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I wasn't sure where to put this. These are all the tests/results I've gotten so far. I'm trying to figure out what kind of doctor I should be seeing to find out if they're all connected ie one diagnosed condition. Any direction you can point me would be immensely appreciated as I'd like to work on getting better and having a vibrant life again!I'm a 28 year old female who's been having health issues for 10 years and honestly I've given up on the medical system. I used to be a very active person with a lot of hope for my future now each year I lose more and more of my life. There's so many things I just can't do now. I see specialist after specialist and they all tell me you have this happening let us run a few tests to see why and the tests never say why its happening. I began having issues with walking and losing all feeling in my legs along with pins and needles this was followed by extreme pain. I was diagnosed with Peripheral neuropathy and raynaud's phenomenon. I was having random pains and sometimes thought a wasp had gotten under my clothes and was stinging me. I began having repeat kidney infections over and over as well as kidney stones. This was followed by extreme body pain. It felt like someone had hit me with a bus some days and sometimes touching my skin was horrible. A tag in a shirt might feel like someone cutting me with a knife. My inflammation markers were very high according to multiple blood tests. I was diagnosed with Fibromialgia by 3 different Drs. After this I began having trouble with my heart. It started with me passing out and noticing an elevated heart rate. I went to the ER a few times and after a lot of tests including wear at home heart monitors they decided I was having bradycardia as low as 40 bpm and jumping up to 140 bpm seconds later. My normal resting heart rate was around 120. I was having Super Ventricular Tachycardia and inappropriate sinus tachycardia. Since structurally my heart was fine they decided they would do an ablation. After the ablation study they found they could do nothing as it wasn't an issue with my heart receiving electric signals incorrectly. They didn't know why it was doing what it was doing. Around this same time I started having seizures. They would often begin with a headache and not being able to get warm and would end with clusters of grand mal seizures. I also stopped having my periods for over 6 months around this time (no pregnancy). I had hot flashes and facial flushing sometimes on both sides of my face and sometimes just one side. I began having extreme neck and back pain after this. One bought left me bed ridden for a week. Holding my head up was too much at this point. I was in agony. I developed a bony feeling bump on the side of my foot and after blood tests were done they showed positive ANA, multiplex reflexes to the 3 tiered multiplex 11 antibody cascade, positive RNP-immunologic disorder and RNP antibody. Then the issues with my back/neck began. X-ray showed slight lordosis reversal centered at C5-6 and min left convex curvature at the upper to mid thoracic spine. min right convex lateral curvature centered at T10-11. @ T9 the verterbral body morphology shows upper and lower endplate concvity, suspicious for incomplete fusion or partial butterfly vertebra. wedging of T8. Minimal degenerative disk disease. I started physical therapy at this point. followed by a CT scan which showed mild wedging of T9, prob chronic, suspicious for acute etiology. Prominent bridging osteophyte at T7-8 causes mild spinal canal stenosis. An MRI showed no fractures. So this is where I'm at now. I have pain all the time. I've seen all these specialist and they diagnosis conditions but not the cause. My back gets worse and worse. I was sent to a spinal surgeon who said I don't need surgery but not why my back is this way when I was not injured. Now my doctor is sending me to another spine surgeon to try and find out why my back is this way. My concern is that no one is looking at me as a person. Could I have something causing all this? Or am I just this unlucky? Its hard to move toward a future when I don't know what's happening to me. I need to know who or what kind of doctor my primary care Physician needs to send me to. I'm tired of getting sicker and sicker. Another thing to note is that I have a lot of smaller weird things all the time that I didn't mention and that many of the health issues I have my father and grandmother on his side also had/have, also my sister was just diagnosed with RA so I'm concerned this could be something with a genetic link. PLEASE HELP!
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replied April 14th, 2018
Thank you for asking at Ehealth forum!

I read your question and I understand your concern.
Amyloidosis is the only condition which can explain all these symptoms.otherwise all these seems different entities.
I hope it helps. Stay in touch with your healthcare provider for further guidance as our answers are just for education and counselling purposes and cannot be an alternative to actual visit to a doctor.
Take care
Khan


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