepsy (seizures) and Autism but he is perfect to us!
Hope is not all lost for you. Babies are saved each day from this. I do not know how long my son had a hole in his thoracic duct. Good luck and Goddess Bless.
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