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Help! Gastrointestinal Endometriosis?

i'm wondering if anyone can help me! I have seen so many specialists and doctors over the past three years and so far no one knows what is wrong with me!

I was dignosed with endo two years ago and they removed it. I then had terrible symptoms so had more surgery 6 months later but the gyno found no sign of endo. Now I am in horrible pain everyday of my life. My bowel doesn't function and my digestive system is terrible too!

My periods are the worst! I feel like I'm going to faint, every cycle gets later each time, I have terrible sharp pains, painful bowel movements, massive pain above my belly button too (weird!), ahhh!

I have been seeing a gastro specialist for a while and he discovered the muscles in my rectum aren't working. So I was then sent to see a surgeon who has me doing physio for the next three months to see if they can help. I am wondering whether I could have gastrointestinal endo? And how would I go about this? Could anyone recommend a good gyno? I am in Australia, Queensland.

thank you!!!
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First Helper Amanda83
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replied October 14th, 2012
Endometriosis Drs dont hear us!
I had hysterectomy 28 years ago for endometriosis. Continued to be in pain. Took 4 yrs to convince them was endometriosis. By then it had almost cut my bowel off in the lower left side of abdomen. Have had two more surgeries since and now hvng issues again. Dre don't want to believe it is still endow. That would mean their surgery wasn't successful and our pain is not their main concern. Their reputation is.

My last surgery was done by a fertility Dr. He just 'happened to pull back the bowel in lower left quadrant to find massive endometriosis adhesions behind and attached to the abdominal wall.' He said that he didn't see any endow until he did that and normally they wont do that because it is dangerous to move the bowel like this. Had he not did it he would not have found anything.

Find a caring fertility Dr that knows the longterm effects of endometriosis.

God bless!
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Users who thank Endo_longterm for this post: dancer007 

replied November 1st, 2012
Have you been tested for crohns disease? X
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replied November 1st, 2012
Have you been tested for crohns disease? X
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replied November 1st, 2012
I had a colonoscopy about 4 years ago & they found nothing.
Is that the type of tests you are talking about?

I also had an endoscopy 3 years ago..which all they said is that I had a lot of food in my stomach so have a digestive system of an 80 year old. I'm 23. =/

All a BIG mystery for me. But I know crohns is hard to dagnose?
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replied November 2nd, 2012
Endo is a huge headache. Lifelong for me.
Yes I have been tested for crohns. I have had so many mri, colonoscopy and endoscopes it is rediculous. I have lost count after 28 years. I have had my gall bladder removed, my bile duct enlarged, and have narrowing now of the small intestine entrance to the large intestine. I have had pain on my left side middle abdomin for many years. They have never been able to diagnose it. They used to keep me on anti depressants and tons of pain meds until a few years ago I stopped all of it. Seven in total! I dont feel any worse without it really and I bought myself a tens unit to help with the pain. it works just as well and doesnt have the side effects that i now know after all these years was causing me to be nauseated and sick all the time. Now i am only sick half of the week! LOL

Endometreosis is a huge headache. Lifelong nightmare for me!

I was only 21 when they did the hysto and only 28 when I went thru the 'change'. Yes it does cause lack of interest in sex! They didnt know what they were doing back then and I am glad to see they are much more conservative nowadays!

I truly believe I have endo again but the drs dont and they are SO conservative they wont even look! That nice dr I had is no longer in my area! Sad

I have been in the hospital an average of twice a year with extreme pain since I had the hysto. I treat my pain at home and just suffer using my tens and ibuprophen. I have been able to stay out of the hospital for almost 3 years now.

didnt they have you do the cleanout before the colonoscopy? if you had food in there then something was wrong! Get a second opinion! Even an 80yr old would have a cleaned out stomach prior to colonoscopy.
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