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Are there any cures for EDS?
What can be done to releive pain?


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replied July 31st, 2010
Genetic Disorders Answer A14835
Hi, welcome to the ehealth forum and I am glad to help you.
You seem concerned by the availability of a cure for EDS.
Ehlers-Danlos syndrome (EDS) (also known as "Cutis hyperelastica") is a group of inherited connective tissue disorders, caused by a defect in the synthesis of collagen (a protein in connective tissue). The collagen in connective tissue helps tissues to resist deformation (decreases its elasticity). In the skin, muscles, ligaments, blood vessels, and visceral organs collagen plays a very significant role and with increased elasticity, secondary to abnormal collagen, pathology results. Depending on the individual mutation, the severity of the syndrome can vary from mild to life-threatening. There is no cure, and treatment is supportive, including close monitoring of the digestive, excretory and particularly the cardiovascular systems. Corrective surgery may help with some of the problems that may develop in certain types of EDS, although the condition means that extra caution is advised and special practices observed.
Physical therapy, occupational therapy, and orthopedic instruments (e.g., wheelchairs, bracing) may be helpful. You should avoid activities that cause the joint to lock or overextend.
Hope this helps. Take care.
Note: This post is not to emphasise final diagnosis as the same cannot be made online and is aimed just to provide medical information and no treatment suggested above be taken without face to face consultation with health care professional.


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