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Dr House is Needed - Severe Fatigue, Brain Fog, Polycythemia...

Male, 44, 6'3", 220 lbs. Late-summer 2013, OVERNIGHT, massive fatigue set in, a significant loss in focus, concentration, short-term memory, body aches, chronic low-grade fever, occasionally racing heart (high BP and resting pulse of 140 or higher). Never had any problems like this before. Never struggled with depression or anxiety. No traumatic life events around this time.

Bloodwork revealed elevated hemoglobin + hematocrit, Polycythemia. JAK-2 has been negative several times. No determination as to what's causing "secondary" Polycythemia.

I receive phlebotomies once a month Polycythemia + baby aspirin daily + B-12 + D (low levels). Also: Vyvanse for fatigue, Amlodopine for BP. Low T (190).

Good EKG, though diagnosed with supra ventricular tachycardia. Sleep studies show moderate obstructive sleep apnea, but doctors don't believe its the issue. CPAP further fragmented sleep, even after changing masks, pressure settings, over months. Not using CPAP now, per Dr. Right kidney function: 12%. Drs. say this isn't causing problems.

Putting on shoes - Herculean task. Sitting upright for long periods - impossible. Can't read/enjoy films anymore, or work most days -- can't think of words, read for research, etc. Can't coach, teach, do yoga, volunteer, etc., like before.

Chronic Fatigue Syndrome + Lyme suggested by Drs a year ago. No luck getting referrals to appropriate Docs.

Help with diagnosis, possibilities, doc suggestions? Thank you so much.
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replied December 15th, 2017
Thank you for asking at Ehealth forum!

I read your question and i understand your concern. Your apnea is cause of secondary polycythemia. It could be due to high altitude as well. You need management for SVT and supportive care. CFS is unlikely. Low doses of antidepressants should be tried too.

I hope it helps. Stay in touch with your healthcare provider for further guidance as our answers are just for education and counselling purposes and cannot be an alternative to actual visit to a doctor.
Take care
Khan
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