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Help with chronic jaw pain from trauma.

In 2000 my jaw was fractured on both sides by a dentist removing my wisdom teeth. After the procedure when I woke up I felt like I had been hit by a car. He explained I would be sore but this was by far not the normal remove a tooth sore. I ended up going straight to er to have MRI done and MRI showed multiple fractures. At this point the dentist denied ever doing the work and left me high and dry. I went for 3 months going to multiple specialist and trying to seek help until I finally came across a jaw specialist that was able to help me. From 2000 to the current day I have had 13 major surgeries to try and repair the damage the original dentist did. Not only did he fracture my jaw but my disc were displaced and joint damage was done also. While all these surgeries have been going on it seems to get worse. The procedures won't hold up and end up relapsing. My jaw has missing bone pieces from so many screws being put in and removed, scared tissue from being cut so many times, joints keep deteriorating and won't hold up. I've been on multiple meds to help keep me comfortable while he has been trying to straightene out. Many drs meet several times a year on my case to try new things to help with progress or to use knowledge from other drs if any info is useful. This is an extremely rare case as they tell me. I've been on almost every med possible since day one. Everything from fentanaly patches to valium. Right now I'm taking 20 mg of oxcycottin er twice a day, 10mg loritab one or two pills every four hours or as needed per break through pain, Valium as needed for muscle spasms. I own my own business and have been able to carry a normal day to say routine and function just fine other then hurt like no other. I get kidney stones regularly and I would rather have kidney stones then have this jaw pain. My current meds I listed above don't seem to be helping me any. I know they are to some point but I don't won't to rely on so much loritab because of all the Tylenol. 12 years of it is hard of organs. Maybe if my oxcycottin was increased it would lower my amount of loritab. I'm not sure. I'm in desperate need of help and also help with having a normal and half way comfortable life. My dr has told me I would probably hurt for the rest of my life. That terrified me. At this point I've accepted it and go on about my life but it's hard to when your in chronic pain 24/7. If someone could make a recommendation on what extended release pain med would benefit me along with break through pain med I would greatly appreciate it. I have a extremely high tolerance since I've been on these meds so long so keep that in mind with responses. I would love nothing more then to take nothing but I know that's not an option. They, being my oral surgeon and family dr have wanted to put a port in me for round the clock injections but I refused that. I'm only 33 and I don't want that life. I have a wonderful wife that has been by my side since day one and I also have 3 wonderful children. So any helpful info from a highly educated pain dr would be great. Thank you for your time in reading this and I would be open to traveling anywhere in the world to have this looked at or helped manage. Thank you again.
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replied June 3rd, 2012
Severe facial pain concerns following surgery
As I read your letter, I closed my eyes and visualized everything that has happened to you as you described it. But when I got to the part that said you were only 33 years old, immediately, my mind turned to a number of other young patients who have undergone similar ordeals.

Nowhere in your posting did I see anything that indicated that you had received the advantage of any Phase I TMJ therapy. Is this correct?

Your letter describes the dedicated care and concern that your treating doctors have given to you. I'm sure they are just as frustrated, if not more, that you are.

As the TMJ pain management specialist regarding orthopedic jaw repositioning in our practice, I work directly with our three board-certified Oral Surgeons in diagnosing and treating severely compromised patients such as yourself.

If it is appropriate for you, it would be our pleasure to do all we can to help you if you choose to call upon us. Dr. Paul
Specializing in facial injuries and pain, corrective jaw surgery, wisdom tooth removal, dental implants, bone grafting, and TMJ
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