Medical Questions > Mental Health > Depression Forum

dizzyness and balance problems ?

I have suffered with a balance problem since I was 21 which started with an ear infection but has never gone away. At first it would come and go so I would be free of any symptoms for months but for the last two years it’s never gone away some days are worse than others it’s affecting everything I do now and it frustrates me. Below I have listed the symptoms I have every day -
As soon as I get up I feel tired even if I've had a good 9 hours sleep, I can wake up in the night and feel strange and spaced out which can take me ages to go back to sleep, I can't bend down and get up quickly or look up both ways I feel very dizzy even just standing when I’ve been sitting and turning corners can make me feel dizzy. My balance is not good if I'm in a small space it intensifies like the shower a toilet cubicle etc, I find it difficult to concentrate I can't keep my head still and stare or the room moves or it feels like I've jumped very strange feeling, I get a very heavy head which feels like its got a weight attached to it which can make my eyes hurt and heavy this then can lead to a tension head ache which is normally only on the one side of my head and goes down into the back of neck, I get very anxious if I go shopping and its very busy it brings on my balance it's like my eyes can't keep up with what I seeing there's just to much going on which makes me want to run as I feel like I could pass out or panic, I struggle in situations like if I have a meeting at work and I feel like im trapped or if I go out for a meal I fidget and can't keep still and neck and head get all heavy.
I have been to the doctors on many occasions had ear test ENT test MIR scan nothing was found they just put it down to vertigo but I don't have this as I don't get the symptoms like the room spinning and sickness.
I try not to let this effect my life I do a lot of exercise but this sometimes can make me very dizzy I have a healthy diet I have no caffeine I limit chocolate and have plenty of fruit and vet not sure what else I can do.

Any help or comments would be most appreciated I just want to live a normal life again.
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First Helper JSpeak
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replied January 13th, 2009
Advice for Poppygirl
Get ENT specialist to refer you to a balance scientist or audiological scientist. My balance was out of balance following benign positional vertigo episode and again this week with a viral ear infection. Balance scientist diagnosed my right ear was more than 20% out of balance with the left ear wich is why I felt light headed. Solution was 6 week vestibular exercise programme to re train my brain with balance. It is meant to help with situation that you mention when you feel odd in supermarkets etc.

Exercises did not eliminate verything but helped. I sill suffer when I go to shoppong centres with bright lights and if anyone knows how to remedy this please help.

Good luck and let me know how you get on.
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Users who thank dizzyperson for this post: poppygirl299 

replied December 20th, 2012
Hi,,,I'm new here.....and I suffer with balance and dizziness too and have more so the last 3 months not stop...everyday is so different...when I'm severly tired, I have bad balance problems,like I'm drunk. I do get pressue on the side of my head sometimes. I also feel really off soetimes when I focus on one thing..I work at a grocery store and boy its' much worse.. and when I'm too hungery or stressed...my symtomes are worse......Here's a site to look at for those of you that may have severe anxiety...anxietycentre.com my doc seems to feel that most of my dizziness which affects my balance is primarly caused by severe anxiety.,.,which I know I have..I worry about my health all the time..but just since I turned 44 in OCt 2012..so I started paxil on 12/20...to see if my doc is right....and yes, this condition is totaly dabilatating....I hope you all get much needed releif...I will keep you posted on the anxety thing.....
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replied January 13th, 2009
Relate to poppygirl299
Oh my goodness, reading your write up is exactly what I go through on a daily basis. I have been to my family doctor and ENT and nobody has any help for me. The only thing that helps me get through my days is taking clonzapam. It helps to alleviate some of the pressure in my head and make the dizziness more bareable. I am going to a dizzy clinic next month and hopefully they will have more answers for me. I wish I had answers for you, but all I can say is I relate with what you are feeling completely. I wish that other people could spend just one day in my shoes to see what it feels like to live this way. It is not easy. I think also because people like us physically look fine, the understanding from people is just not there. There is no obvious physical problem so people find it hard to understand how you feel. All I can say is hang in there. I have been living like this for the last two years and it is no fun and EXTREMELY frustrating.
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Users who thank weezie13 for this post: poppygirl299 

replied February 5th, 2009
Dizziness
Hi ,I have the same problems as yourself and it is affecting me ,I left work and don't drive and stopped living really but that was 3yrs ago and only since last year i went to the doctor so far i had mri happy to say all clear,next will be ent test .The doctor has put me on med for vertigo they are called serc.I found it hard to roll over in my bed so after 1 wk of takin them that has gone but also i have not have had 1 dizzy spell or loss my balance yet so 2 wks now,So i am goin to test the shopping centre and see if the bright light affect me,they usualy do and i alway bring my child and buggy for something to hold on just in case it happens.I don't know if the lights but me off balance but if these meds are working with everything else but the lights in the shops then maybe thats a saperate thing.I used to work in a big shop with high ceilings and if your light senitive the higher the ceiling the worse it will be that what they told me when i got my eyes tested and he said i had perfect vision so i said if i am affect my bright lights is there anything you can do ?No .So i just have to suffer i thaught but why should i?You can get tinted glasses he never even said this but i think there for people who suffer from headaces and i don't want to wear them as it looks like your wearing sunglasses all the time and people would stare.Hope my storie helps ,are you takin anything for the dizziness?
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replied February 5th, 2009
reply for ppppy
Please excuse my last message ,i was in a hurry.What i would like to ask you,has a doctor precribed anything for your problems with the dizziness.If so ,what are they called and did they work?If you have not been taking anythink go and ask your doctor can you try something ,thats what there their for they are suppose too help us but i found out the hard way that some doctor just are not listening and but it down to anxiety so don't give up......I know how you feel ......
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replied August 10th, 2012
*** READ ***
I WANTED TOO COMMENT

I have the Same problem as everyone has stated prior: I had to go to many specialist on the matter; along with the MRI'S on my head/brain. It was almost as if I thought the medical staffs thought I was crazy at times. But staying at home suffering got very old after half a year. I mean living a normal life is was impossible, and it was as if I never knew when I was going to get off balance: the thing where the world turns where ever it pleases. At first your feeling get sensitive, your eyes get tired from the work they're doing trying to keep you relaxed. I had this problem for 2 or 3ish years.

Solution: It was later called out as Vestibular Migraine. For my friends reading this later on: Find comfort in me telling you that it can get better. My medication was (Amitriptyline)

"Classic Symptoms of Migraine"

*Severe throbbing headache on one side of the head
*Nausea and vomiting
*Extreme sensitivity to light and noise
*The need to go to a dark, quiet room to sleep
*While these symptoms may seem common to migraine sufferers, many people don’t realize there is also an association *between migraine and the inner ear and brain mechanisms that influence hearing and balance.

"Vestibular Symptoms"

*Vertigo
*Imbalance
*Dizziness
*Unsteadiness
*Extreme sensitivity to motion

& See links below !!!!

http://www.hopkinsmedicine.org/neurology_n eurosurgery/specialty_areas/vestibular/con ditions/vestibular_migraine.html
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replied October 30th, 2012
Dizzy, try stopping artificial sugars.
Try stopping artificial sugars. I had this horrible imbalance feeling, like I was sinking or being pulled, the shower and high carpet patterns also bothered me. I had an MRI of the brain, MRA of the neck, VNG testing and numerous lab tests. The next test was to be a lumbar puncture. A co-worker told me about the dizzy issues she had that resolved after stopping artifical sugars. I stopped drinking crystal light, chewing sugar free gum, etc on a Friday and by Monday all my symptoms went away. I have never felt better. I have told my physicians of the recent findings, but want to pass it along here too. I plan to tell everyone I know, in hopes that helps someone else who is suffering.
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replied October 31st, 2012
Experienced User
I have been on an SSRI and a SNRI along with depakote and then lithium for the past 3 months and you would have NO IDEA how deathly ill I have been. I have many times thought that I am dying and yes I have been dying. I called poison control and they told me to go to the ER and I said NO WAY as I went before and they did nothing but put me in the Funny Farm for 3 days and charge me $8,000 and did absolutely nothing and did not know anything. So I called the Crisis Worker who said to wait until I see the Doctor today, and then I talked to 2 Pharmacists who said it definitely sounded like I had that darn Serotonin Syndrome. Well, the heck like I am going to wait for some doctor to tell me I can get off the lithium. I dropped it last Saturday and I go to see the Doctor in 2 hours and boy do I want to tell him where to go, but alas I had better take the duct tape with me to cover my big mouth with (plus my husband is going with me). This is LETHAL! You have no idea how "drug cocktails" can KILL YOU! I can't say it enough. There are alternative things to take out there. Watch out for the Medical Profession. They are only "half there" when it comes to what they prescribe for you. They have no clue at times what they are doing. For God's sake, watch out for yourself because they will not. They seem to have a few screws loose when it comes to what the medications will do to you. I talked to the nurse yesterday and she said "I think I have heard of it". She thinks that - oh my - what are we coming to. These guys should know these things. If we do not speak up for ourselves, we will be dead. Enough said.
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replied October 31st, 2012
Experienced User
I have been on an SSRI and a SNRI along with depakote and then lithium for the past 3 months and you would have NO IDEA how deathly ill I have been. I have many times thought that I am dying and yes I have been dying. I called poison control and they told me to go to the ER and I said NO WAY as I went before and they did nothing but put me in the Funny Farm for 3 days and charge me $8,000 and did absolutely nothing and did not know anything. So I called the Crisis Worker who said to wait until I see the Doctor today, and then I talked to 2 Pharmacists who said it definitely sounded like I had that darn Serotonin Syndrome. Well, the heck like I am going to wait for some doctor to tell me I can get off the lithium. I dropped it last Saturday and I go to see the Doctor in 2 hours and boy do I want to tell him where to go, but alas I had better take the duct tape with me to cover my big mouth with (plus my husband is going with me). This is LETHAL! You have no idea how "drug cocktails" can KILL YOU! I can't say it enough. There are alternative things to take out there. Watch out for the Medical Profession. They are only "half there" when it comes to what they prescribe for you. They have no clue at times what they are doing. For God's sake, watch out for yourself because they will not. They seem to have a few screws loose when it comes to what the medications will do to you. I talked to the nurse yesterday and she said "I think I have heard of it". She thinks that - oh my - what are we coming to. These guys should know these things. If we do not speak up for ourselves, we will be dead. Enough said.
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replied October 31st, 2012
Experienced User
I have been on an SSRI and a SNRI along with depakote and then lithium for the past 3 months and you would have NO IDEA how deathly ill I have been. I have many times thought that I am dying and yes I have been dying. I called poison control and they told me to go to the ER and I said NO WAY as I went before and they did nothing but put me in the Funny Farm for 3 days and charge me $8,000 and did absolutely nothing and did not know anything. So I called the Crisis Worker who said to wait until I see the Doctor today, and then I talked to 2 Pharmacists who said it definitely sounded like I had that darn Serotonin Syndrome. Well, the heck like I am going to wait for some doctor to tell me I can get off the lithium. I dropped it last Saturday and I go to see the Doctor in 2 hours and boy do I want to tell him where to go, but alas I had better take the duct tape with me to cover my big mouth with (plus my husband is going with me). This is LETHAL! You have no idea how "drug cocktails" can KILL YOU! I can't say it enough. There are alternative things to take out there. Watch out for the Medical Profession. They are only "half there" when it comes to what they prescribe for you. They have no clue at times what they are doing. For God's sake, watch out for yourself because they will not. They seem to have a few screws loose when it comes to what the medications will do to you. I talked to the nurse yesterday and she said "I think I have heard of it". She thinks that - oh my - what are we coming to. These guys should know these things. If we do not speak up for ourselves, we will be dead. Enough said.
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replied September 14th, 2016
Vestibular issues are serious matters. Like your experience, I can tell that it really affects the quality of your life. Have you been to a specialist in vestibular rehabilitation? If not, I suggest you find one and get a check up to see if they can help you with your dizziness and balance problems.
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