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Diabetic Neuropathy; Celiac Disease

Hello All.

I am new to this so please be gentle.

I am 27 and I have type 1 Diabetes, for 20 years. Diagnosed with Celiac at 17
I have had pain for almost 5 years now and it is getting worse. I am unable to go a night without having my entire arms numb and tingly (so uncomfortable and odd feeling) and when I wake up I feel the most atrocious horrifying pain in my life!

I just was seen by a new doctor, a pain management specialist, who was quite sharp with me by the way, but offered me some help once I told her I would rather get my prescriptions from my primary because he has been my dr for over a year now. She said she needed to see my chart and my tests that were done and go from there but the pain is getting worse and worse!

I have a baby, he is 5 months old, and since he has been born the pain has been getting worse. I am assuming it is from the holding and feeding and putting to sleep of lil guy, and other things as well. I am also wondering if my celiac has anytihng to do with a nerve damage interaction. Probbly not but thought I'd ask anyways.

I am on 60mg MSContin 3x a day every 8 hours; Norco 10/325 4x a day (but has been becoming more like 6x per day since the pain has been getting worse)

I really need to get some insight on how this is affecting me in the long run. Will I lose all sensation in my arms and hands in a year from now?? What should I do in themorning when the pain is to the point where I want to just scream andcry!?

Thanks for all your help/
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replied June 28th, 2012
Wow, that sounds painful. And don't worry, we're gentle here.

Has you BG and A1C generally been under control since you were diagnosed?

I take it you sleep on your side? I don't want to counter your doctor, but perhaps you should look towards your sleep set up and see if there is anything that could be changed. My guess is that you may be pinching a nerve or something while sleeping.

I know pain is terrible to live with, but I'd also be careful with the pain medication as it is tough to ween yourself off that after a while.
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replied November 23rd, 2012
My peripheral neuropathy was relieved by Lyrica which helps with bodily pain as well and stops all the tingling and weakness in my arms and legs and stops the neurologic worm wiggling in my head. I hate to be taking it at all but when I try to reduce my dosage things get worse. So my neuro says 150mg 2x a day and that's what works for me. Hope that helps.
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replied August 23rd, 2013
I've noticed if my potassium levels or vitamin B12 is low I get similar symptoms (very annoying). Even when labs show normal I can tell its low so I take OTC potassium (careful, this can be dangerous) and b12 injections and it really helps. It also helps to be sure everything you consume is infact gf. Some foods, meds., supplements and drinks can say gf but have just enough gluten to effect you. I also notice that keeping my dairy intake very limited helps a lot.
Hope this helps Smile
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