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Fibromyalgia in Children/Teenagers

Hello. My son was diagnosed with Fibromyalgia a few days ago. At first I was told he had Lupus then this other specialist says it Fibromyalgia. I am so confused. My so who is 14 is very upset with either one of the diagnosis's however the lesser of the two evils seem to be Fibromyalgia. I am feeling like thi still isn't the correct diagnosis. He has al of the symptoms listed for Fibro but he also has all but 2 symptoms for Lupus and positive ANA blood tests. My question is: Do you have swollen ankle or wrist that swell for no reason? Do you ever run a low grade fever? Do you have sores in the mouth? Do you get rashes on the face and chest? when you have Fibromyalgia....
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replied September 4th, 2009
Hi KelliOppen, I can't explain all of your queries, but I was dx with fibromyalgia 4 mths ago and my symptoms were fatigue, muscle pain, poor memory and concentration, restless leg syndrome and breathlessness. I don't have any of the symptoms your son has except regarding the low temp, myself and other fibro sufferers find it hard to control body temperature and are often extremely cold. sorry this mightn't be of much help and I hope your son gets the correct dx soon. there might be a close connection between fibro and lupus as there is between fibro and ME. speak soon.
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replied September 27th, 2009
Kelli,

We found out this past summer that our daughter has Fibromyalgia. She also had the raised ANA level for lupus and rheumatoid arthritist. Yet her levels are not high enough to fall under either category. So the final diagnosis is Fibromyalgia. And like you said we were relieved that it was not the others. Does your son get physical therapy yet? I strongly suggest you get him involved in swimming. It is the best thing in the galaxy for helping to melt away the pain. We have a great team of doctors helping with my daughters FBS. My daughters Rheumatologist just recently prescribed vitamin D once a week. She said that will help with the pain. We use doctors at the Rainbow Babies and Children hospital in Cleveland Ohio. Make sure that your doctors keep you informed. I am looking into a support group for our daughter. They get so very depressed when they have limitations this young. Keep your eyes open for the depression that comes with this and get your doctors right on it. We use Bio-feedback with our daughter at the direction of a Child Psychologist. Is your son on Lyrica? If he is and is still exhibiting a rash it is a reaction to the medication. Let his doctors know. My daughter had swelling in her finger joints and ankles and wrist. Hope I helped in some way. Sincerely
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replied April 20th, 2011
We have been 2 years trying to figure out what is wrong with my now 10 year old daughter. The pain, fatigue, stomach ache and all over not feeling well has been exhausting. One doctor thought it was hypothyroidism, but her test have come back normal, twice. Savella seems to be helping the pain, but the stomach pain and the fatigue have been keeping her out of school. She's been out of school since late November 2010, on the homebound studies. We tried Lyrica but it caused such horrible depression I had to pull her off of it. It was hard getting anyone, including my ex husband, (her father) to take it seriously. We've found that doing yoga with our Wii Fit, helps her pain tremendously. She also has a lower than normal temp, first thing in the morning, (another reason I thought it might be her thyroid), so when she does run a low grade temp, it makes her miserable. She runs a temp, almost every day, towards afternoon.
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replied April 20th, 2011
fibromyalgia in children
We have been 2 years trying to figure out what is wrong with my now 10 year old daughter. The pain, fatigue, stomach ache and all over not feeling well has been exhausting. One doctor thought it was hypothyroidism, but her test have come back normal, twice. Savella seems to be helping the pain, but the stomach pain and the fatigue have been keeping her out of school. She's been out of school since late November 2010, on the homebound studies. We tried Lyrica but it caused such horrible depression I had to pull her off of it. It was hard getting anyone, including my ex husband, (her father) to take it seriously. We've found that doing yoga with our Wii Fit, helps her pain tremendously. She also has a lower than normal temp, first thing in the morning, (another reason I thought it might be her thyroid), so when she does run a low grade temp, it makes her miserable. She runs a temp, almost every day, towards afternoon.
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replied October 27th, 2010
Alleviating pain.
Please ladies, can you please take your children to a doctor who is also trained wholistically/alternative therapies. Mainstream medical doctors are mainly fumbling around in the dark. My sister has had FM for 10 years and is on a plethora of medications which are causing other health problem-high blood pressure etc. These medications cause magnesium deficiencies which only make the symptoms worse. How do I know? I have recently come on with the pain of FM and have found many ways to alleviate the problems such as pain, dragging fatigue etc. with magnesium/calcium, Rhodiola and lots of other herbal medication. I have found a product, (which I had to buy from America, called Curamin. and it worked even tho is it mainly for inflammatory conditions. Point is that it is a hormonal problem. which can either be brought on with e.g. puberty-hormonal changes which can also lead to hypothyroidism. Investigate the cause like I have. Don't settle for what the doctors say. Be proactive about it. Firstly check the temperature of the person in the morning before they get out of bed. if it is lower than normal 4 days in a row, it is a strong sign of hypothyroidism. Also just another point. Fluoride can cause hypothryoidism.
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