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Epidural and seizures - symptoms of MS ?

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Hi there - just over a year ago I gave birth to my son after a normal pregnancy. The delivery was traumatic - I lost 1.5 liters of blood which was not replaced & I was given an epidural, during which I had two contractions. 2 days after birth I had seizures that resulted in my collapse and hospitalisation. These seizures lasted a week at about a frequency of 4-5 per day (decreasing over the week) although I have little memory of those days. After an examination by the neurology team (CT and MRI) they concluded that the seizures were 'pseudoseizures'. I had two more episodes in hospital and I discharged myself after it was clear they did not believe the epidural could have contributed in any way and they recommended I see a psychiatrist. I have no history of seizures/epilepsy, have no mental health problems, do not take any medications or illegal drugs and my alcohol consumption is low - I'm pretty much just a normal healthy 33 year old.

I have had no seizures since, however I have had ongoing and increasing eye problems - double vision and black spots (I'm seeing a specialist about this who diagnosed sinusitis via CT which has since cleared up but the double vision is worse, particularly when fatigued). I suffer from frequent short term memory loss, loss of facial recognition, tingling in fingers, loss of balance, frequent dropping of objects, dizzyness, headaches. I had no such problems before baby and I am sure some of this could be put down to baby brain/new parenting fatigue but I am starting to become concerned as baby is 1 now and I am back at work. I don't want to see a neurologist because I am afraid they will not take me seriously as per last time. Can you please tell me what might be going on or what i should be doing?

Thankyou.
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replied July 31st, 2009
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Don't go back to THAT neurologist however I strongly recommend that you see another neurologist who has a great reputation.

It is hard to say exactly what may be going on. Your neurologist will more than likely order specific tests, take your medical history and begin the process of determining what is going on.

Do know that there are diseases that mimic each other however with that said...MS (not saying that this is it) has been known to present itself for the first time in women shortly after giving birth. My first episode was less than 6 months after my daughter was born.

You said that you are afraid. I'd be more afraid not knowing.

Best Wishes,

Zig
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replied August 5th, 2009
Hi Zig,

Thanks so much for replying. I've had my eyes examined a few times - they can't find anything 'physically' wrong - the next step is examination by a neurologist so I will make sure I am referred to someone else for starters!

I didn't know that MS symptoms were known to present post-partum - all I really knew was when I googled my symptoms, MS kept popping up. Don't want to come across as a 'cyberchondriac' but I think its definitely worth mentioning the other symptoms to the neurologist now.

Thanks again,

Marnie
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replied March 26th, 2010
Psuedo Siezures....
WOW, my daughter is going through the same thing. She was diagnosed with MS last year and since has had several siezures to which they called them psudeo. Very frustrating. If you learn more, please let me know. She is about to deliver her first baby Next month and i'm terrified.
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replied March 29th, 2010
Hi jocook,

This is a long post! I did kind of learn some more but I don't think it will help your daughter. It turns out I had massive sinus blockage caused by polyps - basically the whole right side of my sinus was completely blocked and putting pressure on a whole heap of things. I ended up needing surgery to remove infection. Most problems, including vision, headaches etc have cleared up as a result.

I did go to a neurologist - an MRI revealed some minor lesions (probably caused by the seizures) but not big enough or in a risk region for MS. The MRI was what actually revealed the sinus blockage (of which I had no knowledge!)

As for the seizures - I don't think I will ever get an answer on that one. I've never had them again. Personally I think it was a result of such a traumatic labour (my baby got stuck) blood loss, epidural and awful, awful OB (my OB went on leave and I got a stand in).

In terms of the labour the scariest thing for my partner and I was the loss of control once the situation escalated into an emergency. I had a very hard labour though - which hopefully your daughter will not have to endure. You're going in with knowledge of what could happen - better to be prepared and be able to make informed decisions, then caught out and left without any control over what was happening, like we were.

I don’t have MS so I can only go on my experiences but – for what it is worth - my advice would be to find out if your daughters OB is taking any leave around the due date and if so, can any other OB be briefed on her condition. Also see if the attending nursing staff can be briefed on your daughters condition (such as a birthing plan) and her/your wishes in relation to treatment of MS during labour should something happen. Also ensure if she has a long labour that the shift change nurses are briefed on her condition. I'm sure all the things you have considered but if it does get serious (which I hope it doesn't) then it will allow you to have some control over the situation.

The anti seizure meds I was on also prevented me from breastfeeding so (as I am sure you are aware) if your daughter wants to breastfeed, might be worth discussing with her OB.

I’m sure other members or an MS Society would be able to offer you some reassurance as well in terms of what to expect and what to know – questions to ask, etc.

All the very best - please let us know when she has her baby!
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replied June 9th, 2012
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Hi! I had my first child July 2010. I was fixing to 27 the end of that month. I had a normal pregnancy because She was trying to come early. My delivery was easy with no problems. I did breastfeed. I had a seizure for the first time in my life in September a few months after giving birth. I was taken to the ER where they ran lots of tests. They said I had sinitus but no explination for seizures. Then in Janurary I felt strange and had a second seizure. I have done MRI, 3 EEG and all tests came back clear besides I have a small lesion on my right temporal lobe. Istarted taking Keppra. I was good for awhile. Then in july 2011 i had a 3rd seizure. I had actually just left my neurologist's office about 1mile away. I told my husband I thought I was going to have a seizure and I did. And ways, i just had an episode this week (its been 11 1/2mo) I left like i was going to have obe. My husband started yelling my name and deverted me from having one. We called my neulolgist he increased my keppra to 1,000mg 3x daily. Im only 130lbs and thats a lot of meds. We have no real answers and are fruastrated. I have actually seen my neuroligist will see him in a few weeks. Can someone help me or give me some ideas to ask??? Thanks
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replied September 7th, 2010
Seizures, Keppra and breastfeeding
I have a theory (personal) that Epidural, stress and lack of sleep could be one (of many)causes of seizures after giving birth. I had the same situation than tiger but I decided to go under Keppra that after some studies the pediatrics and neurologist agree that the breastfeeding benefits are better and higher than not breastfeeding and that the baby dont received that much of the medicine through the milk. I had 2 seizures in one night in 1997. None since then until I was 4 months pregnant in January 2010, I had 1 time episode. 2 more times on the 3erd day after giving birth and 2 more times 2 weeks after. My decision? To start a medication with Keppra. Stress, lack of sleep are the similitude with all the seizures that I had on the past. On a week I have an appointment with my neurologist and he will let me know for how long he will want me to keep the treatment. So far nothing showed on the EEG nor the tomography.
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replied July 21st, 2017
Hi ladies. Can you please follow up and let me know if you are still suffering? I am having the same exact thing as you all above and I need to know how to fix this. I too suffer seizures and etc. Plz help
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