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essential tremor and also neck dystonia/torticol

Hi, I have had a head tremor for a few years which used to just occur when nervous but now it happens all the time, even when lying down in bed. I was diagnosed as having essential tremor and also neck dystonia/torticollis. If I turn my head to the left or right the tremor lessens, when my head is straight forward it shakes more. I have terrible tension and pain in my neck. I was prescribed propanolol but I am scared to take it as I don't want to become dependant on drugs or get side effects. I am worried my tremor may be something more serious but my doctor fobs me off and says it's ET. My Mother has a head shake but hers only happens when she's worried or sees some bad news on the TV. Mine happens all the time and is making life impossible. I can't go to the dentist, the hairdressers, the opticians, the cinema. I find I am having to have an alcoholic drink before social situations to ease the tremor as I don't want people to see it. It is effecting me at work too and I don't want to be in a room where anyone is facing me as I'm scared they see it. It is causing a real social phobia. I don't even want to see my friends I am becoming a recluse. I don't know what to do.
Has propanolol helped your tremor? Do you have any side effects? I feel like i need to visit someone to give me more confidence. But then the tremor happens all the time, even when I'm alone. I am starting to hate myself for it. I am 27, female and struggling to cope now. It is ruining my life. Any advice appreciated. Thank you
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First Helper 12789
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replied March 31st, 2011
Extremely eHealthy
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replied July 12th, 2011
Response to 12789 ESSENTIAL TREMOR AND NECK DYSTONIA
Ten years ago I was diagnosed with essential tremor...head shaking. Over time I felt uncomfortable socially but then decided I would just explain to acquaintances and friends that my 'bobble head' was a neurological problem and it was a pain in the neck....literally. I also explained that a glass of wine or two helped. Try being open about it...I remind myself there are worse physical conditions. Take Care.
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replied December 23rd, 2011
Hi,I have a similar neck/head tremor and got diagnosed with essential tremor 3 months ago. I'm now getting botox treatment and it helps me.
I also take supplements that I find to help me fight stress and keep my energy levels up. I take B vitamins, B 12, D vitamin, tyrosine, kelp, in the morning. Sometimes a take magnesium in the evening. I also go to the gym as often as a can and run. Eat as healthy as I can without going to the extremes. I think a balanced diet is the key thing. I have cut down on sugars and drink fresh lemon water instead of soft drinks.
I find the tremors are worsen when I don't get enough sleep, so I am trying to cut down on caffeine. Witch isn't easy for me:) Just love a good cup of coffee.
I hear that some others with neck tremors talk about having pain, I don't have that problem myself.
One thing a have notes though is when I close my eyes they seem to be real active. Like eyes move around in rem sleep. Maybe some other can confirm this.

I think everyone with this condition can related with you. I have been struggling for about 3 years with this myself. When the tremors where starting 3 years ago I was send from my home doctor to a neurologist. She said I was just stressed out and gave me some beta blockers. I knew this was just more then stress so I got mad and frustrated about the whole situation. It took me 3 years to go to my home doctor again, probable do to my stubborn viking genes:), and when I did I got him to send me to the best neurologist specialist in my area. Which I had found through a web search and so I got diagnosed with ET 3 month ago. It was hard to swallow that this was a chronological condition. But some how I have reconciled and try to think positive about the situation. I know that there are a lot more people that have it worse off in this life than I do. So I focus on what is good in this life and what I can do better to move things forward.
So hang in there and think positive!
Maybe this link can help http://www.wemove.org/
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replied April 7th, 2012
Head Tremor
I have a head tremor as well. When I was younger, I only experienced the tremor when I was really nervous, but when I hit my mid-20s, I slowly started developing more of a tremor and jerking in my neck. Initially, I was diagnosed as having ET, but I saw a neurologist who specializes in movement disorders, and he said it was cervical dystonia. Neurofeedback has helped a lot. Also, I've quit drinking anything with caffeine in it. My doctor put me on low dose of Klonopin, which has helped the tremors a little. It's frustrating though because it doesn't seem like there's really anything you can do to completely make the tremors/jerking go away.
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replied February 18th, 2015
In response to 12789 February 18, 2015

Hello,

I was wondering if you ever decided to take medication to help your dystonia in 2011. I have the exact same problem as you. I resort to alcohol and half the time I don't go out much. It's driving me nuts and its ruining my life.

If you are on medication what is it and does it work with out many side effects?

Thank you for your time.
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replied July 26th, 2016
Any relief from the head tremors? Mine are worse at night.was told I have essential tremors, maybe some dystonia.
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