June 24th, 2009
Chronic appendicitis
Hello All! I'm so glad that I found this forum! We just went through this with our young son. Several times he has had pain originating in the middle of his stomach and then gravitating toward the right side. But never with fever and always short lived. Recently he had the same bout with pain but also developed a fever. Spent a couple days at the hospital -- appendix enlarged/inflammed on the CT scan, but no elevation of WBC count, nothing wrong with rest of blood work, no naseau/vomiting/diahrrea, good appetite. They released him because the pain went away. Because he still had a fever they decided it was viral. Three days later pain returned, along with the fever, and vomiting. Back to the ER, and they removed his appendix that night. Also noted enlarged lymph glands in abdomen. Pathology: inflammed appendix showing signs of chronic enlargement and irritation. Bottom line - he didn't have acute appendicitis, but the appendix needed to come out. Still don't know if the lymph glands were enlarged because of a virus or because of the inflammation in the appendix. Could be that all of the symptoms were caused by the virus and they happened upon this appendix that was going bad; could be that the bad appendix caused all of the symptoms.

I'm just glad it is overwith.

P.S. Family history of on and off pain on right side with ultimate appendectomys. Doc says if you take out the appendix and the pain goes away -- the appendix was the problem all along.
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replied November 13th, 2009
Chronic appendicitis
Hi All.

I'm hoping that finding this forum can help.
Since 9/27/2009 I have been having lower right abdominal pain ( started lower right side near my navel and goes above my hip bone), fever, nausea, slight temp, and loss of appetitte ( sp ? ). I went to urgent care, they sent me to ER oth did urine test ( clean ), er did blood and ct scan- my white blood count was up but everything else was clean and normal. They told me it was something I ate and sent me home.
Two days later , doubled over in pain, I went to my Dr. He checked me over and said I had an inflamation in my colon. Put me on cipro and pain meds and wanted to see me the following Monday. Went back- everything was the same. So he gave me more antibiotics and had me come back again. Fever and nausea had started to decline. But still had tenderness in my right side. Three weeks later, had a few really good days and went back to work. Then, suddenly the pain was back ( not so bad in the am after first waking up, but after an hour of physical activity it was constant and getting worse ), fever, nausea, and temp came back ( running between normal 98.6 in the am to 99.7 by evening ). He set me up for a colonoscopy ( not till December ) and appointment with a surgeon.

My doc didn't order anymore test after the ER visit. So the surgeon had a bit of an attitude with me. He sent me for blood work and ct scan ( 11/5/09 ). This time both are normal. So he said It could be IBS and I had to live with it and refused to do anymore. ( 11/ 9/09 ). The pain eased up again and I felt a little better for a few days. Around 3:30 Thursday morning it started again. Same symptoms only now I am tired all the time, nausea, pain, and feel feverish even though I'm minus the temp. ( last I checked it was 98.7 ). It bothers me when sleeping ( change postion alot! ), sitting straight up, walking, and bending. ( I work in a hospital as a nurse assistant, so this really effects my job.
Since everything is normal the surgeon won't test further nor do any exploritory surgery. Does this sound anything like what you all have been through?
Sorry so long. Thank you all. Hope you are doing well.
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replied November 19th, 2009
I have to say that this forum was a lifesafer-literally. I want to explain my situation and I hope that this helps other people who are in desperate need of help.

Two months ago I started having horrible pains in my right side. I thought that I was just having problems with an ovarian cyst because I have had problems with them in the past. After about a week of really intense pain it started to get worse and I decided to go to the ER. When I got there they immediately started telling me that it was probably appendicitis but they needed to do some testing. They did a CT, full blood work,Ultrasound, urine work-up and gave me pain meds through an IV. The doc said that the ultrasound showed that I had a uterun fibroid but that it was very small and that it would not be causing that much pain. She gave me the option of staying a day or two for pain control. I left that night still in pain and frustrated because I didn't have any answers. After another two weeks of pain I went to my OBGYN who had done a surgery on a ovarian cyst before. She said that she would do a laproscopy even though she didnt think she would find anything. I said I wanted to wait and see if the pain went away. The pain got progressively worse. I have never felt so much pain in my life and I was completly unable to walk or work. I would be fine and then I would have a pain attack and it would literally send me down to the floor crying. Five days after my visit with the OBGYN I called her and begged for surgery. I had the laproscopy two days later. She took pics of the ovaries, appendix and the area around it. She said that everything looked good and she wasn't able to fit anything. I came out of surgery very upset after learning that nothing had been done to help me.

I then spend another two weeks in horrible pain and finally decided to find the answer myself. I spent hours upon hours searching the internet comparing my symptoms to those of others with similar symptoms and stories. I found this site and a few others that seemed to talk about almost the exact same thing I had been dealing with. I thought that I had chronic appendicitis and I decided that I needed to find a doctor that would not only listen to me but would do elective surgery on me. As most of you know chronic appendicitis is very hard to diagnose and to get doctors to agree with that diagnosis. I took about 25 pages of reports and info showing that other doctors had seen this same type of thing with others.

I went to my family doctor and I described my long situation, the info I had found on line and my family history. In 1985 my mother had almost the exact same situation and she ended up going to the mayo clinic where a doctor had said that he wanted to take the appendix out just to see if that was it. She was instantly better after having the appendix removed. I explained this to my family doctor and she said she had seen a couple cases similar to this and she referred me to a surgeon.

I went to the surgeon the next day. I brought all the test results from the ER, the pics from the larposcopy, the OBGYN's surgery notes and all the stuff I found online. I explained the whole situation while he listened and his answer was that there was absolutely nothing wrong with my appendix. I asked him what he thought it was and he had absolutely no answers and no other tests for me to do in order to find an aswer. After explaining about my mothers situation (she was with me) he said that her doctor was a bad surgeon and should have had his license taken away because he had made a bad decision. I told him that if he wouldnt take my appendix out that I would find another doctor that would so it wasnt going to stop me, it would just cause me more pain and time. After arguing back and forth he finally threw his hands in the air and said that he would take my appendix out but he was completly against this and that it would not fix anything. His comment was, "if I am going to start taking out organs that are not having problems why dont I just go in and take our your gallbladder and anything else I see while I am in there." I then said, "why the hell dont you, maybe I will feel better then!"

I was scheduled for a laproscopy appendectomy three days later. He came to see me before surgery and kept repeating that this was a waste of time and money and that nothing was wrong with my appendix. After surgery he came out and spoke to my parents and said that the appendix was perfect and that this was NOT the problem at all. I would be in just as much pain as I was before and we had wasted his time.

A week later while recovering at home I noticed that I had NOT had the pain anymore and that besides healing from surgery I felt much better. I called the doctors office to get the results of the pathology report from my appendix. I was so happy to hear the results that I started to cry while on the phone. The report showed that part of the appendix was hemmoraging and was leaking pus and fluid into my abdominal cavity. The lymph nodes were very swollen and that it appeared that I had ACUTE APPENDICITIS probably a month or two ago but that it had somewhat resolved itself. The pain I was feeling was not only my appendix swelling but the fluid being leaked into my body. I almost fell out of my chair when the nurse told me that based on the report I was very lucky that I had the surgery when I did. She said that I would have ended up with it rupturing and having a serious infection which could be deadly. She said that if would have only been a few days or weeks until I would have really been in bad shape.

So, I find out that after the ER told me I was fine, the OBGYN had taken pics saying it was fine and the surgeon who took it out told me it was fine, IT WAS NOT FINE AND I HAD ACUTE APPENDICITIS FOR ALMOST TWO MONTHS!!!

I have a post-op appointment with the surgeon next week and I can not tell you how excited I am going to be to tell him to go to hell and that he needs to listen to his patients.

I wanted to share my story with you because it is so frustrating when you know that something is wrong and nobody will believe you. Through this ordeal I ended up in the ER four times and got the same answer every single time- your fine, go home. Please take your health in your own hands and fight for your rights. I am happy to say that it has all ended well, but there was no reason for me to go through two months of excruicating pain and suffering because nobody would listen to me.

If anybody needs any advice or would like any more info from me please feel free to write me. It is because of this exact site and a few others that I was able to diagnose myself and search out the right answer. I could have died because nobody listened to me, they just blew me off. I hope this helps other people. By the way I am a 26 year old female. I think that doctors also dont listen to the compaints of women as much or they automatically assume that its a "womans problem". I had two surgeries in two weeks because of all this ordeal. BUT finally I am feeling great.
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replied December 29th, 2009
I suspect chronic appendicitis is more common than current "medical wisdom" holds. I just had it. It was retrocecal appendicitis - appendix was in an unusual location, causing it to act in abnormal ways. That position of the appendix may run in families.

It was finally diagnosed when it finally displayed more classic symptoms. It had ruptured - they think for the third time. An infection behind the cecum is relatively good at walling itself off.

Waht you need to try to do is get them to do a CT scan when you are acutely sick, and not a week or month later. And pain level is actually what they pay the most attention to in the ER.
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replied February 14th, 2010
Great info everyone. I am starting this process right now. Cat scan tomorrow. GP says he does not think it is appendix because white blood count is normal. Pain started in December is on right side and is more of a constant ache then any searing sharp pain but has pretty much become constant now. I had gallbladder removed 10 years ago with same type of stuff going on. Had all the tests done with no gall stones or duct blockages. Went to Gastro who was great and stated he hadnt seen it alot but that once in a while he would come across a case of a chronically inflamed gallbladder with no visable reasons for the inflammation that needed to be removed. he removed and I nearly proposed to him! Within a week i felt great.

I am thinking this maybe the same situation with my appendix. The problem is getting Doc's to believe in this issue which I can see you all have struggled with. i do not have nausea or fever but feel a bit lathargic and have a constant discomfort in right side straight off to right side of belly button and slightly lower. Already did the OBGYN and he's pretty sure this is not a female issue.

Cat scan tomorrow will hopefully tell us more but I absolutely do believe its my dam appendix!!!

Good to read and hear about all that you all have gone through so I have ammo to deal with Docs.
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replied February 14th, 2010
One thibng - my appendix looked fine on CT scan when it wasn't acutely inflamed.
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replied February 14th, 2010
Thanks Villandra. Thats what I am afraid of with mine!
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replied February 14th, 2010
My Appendectomy That Went Very Bad...
Four weeks ago today,I had an attack of severe cramping abdominal pain that causes me to become ill and weak. I have had this attack before, always the same; severe cramping pain putting me on the floor, getting ill, lose all energy, last a few days, and I have experience this for about a year and a half now, happening every couple months. I had many test done to find the cause of this already, but nothing could be found. I was advised to go to emergency when the attack was happening, instead of after the fact.

I went to the ER, after being assessed by doctors I was transferred to another hospital. I was visited by a team of doctors that ran all kinds of tests. I was hooked up to IV, wasn't allowed to eat or drink, and though given Morphine and gravel due to being ill, remained in severe cramping pain that did not allow me to even straighten out my body. the following evening I was told my appendix appeared to "not be the cause but obviously affected by the attack and advised to have it removed before it exploded". I authorized this, which I do regret very much.

They took me into surgery just before midnight that day, and was discharged shortly after waking.

At home, I was of course in great pain, but I also noticed I had a funny sensation under the skin, which was 'crepitus', and was not urinating properly. That afternoon, the left side of my abdominal region began to swell, I became Ill, the swelling became worse. Not ever experiencing surgery before, I did nothing. Next day, my abdominal region is all very swollen and I am in severe pain, and I phone emergency. I explain what is happening, and I am advised to come back immediately.

In the ER I am told I have crepitis, bowels paralyzed from shock of surgery which on occasion happens, experienced many horrible procedures and many tests were done. I develop a hernia and not able to keep down my food, but released after a week.

At home I remain ill, not being able to keep down food and remitted into hospital after a week. More tests are done, found my hernia is cause of the grief and requires immediate operation. This operation went bad and part of my intestines are removed. Four weeks have passed now, I feel I have been tortured, and I am traumatized from this entire experience. I was discharged last only two days ago and still cant walk without pain or stand for very long. Trying to heal and forgive.
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replied February 14th, 2010
My Appendectomy That Went Very Bad...
Four weeks ago today,I had an attack of severe cramping abdominal pain that causes me to become ill and weak. I have had this attack before, always the same; severe cramping pain putting me on the floor, getting ill, lose all energy, last a few days, and I have experience this for about a year and a half now, happening every couple months. I had many test done to find the cause of this already, but nothing could be found. I was advised to go to emergency when the attack was happening, instead of after the fact.

I went to the ER, after being assessed by doctors I was transferred to another hospital. I was visited by a team of doctors that ran all kinds of tests. I was hooked up to IV, wasn't allowed to eat or drink, and though given Morphine and gravel due to being ill, remained in severe cramping pain that did not allow me to even straighten out my body. the following evening I was told my appendix appeared to "not be the cause but obviously affected by the attack and advised to have it removed before it exploded". I authorized this, which I do regret very much.

They took me into surgery just before midnight that day, and was discharged shortly after waking.

At home, I was of course in great pain, but I also noticed I had a funny sensation under the skin, which was 'crepitus', and was not urinating properly. That afternoon, the left side of my abdominal region began to swell, I became Ill, the swelling became worse. Not ever experiencing surgery before, I did nothing. Next day, my abdominal region is all very swollen and I am in severe pain, and I phone emergency. I explain what is happening, and I am advised to come back immediately.

In the ER I am told I have crepitis, bowels paralyzed form shock of surgery which on occasion happens, experienced many horrible procedures and many tests were done. I develop a hernia and not able to keep down my food, but released after a week.

At home I remain ill, not being able to keep down food and remitted into hospital after a week. More tests are done, found my hernia is cause of the grief and requires immediate operation. This operation went bad and part of my intestines are removed. Four weeks have passed now, I feel I have been tortured, and I am traumatized from this entire experience. I was discharged last only two days ago and still cant walk without pain or stand for very long.

I am not sure whether I went through all this because of chronic appendicitis, or if in vain. Trying to heal and forgive.
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replied February 20th, 2010
So CT scan showed nothing. GP wants me to have a colonoscopy so off to another doctor this week to discuss that.
Did any of you experience digestive issues with this? I dont mean nausea and vomiting but a bit milder than that? I occasionally on a day when pain is more intense will get diarrhea and gas, bloating. Then will go a week or two without those symptoms but pain in side will be present. Also, did your appendix pain sometimes radiate to back somewhere around kidney or down into hip? Not a kidney issue that CT said kidneys were fine.

Also, this started out as a sharp pain back in december and is no longer sharp but has become more of a dull ache then anything truly sharp. I believe I read a post where someone on here had acute appendicitis and didnt know it and then scarring or adhesions caused ongoing pain???

Any feedback would be appreciated.

thanks
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replied March 7th, 2010
Natalie,
Reading your post and was wondering if you had any updates?
I am in the same situation, except for my colonoscopy ruled out IBS. Just waiting for my laproscopy and hoping that my appendix looks bad on the outside. If not, I am going back to my doctor for a course of antiboitics...so funny how I got better for 8 weeks after she prescribed them for a suspected PID!
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replied March 19th, 2010
Possible appendicitis? 5 1/2 mo pregnant.
Hi Everyone,

Please help me, I need some recommendations... I am currently 5 1/2 mo pregnant with pain on my right side. I have only had the pain for 3 days, it does appear to be intermintent and it is worse when I am moving or sitting. (Basically when I lay down it goes away.) The pain started approximately 2-3 inches to the right of my belly button and has shifted approximately 5-6 inches from my belly button. My pain is higher than that of "regular" appendicitis cases however from what I have read, that is normal becuase of the baby in my enlarged uteris. I have had a mild fever since last Thur 3/11 it has been hoovering around 99.6 generally I am 97.4, so it is high for me. Yesterday, I started to experience diarrhea. I had a urinalysis done on 3/11 where I was told I had a UTI and then they sent the culture out and it came back negative for UTI. I opted for another test since I didn't want to take the antibiotics if they weren't needed. I got the same results. My white blood cells in my urine are off the charts high. Your not supposed to have any but normal is considered 4-10 and I have more than 100. My Red blood cells in my urine are also elevated 50-100. I am not sure if it is appendicitis or something else... Any help is appreciated.
Thank you in advance.
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replied April 21st, 2010
Hi everyone.

Have looked at so much on the internet i'm really glad i've come across this site. What do you do when your GP thinks your appendix is the problem and your consultant does not believe in chronic appendicitis?

My problem has been going on for years. Firstly started in about 2006 with pain on right side etc. Lots of tests done, CT scan, ultrasound scan, colonoscopy - all ruled out appendix. As a last resort my consultant said he'd give me a laparoscopy but didn't expect to find anything. Had op in 2008 and came round to find that he had removed my gallbladder. That seemed to be the problem. Everything was fine for about 18 months, then the pain has come back. It seems to be in the same sort of place, but more severe. Its always there, though sometimes not as bad as others. Went back to my GP - she believes its chronic appendicitis. Had another ultrasound, bloods etc - picked nothing up so she referred me for a second opinion. Same department, different consultant who asked me "what do you think it is??" Said I wasn't the doctor and didn't know! Told him what my GP thought it was and his exact words were "well do you want your appendix out then?" Told him not unless I needed it. He said it would rule out the possibility of appendix problems but would have to be an elective appendicectomy. Said i'd go ahead. That was nine weeks ago and have just received my operation date - 6 weeks time! Still in a lot of pain, especially when right side is pressed and if I lay on my right side. Really fed up. Feel like i've been feeling ill for years now. Can't get on with my life as this seems to rule everything. Desparately want to go for a new job but how can I when I know i'm going to have an op? Sorry for the whinge, but even though i've got a date for surgery, just worried in case this isn't the answer.
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replied June 8th, 2010
gallbladder removal and elective appendectomy
I am scheduled to have my gallbladder removed on June 18, 2010. I have a history of appendicitis in my family. I asked the doctor if he would go ahead and take out the appendix while he was in there and he said that he would if I wanted. Does anyone have experience with this type of situation?? Thanks amanda
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replied June 11th, 2010
I would definately have it taken out. My GP could never understand when I had my gallbladder removed why they didn't take out appendix at same time. Would have saved me the ordeal of having it removed separately. Especially since there is a history in your family. I've had mine out two weeks ago and have had a horrible time - had post op infection and was back in hospital for four days. Nightmare. Get it all done in one go!
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replied October 29th, 2010
apendix that keep getting swollen and then goes down again
iv had same pain right where my apendix is for years, one day its got so painfull i got a high temp and was sick with great force, i then passed out and woke up 5 hours later still in alot of pain, i dont like ambulancies so i drove to the walk in center doctors, i just said what had happend they started pokeing about all painfull but was realy bad when they took the pressure of after poking right where my apendix are, they got me strait to hopistal, at hospital all docs who had a poke said its apendix and didnt know how i was able to stll stand or walk, they said i should not be able to but i could pain was unbaerable but i had to move, anyway they took me for tests and found a small amount of blood and proteen in my wee, gave me pain killers and other stuff as i had to wait till morning for surgian as they treat you like crap if your from poor area and smoke, next moring surgain came without touching me or asking me many questions at all he said i dont think its apendix, he got nurse to check my wee again, found nothing in it this time, but still said i needed a untrasound scan, so they kept me in there for four days then scaned me, by this time my paind had lessened and was bearable, the scan nurse had trouble finding apendix as it was very low and in unsual place, i asked her whats it like she said its swollen but not badly and i would need it out soon, so back to the ward more waiting the next day surgian came to see me and said there nothing wrong with apendix, and was most likely a upper unairy track infection, bare in mind im a man and not had sex for 8 years, so cant see it being ifection from anything realy, but besides that fact the apendix was swollen on scan so why did he say nothing wrong, i asked him he said well you have bin able to go out for a smoke every hour so nothing wrong with you, when ever i try to get anyone to see me over this its ends up in his hands the surgian, who tells me its in my head and the scan nurses head and all the other docs who think its apendix, im still stuck with this and dont know what to do realy at the moment its getting realy bad again and im not sure i can go thro this again.
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replied November 18th, 2010
appendix symptoms
i have had problem's with right side lower abdumen pain's for twenty five years now. i alway's suspected appendex attack's. now fifty years old, the pain radiat's around my lower right back and is usually worse when i first wake up. usually pain would go away after a several days, then return.i have taken all the test's.when i was thirty, doc said appendix looked blocked when veiwing picture's from barium x ray's , but after twenty something picture's he said it must have cleared and sent me home.
i suspect my appendix has been leaking on and off, causing lower right back pain from pus or what ever leaks,but it's not enough to give me high fever's.i agree that cat scan's are most effective when you are at your peak of pain, not a week later when inflamation is less. my doc say's to wait and see what manifest, but this has been going on for year's. diarria is common for bowel movement's. i test negative for crohn's and colitis.
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replied December 13th, 2010
Heya ,
Its nice to find this forum at last. Been having pains for a week and a half in lower right abdomen, went to doctor 3 days after it started and sent to the hospital to rule out appendicitis or a burst ovarian cyst (I have polycystic ovarian syndrome). Doctor sent me to the hospital where I had bloods and ultrasound, both came back as normal and I was discharged and given painkillers. Still hav lots of pain in right lower abdomen and have completly lost my appetite, in one week I hav lost 6lbs and that's when I'm just lying here doing nothing, woke up this morning feeling feverish, so heading back to doctors to hopefully get this sorted once for all! Just don't feel myself at all at the moment, its nice to see there are other people who are experiencing similar things x
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replied February 10th, 2011
suspcted appendicitus
I have had exactly the same symptoms, severe pain in the lower right hand side, stabbing/ sharp, aching and burning sensations.

This started in September 2010 (20 year old female)and I spend two days in hospital while they investigated (thought it was actue appendicitus) I was sent home. I went back the following week and was taken in again through a&e for more tests. (White cell blood count normal and nothing showing in urine tests both occasions and all the way through this process).

I have been 'diagnosed' with pregnancy (despite numerous pregnancy tests to show I am not!), IBS and one grumpy nurse suggested period pains!! STI's have also been suggested, I took myself to the clinic and got the all-clear there. Ovarian cysts have also been suggested but were ruled out by the following tests:

I have had an ultrasound (while admitted in a&e) and barium small bowel enema (refered by the one helpful doctor in this whole process) which showed that everything was normal.

I kept going back tot he GP's as I was not getting any pain relief despite trying (coedine, paracetmol, ibuprofen, tramodol, buscopan, amitriptyline - lowish dose and am currently taking naproxen which is not working).

Despite none of these working doctors still treated me as if I was making it up. I paid to have a prive consultation and the £200 was worth it to find the helpful doctor (mentioned above!) she also works for the NHS so referred me for a CT scan which showed appendicoliths in my appendix.

My GP told me not to worry as they werent causing my pain - after research on the internet saying that many acute appendix operations showed the presence of these in around 30% of operations in one year I went back to the consultant who has referred me 'urgently' for surgery (a surgeon has looked at my CT results and agrees I need to have the operation). Apparently this takes 1 month . They are now calling it 'appendicular colic'.

Hope something above can help someone, keep going back and making a nuisance of yourself.
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replied February 19th, 2011
I know most people don't know alot about this but it could be a trigger point causing referred pain. If so a a medical massage therapist can help alot and most insurance companies cover it. I had gallbladder and a few lypomas removed just to find I have myofascial pain syndrome with trigger points. If your doctor isn't up to date on this, try a doctor that also practices in alternative medicines. My dr. does both.
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